Category: Mental Health in families

Psychosis… trying to process that word…

I saw a psychiatrist at the personality disorder service yesterday. I’d asked if I could have a medication review and talk to someone about my fears about my hallucinations (because of the focus of MBT therapy we don’t really talk about them at length in group or regular 1:1 sessions).

I was scared why are the hallucinations getting worse and why it seemed to be getting harder to know they aren’t real. They used to be voices inside my head. Now they’re often outside and at the time they’re totally real. Only after can I work out they couldn’t have been. And I’m seeing things too.

My mother had hallucinations and I’m just a year younger than she was when she gave birth to me and after that things got really bad for her. So I was scared is the same thing happening to me at the same age?

The psychiatrist was really nice,  understood me, understood my terror, understood the frightening experiences of my childhood and she took more interest in this background than I’d expected. Which was important because it allowed me to tell her about unusual, possibly hallucinatory (is that a word?!) visual experiences as a child and the very strong imaginary world I created to escape into, away from the bizarre experiences day to day caused by my mother’s weird beliefs and behaviour. I told her about feeling I dissociate into different personalities and worlds.

Then we talked about psychosis and schizophrenia. The psychiatrist used the words psychosis and psychotic symptoms for what I was describing. I asked if she thought I had Psychosis as another illness separate from my Borderline PD. She said it is hard to separate because having unusual external experiences is part of Borderline and I could be at a more extreme end of that, worsened by stress and perhaps as therapy is opening things up. Also she thinks I had a sort of ‘propensity’ towards it as a child – I can’t remember the word she used – and this interacted with my mother’s schizophrenic behavior and the abuse to make things worse.

I knew I have hallucinations. I was scared of Psychosis. One of the drugs I take is actually anti psychotic though I didn’t realise that.

It’s still scary that the word psychosis and psychotic symptoms is used for what I have. Partly, I think this is because I fear I’m going to lose all knowledge these things aren’t real and lose contact with the world and become as my mother did. Partly, it’s saying for sure I’m experiencing things that aren’t real. And I’ve so many fears about what’s real and what’s not real. Partly I don’t know yet.

I’m holding on to what the psychiatrist said, that if you keep taking the medication you do not tend to lose the knowledge that the hallucinations aren’t real. They might even go away.

So she’s writing to my GP for changes in my medication and higher dose of the anti psychotic meds.

I don’t know what to think right now. There seems a lot to get my head round again.

Ginny xx

The fear of what lies within

It was my MBT therapy group this morning.

I was very sad at the end and the frightened abandoned child part of me was crying.

I do not want to risk breaking any confidences so I will just say that we shared our feelings and thoughts around abuse suffered, memories, trauma, and times of finding out that a loved or trusted person has done something very very wrong, perhaps the most terrible wrong of violating the most delicate and intimate part of another person’s physical being and emotional soul.

I wish I could write more freely but I am very afraid to break or betray confidences, even though I do not give personal information or write under my real name. Too much rides on that to ever risk it and it would cause too much pain to everyone else in the group.

[Note – at this point I know that my writing that follows has not become very coherent. This post is a lot of things I had to get written down for me and it may not make any sense whatsoever to readers. I am sorry for that. I am not sure that any good can be gained from reading it, actually. I feel I have to write it to start to unravel some of the terror I’m feeling right now about the experiences we explored and to start to pick out some of the emotions. I don’t know well what they are right now. This comes with a warning about painful and scary themes in the writing that follows although because I don’t know if it makes any sense at all, I’m not quite sure what exactly to warn for. It does mention a memory of someone threatening and abusing and physical violence. Just…. warning…. xxx]

I am sad and cold now and desperately wish someone were with me to hold me; to hold me here and tell me what’s real, what’s not real, what’s no longer real, and maybe the hurting child part of me would be protected. She knows only she is wrong and she has harmed and she could drive someone to death – and the flashes come of the terror of finding her, there, like that – and she must be alone and she must know the bad that she has done and if she just watches hard enough perhaps she can get away before it all happens again. But still she’s crying and hurting and nobody comes. Nobody held her, nobody told her it was alright, nobody told her being loved and being able to love didn’t mean being able to get it right enough, disappear enough and fill everything she needed without fail. She cried on her own and she wished alone would stay forever then, in the little room and her make believe world with the “children” she cared for and made real in her mind and for her eyes only, where she didn’t do harm, and later where she was even allowed to cry and someone would hold her and tell her she was good and it would be alright. She could even save people in that world, be brave and strong and rescue and save, suffer hurt herself to protect and save the others. She could slip into that world.

