I was sent home from work today because I got to the point I just could not stand up anymore with the pain and altered sensation in my legs. I had to get a taxi home. Walking was so painful and my mind felt totally out of it and like I was ready to fall asleep or faint. I was trying to take steps but it literally was not working and I felt I was coming to pieces.
I’m scared. Things have crashed so fast. Though it isn’t fast really, as I’ve known for months that physically things were getting worse. But it feels fast, how quick I’ve gone over the edge to not coping.
The mental effects are as frightening as the physical loss of strength and all-encompassing exhaustion. I feel the room is swaying. On the verge of a panic attack for ages. Other times my mind feels frozen. My words get mixed up, the words that come out aren’t what I’m thinking or wanting to say, some stupidly substituted word or mixed up syllables comes out. People talking seem far away. I hear sounds but I cannot piece the words they are saying together. It’s scary, overwhelming noise. Thinking and speaking myself feels like struggling through thick water. The worse the tiredness and pain is, the worse it gets.
Then the worse the anxiety, hallucinations, obsessional thoughts and panic about what is in me and what everyone thinks…
I’m scared how far I’ve crashed so quickly. I’m hoping I’ll be able to find the way forward soon. Maybe with rest in a couple of days my head will feel different. I’m scared I’m going to get all shut away in my head again and lose the benefits people tell me therapy has brought me and that I was starting to see in what I can express or hold in mind.
The state of my mind right now makes me feel more vulnerable than the physical effects.
It’s weird the interaction with the pain and the cognitive struggle to keep a grip and the disconnection from reality, either shut off from emotions, drowning, or feeling too overwhelmed by being scared.
There’s so much I want to ask but can’t articulate.
Everything is slipping and I’m trying to hold on to the fact that even though I don’t have control of my mind right now or control over what’s happening to my body physically, I have a loving God, who will not leave me, whose love is perfect when we are weak; I have family members who care and some good friends who are still there now things are hard.