Eeek :( – shortest post ever?!

I feel wound up like a spring about to explode, really really anxious and really angry with myself.

I start my new job tomorrow. I’m so scared. I have no confidence. I feel like rubbish. I know it could be good. I’m thankful for it and for having something to go to that will fill the day, be constructive, ease financial problems, let me try to contribute something. But I have no confidence at all that I can do it, after everything that went wrong.

I’ve just had no end of technical problems too with the internal website and had to phone up for tech support, who were very unhelpful, and after I had insisted for about 40 minutes that I needed assistance as I could not do essential things I needed to before starting work tomorrow, was basically told by a tech manager that I am rubbish and will not be a good employee and do not fit in with the firm’s ethos!! It was a completely bizarre conversation and a horrible start. Now I’m even more terrified and sure they hate me before I’ve even started. And still haven’t been able to get onto the website to do what I needed to before starting, so it feels like a mess.

Eeeeek….. Dear Lord, help me please….

The only good thing is that I will be seeing a very good friend later this afternoon and I will be very thankful to share in her company.

Ginny xx

Making it home

Today, I had some new furniture delivered – fantastic bargains in a local furniture charity shop. (The large number of charity shops round here is a particular blessing for those of us on a tight budget and possibly more creativity than money 🙂 .) So I spent the best part of the day re-arranging and cleaning and installing the items.

I have been in my flat several months now and it is my first place of my own, as opposed to renting a single room as lodger. I am thankful beyond words to finally have a housing association flat. Without this I would never have been able to afford to rent a whole flat as rents are incredibly high here. I cannot believe this place should be mine and thank the Lord for it every day.

I was a lodger in a family home before moving here. The family could not have been nicer and gave me privacy but I was struggling a lot, just as I had been in all my previous properties. That was probably one reason I moved around so much. Apart from financial issues or having to move when jobs ended and new jobs started, getting to a new place sometimes provided a temporary illusion of escape. When the illusion came crashing down it would just be worse than ever.

Anyhow, at the last place my OCD and obsessional thoughts were very hard to cope with and hide and my anxiety was increased because there was a young baby in the household, which seemed to increase my fears that I would cause people harm. At my worst times, which was becoming most of the time, I would dread bumping into anyone in the shared kitchen and having to speak, so I just stopped preparing food. The close proximity to others made me want to run and hide. So hide I did, in my room, which was the only place to spend time anyway, since there was not a shared lounge, only a kitchen (and bathroom, but that’s not exactly the place for small talk or hanging out). Then once I was in my room for any length of time, I felt trapped. The panic attacks, flashbacks and terrifying thoughts would come and there was literally nowhere to run.  There was not anywhere to go to get a breathing space or a different environment or to be in a different place for a while to help me step out of what was happening in my head. I’d lie on the bed or sit on the chair and do my best to employ the distraction or self-soothing techniques the clinicians told me but feel I was just suffocating in the world inside my head.

I can’t say how helpful it now is to have more space. It turns out that it really is true that you rest better when the bedroom is set apart as a relaxing place. I have the space I need in the kitchen to cook when I am able to. It is rare that I am able to at the moment, for many reasons, but the fact that I have my own kitchen does at least increase the likelihood that I will prepare food. My lounge is cosy and I’m even so fortunate as to have a view out to the communal garden. I have a very tiny garden and a flowerbed and although I do not enjoy gardening, I do like to keep it tidy and there is a certain satisfaction in pulling the weeds from the earth to let the little plants breathe.

In some way, I can begin to make this flat my own. Having a place where I can start to feel safe in the space, make some choices about how to lay it out, use my creativity to make it the way that I enjoy and even bring other people into it, makes it a home. Caring for it (cleaning, tidying, doing the little flower bed outside, feeling thankful for what I have) gives a constructive focus.

Much as I was longing for a home for a long time, I am still surprised at the difference that it makes to have one. Often I do not realise the value of doing something quite simple towards making it more of a home – such as tidying and choosing how to arrange things, as I did today, or perhaps painting the walls the colour that you like. Even on the very bad days, being in this home makes it slightly better, somehow. Maybe it’s a little bit less scary, a little bit safer, a little less unpredictable, a little more space, or a little bit more of beautiful or positive things around me.

Thank you dear Lord, for HOME.

Ginny xx

 

My new way to relax

swirls

Currently, one of my preferred ways to relax whilst I’m alone at home watching TV or the like, is colouring in complex swirly patterns like this one. It can switch off some of the thoughts for a while, passes time and gives a creative focus outside of oneself, even a way to practice mindfulness. The results can even be used for something pretty, for instance, made into pictures or coasters. Seeing something lovely that you have managed to create, despite perhaps feeling depressed or low, can be encouraging. It is a relatively cheap hobby, especially as at the moment we seem to be fortunate that there is a range of “colouring books for grown-ups” around, often to be found in discount book stores / stationers’ / supermarkets. No doubt you could find template patterns on line as well, which could work if you have access to a printer. Then all that is required is a packet of crayons or coloured pens (note to self, curb tendency to multi-buy pretty pens!).

Happy colouring! 🙂

Ginny xx

Deeper Still

I feel so tired and cold inside today. Last night and this morning my emotions were rocking between extremes of sadness and anxiety and hurt and I cannot justify any of it. Now, even though I have done some nice things today and received some very good news, which really is a gift – I went to coffee group this morning so I was not on my own, and my offer of work was finalised which means I will have some form of financial security – despite all these things, instead of feeling thankful, I’m feeling scared, empty, useless, lost and numb. I’ve slipped into that cold state of feeling that I am only watching and desperately wishing I were not alone, sad but angry with myself at the same time.

These times make me doubt even more what’s really in my heart.

I’ve been listening to this prayer song :-

Deeper Still by Bebo Norman

She turned her head as if to hide, there was just nowhere to go. ‘Cause standing tall on every side, the mighty fear of letting go. She said, my God I’m so ashamed, thirty years a tragedy. I still believed that he could change, but he pulled me down like gravity.
He broke my will, but it’s deeper still, deeper still .