If only the alone time always lasted. If he didn’t come home, didn’t open her door, and know instantly from her frightened watching and sometimes her attempts to block the door, and her mother in her own bedroom in the dark in bed (sleeping? Silent and still, certainly.) If he didn’t come and Mother didn’t get up (one day would she not get up? would it have happened that she’d gone away as she threatened, or even that she was dead?) then alone would last. It was frightening and panicky and hollow but it was safe and she could slip back into the other world, with her “children”. But he always came home. He knew straight away – without a shadow of a doubt she thought this – what had happened that day and what she had “done” to her mother and what had happened and what her mother was going to do because of her. He’d go in to her mother and her mother would tell him what she’d done. Then down they’d come, and he’d be cooking dinner, and the evening and night “session” would start, of Mother crying and screaming and threatening and asking her over and over why she had done it, until Mother came up with the explanation for the evil thing she had done, to punish Mother and get her own back in some twisted way. And the child wouldn’t even understand what the initial deception was supposed to have been, sometimes, let alone how that was punishing. The wrong, you see, was only a wrong if she had intended the evil and the punishment in her action. The action wouldn’t have been wrong without it because it had not any value, it just was. But there was the evil motive and intention and Mother always knew it exactly. And all the time she’d be asking, watching, shouting, accusing. And the child would be crying. Nobody came to her. Nobody helped her. Father comforted Mother, hugged her, sat beside her, stroked her feet and legs, sat with her when she went up to bed when she’d made her so sick she couldn’t cope. He brought Mother the wine and coffee she drank and the cigarettes she chain smoked. (Did he know she threw the glass jars at her? With practised precision to smash into thousands of shards directly at her feet, I know now.) Nobody brought the child anything to comfort her and nobody held her when she cried at the threats and shouting or being left alone when Mother went away and she wondered if that would be the time Mother didn’t come back – look what you’re doing to your Mother… stop crying like that, that’s what people do when they’ve had something really serious happen to them, stop sitting there dripping like a blood machine – and nobody went to her when she cried at night and nobody was there when she got up and was terrified to move and terrified of the stairs. She couldn’t tell anyone when she wet herself because she was too frightened to open the door of her bedroom to go to the bathroom in the night because she thought Mother would be dead outside and that would be the night she would find her – but if she didn’t go out it wouldn’t be real in that child’s mind – she tried to hide the wet things and when Mother found them stuffed into the back of the wardrobe, smelling, she didn’t answer why she had done it. Mother was always there. Father took completely her side and the totality of everything she claimed was the entire truth in his eyes. But nobody was there for that child.

She’s still there and scared and she wants a hug and in the flashbacks she’s all I am and I’m frozen and terrified. She needs someone to take her and not let go and never let go and she really really wants to be real and not be bad, just be the real little girl she is and not the terrible other evil things that Mother said she was doing. Is she a little girl or is she manipulation and evil and danger and damage? Is she real? Is the world she prefers to escape into real? Because it’s so much better and so much safer and it’s there that somebody wants and needs her. Please could she be real.

It really really hurt when Mother did the things she did with her body, in front of the mirror and on the bed and in the bathroom and……. inside…… it really hurt and Mother told her how to breathe so she could do it.

Why didn’t she know it was wrong?

Why was it her normal?

Why didn’t she tell? Why didn’t she stop it?

Especially in the bathroom. Because she was older then. Why did she just let her. Why even when the problems started later did she still not connect it.

Why.

Why is she so dirty and disgusting.

And most terrifying of all what if all this is a lie. What if she’s a foul ugly silly little thing and she’s repeatedly punishing Mother and that’s all this is and it’s all a lie.

Voices. Voices. And crying. Crying tired. Crying for it to stop. Cold.

And was there anything that was good?

****

And what if someone so bad – as what Rev. F. did with the young men… what about me? I thought he was kind to me. I thought he encouraged me. I thought he was kind and he always remembered my name, said hello and said he’d pray for me, and told me hope when I was in the grip of bulimia and losing the plot. I held on to the peace in the evening services as we prayed. But then he did – was doing? – that with the young men. And that was pure hurt and wrong and never never can in any way be alright and so so much harm has been caused to them. What does it mean that I thought something he did was good? What was his thinking when he did the things I thought were good? Would I have become complicit? Why did I think he was kind – someone who could do things like that? Am I so so bad too if I could think he was kind? Am I somehow open to being taken? Taken and used and used to hurt even without knowing?

