Tag: Anxiety

How do you keep on trusting?

I’m really struggling at the moment with the fact that whenever I’m really counting on something it gets taken away. When I’m already at breaking point, things that should be simple are made incredibly difficult so I don’t get help I need or have to go through complicated, draining processes I can’t cope with.

I’m not even talking about more “abstract” ideas like complex relationships or values but very basic things like urgent appointments repeatedly being cancelled, having appointments for support booked but being told the wrong time or the booking not being made, completing lengthy forms for Benefits only for the wrong decision to be made with the wrong information, on and on. I suppose the apparent rejection, lack of care, implication I am undeserving and not allowed help, behind all this, makes it worse.

Most recently it was being discharged from 2 days in hospital after I’d overdosed at the weekend, having had a lengthy assessment with the duty psychiatrist, who discharged me on condition I would be seen by the psychiatrist at the personality disorder team the next day and my CPN within 24 hours, a report had been sent straight to them, and that I could hope for more support. So off I went to the PD team at the hospital on Monday. No report had been sent. The psychiatrist would not see me. The report has now been sent this afternoon. There is still no intention for the psychiatrist to see me despite the duty doctor and actually also my GP requesting it. They actually asked why did I think the psychiatrist needed to see me! No more support is forthcoming although I have had telephone support. The duty workers say haven’t I got any friends I could stay with to be safer. My 2 friends who are nearby have made it clear this is not possible.

There is an absolute pattern of this happening over and over, week after week. I can guarantee that if I’m desperate, just trying to hold on, relying on my next therapy appointment – I’ll get a call to say it’s canceled.

How do you cope with this kind of thing?

It feels like a cruel trick or a sick joke and spikes my anger and hurt out of control and I disintegrate and the feelings I was struggling with already explode as well.

I do not think it’s only me it happens to. In fact someone else in another online forum was saying a very similar thing and that it’s as if we’re never allowed to rest, it’s always the next test and the next thing to go wrong.

How do you keep trusting when you feel like this? How do you stop resenting and being consumed with anger? Becoming more and more self centred?

It is really hard to try to keep trusting the hospital and the doctors when I can’t count on anything and repeatedly hope then bang, it gets taken away again.

I shouldn’t put my trust in anything or anyone and I should detach from the need for it and not depend on anyone or anything. But how do we even start to reach that point?

Ginny xxx

I hate the girl in the mirror

 

The Ladies’ facilities at work have mirrors all along the walls right above the sinks. Inescapable. Two more full length mirrors in the locker rooms, one of them again inescapably right by the door out to the shop floor.

I hate what I have to see in the mirror.

Fat first of all.  Fat, ugly, just Too Big. Too Much. Ugly, wrong.

Nothing matches up and I don’t fit together.

Hate. Look at yourself. Hate. Fat, bulging, disgusting. Foul, no wonder they don’t want you, no wonder, who’d want you?

Remember they’re watching. Remember they know. Everyone knows really. You’re a fake. You’re a liar. They all know how weird you are and what a nasty little thing you are. Listen –

No. Stop, please. I don’t want to hear it again. I wish I could cut the evil out. (Go on, purge, get it all out.) I wish I could go back. Disappear. No more demands of my disgusting body.

Rationally I know these thoughts are always strongest when I’m unstable for a long period. But it still hits me every time I have to look in the mirror and hate.

Walking this Borderland #8: when it costs to smile

I don’t think that the saying “it doesn’t cost anything to smile” is true. It can cost a very great deal to get up, step outside, meet anyone’s gaze, smile, speak, even keep breathing, when you are crippled with anxiety, voices in your head, emotional pain, traumatic flashbacks and hurt or sadness that hits you any time, anywhere.

I believe in still trying. Through this cost, keep on trying to smile. Through the awful feelings, trying to do one little kind thing for another person and one little kind thing for ourselves. We may not succeed but the will is there. Only we ourselves and God may know the huge cost. Yet good will surely still come of the action, however small. We have taken an action opposite to our illness, opposite to the inclination of our anxiety and hurt, choosing goodness and strength.

This is a small victory and a small step forward in hope.

I emphasise that I do not mean we should try to push away what we are feeling, deny it or tell ourselves we mustn’t feel it or aren’t allowed to. Far from it. We should do quite the opposite. But every little action done in love – for others and ourselves – is a choice for good. When we are suffering very much and when it costs very much to smile, then every smile and every action is worth all the more because it is necessarily done with greater effort and greater love.

What makes you feel loved?  How do you love?

Ginny xx

What do you hold onto in the darkest times?

I’ve posted before about how, like many people with Borderline Personality Disorder, one of the things I find hardest when I feel really bad is to hold on to any knowledge that it will not always be this way. The overwhelming emotions – especially fear, sadness, loneliness, anger, pain, frustration, self hatred, self disgust, hurt, distress, longing or needing, or the feelings I can’t yet name that come with flashbacks – they eclipse everything else and become all that exists.

