Tag: chronic pain

Two hospital visits and “The Gas Man Cometh”!

The past week has been a mix of unexpected, scary, painful, exciting, relief and changes.

I had been feeling worse than usual physically but had put it down to all the flu bugs around, cold weather and the fact I had been very stressed in the preceding month. However, it wasn’t flu. Just over a week ago I had some horrible symptoms I won’t detail here. On calling 111 for advice they sent an ambulance straight away. At the hospital I was found to have [ahem alert don’t read whilst eating your dinner!] bowel obstruction. Thankfully they had caught it in time before things became more serious (if left, it can cause a rupture in the intestines). I had IVs and they erm, did what they had to to clear it, X-rays, then I had to have more IVs for fluids. I ended up being readmitted the next day because I was having symptoms again so it was a scary couple of days. They would have kept me in but there was a bed shortage. I’m home now with several medications and guidelines to follow about diet and drinking enough.

I am so thankful this was spotted in time and treated. The doctors, nurses and HCAs were all kind and caring and made some scary, nasty things as okay as possible, and reassured me. They were busy but still took time.

I have some changes to make now. I have had to stop several of my medications because their side effects could now cause problems with my bowels. I need to discuss this with the GP to find alternative medicines and ways to manage because I needed their beneficial effects (eg for pain relief). Fortunately I’m due to see a specialist pain clinic in a month’s time. Also, I’ve been told to cut out wheat from my diet to see if this makes a difference. Even though I don’t have celiacs, some people can have other problems with wheat. Bowel problems do occur as a complication in other conditions I have (fibromyalgia, POTS and hypermobility syndrome) and people can find going wheat free to be helpful. I’ve started this and so far thankfully I am not missing wheat too much at all, though I’m still only able to eat a little so that may be why.

I’m hopeful that with these changes I can keep things better, though we don’t really know exactly why the obstruction happened. In the meantime I’m fighting not to get too down through some of the difficult effects I’m still going through. I am very achy, pain is worse as I’ve had to stop some of the medications, and I’m still stupidly weak physically (the fibromyalgia is badly exacerbated which again is to be expected as after any illness). I have had bladder incontinence for years because of the fibromyalgia and nervous system problems; since the bowel obstruction this is much worse and now distressing bowel urgency and leaking if I can’t go right away, are added to that. I’m praying this is temporary or at least that the GP can refer me back for some help when I see her next wek. I used to be too disgusted and ashamed to admit to that side of things but now after everything that’s happened in the last few years it doesn’t seem such a horrendous thing to admit it, though I still get upset and feel horrible when I have worse incidents.

The other problem that has loomed large is I had no heating or hot water for 23 days! The most incredible saga unfolded between my landlord, the boiler maintenance people and the boiler manufacturer and fault after fault was found with my boiler and the flue.

This song seemed apt!*

Thanks be to God, as of this evening everything is fixed! I had a most enjoyable and appreciated shower. Boiling kettles to wash up, clean and have a wash was not the most fun, though it’s what my grandparents did daily as a matter of course. It has been very cold some of the days I was without heating and a friend very kindly lent me a portable electric radiator. On the plus side, I’m likely to be entitled to compensation for the multiple mistakes made and inconvenience caused. I have to apply for that from my housing association.

In more exciting news, today I attended the first session at the Recovery College, which I’ll post more on shortly. It was an introduction to how one can become involved in mental health research, bringing a service user or “lived experience” perspective. It was more inspiring than I’d expected and left me feeling I have something of value I could bring to shape research materials, methods and how research findings are communicated.

Another brilliant event this week is that my friend who has been homeless for a long time, has at long last got a place in a hostel. It’s a good hostel in a safe area. By no means is this an end to his difficulties but it is a blessed answer to prayers and struggles to navigate the way through the council, the housing list, support agencies, forms, waiting lists, assessments, phonecalls….it goes on. What he’s going through is terrible and scary however I pray this is the beginning of safety and a little stability. Thanks be to God, from the depths of my heart, thanks be to God.

Ginny xxx

*”The Gas Man Cometh” by Flanders & Swann. Thanks to Hawkmoon for the video.

Update long overdue!