Yet again. There it is. Used to hurt, doing bad, doing bad without knowing.

Can good be done without good being the intention?

Does that just reinforce that bad can be done without knowing too? Does that mean you can be bad without knowing?

Ginny – – – but not Ginny, really, tonight. Ginny’s got a bit lost right now. Tonight I’m still the frightened child. (Dissociating again.)

I’ve called her Lily – the child. I’ve called her Lily. She’s always there.

Lullaby (5) – Makes my heart smile, to know that you give love so freely

I met my friend and her new baby B. today. She is perfect, beautiful, adorable, cuddly, with inquisitive eyes (when she woke up!), rosy little cheeks and already crowned with lots of soft black hair that loves to stick straight up and you can tell will soon make cute little bunches on top of her head.

There is something very special about the rush of love that fills me when I hold a little child. Much as I fear having my own children and fear I would not know what to do, would not know how to be gentle enough or how to keep my patience when they cry and cry or do not sleep the night for months, or how to know what they need, holding B. today the perfect trust she showed as she cooed and nestled in to me and went to sleep soundly, as though she had found a “safe place” of her own, pulled at my heart with protective love.  As she laid on my chest I knew it was a privilege to be loved by her unconditionally and to protect and adore her and wish to give her everything good.

And B. is not my child – how much more must those feelings be as a mother!

B’s mother, who has encountered with varying degrees of proximity many distressing family and childhood situations, including ill treatment and abuse, said that she has asked herself how inconceivable it is that anyone could ever do a child harm.

Part of me would long for my own family and I have been touched by love for and delight in my friends’ children, including my godchildren. Equally I am stunned that my friends did choose me as a godmother, being so sure myself that I do not have anything good to give and if only they knew how very bad inside and dangerous I really am. I even won’t go to spend time with my friend if her boys will be there, sometimes, because I am so afraid I might do something that hurt them – either unconsciously, in a dissociative state, or because I’m just bad really – or that I would only upset them. If I were a mother I’d be afraid I had no idea how to raise a child, what to give them, how to teach them, and that my patience would run out.

My fears intensified when I was babysitting years ago and the child I was caring for was in the midst of a tantrum and the voices in my head started telling me that I was going to hit her. I was terrified. So terrified that I shut the child in her room and myself into another room and left her alone crying because I thought that was safer than what I was going to do. I was very disturbed afterwards and starved myself in the following days as punishment. I have never babysat since. It was all the proof I needed how the evil was going to erupt from me.

Today B. slept in my arms. Today she just wanted cuddles and love. Today the love cast out some of the fear, whilst I held her. It really touched me that I had been open with my friend about some of the awful things going on in my head – my BPD, my hallucinations and obsessional thoughts – and still she wanted to come to see me and let me hold her child and trusted me.

“For perfect love casts out fear,” the Gospels say. In the moments that little baby melted the fear in my heart, I began to understand.

There’s a fight in my heart and my head right now because as soon as I left my friend and baby B., the anxiety grabbed at me and I’m terrified again; something cold and horrible is clutching at my chest. It’s as though all the knowledge that I’m bad and fears of the evil in me are redoubling their efforts to break me, so as to punish me for loving and trusting and being happy with B. Tonight’s going to be a very hard and scary night. I’m going to try to keep loving.

Ginny xx

This song by Vienna Teng, “Anna Rose”, speaks very much to me of the tender love between a parent and child and the delight children’s non-judgemental acceptance and trust gives us.

Lullaby for a stormy night #4 – Nana’s

I’m continuing my “Lullaby” series on finding places of safety, after something of an intermission – sorry.

The place I felt safest as a child was at my (maternal) grandmother’s – Nana’s. She was the only relative other than my parents with whom I had contact in my childhood, with the exception of a great aunt and her son who I saw on a couple of occasions, and a handful of more distant relatives on my mother’s side who I met at my grandmother’s funeral.

