Tag: depression

“Be soft…”

“Be soft.

Do not let the world make you hard.

Do not let pain make you hate.

Do not let bitterness steal your sweetness.”

Kurt Vonnegut

Too often, I do not know how not to be taken over by bitterness. It’s one of the most frightening things about the out of control emotions in BPD. That anger comes from nowhere. That nothing else exists of me but unbearable pain and I cease to be able to conceive of everything I most care about.

How do I keep on going, holding on to a truth of a permanence greater than my emotions? It’s one of the reasons faith matters to me so much. God is Love and always Love, unchanging and infinitely greater than me or anything I can feel or conceive. God made us in His image, ultimately good, for unity with Him. No matter what we fear or feel, our hearts are His. We cannot lose Him. No matter what we suffer, He is not a product of our emotions or our actions. No matter what we cannot see, He is giving us a purpose and a share in His work in this world.

xxxxxxx

Be soft.

Your heart is a fertile ground, tilled and turned in pain as in joy, to receive seeds of hope and love and newness. It is not a comfortable process, yet what tender flowers will grow there.

Be soft.

Receive the sun, receive the water, sometimes gentle as the evening dew and other times torrents of salty tears. Precious grows the rose from these streams.

Every flower has value, from the most elegant rose to the tiniest blade of grass or timid daisy. Just so, each heart and each step upon this way .

Be soft, still when the rose bears thorns. Let this pain be turned to purer love and stronger hope; let compassion and mercy spring unchecked along this path of testing and pain. Do not let this ground freeze over, to try to flatten the land, hide the barren earth and cover the sharp edges of the pebbles on the way. Anger may be swifter, indifference may be safer, indifference is cold, and nothing can take root in its frozen land. Freezing ground may be hard and seem strong and impenetrable – but then it shatters, fragments and is gone to nothing. The tilled earth, soft, accepts beauty taking root and good multiplies, gives and gives on.

Be soft, let the vines take root and bear much fruit, sweeter for the gentle ripening, sun and rain. The grains of sand and stones are slowly refined and turned, polished and strengthened, and become the brightest gems and precious stones. The fruit is rich and plentiful and feeds many needing and hungry souls, for this is love, compassion and mercy.

Be soft. Be soft and you will give and sustain so many more than you imagine. Be soft and you will shine, much brighter than you know.

With thanks to Cathy for the inspiration of the quotation “Be soft…” – visit her lovely blog at http://www.cathylynnbrooks.com 

xxx

How often do you “need” to spend time with others?

I’ve been trying for a long time to arrange to meet to catch up with a particular friend. We used to be close and live in the same city, but we haven’t met since a very brief meeting at Christmas, and before then the last time we met was at a an event at her Church in September. I miss her a lot and have been feeling very sad that we live so close but meet a handful of times a year and never in such a way we can catch up properly.

Part of the reason we don’t is that she has a family now, including young children, and I completely understand and agree that family comes first before friends. Still I’m sad to see her so very little – and also (and this is a big part of my feeling) worried for her. She gives all her time to her children and various numerous volunteer works at her church and parish. She home-schools her two older children. She almost never suggests meeting up, she never seems to socialise except for seeing other mothers at home-ed groups, and she told me she hasn’t met up with a friend for over a year. She never takes any time for herself and she does not seem to have any desire to socialise.

Should I be worried about her? I am, very. I feel like she must be so tired and drained and stressed and never have a moment to take care of herself or do something she wants to. Most of all I fear she never has any time that really is for talking and sharing with her friends. I know I wouldn’t be able to cope with even one day of her schedule let alone the foreseeable future.

I think she is amazingly strong, dedicated and generous to her family and she is responsive to their every need (let alone all the time she volunteers). She has clearly made big sacrifices. She says she loves it and never feels the need for any break or to see any one. I just can’t see how she can possibly be well or happy and it seems really isolating to have so little contact with others.

At first I was hurt that she had no interest in meeting – i made no end of suggestions and she declined them all and didn’t suggest any alternatives and pretty much said she doesn’t do that kind of thing. I was lonely and upset already and I’m sad that we are no longer close friends. She really matters to me and I care for her and miss her. There’s only so much you can keep a friendship going and only so close you can be when you only text message and email. And I’m worried for her welfare, as I said.

Perhaps I should just accept that she says she’s happy and she is. It got me thinking, perhaps it’s a difference of personality. She’s happy not to leave the house for several days at times, whereas I usually feel compelled to go outside, see the outdoors, be around people,  even if I’m not meeting or speaking to anyone (except when I’m very low and not going out is then a sign I’m very unwell). Meeting up with someone is of no interest to her, whereas it’s very important to me, although there are few people I trust and am able to be with at the moment. That probably is a particularly bad combination and makes me particularly needy with the few people I do trust! I need time alone too and have times it’s all too much but loneliness is a big struggle for me. So I’d silence, which is another thing she loves. Perhaps it’s as impossible for her to understand my needs, or values in a relationship, as it is for me to understand hers and how she can be well and happy in her current situation.