It is a really hectic, up and down time at the moment and I’m much overdue posting. It has been hard to gather my words. I don’t make a habit of 2am posts – certainly not the best time of day for coherent writing – but I did not get to finish this earlier and it felt important to write before a big change coming up for me in the morning.

Belatedly, wishing you good things this New Year. I think I can just about say this since it’s still January! I’m praying that positive times and opportunities come for you and God’s blessings are shown to you to encourage you each day.

January is always a strange time, cold and empty in a way, after Christmas. Right now, so much seems unsettled, in the world, for my loved ones and in my personal life. I’ve written that before not long ago and of course it has not magically changed with the new year; if anything it seems all the more apparent. I’m trying to give generously of time and resources and friendship, for example to friends in need, and that’s how we encounter Christ in every day. But I’m feeling twisted apart inside because I come up against my limitations, what I cannot give and cannot resolve.  The family in my block, both of the partners seriously ill, whose Benefits have been suspended unresolved for weeks so they have no food, heating or electricity. My friend who has already suffered terribly and now faces more surgical procedures, my friend who has been homeless for almost a year and whose life may be in danger… to the thousands on thousands of people seeking asylum, the fear taking hold giving weight to insular policies that seem to offer protection but perhaps already spiral out of control. (The Mexico border “wall” seems to me to teetering somewhere between bizarre Divergent- trilogy-esque images and more than echoes of the Cold War era eastern block policies.)

I steer away from political issues in this blog but I think this turmoil hits ever closer to home. We hope that in times of hardship we come together and hold onto what matters most but I’m starting to think a certain level of hardship and fear brings only divisions. Then again, in my faith I believe somehow this must not be true because Jesus became Man to suffer and experience everything we suffer and go through. And He is all Love. Love came here, into the darkness and despair. Nothing changes Jesus. The despair and dark and hurt didn’t change Him, didn’t change love. So Love is here, Love suffers and struggles, but isn’t extinguished, so even in the hardest times, it’s love that remains – not division and conflict . I mustn’t lose sight of that.

This post has diverged somewhat from the update I originally planned. Probably to do with the fact that it’s 2am. I’m going to try to get back on track.

Since Christmas, I feel I have not been able to catch up at all. Usually, I have a big clear out, going through cupboards and drawers and so on and decluttering. I haven’t managed this at all. I’m frustrated with myself that I can’t keep on top of the housework at all. My emotions are bubbling over and have been for some time and I feel I have no resilience to cope with straightforward things. Saying that, maybe a lot is happening at the moment. I’m about to be discharged from the personality disorders community service I’ve had therapy in for the past 2 years. I’ve been trying to find support and things I can get in place for after my discharge. This has not been easy and actually it has been quite distressing because I have been promised a lot of treatment I haven’t had and I’m left with major mental health issues unadressed. On the positive side, I have made contact with a peer support worker and Recovery Coach who are going to help me short term and I think this will be really valuable. I have also signed up for some courses at a Recovery College, which I’ll post about (and explain) next week.

My physical health is not going through a great patch just now. The cold always makes the pain worse so that’s part of the reason. I have had to give in to the fact I need a wheelchair sometimes now and I’m looking at getting a mobility scooter. At least this will help me be less isolated and take a little stress away perhaps, because I’ll be more able to take part in things outside my home, like my volunteer work.

Practically at home, I am going rapidly up the wall at the company who should be repairing my boiler. I have had problem upon problem since November and now have no heating or hot water. I feel they have handled the whole thing terribly (7 canceled appointments for a start, having to phone 6 times to arrange a very simple thing, and so on, then them accusing me falsely of missing appointments). Ggrrr!! I know this is just part of life but in the state I’m in at the moment, I can’t cope with this, and feel very frustrated with myself for that. My emotions explode out of all control. Then I get angry with myself because so many people are going through so much worse.

A close friend has serious housing issues as well as a huge number of health problems. I’m trying to be there and do what I can. Cook hot food and support him with form filling and trying to get him a support worker who could help. It is a little way I can try to help and use the knowledge I’ve gathered from my own housing issues in the past.

I’m going to stop here. Later this morning is my last group therapy session and this will be a really really hard lot of goodbyes. I’ve been writing thank-yous and goodbyes, some of the hardest cards I’ve ever had to write. I’m sure I’ll write more about this last session and ending therapy, in the coming days. At the moment I’m struggling to find the words. I’ve cried so much today.