There is a photograph of me aged about 3 or 4, standing on the steps of our house, ready to go to Nana’s for my first night away from home. I am not sure how many times a year I would go to stay at Nana’s, but it was every so often, and until my mother’s first hospital admissions, I believe it was pretty much my only experience of a night away from home without my parents, with the exception of a rare couple of sleepovers at a playmate’s. I did not go to school at the normal age so did not experience school trips and the like.

When I was born, Nana lived in the countryside, but soon moved into a nearby town, and I clearly remember her bungalow, with its grass in the front, the driveway leading down to the neatly kept garden at the back, with flowers and a tiny vegetable plot tucked away in the corner, where she grew mint. I’m sure she grew plenty else but for some reason it’s the mint I remember. Perhaps that’s because when she was boiling new potatoes she’d let me run out to pluck a sprig to flavour them. I remember where she would hide the spare key (there was a rotation of useful plant pots and garden ornaments). I remember ringing the bell at the dark reddish wooden door and looking up and being intrigued by the cowls spinning on top of the roof and the fact that she didn’t have a chimney pot like ours. It’s strange the details that stay with you.

As I got a little older, I would spend two or three nights with her. The routine and stability was comforting and so different from home. I knew we would wake up a little before eight o’clock. I’d jump out of the big bed where I slept and run to “wake” Nana, who would be waiting for me. We’d make plans for the day, then I would help her to set out the table for breakfast with the delicate blue and white crockery, the toast rack, the Rowntrees lime marmalade, the Bran Flakes, the milk jug. I would have Bran Flakes then toast and marmalade. Nana would have Allbran, a banana, then toast and marmalade. Then the great decision had to be made as to whether we’d have our main meal for lunch or supper time.

We’d always wash up before we went out. (To this day I often remember her advice – you should always wash up before you go out. Otherwise if your house got broken in to and the police had to come round, it would look terribly messy. I think that if your house got broken into, it would probably look terribly messy anyway. Nevertheless, good habit I think!)

We’d go out and walk into the town.  This was a completely different experience from going into town with my mother. With my mother, it was preceded by a lengthy preparation of exactly where we would go, who we would see, what we (I) must say, what I must be careful to do and not to do in case anyone was watching; it was followed by an analysis of what had happened, what had been said, in particular my behaviour and numerous comments on how strange things or people we had seen were. With Nana it was fun and free of requirements and consequences. We would often stop to chat to people she knew, from her lawn bowls club, Church, or the hairdresser. Looking back she was clearly warmly thought of and much liked, and known in the local shops like the butcher’s, the optician, the grocer, the market. Even in one of the two supermarkets we frequented, many of the assistants would smile and greet her cheerily.

Often we’d go to the swimming pool (the Lido in the summer, where I learnt to swim, or the fantastic indoor pool in the winter, which had two huge water slides that were too scary for me to ride but fun to watch, a wave machine, a shallow end with bubbles for babies in armbands to bounce through, and the most enjoyable way of entering the pool, by walking down a sloping floor with painted tiles to reach the deeper water, rather as if you were walking into the sea. This was certainly much more fun than just climbing down a ladder and sliding in, as we did when I went with Dad to the pool near home.

Or we’d go to the park. Sometimes it would be the big park where there were plenty of ducks to feed (this was long before the signs telling us how bad bread is for ducks!), paths to follow, pine cones to collect, weeping willows to play under and a play park with a big silver slide. Sometimes it would be the amusement park nearer the bowling green, where there were swings and a see-saw.

We’d talk and chat constantly. She was so very patient and loving with me. I must have exhausted her as I really did chatter a lot as I relaxed and found her also relaxed and happy to listen. She must have been shattered when I went back home! How totally unaware of it I was at the time.

Sometimes I’d tell her about what I had been learning, but without the gripping fear of getting something wrong, at least unless she discussed things with my mother afterwards. Then I knew that there would be another of my mother’s analyses of everything I had said, questions and probing and why hadn’t I done this or said that, why had I given the impression I couldn’t do x, why was I pretending to be stupid…

We’d see the Warden who kept an eye on all the residents in the complex of retirement bungalows. Most mornings she would pop in for a chat and a cup of tea with Nana. The Warden had a sweet little dog called Pepper and we would take her for a walk sometimes. She was about the only dog I was not afraid of at that age. Pepper loved bouncing along on her lead but she thought she was a baby too and would let you hold her on her back in your arms and tickle her tummy.

