Tag: Blog

Weekly update: “I had a cunning plan…”

“I’ve got a plan so cunning you could put a tail on it and call it a weasel….” (Blackadder, in Blackadder Series 3, written by Richard Curtis and Ben Elton)

As ever, I had great plans for getting my revamped blog up and running, but things did not go accordingly. The week before last I was knocked flat by very painful endometriosis symptoms. Then last week was extremely busy with two wonderful occasions celebrating my goddaughter and godson’s First Holy Communions.

rosary

The travel involved meant that my chronic pain flared badly, though I am absolutely delighted and thankful we could go and celebrate with them. Their families have become dear friends. I realised I have known my goddaughter’s mum for 17 years. That’s incredible. Looking back it’s quite scary how the time has passed. I’m deeply thankful for her friendship and how she has made my husband and I part of her family, through so many ups and downs and so many times that I have not been able to be the friend I’d want to be and have not been easy to be around.

Here is some baking I did last week for tea with my godson’s family. It’s the first time I have baked since Christmas. It’s therapeutic for me as well as a good way to make a gift. These cakes and tea bread were all gluten free.

baking

Today, we got some more unexpected bad news about my husband’s health, including the fact he needs yet another surgery. A problem we had thought to be relatively minor could be or could become very serious. Coming as it does, clashing with what had been elation at his getting through his previous surgery, this is a shock for him. We are both somewhat stunned. I feel a certainty we can walk through this whatever it leads to, because we have each other, the sacrament of our marriage strengthening us, the unchanging love of God, and good and quick medical care here. I will say more in future posts but it’s another case of “thank goodness it was caught early”.

On the positive side, the doctors are still permitting us to go on our holiday to Greece next week. This will be a very important rest and please God, time of happiness, for my husband before he faces his next surgery. We are going to take things slowly in Greece and take plenty of time to appreciate the little beauties in each day. We will be by the sea for much of the time and I think that itself is healing, through God’s grace.

As you can see, this means I have not been able to do with my blog what I wanted to. I am sorry not to fulfil the schedule I had set out. I don’t want to let you down. I am going to postpone making any major changes until we come back from holiday and I can dedicate particular time each week to this blog. In the meantime I will update when I can and share some of the joy of our travels.

Ginny xxx

 

Going for it – currently making changes – thank you for your understanding

Going for it – currently making changes – thank you for your understanding

Okay. Deep breath.

It’s time to start upgrading this site. It means a great deal to me and I am nervous about doing it. At the same time I really want to make this site better for you, lovely readers, and more meaningful for me and others.

As part of this, I will be changing the name of the blog and changing the layout. I am sorry that in the short term this might make the site appear messy and confusing. Thank you in advance for your patience and understanding. As much as possible, I will try to explain changes as I make them, however at first this may be difficult and there may be some delay before I can write posts. Please bear with me.

As I’ve been looking over this blog in preparation, I have been astounded at how it has developed, albeit gradually. I had no idea that I had written over 300 posts! I’m so grateful to you for following me and for the interest, caring and compassion you have shown so far in your comments. Thank you.

Ginny xxx

I’m sorry – I haven’t forgotten you

I’m sorry I haven’t posted here or visited your blogs in quite a while. I haven’t forgotten you. I know it’s not obligatory but I feel guilty being inconsistent ams not being there for others.

It’s been a few weeks of pretty big changes in my home life, family, friendships, work (or temporary absence of!), finances, therapy – not all the changes are negative however they are all demanding and not necessarily unsettling but all taking energy to work through. Physical pain is still having a big impact on me at the moment and I’ve needed to take things much more slowly than I’d choose. It used to be something I could deal with but now I’m not coping well. I feel as if I’m constantly saying this. It’s not am excuse but it is a big part of my life right now.

There is another event I’ve been struggling with, which has held me back from blogging. I had a really upsetting experience in an internet based support group and blog, in which I had previously trusted, thinking I was finding a reliable source of information, understanding and solidarity with other members as well as being able to offer support to others. I don’t think it is the right time to go into detail here about what happened although I will explain a little more in a future post. Please don’t worry – I’m okay and safe; I was never in any physical danger and I have ceased contact that was proving damaging. Fortunately, I had never divulged personal information like my full name or contact details. Also, just to be clear, this experience was absolutely nothing to do with this blog or any of the lovely people who visit it. It happened somewhere completely different.