Ginny xxx

 

 

Furthest away from those closest

[Begun writing yesterday 30th December]

I’m really sad, angry, lonely and hurting. I feel excluded, blamed, not believed, not wanted, a disappointment, right when I am trying the hardest, giving the most I can, in the most pain and most need to find some understanding; not necessarily help but simply acknowledgement and belief of what I’m experience and some love nevertheless from those closest to me whom I might hope to trust.

I’m on the journey home now after staying 3 days with my dad and step mum and I am ashamed but I could not have coped with one day more. Again and again in my flashbacks I was back to being the child with my mother and my father and the constant terror and trepidation and dread. I live the same situations over and over. I’m terrified of the next time she’ll think I’ve done, said or thought something wrong and get angry. I am exhausted from any time with my step mother and her utter insistence on her right and my wrong. Even simply talking with her and Dad, it’s as if we’re back where whatever happened I was the problem, I was the one behaving oddly, I was the one causing damage – when actually my mother was the abusive one, she could get away with anything, when I was crying for help nobody heard, nobody helped me and my father appeared to agree with her entirely. Similarly now, he can’t believe my step mother and everything she does is anything but fantastic and wonderful. I know I’ve said before, in a family situation he is utterly loyal but to the exclusion of the point of view of anyone but her, just as he was with my mother. I think that’s at least in part how I went unheard for so long when I was clearly massively distressed and when I needed his help, and when I told him what she’d done.

It was a bad enough time through all this but it has also become very clear how little my step mother believes or understands about my physical health and disabilities, how much she blames me, holds me responsible as though being ill is a choice, how annoyed and disappointed she is I don’t live up to her requirements. I’ve known for a long time how she doesn’t understand but it came home this week. It isn’t only me that it’s directed at. She shows the same attitude to my step sister over her mental health and to one of her friends who has a lot of physical health problems. It is beyond me how anyone can show as little belief or understanding of what someone is going through, as little compassion and as much blame, but then I have been ill or physically disabled most of my life so admittedly that gives me a different starting point.

She is not open to hearing what day to day life is actually like for me or even seeing it when it’s right in front of her . I don’t make a big issue about my health. I try to make sure it affects anyone else as little as possible. But when she is lecturing me about why don’t I do this or that, things are only a problem because I imagine they are, and so on and I have to try to explain eventually why I may not be able to do something, she refuses to hear and insists on her solution and gets angry if I can’t do it. When I’m physically unable to do something when I’m right there with her, for her it’s something I’m doing deliberately, it’s a real problem for other people, I “just have to do it”, I am not making enough effort… it’s like when my mother accused me of pretending not to be able to do things if I didn’t succeed academically as she required, and the resultant rejection and punishment of me is similar too.

I wrote a lot about what my step mother said to me and did which I’ve deleted because listing a load of hurts and speaking badly of someone does no good. When I was leaving, she started up again about “New Year, new you”, how everyone needs it needs to be a healthy year, we don’t want any more of this, I’ve got to be completely different  and I’ve “simply got to” make sure of that, and it’s all about positive thinking, it simply has to be mind over matter, as if it’s a choice not a number of lifelong health conditions. She loves telling me what I’ve simply got to do, always things which I literally physically or mentally cannot, so she exerts a great amount of pressure and certainty that I’m a disappointment when I can’t meet her simply-got-tos that she heaps on me even when they’re medically not possible.

In the face of all this, my father blanks me, ignores what I’m experiencing, denies what has happened or ignores what I say if I express as much as the fact that some of what she says is hurtful, to the point of refusing to answer and acting as though he has not heard or changing the subject. He literally will not hear a single thing against her, or even not 100% agreeing with her. It’s just like how he withdrew and ceased responding and cut off and rejected me and to say the least did nothing whilst my mother continued all kinds of emotional physical and sexual abuse. Then he is able to say he doesn’t know what’s happening.