Nana would tell me about everything from funny things that had happened when she was out shopping or at her bowls club, to what she had done when she was a medical volunteer in the War. We’d water the garden, do the housework and do the cooking (my mother always said that Nana was a bad cook but actually I think she was rather good). In the evenings we’d often watch some TV or one of Nana’s video tapes. The Sound of Music was my first introduction to musicals, and my favourite, closely followed by My Fair Lady. Poor Nana must have been quite fed up of playing those every time I came round, but in the tape went and we’d watch whilst we had a piece of fruitcake or a couple of digestive biscuits and a cup of tea.

Often I’d draw her pictures, or show her my ballet, dancing round the room to one of the cassette tapes she’d play. We’d look at her beautiful glass paperweights and treasures in her display cabinet. A pottery model of an elegant lady in a blue dress and yellow shawl fascinated me. When I was too young to pick it up myself, I’d ask Nana to show it to me, and she always would. There was a brass statue of a dancer which had once turned round and round when you wound up the base, although it had stopped working. I wanted to dance my ballet like that dancer. But Nana would look sad when I asked her about it and I dimly remember her saying that yes, it had got broken a long time ago, but it was very very special. I wonder who gave it to her.

Nana had lost many very dear people in her life, including a brother, a husband and two very close friends. She had suffered serious illness during the War years and nearly died. Just sometimes, when we were together I would glimpse something I did not understand and puzzled at, which I would now say were glimpses of hurt and loss. I do not recall her ever speaking in anger or frustration and very rarely did any sadness show. She was so warm and so calm all the time and in such contrast to my mother. I can only begin to think what I did not know about and what she very rarely ever let on. I don’t think she had surviving siblings (though we had so little contact with the rest of the family that this could be wrong) and I rarely recall her having conversation in depth with my mother, her only child, at least not without that desperate tension building up so quickly. She was there for me. I wonder who was there for her. She did clearly have many friends who were delighted to see her and I hope that she found good support.

Nana and I developed our own play world of make-believe. I’d make up stories to tell her and she loved to listen. I had a very strong imagination (I think it was more than an imagination, but that is for another post). I made up a family for myself, consisting of about five children for me to look after, giving them all names and personalities. Most of them I can’t clearly remember, though I do recall the eldest was called Amanda. She was well behaved and helped me look after her younger sisters.  I’d tell Nana stories about my made up “family” and often write them and draw pictures. Nana would listen so patiently again and really seemed interested and happy to hear about my stories. They’d make her laugh sometimes. I knew very well that it was all make-believe but I revelled in the fantasy play. From visit to visit we’d continue the story where we left off the last time and the “children” I invented would grow steadily older and change. It was a precious thing that I shared with her alone and never told my parents about. It served as a way to explore the ideas of family and children and caring roles and to play out some of the relationships I did not encounter in my real home life. I wonder where I got several of the ideas about caring for my “children”, because I wove into the stories many aspects that did not exist in my own home life, especially structure, security, routine and companionship. Perhaps I learnt a lot of it from Nana.

It was our world only. When Nana died, my mother found a lot of the pictures that I had drawn for her and stories I had written. I remember coming into Nana’s bedroom and finding my mother sitting on the side of her bed, going through the sheets of paper, reading every single one. I was hurt and angry beyond what I can explain. It was not for her. It was for Nana. It was our make believe. Desperately I did not want my mother to see it. I think I feared what would happen because she had. (And yes, it turned out I was right to – though she didn’t say anything to me at the time she did use it as more ammunition against me, a few weeks or months later, to claim that I was pretending and lying and punishing her.)

Looking back I am so touched that Nana cared enough to keep every one of the silly little stories and drawings. I’m astounded she cared that much to keep every one I gave her.

I am so very thankful for what we shared together and that I had this escape to the safety of her house for the few days at a time I would spend with her. I could be a child there. I was not bad there. I was not dangerous. I could please her and not do harm. I could trust her. I could speak. We could hold on to what we shared together and keep it special and I knew that I would find it again the next time that I went to be with her.

I sensed early on that my mother often did not get on well with her mother. Though there were barely ever big arguments between them, at least not in my presence, looking back I can tell that there was a massive amount of tension and I think I sensed this as a child also.