She told me morning was the time, when the sun burned bright and clean, and love grew fragile on the vine, all wrapped up in gold and green. ‘Cause after all we know we all are after all the same things – but for the sun no rain would fall, and it burned him up and turned him mean.
This fire that kills me, it’s deeper still, deeper still.
Tonight I rose up with the moon, and looking down from high above, I saw a world carved and confused into valleys deep in need of love, and falling down all thick with grace, Heaven’s cloud of mystery was filling every empty space, down to the depth of human need.
This love that heals, it’s deeper still.

Love that heals me, love that heals me, love that’s deeper still.

This love that heals me, it’s deeper still, it’s deeper still.

“Broke my will, but it’s deeper still; this fire that kills me is deeper still; and filling every empty space, Heaven’s cloud of mystery – this love that heals is deeper still.” This is the only thing that lets me carry on in these times. Without it I am nothing. The promise that no matter how black and cold it is in our reality of this moment, how matter how much we are hurting, no matter how much we fear what is within us, what is always deeper still is God’s love for us that created us to do good, God’s love that longs to fill us in every empty depth of our hearts.

I hate what I see that I am and the fight that goes on in my head and the frozen darkness that stops me seeing anything good. But this does not change the truth that God is love, God is beside us on this road, and the greater my emptiness and my need, all I have to do is cry out to Him, plainly admitting how things are and everything I cannot change. Then, deeper still, deeper still, will He come into my need and sustain me.

https://www.youtube.com/watch?v=xJ7g9Gf64ns – not my video. With grateful thanks to Marco Bonaccorso. From Bebo Norman’s album “Ten Thousand Days”.

Ginny xx

Lullaby for a stormy night #4 – Nana’s

I’m continuing my “Lullaby” series on finding places of safety, after something of an intermission – sorry.

The place I felt safest as a child was at my (maternal) grandmother’s – Nana’s. She was the only relative other than my parents with whom I had contact in my childhood, with the exception of a great aunt and her son who I saw on a couple of occasions, and a handful of more distant relatives on my mother’s side who I met at my grandmother’s funeral.

There is a photograph of me aged about 3 or 4, standing on the steps of our house, ready to go to Nana’s for my first night away from home. I am not sure how many times a year I would go to stay at Nana’s, but it was every so often, and until my mother’s first hospital admissions, I believe it was pretty much my only experience of a night away from home without my parents, with the exception of a rare couple of sleepovers at a playmate’s. I did not go to school at the normal age so did not experience school trips and the like.

When I was born, Nana lived in the countryside, but soon moved into a nearby town, and I clearly remember her bungalow, with its grass in the front, the driveway leading down to the neatly kept garden at the back, with flowers and a tiny vegetable plot tucked away in the corner, where she grew mint. I’m sure she grew plenty else but for some reason it’s the mint I remember. Perhaps that’s because when she was boiling new potatoes she’d let me run out to pluck a sprig to flavour them. I remember where she would hide the spare key (there was a rotation of useful plant pots and garden ornaments). I remember ringing the bell at the dark reddish wooden door and looking up and being intrigued by the cowls spinning on top of the roof and the fact that she didn’t have a chimney pot like ours. It’s strange the details that stay with you.

As I got a little older, I would spend two or three nights with her. The routine and stability was comforting and so different from home. I knew we would wake up a little before eight o’clock. I’d jump out of the big bed where I slept and run to “wake” Nana, who would be waiting for me. We’d make plans for the day, then I would help her to set out the table for breakfast with the delicate blue and white crockery, the toast rack, the Rowntrees lime marmalade, the Bran Flakes, the milk jug. I would have Bran Flakes then toast and marmalade. Nana would have Allbran, a banana, then toast and marmalade. Then the great decision had to be made as to whether we’d have our main meal for lunch or supper time.

We’d always wash up before we went out. (To this day I often remember her advice – you should always wash up before you go out. Otherwise if your house got broken in to and the police had to come round, it would look terribly messy. I think that if your house got broken into, it would probably look terribly messy anyway. Nevertheless, good habit I think!)

We’d go out and walk into the town.  This was a completely different experience from going into town with my mother. With my mother, it was preceded by a lengthy preparation of exactly where we would go, who we would see, what we (I) must say, what I must be careful to do and not to do in case anyone was watching; it was followed by an analysis of what had happened, what had been said, in particular my behaviour and numerous comments on how strange things or people we had seen were. With Nana it was fun and free of requirements and consequences. We would often stop to chat to people she knew, from her lawn bowls club, Church, or the hairdresser. Looking back she was clearly warmly thought of and much liked, and known in the local shops like the butcher’s, the optician, the grocer, the market. Even in one of the two supermarkets we frequented, many of the assistants would smile and greet her cheerily.

Often we’d go to the swimming pool (the Lido in the summer, where I learnt to swim, or the fantastic indoor pool in the winter, which had two huge water slides that were too scary for me to ride but fun to watch, a wave machine, a shallow end with bubbles for babies in armbands to bounce through, and the most enjoyable way of entering the pool, by walking down a sloping floor with painted tiles to reach the deeper water, rather as if you were walking into the sea. This was certainly much more fun than just climbing down a ladder and sliding in, as we did when I went with Dad to the pool near home.

Or we’d go to the park. Sometimes it would be the big park where there were plenty of ducks to feed (this was long before the signs telling us how bad bread is for ducks!), paths to follow, pine cones to collect, weeping willows to play under and a play park with a big silver slide. Sometimes it would be the amusement park nearer the bowling green, where there were swings and a see-saw.

We’d talk and chat constantly. She was so very patient and loving with me. I must have exhausted her as I really did chatter a lot as I relaxed and found her also relaxed and happy to listen. She must have been shattered when I went back home! How totally unaware of it I was at the time.

Sometimes I’d tell her about what I had been learning, but without the gripping fear of getting something wrong, at least unless she discussed things with my mother afterwards. Then I knew that there would be another of my mother’s analyses of everything I had said, questions and probing and why hadn’t I done this or said that, why had I given the impression I couldn’t do x, why was I pretending to be stupid…

We’d see the Warden who kept an eye on all the residents in the complex of retirement bungalows. Most mornings she would pop in for a chat and a cup of tea with Nana. The Warden had a sweet little dog called Pepper and we would take her for a walk sometimes. She was about the only dog I was not afraid of at that age. Pepper loved bouncing along on her lead but she thought she was a baby too and would let you hold her on her back in your arms and tickle her tummy.