***

My step mother’s growing obsession with weight and Slimming World is hard for me too. The fridge looks like a diet advert, even though it’s Christmas, brimming with vegetables and low fat yoghurt and very little else. Food is such an issue and has to be done her way. She will not stop telling me how I’ve “simply got to get healthy… simply got to prepare proper meals”. I don’t want anything to do with her diet. She has no concept of eating disorders and how hard a combination of the voices, my physical disabilities making cooking and the resulting cleaning ever so painful, and my eating disorder make it to cook. Yet she can’t see past her own obsession with vegetables, fat free, going to the gym…

***

I’m at the point of ceasing to expect anything but rejection, judgment and accusations from my step mother and from my dad, withdrawal from me and utter support of her views. At best. The glimmers of understanding I thought I had from my dad just seem like a trick now that opened me to trusting, making the inevitable return to rejection and accusations all the more painful. I will not go to stay with them again any time soon.

It would be easier for me to cease all contact with them. My step mother does not often behave as if she likes me. I often think they might well prefer me to have only infrequent contact. After all, I’m seen mainly as a problem. Morally, I don’t feel I can cease contact. I have a duty to them. I want to forgive. I can’t expect total understanding. If I ask forgiveness from God when I’ve judged other people I need to forgive them. I try not to act angrily but the hurt is much harder to control. If I did not have a dependence or need for their understanding, it would not matter to me so much. Though my father’s withdrawal and denial of my experience hurts as much as what my step mother does.

It hurts so much in my head right now.

Ginny xxx

Getting ready for the day centre – trying to keep reaching out

I’ve had a really bad dissociative episode this weekend. After therapy group on Friday my mind just shut down and didn’t even seem to slide into my safe escape world. I was frozen and gone and my body wasn’t working either. I think I slept quite a lot and several times was locked into hallucinations, conscious but unable to move. This afternoon I started to be “here” again though I’m longing to escape into sleep. Every movement hurts so much. Returning from these episodes is scary. I’m fighting through fog to speak to anyone and I’ve lost so much time. Where have the last 2 days gone?

I forced myself to go out this afternoon and bought supplies I need for volunteering at the day centre tomorrow (I go every other week to do craft activities with a small group of elderly people). As I was leaving, I bumped into a neighbour who wasn’t well so I picked up a couple of things she needed too. This evening I’ve been preparing for tomorrow. I am dreading it and don’t know how I’ll be able to leave the house, I feel so bad. I feel guilty for dreading it because they need me at the centre and all the elderly people there are struggling with far worse than I am. By God’s grace the harder I have to force myself to go, the more love I will put into it, and in my weakness He is strong and He will lead me.

Tomorrow at the day centre we are going to make mini Christmas trees from empty squash bottles, tinsel and decorated card, and make stars for the top from felt and pretty buttons. If there’s time we’ll make paper stars (or snowflakes). Here’s one I practiced making with scrap paper just now. They’ll look much prettier tomorrow made from glittery paper.

20161218_204334.jpg

I thought it would be nice for people to have ornaments to take home. I particularly like the star because you can start with scraps and still make something pretty. It’s a bit like what I’m trusting in God to do with my life – bring something beautiful from the mess of my heart.

Ginny xxx

Exercise without returning to extremes

WARNING – this post discusses weight loss and eating disorders

I saw the nurse today as I had to have an ECG. I’ve had a lot of chest pain lately which is thought to be costocondritis but the GP wanted to check my ECG again. I’ve also been potentially diagnosed with another condition but that’s a story for another time.

Whilst I was there, the nurse took my weight and height and we decided I’m going to try the exercise referral scheme again (to a different gym this time), to have support to try very gentle swimming or at least exercises in the water.

It is time for me to do something about the fact that I am really upset at how much weight I have gained in the last 2 years, through poor diet and through my medications and being very sedentary as I often can’t walk more than a very little way unaided. The weight is increasing my hate of myself and my body. Not succeeding in losing it by my familiar means over the last few months has increased this hate even more. I know this isn’t a healthy thought pattern and I know many of my “familiar means” are eating disorder behaviors. At the same time, I am now slightly overweight according to BMI recommendations, so I need to lose weight for my physical health; also I need to care for my body’s needs by eating healthful meals rather than oscillating between starving and junk food, as has become my habit through lack of money and depression. I need to try to do some kind of exercise to improve my physical strength to manage the pain from my chronic conditions better.