For reasons I still do not fully understand, my mother disliked more and more me going to stay at Nana’s. She was more and more tense, watching harder on the times when she was around at our house (which were becoming rarer still) or when I spoke to her on the telephone. She would quiz me deeper about what she had said, what I had said and why. She talked more and more about how she thought it was not good for me to go to stay with Nana and how she knew that really I did not like it and that it was okay to feel that and that I ought to go to stay with her much less and we’d cut right down the number of times I saw her.

I was terribly confused. I did like it! I loved it! I loved her! I wanted to go and stay with her and I wanted to stay longer and longer and it hurt more and more as I got older when it was time to come away. Because, the terrible thing inside me was that I did not want to come away. I did not want to go back to my mother. When I was older, I felt sick inside when I knew the end of my stay at Nana’s was coming, frightened and dreading returning to my mother. I learned to hide it although a couple of times I couldn’t and I cried and cried. I wanted to be at Nana’s. Not at home. Nana’s was safe. I was full of guilt. Now here was Mother saying that she knew I did not really want to go there and how much better it would be once I stopped having so much contact with her. Then it would all stop, wouldn’t it, and things would be okay again between us, she’d say. What was I to say?

I could not identify at the time the abuse that I was experiencing almost daily, much less tell anyone, or ask for help. All I knew was that it was me. My fault. I was the bad one really. Everyone else would think it was my mother, if anyone ever found out, if anyone ever saw, or heard. Nobody would think a child could be doing what I was. But really, she would know and I would know that it was me. She and my dad would be taken away and it would be all because of me really. What I was doing to her, how I was “demonstrating that I was damaged”, how I was “getting her back” and “punishing” her, she said… Oh yes, I was bad, I knew that clearly. When was it going to happen next? How could I stop it? And look, just in case I doubted how bad I was, I did not even want to be with my mother.

She said everything would stop if I agreed not to go to stay at Nana’s. So, I agreed. Because it seemed to be what I had to do to keep my mother safe, to stop the evil. I regret it so so so much that I ever agreed. With all the love that I had for Nana, everything she did for me, the protection that she gave me, how could I agree that? How could I have agreed that I would see her less? Pretend to agree that I did not want to go to stay? My mother’s control over me and my need to do what she wanted and please her and agree that her version of the world was true, was absolute. In no way does this take away my guilt. I still said it. I still agreed.

Looking back, I think Nana was often perplexed by things my mother did or said, or by what I reported to her she had done or said, or by things my mother said about me to her. In the same way as my father found a way to contain things and hold things down, I think she found her own way of relating to my mother to hold some kind of peace and prevent conflicts and try to repair and fill in the expanding cracks as my mother’s illness fragmented her world more and more away from reality.

I think Mother knew that the cracks were widening in the isolating insulation that she built around us in her illness. I think she knew Nana was realising and that instead of filling them in and papering them over, Nana would no longer accept at all the world my mother built, and it would collide hard with reality and it might crumble.

I wonder what would have happened if I had told Nana. I wonder what would have happened if I’d told Nana that Mother had said that but really, I wanted to be with her and didn’t want to leave. If I had kept telling her the things my mother said to me and did, the things that I think I realised even then, Nana was starting to realise were bizarre and wrong.  On the few occasions I was met with Nana’s confused questions about why Mother had done or said this or that I’d say that oh I must have got it wrong and yes it can’t have been like that. If I had spoken honestly instead of giving in, I wonder what would have happened and whether Mother would have got help sooner and whether my father would have been saved many, many years of pain and whether my relationship with Nana would have grown and I’d have been able to continue to love her and be with her and thank her, eventually, for every safety and security and love she gave to me.

 

I did not speak. I accepted my mother’s world only, and only her view of who and what I was. I agreed with what she wanted.

My idea of time is foggy then. Her illness intensified, stranger and more frightening things happened, she went into hospital… she would be absorbed for hours with paperwork and rather than the constant watching, she did not interact with me at all for large parts of the day… time stretched and slipped and my fantasy world grew stronger.

So I am not sure exactly, whether it was weeks or months or a year, but it was not very long after then that Nana died. I was taken to see her at the funeral home. I remember kissing a white rose to be laid with her so that it would take her my love. I remember looking at her and seeing that young as I was, it was not frightening at all, though I was shocked by the cold in the room.

It hurt so much.

Yet thinking back I think it seemed she was content, ready, and at peace. Though I could not have articulated it at the time, I think I knew that.