I wonder if their power is greater if I fear the emotion I sense. But the totality of the experience, their consuming nature, makes them the more frightening.

Descriptions of this emotional experience in BPD often term the feelings intolerable or unbearable. It is that but it isn’t quite either; it’s not all of it. Intolerable, more than I can stand, yes… but it’s not something I can’t stand because it’s me. In that state there is nothing but the emotion and there is nothing of me but the emotion. I cannot stand it but neither do I exist apart from it.

I hate it so I hate myself. I must get rid of it, purge it, so I must get rid of myself and cut away the bad – so I cut.

I can name some of the emotions afterwards. Maybe the therapy is helping me to do that. But in the experience, I cannot. I cannot recognise anything but hurt and pain and hate and evil (me); I cannot hold in mind anything but the impulses to cut, run, scream, end it, reach back for numb. .. and I am gone. ..and I spin between cut off and unable to feel and any attempt to engage being painful, and the state of total emotion, of only existing as that pain.

I cannot control it. I cannot bridge that gap. Therapy is helping me identify what feelings are. But it doesn’t separate them from me, from time, from permanent reality, from right and wrong. It doesn’t tell me how to feel, rather than be, the emotion. It doesn’t tell me how to bridge the gap between the different people I become – the cut off numb one;, the one that hides everything to cope day to day and do what I’m meant to and fulfil my responsibilities and pretend and hope I could ever be good but knowing all the time that everyone really knows how fake it is and how evil I am deceiving everyone; the frightened needing child; the angry, vengeful and impulsive one. More and more they seem to be separate personalities. I am fragmenting. I am more unstable. I lose more periods of the day – when I’m in one state I cannot “access” the other and I can’t remember things that happened (though I may remember the state). I flick so quickly between states without being able to engage my rational mind and try to employ any grounding techniques or DBT techniques to control my behaviour or my experience.

I guess it’s good that I can start to be curious about the process, from the temporary relative stability of my “coping” state. It must show I do have some ability to learn to mentalisa about what’s going on in my mind. Usually my “coping” state would be trying to suppress what I’m exploring right now. Perhaps eventually I’ll be able to build a more curious and stable personality at least alongside these others.

What do you hold on to when your whole reality, your whole existence, is unbearable sensation and emotion? It sounds utterly stupid. It sounds utterly out of proportion. It sounds self centred and I am forced to admit that though it’s the very last thing I want and one of the things I most hate in myself, in a way it is, though at the same time self has got totally lost in the feeling and emotion coming from everywhere.

What do you hold on to when you can’t access your coping strategies or even your most rooted beliefs and deepest cares? I love my God and know God is mercy and compassion, but in the bad states I can only conceive of a vengeful God or a God casting me out. I love my godchildren, I care about keeping my commitments at work,  but in those states I can conceive only that I do everyone harm and everyone knows I’m bad really and would rather I weren’t around. The centre of my beliefs and values warp according to the state I’m in.

What to I hold on to?

Ginny xxx

Turning on the light

Turning on the light

“Happiness can be found in the darkest of times, if only one remembers to turn on the light.” – Albus Dumbledore, “Harry Potter and the Prisoner of Azkaban”

J K Rowling / screenplay by Steven Kloves

I think I’m still stumbling around in the dark banging into things whilst I’m looking for the switch, but I’m trying…. 🙂

xx

Blessings of friendship

I’m thankful for the visit of a special friend tonight. She came for tea and a catch up and we exchanged much belated little Christmas gifts. We’re going to meet again in a couple of weeks.

It always amazes me that she wants to be my friend. It amazes me she wants to meet up again soon. I’m not good enough to have friends – I’m not any good to be around – that’s what’s in my head.

I’m very thankful that she has kept in touch and continues to want to meet up,  when I’m well and when I’m struggling and when I’m very sick. Very few people stay around in all those times.

Ginny xxx

Back to work

I go back to work tomorrow after a few days’ annual leave. I’m really anxious right now. It’s harder than usual for me to go out at the moment. I’m better than in the last few days where I was crying all the time, but still feel dangerously out of control and shaky. This makes me feel like I have to double check how I’m behaving and what I’m saying all the more and the thoughts and voices in my head are all the stronger – you’re stupid, freak, ugly, fake, selfish, why did you say that, stop talking, deceitful, it’s your fault, disgusting, you’ve made it all up, why did you do that, not good enough, they know how bad you are now, they’re angry with you….it would all have been fine without you, everyone knows it’s your fault – until the frightening emptiness comes back and I just want to sleep.

I know it’ll just get worse if I don’t go to work and it does no good to think about all this. I need to turn outwards, look at everyone else, work, try to do good, try to do my job, try to just ignore the ache and the anxiety, not let it take everything over.