The experience has had a big impact on me. I was very distressed. I felt a huge loss although also a huge betrayal. I got very scared of writing anything online, including in my own blog and in messages to anyone, although that is not necessarily rational. My obsessional thoughts were very triggered and the voices got loud. A whole range of feelings and thoughts spiralled out of control about how I trust other people, how I feel about getting support or not and being believed or not; perhaps most scarily, whether I’m harmful to other people without knowing…

On the positive side, the events have brought up lots of issues I need to discuss in therapy. They’ve led me to think about how therapy is changing the way I think. They’ve shown me ways I’ve started to react differently (for example, I did not follow through the compulsion to self-harm).

Most of all, it made me all the more thankful for the genuine and compassionate support everyone who visits this blog has shown me. It’s a rare and precious thing. THANK YOU.

I’m trying to get back into writing, gradually.

Ginny xxx

WHOOPS: An apology from this technology Dodo (…or, doh!-do…)

Erm, so, I’ve just discovered that I’ve been missing a whole load of notifications of replies to comments, especially on your blogs, because I didn’t realise where I was supposed to look for them… think this has been going on ever since I started this blog…Sometimes I get an email notification of replies and comments and so on, but often I don’t, and it turns out there were a whole load of notifications that I’ve been missing. I wasn’t looking in the right place.

I’m so sorry!! Partly it is because of the poor internet access I had until last month but that’s not entirely to blame. I am very new to blogging and I’m not the best with computers and technology especially if I’m posting from my phone.

You are all so supportive and kind and matter so much to me and I feel really rubbish that I’ve missed so many responses and not replied to you. Please accept my huge apologies and know that I am really thankful for all the time you take to write.

Hugs xxx

Ginny x

Finally online!

Finally online!

It feels as though it has been a long wait but finally I have broadband at home. Yay! Now gradually I will be able to get caught up on replies owing here. I’m looking forward to being much more able to visit your blogs too. Thank you for your patience with me during the past weeks of problems with connection and posting.
I’m not too well physically at the moment so I am sorry that it may still take me some time to get caught up.
Hoping you have had a good day.
Ginny xxx

To blog anonymously or not…

When I first started this blog, I was certain that I was going to keep it anonymous. By “anonymous” I mean, for example,  I don’t use my full name, I avoid posting anything that would indicate the town I live in and I do not post photos of myself or my loved ones. Recently, I’ve been wondering whether I might change my approach slightly, for instance, disclosing a little more about me, or sharing photos sometimes, or no longer refraining from talking about local groups, services, activities etc that might give away where I live.

It’s a hard decision. I was talking about it with my friend S who suggested “Why don’t you ask other bloggers what they think?” I thought that was a great idea.

So, I’d like to ask you a question: what do you think about blogging anonymously versus revealing personal details? Was this a difficult issue for you? What led you to choose how much you reveal and whether you write anonymously? If you started your blog anonymously but later decided to share more about yourself, or vice versa, what led you to that decision? If you’d like to make any comments I’d be very grateful. Thank you.

I’ll share a few of my own thoughts on the decision I’m trying to make.

Ironically, it’s partly because some of what I post here about my emotions, experiences and relationships is so very personal that I refrain from sharing personally identifiable information. Many of the experiences I talk about are very painful and intimate, especially those from my childhood. If someone I know as an acquaintance or colleague (rather than a very close friend) came across my blog and learned what had happened to me then I might feel really uncomfortable to say the least. At the start of my blogging, anonymity let me write more freely. Also, I didn’t know what kind of reaction I might meet with. Allowing myself to be identified could have made me vulnerable if I encountered unpleasant or harassing “followers”. In fact this hasn’t happened at all; since I started my blog I’ve been very blessed to have caring and supportive visitors to my pages who have become friends and that’s a huge gift.  THANK YOU! It’s now partly because you have become friends that I’d feel comfortable sharing, and indeed would like to share, a little bit more.

However I also know that if I were to be identified my blog might affect not only me but my friends, family and the professionals who care for me.