So I have to figure out how can I manage my situation now and the changes I need to make without plunging deeper into eating disorder thoughts? How do I start an exercise programme without using it to punish my body? How can I keep track of my weight and control my diet without returning to my totally addicted state and the ever-present revulsion at my body tipping back over into self-harm and purging?

Does anyone have any thoughts about how to lose weight and change your eating to get back to a healthy weight range, when you have a history of binge-eating and bulimia? Are there any particular resources on this topic? I know that somehow I need to address the pervasive disgust I feel towards my body and ideally I’d do that first, but it has been present most of my life and I can’t allow my weight to grow to an even more unhealthy level. Most of my life since age 3 when my abuser started to use weighing me and controlling my food as one way of punishing and shaming me, I’ve been overweight, severely underweight or plummeting or ballooning between the two. I have lost all concept of normal food intake and normal appetite.

Ginny xxx

Horrible feelings I don’t understand

I’m feeling really bad tonight. My head hurts. My chest aches. I feel empty and hurting at the same time. I miss my friend; I miss a lot of people lost in different ways. I felt drained after therapy this morning, which isn’t unusual but it was intense today. Things are happening in therapy. It’s needed but I feel like I’m coming apart as well. I don’t really understand the pain. I’m sleeping so much at the moment but I’m back in bed now. I can’t concentrate on anything I’ve tried to do. I’m going to pray, offer it all to God and try to rest in prayer.

xxx

Saying a last goodbye to my dear friend

Saying a last goodbye to my dear friend

The dear friend I wrote of in my last post, Father S, passed away last Saturday, a day after I had last visited him. Today was his funeral. It was a very hard but beautiful goodbye.

Father S was a Priest at my friend’s church. He was long retired however continued to serve and minister to his congregation – and to so many more, such as me. I came to know him through another good friend (the same who initially brought me to the faith); I have never lived in his Parish however he took such care of me and I know he prayed for me daily.  I can only imagine how much he is missed by those who knew him longer and more than I did.

Father S was an extremely humble, quiet and private person. He drew no importance or attention to himself. He worked, prayed, cared and gave of himself generously, not seeking recognition, never appearing discouraged, astoundingly giving continually even when there came nothing tangible in return. I think, indeed the Priest who gave the homily at the funeral said, that Father S has no doubt reached and helped far more people than we yet know or than he himself even knew.

I do not think his path was ever smooth. He moved between continents. He converted between churches and subsequently felt the call to become a Priest and dared to answer. I do not think he had many people to care for him in his early life, and he has lost and left behind many family members since. He suffered greatly, physically, mentally and emotionally, throughout I believe, the majority of his life, particularly in his later years. He faced intense physical pain and weakness, major health problems, increasing fatigue, struggles to get around. He suffered not only the mental cost and hurt of those things, but also deep distress, fear and sadness. Through all this, he continued to work and to give so much in friendship.

Only very occasionally did he brush the surface of what he went through, physically and psychologically. I knew and gathered a little from prayer, conversations and letters exchanged with him, and learned more today at the funeral. Though he did not make much of his suffering, he did not sugar coat things either. He did not pretend everything was fine, or not to care, or that he did not struggle, or that he had all the answers, or that we must be strong and healthy, or that all is happiness when we walk in the way of Our Lord. He lived and gave in every moment, acknowledging what exactly it brought, never turning his gaze away from Jesus and never fleeing. He taught me to begin to hold fast to Our Lord of love – seek Him in whatever is happening right now and hold fast (rather than running in fear from an image of a God I have created from all my fears and the torment going on in my head in my illness).

When I visited him the day before he died, all the more than ever, I sensed that he was very close to God. He had become much sicker very quickly at the end. On the way to see him that last day, primarily I was desperately hoping I would be in time. I was not afraid, but I did feel some uncertainty and anxiety as well as the sadness. How would I find him and what would be the right things to do? I have sat with the dying before, having worked in a hospice and having lost other elderly friends at a nursing home I used to volunteer at. Time somehow seems to change; it is not a bad thing, but indescribable; perhaps it is a result of so much that can pose a barrier to communicating, giving and loving, being stripped away. We are left bare and vulnerable faced with the finality of the separation of death. It need not be all sad. Somehow, in precious time like that, what we cannot express as we may wish to in words, can perhaps be communicated between our souls as we are held together by the Love that encompasses all of us. In our defencelessness, the stronger hold the love of God has.