Nana would tell me about everything from funny things that had happened when she was out shopping or at her bowls club, to what she had done when she was a medical volunteer in the War. We’d water the garden, do the housework and do the cooking (my mother always said that Nana was a bad cook but actually I think she was rather good). In the evenings we’d often watch some TV or one of Nana’s video tapes. The Sound of Music was my first introduction to musicals, and my favourite, closely followed by My Fair Lady. Poor Nana must have been quite fed up of playing those every time I came round, but in the tape went and we’d watch whilst we had a piece of fruitcake or a couple of digestive biscuits and a cup of tea.

Often I’d draw her pictures, or show her my ballet, dancing round the room to one of the cassette tapes she’d play. We’d look at her beautiful glass paperweights and treasures in her display cabinet. A pottery model of an elegant lady in a blue dress and yellow shawl fascinated me. When I was too young to pick it up myself, I’d ask Nana to show it to me, and she always would. There was a brass statue of a dancer which had once turned round and round when you wound up the base, although it had stopped working. I wanted to dance my ballet like that dancer. But Nana would look sad when I asked her about it and I dimly remember her saying that yes, it had got broken a long time ago, but it was very very special. I wonder who gave it to her.

Nana had lost many very dear people in her life, including a brother, a husband and two very close friends. She had suffered serious illness during the War years and nearly died. Just sometimes, when we were together I would glimpse something I did not understand and puzzled at, which I would now say were glimpses of hurt and loss. I do not recall her ever speaking in anger or frustration and very rarely did any sadness show. She was so warm and so calm all the time and in such contrast to my mother. I can only begin to think what I did not know about and what she very rarely ever let on. I don’t think she had surviving siblings (though we had so little contact with the rest of the family that this could be wrong) and I rarely recall her having conversation in depth with my mother, her only child, at least not without that desperate tension building up so quickly. She was there for me. I wonder who was there for her. She did clearly have many friends who were delighted to see her and I hope that she found good support.

Nana and I developed our own play world of make-believe. I’d make up stories to tell her and she loved to listen. I had a very strong imagination (I think it was more than an imagination, but that is for another post). I made up a family for myself, consisting of about five children for me to look after, giving them all names and personalities. Most of them I can’t clearly remember, though I do recall the eldest was called Amanda. She was well behaved and helped me look after her younger sisters.  I’d tell Nana stories about my made up “family” and often write them and draw pictures. Nana would listen so patiently again and really seemed interested and happy to hear about my stories. They’d make her laugh sometimes. I knew very well that it was all make-believe but I revelled in the fantasy play. From visit to visit we’d continue the story where we left off the last time and the “children” I invented would grow steadily older and change. It was a precious thing that I shared with her alone and never told my parents about. It served as a way to explore the ideas of family and children and caring roles and to play out some of the relationships I did not encounter in my real home life. I wonder where I got several of the ideas about caring for my “children”, because I wove into the stories many aspects that did not exist in my own home life, especially structure, security, routine and companionship. Perhaps I learnt a lot of it from Nana.

It was our world only. When Nana died, my mother found a lot of the pictures that I had drawn for her and stories I had written. I remember coming into Nana’s bedroom and finding my mother sitting on the side of her bed, going through the sheets of paper, reading every single one. I was hurt and angry beyond what I can explain. It was not for her. It was for Nana. It was our make believe. Desperately I did not want my mother to see it. I think I feared what would happen because she had. (And yes, it turned out I was right to – though she didn’t say anything to me at the time she did use it as more ammunition against me, a few weeks or months later, to claim that I was pretending and lying and punishing her.)

Looking back I am so touched that Nana cared enough to keep every one of the silly little stories and drawings. I’m astounded she cared that much to keep every one I gave her.

I am so very thankful for what we shared together and that I had this escape to the safety of her house for the few days at a time I would spend with her. I could be a child there. I was not bad there. I was not dangerous. I could please her and not do harm. I could trust her. I could speak. We could hold on to what we shared together and keep it special and I knew that I would find it again the next time that I went to be with her.

I sensed early on that my mother often did not get on well with her mother. Though there were barely ever big arguments between them, at least not in my presence, looking back I can tell that there was a massive amount of tension and I think I sensed this as a child also.

For reasons I still do not fully understand, my mother disliked more and more me going to stay at Nana’s. She was more and more tense, watching harder on the times when she was around at our house (which were becoming rarer still) or when I spoke to her on the telephone. She would quiz me deeper about what she had said, what I had said and why. She talked more and more about how she thought it was not good for me to go to stay with Nana and how she knew that really I did not like it and that it was okay to feel that and that I ought to go to stay with her much less and we’d cut right down the number of times I saw her.

I was terribly confused. I did like it! I loved it! I loved her! I wanted to go and stay with her and I wanted to stay longer and longer and it hurt more and more as I got older when it was time to come away. Because, the terrible thing inside me was that I did not want to come away. I did not want to go back to my mother. When I was older, I felt sick inside when I knew the end of my stay at Nana’s was coming, frightened and dreading returning to my mother. I learned to hide it although a couple of times I couldn’t and I cried and cried. I wanted to be at Nana’s. Not at home. Nana’s was safe. I was full of guilt. Now here was Mother saying that she knew I did not really want to go there and how much better it would be once I stopped having so much contact with her. Then it would all stop, wouldn’t it, and things would be okay again between us, she’d say. What was I to say?

I could not identify at the time the abuse that I was experiencing almost daily, much less tell anyone, or ask for help. All I knew was that it was me. My fault. I was the bad one really. Everyone else would think it was my mother, if anyone ever found out, if anyone ever saw, or heard. Nobody would think a child could be doing what I was. But really, she would know and I would know that it was me. She and my dad would be taken away and it would be all because of me really. What I was doing to her, how I was “demonstrating that I was damaged”, how I was “getting her back” and “punishing” her, she said… Oh yes, I was bad, I knew that clearly. When was it going to happen next? How could I stop it? And look, just in case I doubted how bad I was, I did not even want to be with my mother.