I’ve written about relationships breaking down and hurt I feel. I’ve shared sensitive experiences that involved others, such as my childhood abuse and relationships in my family when I was growing up. When I mention someone else I never give their name, only an initial sometimes, but if I were to be identified through my blog by someone who knows me (say, through work or a friend of a friend) then other people I’ve mentioned in my posts potentially are more likely to be identifiable too. It’s a small world, as the saying goes, and I don’t have that many friends! 😉 My friends and family may not want to be identified, or they may be upset. The anonymity of the internet does not give me the right to be horrible about people and I try hard not to write personal things about other people or things I wouldn’t say to the person directly. However I’m inevitably only writing my own experience and perception. In another person’s view it may not be balanced. On the flip side of this, I try to write positive things and express gratitude about the good friends I do have in my life and it would be nice to share more of that.

As well as considering my friends, I have to consider the hospital and my doctors and the therapy programme I attend. There aren’t many specific personality disorder services in the UK and if I say where I live, which hospital I attend will likely become clear to anyone else vaguely local with knowledge of PD. I might worry about anyone making a judgment about the hospital or therapy on the basis of what I write. It’s just me, after all.

Equally there is a lot about the support I get that is great and I would like to share this to help others. Having experienced at least 15 years of mental health issues, slowly I’ve come across sources of support and services that can really really help, some in times of crisis and some day to day. A lot of them are not easy to find. I’d love to write about them and how they’ve helped me, in case this in turn helps others and because I think they deserve recognition. So far I’ve held back so as to avoid revealing my location. Perhaps that is over-cautious of me.

You get the picture that I’m in two minds about this at the moment!

Ginny xxx

Broadband is on the way

Today my support worker helped me arrange getting the internet set up at home. Since I moved in I’ve been relying on the internet in the staffroom at work, on my mobile and in cafes with free WiFi.

It’ll be a huge bonus to have this sorted. I won’t be so slow on replying to your lovely comments! I’ll be much more able to take time to read your blogs. At the moment I feel bad that whilst I write and I really am thankful for the time you all take visiting here, I am not able to reciprocate properly because of my limited internet access. You are so supportive and I feel that you are becoming my friends and I’ll be very happy to be able to be more in touch and read your news.

I’ve shied away from getting the internet at home because of adding the cost of another direct debit to my already dreadful finances. However, my electricity and gas supplier offered me a good deal for supplying broadband and a phone line for the next 18 months. My support worker H has helped me compare some different price options and we figured out that this would actually be cheaper than what I’m spending to get online currently. I’m currently paying extra on my mobile phone bill every month as I have to “bolt on” more data when I go over my allowance. Also wifi may be free in cafes but sitting in the cafe is not as you have to buy something.

Again it was invaluable to have H’s help as making the call to get everything set up and choosing between the different packages on offer was overwhelming. I don’t trust my ability to choose and I panic and find it very hard to hold on to all the facts and numbers in my head. My brain just seems to freeze when the provider speaks so quickly on the phone about unfamiliar terms and charges. I either blank totally or my thoughts and emotions spiral out of control. It really helped having my support worker there to do some of the conversation and to check things with and to help me work out the figures.

So in all, I’m looking forward to being online some time in the next two weeks. I have to wait for the engineer to call to arrange installation.

Ginny xxx

Thank you!!

Thank you!!

Wow. Thank you so much to all of you who have liked / followed / commented on here.

This is my first time blogging and sharing more freely my experiences of mental health is also a relatively new thing for me.  When I began this blog, I really hoped that I would be able to post things which are of interest, which readers can relate to and so in some way help.  I know how much that has helped me.  But I didn’t know where to start.

So, it means a lot that you have taken the time to stop by here and to leave comments and feedback. I know from personal experience when I’m struggling that it is often not easy to share or even to read something so I particularly appreciate what you do.  I’m encouraged that this is a place to find solidarity and share experiences along our paths. Thank you very very much. It has not been a great couple of weeks for me and so it means all the more to me right now to find this encouragement here.

***

On a related note, I’d love to know what you wonderful visitors to this site would like to discuss / me to post about – what topics are particularly interesting or meaningful to you. It’s often comments that friends, some of whom I meet in support and therapy groups, that spark off a new train of thought, a different way of looking at something, a discovery of an unexpected experience in common or a connection I had not made before, and I certainly find this interesting myself when I write and reflect on it.

I’d love to hear from you with any thoughts you’d like to share, questions or suggestions.

Again thank you so very much

Ginny xx