In that visit as I talked with Father S, knelt and prayed with him, I felt I knew heaven was near and Mother Mary’s arms were around us. Kneeling beside him I told him some of the truest things I have been so afraid to admit. I thanked him as I should have thanked him much, much earlier and more often. Father S is one of the people whose encouragement, prayer and friendship has held me up when I have been at the very darkest times and he has played no small part in saving my life when I was at a point that I was going to try to end it. Kneeling beside his bed I prayed as I have not been able to pray for many long months. I felt that already, in the footsteps of Our Lord Jesus, Father S was drawing me after him, just as Jesus draws us after Him. In his prayer and his life that he had offered totally to God, he was drawing me out of fear to learn to know, perhaps for the first time, a God of love.

There was no ceremony, no astounding event in the moment when Father S passed. There were no visions, no glorious rays of light, no voice from heaven, no odour of roses. There was quiet, and love, and friendship, and hearts reaching out in prayer and thanksgiving to God alone. In the same way as he lived, he died, quietly, with those who loved Him, everything offered and united to the God of love He told us so plainly about in his words and his life. He died on the feast of St John Paul II (whom he loved), just before 3.00pm, the same hour at which Our Lord Jesus died. I feel that Our Lady and St John Paul came to carry him to Jesus.

I pray that now he knows in heaven the fullness of joy with the Lord he has reached out for, for so long; that he also now sees all the good he has done, especially that which remained hidden whilst he was on earth. I know so many hearts here below are full of thanks for him.

May the choirs of angels come to greet you,

May they speed you to paradise;

May the Lord enfold you in His mercy,

May you find eternal life.

(From Song of Farewell, by Ernest Sands)

Image thanks to pixabay.com – https://pixabay.com/en/banner-header-christmas-candles-880323/

Feeling very useless again

I am feeling bad because I’ve not managed to post on several things I hoped to and a couple of them I’d promised to. I should just stop saying I’ll post on x at a certain time because too often I fail to! I should be able to stick to these things. It’s not just about posting; there are so many daily tasks that are taking me much longer than usual and things I want to get done that I haven’t done. It hasn’t been a great few days. I keep saying that. I’m trying not to think of them as bad days because that dismisses the good things that can still happen and the fact that the Lord is always bringing good from every situation.

I haven’t been feeling stable. I’ve had a lot of forms to fill in for out of work / disability Benefits. I’ve had to try to explain my conditions and go to assessments. My support worker is helping me a lot and the hospital I go to for therapy is providing supporting letters that have to go along with the forms I submit. Things are not going badly and without my support worker’s help I wouldn’t be getting through it as I am. It’s still difficult and raises a lot of obsessional thoughts. Whenever I talk to people about my health conditions in this kind of context, or ask for help, afterwards the voices go mad and shout at me that I’ve lied and I’m a fake and everything becomes terrible and hollow and full of dread and guilt. I feel so stupid because this means even when things go well and get sorted out, instead of pure relief, I feel stressed and I’m having to overcome what the voices and hallucinations tell me: that I don’t deserve the help, that I’m a fake.

Physically I am really struggling and getting scared by how little I can walk at the moment. I’m needing to sleep a lot. The pain means I’m needing to lie down often and I’m trying not to give into it as I know doing nothing isn’t good for me either. I’ve tried to keep at least stepping outside into my little garden and enjoy so many things I do have which are good, like talking to a friend on the phone, trying to create something pretty with my meditative colouring books, even an interesting TV programme or passage in a book.

I don’t want to keep on complaining and being negative so I won’t keep writing but I just wanted to try to explain how things have been.

Ginny xxx

The pain is no longer numbing

I’m finding this physical crash really hard. I feel useless. I’m scared by the pain though I don’t know exactly why. I can’t face going outside. I don’t feel safe. At home feels slightly safer. Outside is too much and I’m tired so quickly. I’m not frustrated, I don’t think, but I do feel sad and the pain is scaring me. I don’t know why. Nothing bad is going to happen just because of the pain. What am I scared of exactly? I don’t know.