She said everything would stop if I agreed not to go to stay at Nana’s. So, I agreed. Because it seemed to be what I had to do to keep my mother safe, to stop the evil. I regret it so so so much that I ever agreed. With all the love that I had for Nana, everything she did for me, the protection that she gave me, how could I agree that? How could I have agreed that I would see her less? Pretend to agree that I did not want to go to stay? My mother’s control over me and my need to do what she wanted and please her and agree that her version of the world was true, was absolute. In no way does this take away my guilt. I still said it. I still agreed.

Looking back, I think Nana was often perplexed by things my mother did or said, or by what I reported to her she had done or said, or by things my mother said about me to her. In the same way as my father found a way to contain things and hold things down, I think she found her own way of relating to my mother to hold some kind of peace and prevent conflicts and try to repair and fill in the expanding cracks as my mother’s illness fragmented her world more and more away from reality.

I think Mother knew that the cracks were widening in the isolating insulation that she built around us in her illness. I think she knew Nana was realising and that instead of filling them in and papering them over, Nana would no longer accept at all the world my mother built, and it would collide hard with reality and it might crumble.

I wonder what would have happened if I had told Nana. I wonder what would have happened if I’d told Nana that Mother had said that but really, I wanted to be with her and didn’t want to leave. If I had kept telling her the things my mother said to me and did, the things that I think I realised even then, Nana was starting to realise were bizarre and wrong.  On the few occasions I was met with Nana’s confused questions about why Mother had done or said this or that I’d say that oh I must have got it wrong and yes it can’t have been like that. If I had spoken honestly instead of giving in, I wonder what would have happened and whether Mother would have got help sooner and whether my father would have been saved many, many years of pain and whether my relationship with Nana would have grown and I’d have been able to continue to love her and be with her and thank her, eventually, for every safety and security and love she gave to me.

 

I did not speak. I accepted my mother’s world only, and only her view of who and what I was. I agreed with what she wanted.

My idea of time is foggy then. Her illness intensified, stranger and more frightening things happened, she went into hospital… she would be absorbed for hours with paperwork and rather than the constant watching, she did not interact with me at all for large parts of the day… time stretched and slipped and my fantasy world grew stronger.

So I am not sure exactly, whether it was weeks or months or a year, but it was not very long after then that Nana died. I was taken to see her at the funeral home. I remember kissing a white rose to be laid with her so that it would take her my love. I remember looking at her and seeing that young as I was, it was not frightening at all, though I was shocked by the cold in the room.

It hurt so much.

Yet thinking back I think it seemed she was content, ready, and at peace. Though I could not have articulated it at the time, I think I knew that.

It hurt over and over through the very long period it took for her things to be sorted through and her bungalow to be got ready to be sold.  I remember crying alone and trying not to be found upset (though this clearly didn’t work) unable to share what I was feeling with my dad or even less my mother and the hurt and loss being mixed heavily with guilt. I was distraught at the loss all over again whilst very slowly the bungalow was emptied and when I left it for the last time. A part of the safe place and a part of what Nana gave me and what we had shared between the two of us, had remained there to the very end.

In my church, today is All Saints Day, when we remember and give thanks for our loved ones who have passed on ahead of us in the mercy and peace of God and are Saints in Heaven. We pray and give thanks for them and ask for their prayers for us, just as we may ask friends with us on earth to pray for us, since enjoying as they do the fullness of the peace and glory and unity with God in Heaven, all the stronger their prayers will be to assist us. So it is particularly fitting that I remember and thank Nana today. In fact, she was the first person who took me to a church and I vividly recall sitting beside her, singing the hymns, going up to the altar when she received Communion and the Priest blessing me. What I experienced receiving that blessing stays with me, a loving Presence, thought I cannot describe it properly. I believe that the first seeds of love were planted there which would later draw me safe to the Church and our loving Jesus.

I’m praying for everyone who has lost a loved one, who is hurting and in need of comfort and company, and for everyone who struggles with regrets. I’m praying you be encouraged and that hope can be held somewhere that it will be well.

Ginny xx

 

 

 

 

 

 

Hearing things

Hearing things

This post contains discussion of experiencing hallucinations, or sensations, which are not “really there”, as well as in very general and brief terms touching on self-destructive ideas. I put this as a warning because I am not sure whether this may be disturbing, distressing or triggering to anyone. I have discussed this very little before. Please consider not reading further if it may not be helpful to you. Thank you.

I have a question on which I would be very grateful to hear any thoughts or answers.

My understanding is that in borderline personality disorder, heightened states of emotion for a prolonged period of time can cause transient psychosis and that people who have Borderline may experience hallucinations.

A few other people I’ve met who have Borderline have shared that they experience things which I think might be termed hallucinations, for example, hearing voices, sensing presences, seeing people or things, sensations of touch, and so on. These seem to be with varying degrees of – I cannot find an adequate term – solidity? For example, ranging from the sensation of a presence with you or a sound, to clearly and specifically seeing another person in the room.

I’m frightened by hallucination experiences I have.  I know I am more likely to have them when I am in a state of high emotion. Until recently, I was more likely to have them when alone. Most commonly (I think) they are auditory – hearing someone calling my name (most commonly my mother’s voice), hearing something happening or being said again which happened a long time ago (this is closely bound to my experiencing flashbacks as part of my PTSD), hearing a voice which I am aware is in my head but which appears to come from outside of me telling me to do self-destructive things or telling me how stupid, disgusting, ridiculous, greedy etc I am, or hearing non-distinct voices but knowing that it is accompanied by a sense of pain / anger / urgency in some way. Sometimes I am aware that what I am hearing is in my head (like the voice telling me to do things to myself), but increasingly, sometimes I am certain it was in the world outside (like my mother calling me). More recently, the hallucinations are visual as well, for example, inanimate objects seeming to move or shine. I am always aware immediately afterwards that this cannot be real. Or they can be sensory – this tends to be bound up with the flashbacks again, for example, during a flashback believing that the people present when the traumatic thing happened, the people I feared, or just a non-specific sense of terror that is much more an external sensation than emotion should normally be.