I’m going to try to do some things immediately to overcome it. I’m going to call a friend who I know has been having a bad time recently, having recently lost a friend of hers; I’m going to try to make some cards in preparation for a charity fundraiser in the Spring; I’m going to prepare my clothes for work tomorrow. I’m going to be thankful for having a job to go to.

Ginny xxx

“I will not abandon you”

“Can a woman forget her nursing child And have no compassion on the son of her womb? Even these may forget, but I will not forget you,” says the Lord God (Isaiah 49 v 15)

These lines from the Bible came into my head just now. Thank you Jesus. It’s very hard to hang onto anything when everything I trusted in, so much – too much – seems to be taken away. The Lord alone suffices, St Teresa of Avila wrote. The Lord alone will never forget us and never fail us, even if His face is hidden from us for a little while. He loves us like a mother or a father, and more.

“When my father and my mother forsake me, then the Lord will take me up.” (Psalm 27). When everything else crumbles, when we are totally alone, still God who is love remains. One translation of the Aramaic actually says “Because my father and mother forsake me,”; “because” rather than “when”. The Lord knew we would be abandoned, and so, He never leaves us and He takes us up in His arms.

I struggle very much to pray when I feel as I do now. The hurt and obstacles and anger and frustration and alone-ness, all obscure my hope in God and too quickly I allow them to cloud who God is and who He created us to be. If all I run into is this pain, He must be angry, He must wish me punished, He must take pleasure in my pain. I must return to His Cross and return to listen to His Word in the Bible. This is God, not my pain of itself. Love surely brings pain, but it is not the pain and hurt and isolation itself.

And then in prayer, came my Jesus’s tender promise – “My gaze is longing love.”

Out of it

I’m going between boiling anger that I can’t stand (a force rising inside me which I can’t swallow down, just force and power uncontrolled and bursting free) crushing anxiety with spiraling thoughts, lists, growing out of control faster than I can count, no air to breathe, dread that I can’t surmount, and numb.

Numb. Nothing. Stopped. Watching. Un-engaged. Dumb. Deaf. Hearing what everyone else says but it makes no sense and causes unbearable sensations if I try to respond – I need numb.

I’m drinking tonight to make sure I stay numb and make warmth and cotton wool replace the ache, distancing the hurt from my dissociated state so it can grow without sensing the raw pain or maddening and crushing demands of the ‘other’ (real) world.

The pain from my gynae problems has been scary too, as well as the arthritis. It’s almost funny – completely messed up inside and the physical stuff out of control too, things ‘breaking’ one after the other. Nothing medically serious but it does seem to make me as useless as possible in the real world.

I don’t often drink and it’s a dangerous and stupid choice, especially now. I’m in a really dangerous state right now. I tried and couldn’t get help. I can’t choose rationally what to do. I’m saying it’ll just be tonight and tomorrow I’ll try to face it all again.

Walking this Borderland #7: Pigs in the clouds

Walking this Borderland #7: Pigs in the clouds

It’s very easily impossible to believe “this too shall pass”.

In BPD, that can feel like the most hurtful thing to be told, in the midst of utter pain. Even if the pain was triggered by a very small thing, at the time, it is not minor – it is the proverbial straw that broke the camel’s back or the rope you were holding onto so so tight because everything else had been snatched from you, then this too disintegrates.

But the fact that is at once cruel and possibly hopeful, is that every time you go through that utter pain, and still continue, it is proved that “this too shall pass”.

On Friday afternoon this week I was about to end it because for the n’th time it was more than I could stand, more betrayals than I could bear, pain only for pain, the original source now lost amid the impossibility of existing beyond that moment. I was evil rubbish and the world was laughing at my hurt. It was time to overdose and walk in front of a train and end it. And perhaps I was going to hurt someone. My memory blacked out.

Somehow, on Saturday morning I was at my friend’s and she was cooking breakfast. She made “eggs in clouds” for a treat (look at the picture – literally a little egg yolk in a little savoury souflee cloud).  There’s chopped bacon in the soufflee cloud so we thought perhaps it should be “pigs in clouds” instead. We talked about everything, minutiae and serious: baby showers, Harry Potter, Alan Rickman, jogging, marriage, how to stay in love and what to do when something nobody else cares very much about is unbearable to you, a mutual friend who may be in a bad home situation, sunshine, work…

So you see, it turns out pigs do fly, and this too did pass. It seems ridiculous that both these scenarios were real and followed each other by less than one day. But both were real. The change, although I do not know what brought it about, was real.

Perhaps it’s worth keeping a short note of the times that pigs did fly, that the darkness did end, what you did to change things, if you can remember – but if you can’t, even just record the fact that you did change things. That although that night you thought you could not go on one more moment, the next day you took a few steps out of your house, maybe walked down to the bottom of the road and back. That through the terrible flashbacks, you held on, and now you are back in today’s reality.

Both are real. Neither are permanent, both shall pass, but both are real. Note it down, however small it seems. Then the next time when the darkness starts to come, you can look back and be encouraged.