I’m sure when things were this bad last time, a few years ago, I dealt with it “better”. I got on with things better. I stayed on more of an even keel outwardly and kept going. It didn’t affect me so much emotionally. Last time it actually shut my emotions down more. The pain felt safe. It was a bit like my self-harming. It was as if, though the pain from my physical illness wasn’t self inflicted or chosen, it absorbed some of my emotions and deadened them and the voices in my head said that was safe because it stopped me being a danger to other people. I wasn’t afraid. I didn’t feel so shaky and tired and vulnerable and exposed.

Now the pain and physical disability doesn’t seem to be swallowing up my emotional being and numbing me anymore. This must be something to do with changes the therapy is working in my mind and the fact that I have stopped self harming.

It’s quite scary to admit that this change and separation is occurring. Physical pain no longer equals safe and numb inside my head and not a danger to other people.

Now in my current physical struggle I feel the fear and vulnerability and even heightened emotions. Now I just wish someone were here to hold me. But at the same time I know I have to find out how to do this when I am on my own. Because that’s the day to day. Because I can’t ultimately depend totally on another person – in the end that puts an unfair weight on to someone else and puts me at risk if I can only go on depending on someone else every moment needing them always to protect me, allow me to to feel, allow me safety…. I don’t mean that I want to be isolated or want to reject other people. I really don’t; I long for the opposite. Just I meanthat I have to learn how to exist and experience physically and mentally for myself. This probably doesn’t make much sense yet. I’ll try to explain in better in another post.

In trying to learn some kind of ability to exist alone, exist without total dependence on others, I can trust totally in the unchanging love of Our God. The God who says fear not, for I am with you; the God who loves us first so that we can learn to love Him; the God we can count on as our hope just as surely as daybreak follows the night; the God who comes into our darkest, poorest times when we are lost and delights in us as His children.  In times of pain and alone-ness His presence is often now all the clearer to me and gives me hope that even when I fail totally at simple things and fear I disappoint everyone by being able to do so little, my life is not too little for Him. He loved each one of us before He even brought us into being. That has to mean HOPE.

Ginny xxx

The freedom of the sea

This weekend I went to visit family on the Sussex coast. I’ve wanted to do this for months and been battling with fears about the journey, being away from home, how my family would find being with me and how interactions would go. I’m so pleased this time I was able to do it, with the strength God gives and the care and support of my therapy group -and my family themselves.

As I cannot stand or walk for long at all at present, I was anxious about the journey and crossing London but it went as smoothly as I could ever have hoped.

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(Thanks to http://now-here-this.timeout.com/2014/04/03/photo-of-the-day-underground-overground-wombling-free/)

Sussex is a beautiful county. Here is just one of the lovely views we took in:

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I especially like being near the sea. It’s just 30 minutes or so from where my family live. The beaches tend to be more pebbles, rocks and shells than sand. I collected this simple stone from the beach a few years back. As well as serving as a paperweight, I like to use it as a grounding object. Something about the cool surface is soothing. It’s one of the items from my Rescue Box  though more often it’s beside me on the bookshelf rather than in the box.

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In Sussex it’s still quite easy to find peaceful areas of coastline where you can listen to the gulls over the chalk cliffs and the waves, feel the salty wind and run your hands over little stones smoothed and polished by their journey back and forth over the beach and in and out with each fresh tide.

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I love walking beside the sea. I’m not looking for the baking hot days for swimming and sunbathing – not that I’ve anything against that (and being in the water can actually bring me some relief from the pain)! I like being there and letting the sea calm me and assure me of the Presence of our loving Creator. The waves and the tide soothe me and tell me of a Heart much, much greater than mine and an eternal Spirit that speaks to each of us and whispers a hope unchanging, an order in the apparent chaos, whatever storms we are facing right now. In my journey at the moment I often feel very lost and overwhelmed, like one of the little pebbles on the beach tossing in the waves, sometimes scratched and roughly sanded against other stones, feeling very insignificant. But perhaps each motion of the waves in our lives is part of our preparation and refining, it smooths and polishes us to perfection, so we no longer resemble rough stones but bright and shining jewels that delight our beloved Jesus, who sets us right in the perfect place that He needs us to be.

Ginny xxx