These things are all intensifying. I am scared. I fear am I developing psychotic symptoms? I know my mother’s illnesses started to worsen when she was just a little older than me. Is the same thing happening to me? I would like to know, does anyone else with PTSD or personality disorder experience this kind of thing? Or even, if you are not diagnosed with a personality disorder or PTSD, have you ever experienced anything similar? How do you deal with it? At the moment I have an awareness on some level that these things I’m experiencing aren’t real. How do I make sure that I do not lose that?

I know that these are hard questions and personal questions and I understand you may not feel comfortable to answer. Anything you would like to share, I would be very very grateful for. I really do not want to distress anyone or trigger anyone in any way and if discussion of this kind of thing is not helpful for you I do not want to draw you in.

Ginny xx

With thanks for image to: http://freewallpaperdekstop008.blogspot.co.uk/

“When God closes a door, somewhere He opens a window.” Then again, if one door closes when another one opens, your house is probably haunted.

“When God closes a door, somewhere He opens a window.” Then again, if one door closes when another one opens, your house is probably haunted.

What a week of decisions and emotions rocketing out of control.

I resigned from my job on Wednesday. (My post “not working out” explains some of the reasons behind this.) It has to be one of the hardest decisions I have made and I can only begin to describe the feelings around it. It wasn’t a hastily made decision and came after months of trying to make things better and stay in my job. I am very sad because I had wanted to stay in that role for a long time. I wanted to be able to give back to the firm, to thank them for keeping me on after I was off sick with three hospital admissions at the end of last year and in January 2015 and for letting me come back part time (in principle at least). I owed them. Also as I am longing for some stability and security. Also because I had met two colleagues who were very special and I felt privileged to work with them, clicheed as that may sound. They were kind and compassionate and thinking and brought something much needed, special and rare to the team. I learned from them. I really hope we stay in touch.

Having said that, I do know I feel that this choice is going to be better for my health. I have had to leave jobs before, but it has been a question of giving up at the point I am totally exhausted and cannot cope anymore, my health is spiralling down (well that part still applies, I guess!) and have lost all hope and there just seems to be nothingness. This time, it doesn’t feel like nothing. Making this choice, I have borne in mind being able to be stable and being able to find a job I can sustain whilst also having some balance in my life – being able to do some work but also not being so utterly drained from coping with it that I can’t do anything else (I stop eating properly, can’t look after my home, don’t do housework, cut myself off and have even less contact with friends than I usually do, can’t manage my finances because I’m so vulnerable to giving in to impulsivity). I have also borne in mind being able to fully participate in the treatment programme I’m in at the moment – getting to appointments, being able to be present in them not having to keep part of me shut off because I will not be able to bear the pain of openness and exposure necessary to examine thoughts and emotions and relationships, if I am then to rush back to work afterwards and somehow keep it together.

Admitting my limitations and my fragility at the moment takes humility and trust in the support systems that are there at the hospital community team and willingness to make myself vulnerable in order to begin to learn. Knowing what I fear, what I love, what I care about, what I struggle with, what I feel, what I think; learning to understand what is in other people’s minds and hearts and how to be able to reach out and walk forward, to respond to what I feel from them without being terrified or crushed and without the spiralling storms of thoughts in my head obsessionally spinning, trying to prevent disaster…. This takes energy, hope and a space in which it is possible to be vulnerable but not crushed and somehow also hold on to hope despite knowing all I cannot, at the moment, do.

I feel so many things right now. The actual meeting on Wednesday was made much easier for me than I thought that it would be. I was surprised to encounter compassion I did not expect. I was pleased to find that there is someone who has come as a temp into my post and who seemed very calm and very nice, so I know that the team I used to work for do have secretarial help. I was very thankful to get to speak to two colleagues in particular – and I really, really hope that we will be able to stay in contact – and to leave a couple of notes. I was reassured to be able to “hand over” on a few points of work  to be assured that things will not be lost or forgotten (though as ever I’ve remembered so many more things I should have let people know – where things are kept, where things are up to, etc, etc!).

It was a very very hard day with the highest anxiety for a long length of time that I have experienced for a while. I cried a lot. I walked a lot, trying to stay out of the flat where I’d be alone, to at least be around people if not with anyone, because I would be less likely to crumple completely that way and give in to the self-destructive urges.

It was done.

And somehow I did get through that night to the next morning, even though it was one of those nights where I hurt so much it blacked out everything else. I know it sounds so terribly ridiculous writing this. So childish and stupid and self-centred and incapable. It is no disaster or tragedy and it is a very very little thing in the scheme of things. Everyone else will move on in an instant. Yet that is the reality of what these things are for me at the moment. I am ashamed afterwards and feel ridiculous thinking how much I felt it would be impossible for emotion to pass but at the time it is absolutely that complete and total that it as if a cloud or a wall has fallen over every other factor in my world, enclosing me in spiralling thoughts and plunging emotions and frightening voices.

***

I can’t really describe what I’m feeling now. After the meeting on Wednesday, more happened, which left me feeling further conflicted and intensifying the guilt I feel over leaving and that I really should have been able to keep doing it. I think these will have to wait for another post.

This week there were many little gifts too. I started applying for other jobs. It is incredibly fortunate that I came to my decision at the time that there is an abundance of Christmas work which gave me more hope of being able to find something, at least temporary. Trying to keep focus I took a deep breath and a lot of coffee (not at exactly the same time 😉 ) and redid my CV, walked round town to clock the job adverts in windows and shopping centres and made several applications. Thanks be to God that once I had got over the initial frozen feeling (which was a hard fight) it was not as awful as I had felt it would be.