It hurt over and over through the very long period it took for her things to be sorted through and her bungalow to be got ready to be sold.  I remember crying alone and trying not to be found upset (though this clearly didn’t work) unable to share what I was feeling with my dad or even less my mother and the hurt and loss being mixed heavily with guilt. I was distraught at the loss all over again whilst very slowly the bungalow was emptied and when I left it for the last time. A part of the safe place and a part of what Nana gave me and what we had shared between the two of us, had remained there to the very end.

In my church, today is All Saints Day, when we remember and give thanks for our loved ones who have passed on ahead of us in the mercy and peace of God and are Saints in Heaven. We pray and give thanks for them and ask for their prayers for us, just as we may ask friends with us on earth to pray for us, since enjoying as they do the fullness of the peace and glory and unity with God in Heaven, all the stronger their prayers will be to assist us. So it is particularly fitting that I remember and thank Nana today. In fact, she was the first person who took me to a church and I vividly recall sitting beside her, singing the hymns, going up to the altar when she received Communion and the Priest blessing me. What I experienced receiving that blessing stays with me, a loving Presence, thought I cannot describe it properly. I believe that the first seeds of love were planted there which would later draw me safe to the Church and our loving Jesus.

I’m praying for everyone who has lost a loved one, who is hurting and in need of comfort and company, and for everyone who struggles with regrets. I’m praying you be encouraged and that hope can be held somewhere that it will be well.

Ginny xx

 

 

 

 

 

 

Hearing things

Hearing things

This post contains discussion of experiencing hallucinations, or sensations, which are not “really there”, as well as in very general and brief terms touching on self-destructive ideas. I put this as a warning because I am not sure whether this may be disturbing, distressing or triggering to anyone. I have discussed this very little before. Please consider not reading further if it may not be helpful to you. Thank you.

I have a question on which I would be very grateful to hear any thoughts or answers.

My understanding is that in borderline personality disorder, heightened states of emotion for a prolonged period of time can cause transient psychosis and that people who have Borderline may experience hallucinations.

A few other people I’ve met who have Borderline have shared that they experience things which I think might be termed hallucinations, for example, hearing voices, sensing presences, seeing people or things, sensations of touch, and so on. These seem to be with varying degrees of – I cannot find an adequate term – solidity? For example, ranging from the sensation of a presence with you or a sound, to clearly and specifically seeing another person in the room.

I’m frightened by hallucination experiences I have.  I know I am more likely to have them when I am in a state of high emotion. Until recently, I was more likely to have them when alone. Most commonly (I think) they are auditory – hearing someone calling my name (most commonly my mother’s voice), hearing something happening or being said again which happened a long time ago (this is closely bound to my experiencing flashbacks as part of my PTSD), hearing a voice which I am aware is in my head but which appears to come from outside of me telling me to do self-destructive things or telling me how stupid, disgusting, ridiculous, greedy etc I am, or hearing non-distinct voices but knowing that it is accompanied by a sense of pain / anger / urgency in some way. Sometimes I am aware that what I am hearing is in my head (like the voice telling me to do things to myself), but increasingly, sometimes I am certain it was in the world outside (like my mother calling me). More recently, the hallucinations are visual as well, for example, inanimate objects seeming to move or shine. I am always aware immediately afterwards that this cannot be real. Or they can be sensory – this tends to be bound up with the flashbacks again, for example, during a flashback believing that the people present when the traumatic thing happened, the people I feared, or just a non-specific sense of terror that is much more an external sensation than emotion should normally be.

These things are all intensifying. I am scared. I fear am I developing psychotic symptoms? I know my mother’s illnesses started to worsen when she was just a little older than me. Is the same thing happening to me? I would like to know, does anyone else with PTSD or personality disorder experience this kind of thing? Or even, if you are not diagnosed with a personality disorder or PTSD, have you ever experienced anything similar? How do you deal with it? At the moment I have an awareness on some level that these things I’m experiencing aren’t real. How do I make sure that I do not lose that?

I know that these are hard questions and personal questions and I understand you may not feel comfortable to answer. Anything you would like to share, I would be very very grateful for. I really do not want to distress anyone or trigger anyone in any way and if discussion of this kind of thing is not helpful for you I do not want to draw you in.

Ginny xx

With thanks for image to: http://freewallpaperdekstop008.blogspot.co.uk/