My confidence is very low right now and I was so frightened walking in to shops to give my applications, actually physically feeling I was shaking. It was not helped by a couple of very difficult experiences. I went into one store to give in my application and went up to the two assistants who were chatting to each other. Instantly I felt incredibly intimidated and uncomfortable and that they thought I was ridiculous. Swallowing my feelings I spoke with the supervisor and handed in my application and she told me she would pass it on to her manager and I thanked her and turned to leave.  As I was walking out I am certain that she and her colleague burst into laughter and made comments about me. I was shaken, not least because instantly I did not know, had that actually happened? Had they actually laughed and teased or had I imagined it and heard it all in my head because I was so much expecting that to be what people would really think of me? I still have no answer. I am just trying not to think of it.

That one clearly was not going to go forward, but I did have some better news and was extremely surprised and thankful to be offered two interviews, including one for a sales assistant in a department store. The selection process was scary for me because after quite in-depth online testing it involved a group task assessment as well as individual assessment. Though I did not feel that I had done well and looking back, could see so many things I had done wrong and ways I should have responded differently – and again, so many ways people would see how stupid I am – I did also somehow manage to enjoy some of it and enjoy being with the people I met, which had to be a good sign, I thought. It suggested I would find some common ground with colleagues and be able to interact with them. It was interesting too. The managers who were present seemed supportive and one was even encouraging when I needed to discuss my health/disability needs – straight away she said that she thought it would certainly be possible to adjust my hours so that I could attend all my hospital appointments.

A couple of days later, I was absolutely astounded to receive a conditional offer! In a very hard week this was a very precious gift! Not least because this means that things will not be completely terrible financially in the next few weeks, though this is a major source of anxiety, both because I will be working fewer hours so managing with a much lower salary, and because in times of distress and anxiety I can be much less able to resist the impulsive urges that come as part of BPD, and one area in which I can be far far too impulsive and irresponsible is spending money.

I still cannot believe it and it does not seem real and I do not think I will quite dare to count on it until I actually get to my first day. I’ve been completing the final questionnaires and going through the health screen, which was much less uncomfortable than I had expected – I’ll post about that another day soon because it certainly was food for thought – and was passed fit with a couple of suggested “reasonable adjustments”.

I thank the Lord for this opportunity. Yet again, it is a situation I did not think I would be in, which I really did not want to come to. Something I really counted on – being able to have a little bit of trust that I could do my work and do a good job and try to please and help people – was taken away and even seemed never to have been real, when I discovered how poorly everyone thought I was performing and how little they thought I could cope. But there is a better way forward being illuminated bit by bit and right now (since this is a moment of relative rationality!) I can remember that we may not be where we planned to be, but we are right where God needs us to be.

“When the Lord closes a door, somewhere He opens a window.” I hope it will be a French window because otherwise it’ll be a bit tricky to walk through, not that I’d complain at this point.

Ginny xx

(Title – first line from “The Sound of Music”; second line adapted from a funny meme someone sent me a while back – I am not sure whose was the original idea.)

Sitting with uncertainty – Part 2

Sitting with uncertainty – Part 2

I apologise for not writing this Part 2 yesterday as hoped.  I had a weekend away for a very dear friend’s 80th birthday. It was special and lovely but I was very drained when I got home and I did not manage to write. I’m sorry.

***

I am starting to realise that it is terribly difficult for me when I realise that my thoughts or emotions are different from someone else’s about a certain situation or matter.  It could be about a particular situation or experience we are both sharing in right now, or a memory of something that happened before, or a matter of belief (religious belief, a principle, that kind of thing), or any case of sensing someone’s strong emotion. It was my therapist and someone else in a therapy group I’m part of who identified this first, then went on to identify that this difference of emotion/thought between individuals is another instance of uncertainty we must learn to sit with.

I sense other people’s emotions more strongly than my own. I find it hard to identify and name my own emotions. When I do feel them they can be very frightening and overwhelming; I may feel them so strongly that they block out anything else, becoming to me everything that there is, frightening me about what will happen and what it means about who I am. They can feel as if they physically pain me. I may feel physically utterly drained or consumingly panicked and driven, unable to sit still, pacing constantly for hours (compulsively, despite the physical pain this causes by aggravating my joint conditions). Times of overwhelming emotion are times I often self-harm.

Other times, I may feel numb and nothing at all. I may be painfully conscious that the other people I’m interacting with feel very strongly but I feel unable to reach out, to come to any connection with them. I may want to say something and know I should and know I should and want to empathise, but feel frozen and unable to respond, and know that by this I am hurting the other person still further.

Or, despite not knowing at all what I feel, I may feel the other person’s emotion (especially sadness, anxiety or anger) so strongly that beyond what I think would be described as empathy, I actually feel their emotion myself to a level that I cannot stand it. It can happen very fast and I do not make any conscious decision or any particularly strong attempt to pick up the emotion. It just happens. Sometimes, I have as little as passed people on the street, sat beside someone on the bus or had a minimal “meeting and greeting” interaction on the reception at work, and this wave or wall of emotion will hit me and stop me in my tracks. I passed someone on the street the other day and was suddenly hit by a wall of such strong anger and hurt that I stopped walking. It was like a physical presence around me and in my lower chest and I gasped and this was swiftly joined by extreme fear. The person had done nothing to me, not even noticed me nor interacted in any way.

A couple of people who share my religious faith have told me that it is a particular gift to be able to empathise to a particularly great extent – it could allow me to help someone, be there for them, pray for them, understand their needs, know if they are in danger, and so on. I think perhaps it can be a gift and could be something from which good can come. Not that I think I have any particular ability, certainly not any power, but it is a sensitivity that could lead to good.

The problem is the intensity is so great it is frightening – as frightening as my own emotions can me. It can be there to such an extent that I can no longer continue to be with the person / people, and withdraw completely in exhaustion and confusion and fear and feeling huge guilt that I cannot resolve what is happening to the person and can’t be sure – there’s the uncertainty again! – is it my fault they feel this way and how should I respond? Then I end up back in the numb place of then not knowing how to respond and not being able to give anything at all.

Whichever of these happens, I’m left unable to interact socially. I haven’t yet unpicked quite why sitting with the uncertainty of the differences and unpredictability of emotions between people is so very frightening and overwhelming to me.  However it does seem to be shared by several people I know who suffer with personality disorder.

A particular problem where thoughts, emotions, intentions and communication are involved is that you can never check enough. You can never get to be completely sure what the truth is and what is right or wrong and if you are good or bad.

In Part 1 of this post, I gave some examples of other kinds of anxieties in situations of uncertainty. All of these are around things that are more concrete, if that is the right word, where eventually you will find out some answer.  For example, to go back to the same examples I gave: tomorrow will come and I will find out what will happen, I can ask my friend which colour she prefers and be sure to choose the mug that colour, and in time I will eventually find out the interviewer’s opinion of me and whether I get the job or don’t. If I’m trying to overcome an obsessional activity or belief, for example, if I don’t wash my hands 10 times before I speak to my friend she will get sick because of me, it is possible to test out this belief in the concrete world – it will be extremely distressing to me at first and cause a huge amount of anxiety, but I can if I dare to, not wash my hands 10 times the next time I speak to my friend and see what happens. If she does not get sick, and if I dare to keep testing this out, eventually perhaps I may be able to see that I do not need to keep doing this ritual to keep my friend safe and I will be able to stop washing my hands so much. I have suffered and still do suffer to some extent with this kind of obsessional checking and in the past, CBT therapy I’ve tried has focussed on changing behaviour and seeing that the awful things I fear do not come to pass.

But where the internal world of thoughts and feelings are concerned, I find it is not possible to check or “see what happens” in the same way and I never find peace.

For example, in the above instance I can see at least to a large extent without doubt that my friend does not get sick physically. But if I am fearing that I have hurt someone emotionally, how can I be sure? If I ask them, how can I be sure they are not just saying something to reassure me? If I think that someone is having a particular thought or a particular emotion, can I be sure that I got it right? Often it’s harder to ask in these situations (and I suppose I feel that it would be socially inappropriate to do so in many situations – I don’t want to inconvenience other people with my own obsessions and fears). If I say something, can I be sure that the other person understood it the way I meant it?

Often, if I have said something that I intend as encouraging, helpful, etc, I worry afterwards that I have communicated a message that I did not intend, which is bad and that is going to be terribly hurtful and upsetting to the other person because they will get that message rather than the one I intended. Then I worry that I actually, unbeknown to myself, subconsciously intended and thought the bad interpretation, and that’s why I said what I did. This must show that I’m actually evil and nasty and need to punish and hurt myself to make sure I don’t hurt anyone else. Then I will self-punish or self-harm. For example, a friend was worried about her baby girl who could not be with her during her medical appointment, and was instead with a babysitter in the waiting room outside. I said to her something like, “It looks like she is with someone who’s looking after her very well,” intending to reassure my friend that her baby was well. Immediately I’d said it, I panicked that this sentence could have implied “she’s with someone who’s looking after her well, because you don’t” and that my friend would think I was saying that she didn’t look after her baby properly. And my mind spiralled out of control thinking that although I didn’t know it, I was really being nasty to my friend and judging her as a bad mother and my intention, although I thought that I wanted to encourage my friend, was actually to upset her because I’m such a bad person inside. I wanted to check with my friend and say, oh no no I didn’t mean this, I meant… etc, etc, but I didn’t dare to, in case that would only make it worse, because if she had not seen the bad interpretation, it would only make it even worse to mention it. I felt the desperate urge to self-harm immediately to punish myself for being so bad inside.

In these kind of instances, nothing whatever will ever reassure me as to what my intention or thoughts really were (whereas, in the earlier example about obsessional hand-washing, I could obtain the concrete proof that my friend did not get sick). There is no way to check for certain what my real intention was, that it is not unconsciously something terrible which I’m not aware of and can’t control. There is no way to check for certain what effect emotionally I’ve had on someone else, or what they have understood from something I have said.

So I don’t know what the way out is.

For some reason, self-harm does seem to be the only (maladaptive) way that I do cope with this kind of uncertainty. When I can’t check enough that I’m not actually doing bad, or intending bad, then I have to hurt myself. The one thing that does seem sure is that if I’m doing something to hurt myself, it will somehow keep other people safe, because I can make sure I’m hurting myself, not other people. I can make sure I’m punishing the evil greedy part inside me so that it doesn’t burst out.

I don’t know how to begin to deal with these kinds of uncertainty. In time I think I am going to give this a Part 3, to look at ways of trying to sit with uncertainty in communicating with people. I’ve a feeling that it’s going to be an important part of my therapy as so much of my interpersonal problems, and perhaps for others with personality disorders too, are connected to these themes.

Thank you for reading, as ever.  I would love to hear your thoughts and experiences and what you find good, or difficult, in interactions with others and in communicating about emotions.

Also, an important note: I know that in this article, I have contrasted examples of anxieties and obsessional thoughts surrounding what I have referred to as things I can check in the concrete, external world, with obsessional thoughts and fears about what is going on in one’s head / emotionally / internally. I say that it is harder for me to find the way out of the latter obsessional thoughts and fears. Please note that in no way do I wish to belittle or minimise the distress experienced by those who are struggling with OCD thoughts and actions and fears relating to the external world, for example checking doors or switches, or cleaning. I know from my own experience and from hearing loved ones’ experiences, that these struggles are deeply distressing and the thoughts just as consuming. I empathise very much with what you are going through. All I wished to do here is draw a distinction which I have come to in my own mind and to suggest that the way out of the two sides of these obsessional thoughts may perhaps be different. As I’ve said from the start, I am neither a clinician nor medically trained, and these are just my own thoughts.

Ginny xx

“What did we do in the War?” (and other unexpected questions…)

“What did we do in the War?” (and other unexpected questions…)

Just a little lighter-hearted anecdote…

If you’ve read “Not working out” you’ll know that I’m looking for a new job at the moment; something that I can do part time and that I might find less mentally stressful and less triggering to my obsessional thoughts and voices.

I’ve applied in several stores and I went to an interview today for a sales assistant position in a family / fashion high street shoe store. I always try to do some preparation before an interview to find out about the business but I have to say that in this case I was totally unprepared for this question out of the blue, “So, what did we do in the War?” ! Not your typical interview question when applying to work in a shop?!

Just wondering if any of you have any funny / puzzling interview stories? I enjoy these unexpected and funny sides of every day life no matter how small. They give a bit of lighter-heartedness and make us laugh even when things are rough. Which is important to hold on to.

A psychiatrist once told me that when we struggle with anxiety, it is like a bucket filling up faster and faster with water inside us and weighing us down or we feel we are drowning under it. We can’t tip the bucket over and we can’t stop the flow of water when we’re struggling with anxiety and depression and fear but we can do little things to punch holes in the bucket and let some of the water drain out so that we can live a little bit more easily. Humour is one of the things that’s good at punching holes in the bucket.

(And in case you were wondering, the answer to today’s question was that they made Army boots. Didn’t get that one right but some of the rest of the interview went okay and even felt like a good conversation in places, dare I say it, so perhaps I can hold out some hope. I’ll find out next week.)

Wishing you as good a day as possible. (Perhaps I’m practising for my store job. “Have a nice day now…” ;-)….)

Ginny xx

 

 

Sitting with uncertainty

“Sitting with uncertainty” is a phrase I first heard one of the psychologists for whom I used to work use.  The department that we worked in was going through a lot of change at the time and I think we were all anxious about what was to come – changes to our jobs, changes to service users’ treatment plans, worries over how we would continue to give good care and whether or not the changes would bring good.

As we talked, it struck me it is a challenge and a skill valuable to acquire across so many fields of life, particularly therapy and social interaction. It is a theme coming out prominently in my therapy at the moment.

I like the phrase “sitting with”, in particular, as it describes living in/with and encountering uncertainty without judging or supposing a particular response.  We might more commonly think of “resolving” uncertainty, “dealing with” uncertainty and so on.  However, sometimes it simply is not possible to do this. We cannot find a definitive answer, we may not be in a position to change (at least certain aspects of) our situation, or we may not yet, or even never, be able to be “sure”. Especially in interpersonal sharing of values and thoughts and emotions. Then, we might also commonly talk about having to “accept” uncertainty and say we have to learn to do this as part of growing up.  However, can we always do this? Perhaps often we feel that we cannot truly accept it, for instance, because it may be intensely uncomfortable, or something we really wish was not there, or something we feel frantically, painfully driven to eliminate. Hence, I like the words “sitting with”, because it describes the situation and at the same time acknowledges there may not be a resolution and attaches no judgement or obligation to either resolution/removal or acceptance.

In the language of the MBT therapy I am participating in at the moment, perhaps we would say it describes the situation and allows us to explore or be curious about the existence of the uncertainty.

I’m starting to be more alert at identifying uncertainty, and it’s effects on me.  It’s clear there is uncertainty about events that have not yet happened (I can’t be certain what will happen tomorrow), or that we do not know about (I can’t be certain if my friend would prefer me to buy the pink or the red mug for her birthday because I don’t know which is her favourite colour), or that are for now out of our control (if I have just had an interview and I know I did my best, but it’s now with the interviewer to make their decision, I can’t be sure if I will get the job or not).  And so on.  These are just some categories that sprung quickly to my mind which I think we might recognise are particularly difficult for someone who suffers a lot of eg anxiety or depression. For example, if we have a sense of dread something awful is going to happen, we might be terrified about what will happen the next day.  If we are socially anxious we might worry a lot about doing or saying the wrong thing or upsetting someone or being thought stupid because we do the wrong thing. If we are desperately seeking a job and have had lots of rejections we might feel very low waiting for the outcome of an interview and frightened about what will happen if the interviewer thinks we are rubbish and we don’t get the job.

It took me longer to consciously recognise how much uncertainty is going on all the time, particularly interpersonally, and how much – even though I did not recognise it – this affects me.  This kind of uncertainty seems to me to be a difficulty often encountered by people with personality disorders like me, and no doubt, many sufferers of anxiety or other conditions as well.

There is just so much that it is not possible to be certain of. This can be a frightening thing to me.

If we are speaking to someone, can we really be sure that the meaning they have understood is exactly the same as the one we intended? Probably not – every person expresses him/herself differently, and words hold different connotations for all of us in different situations. Could there be implications in what we have said that we did not intend, but that the other person infers? Probably. Could this hurt or offend the other person? Possibly. (For example, if I come home after work and my sister is sitting in the living room reading a book. I say, “Oh dear, this room is a bit of a mess.” I could be thinking that I really left it in a tip that morning because I rushed out to work late, and I shouldn’t have done that. If my sister were already feeling guilty that she had intended to tidy up that afternoon but had not been able to because she hadn’t felt well, she might make the interpretation that I had been intending to imply, “Why haven’t you tidied up, you’ve been at home all day whilst I was out at work?” It would not have been my intention, but she might have taken that understanding, and so without intending it I could have upset her. And if I then realised that, I would feel bad that I should have chosen my words more carefully or not said anything at all.

If we have an emotional reaction to a comment, an event, a situation and so on, can we be sure whether we should communicate it? What effect communicating it , or not, may have on another person? Can we be sure what their emotional reaction really is, and whether they are being open about how they feel? What if we feel something very different from what they do? Does that make us wrong? Or stupid, or bad, or… the list goes on. How do we respond, what do we do, when our emotional reaction or our thoughts are very different from everyone else’s? Does that mean there is something wrong with us?

And the ever, unanswerable, uncheckable, frightening question – have I done something to hurt someone? Am I really evil inside? Have I done any good, even though I think I want to, have I done good or have I done bad? Have I done something awful without knowing? Does everyone know I’m bad really and I just fool myself if I ever think I do good? Is there a terrible evil thing in me that I can’t control? We don’t always know even what we ourselves think or feel or intend – do we? Can we ever be sure enough that we are good not bad?

It is much, much harder to ever definitively answer these questions than it is to answer some of the other kinds of obsessional thoughts or anxieties which have a more “external” or “practical” element.

In part 2 of this post, coming soon (tomorrow, I hope!) I will continue with this thought to describe some of the thought processes and actions that this then triggers off in my personality disorder, and to think about how to learn to sit with these kinds of uncertainties.

…..More soon!….

Ginny xx