I wonder whether she doesn’t value meeting in person, spending time together in friendship, catching up, doing some things for herself outside the family and so on? Or does she just need less of them?

This got me thinking, do we all have such very different needs firstly for contact with other people, and secondly beyond that, what I somewhat inadequately call deeper or more meaningful interactions (a good conversation with a friend you trust and can be “real” with,  as opposed to eg a passing interaction in a shop or talking to a work colleague – all are important but I know I very much need to be able to share how things really are sometimes, not just keep up the acceptable businesslike front where I seem to be well and in control of myself! ).

What do you find that you need? What is important to you in a friendship? How do we know which is normal?! I think my therapist would say that’s one of those questions where there isn’t a definite answer right or wrong. … I’m left wondering in this friendship,  firstly if she’s really okay or not and then how can I be there for her, when she has no interest in regular contact? How do we keep up a friendship with someone whose values here are very different from ours?

Ginny xxx

Lonely, lost and loud

This evening I think I feel lonely and alone. Sometimes I’m not sure of the difference between those two feelings. Alone is isolated and separated and not belonging, not-empathised-with, not wanted even. Perhaps lonely is more without others, wishing for someone.

Since my close friend and her husband and I are no longer in contact at present, I have almost no interaction in person with anyone outside work, no genuine meaningful interaction at least, beyond exchanges in shops or chance meetings with acquaintances where the front must stay most securely up. That’s a selfish and self-centred reason to miss her, but it’s true, as well as missing her tenacity, determination, energy, faith and curious perspectives; her surprising kindnesses.

I do not know whether or how to try to repair our relationship and whether to expect her in any way to cope with me now, would be fair or something she’d want. She’s said and done things that are clear enough to me that our friendship had no goodness, enjoyment or happiness for her and that it had a lot of frustration, irritation and just a sense of obligation. If she were in need of someone or something of any kind, company,  help, happiness or prayer, I know I’d be the last person she’d choose.

I’m hurting and longing. I’m asking God to give me strength to turn to His Word and stay close to Him, who gives all we need and more and pours love into our emptiness.

I’m trying to make each interaction with anyone, down to the most seemingly insignificant, a chance to give my best – caring, patience, a smile, a warm response. Doing these things outwardly, perhaps my heart that’s hurting and cold right now may be changed.

It’s loud in my head today. It’s been a day of doubting and checking everything and a cloud of trepidation telling me everything I’ve done wrong and every way I’ve failed. Every comment and criticism ridicules and mocks me, cutting deeply. It feels like being surrounded on all sides. I actually startle easily and feel someone is following and watching me; I hear whispers of anger and disgust and voices pulling me apart – and my mother’s voice.  It’s like I’m stumbling on a jagged path where there is too much mist to see where it will lead. I can only see as far as a very few steps ahead. But I must keep walking on this way because either side is thick darkness, trees and unknown beings with branches or arms that would enmesh me, surround me and call me into deeper night that would obscure all hope. The path turns and does not follow the expected course and I have no idea where or if it will end. Often it twists and seems to lead me deeper into the forest, the branches clutching closer and the voices louder. I cannot retreat because behind me,  somehow, the path has fallen away. I can only stay on the path unfolding gradually before me, the rocks mark out the way, and I try to walk forward through the mist.

I wonder how many others may follow a way such as this and whether we may be nearer to each other than we know.

Ginny xxx

Crisis Plans

Last week, after the really distressing meeting on Tuesday, where I completely lost it and just screamed and screamed, I had another meeting with the same CPN on Thursday. It went quite well although I am still reeling from Tuesday. I never lose it like that when anybody else is around. I do that alone at home, usually at night, usually cutting myself before I can reach that point, because it stops some of the noise in my head for a while and quiets the fury and hurt. On Tuesday all my control methods didn’t work and the worst of me exploded. Since then I’ve been feeling both raw and outside myself at the same time.

We tried to come up with other ideas for what to do when I am extremely distressed when I am on my own, other than always turning to cutting or overdosing. The problem is that no matter how harmful those things are, they do “work” to stop the feelings (if only by stopping me being conscious!) punish myself, so bring down the emotion and enter a state of numb nothing for a while, or at least explicable pain.

One of the things we came up with was the Rescue Box, which I’ve posted about previously. I’ve committed to making that up this week.

The other things my CPN suggested were: putting my head under cold water eg cold shower for 20 seconds, to shock the body and so bring down the emotion (a bit like the lemon juice idea!), starting some activities that would give me more social interactions and so leave me on my own less, developing a relaxing routine for evenings (which I’ve got out of the habit of), and sorting out my dodgy internet access so that I can have more contact with people via blogs and similar, as well as making use of online resources for relaxation and mindfulness.

I’m not very sure how this is going to go. I’m starting with small steps, making up the Rescue Box this week and getting in contact with my internet provider.

A large part of the problem for me is that all these techniques are great ideas but I too quickly reach too high a level of distress to be able to use them. When I’m in that state, or when I have more of the psychotic symptoms (which tend to accompany higher distress), it’s as if the part of my brain that would reflect enough to try one of these techniques just shuts off. I have an overwhelming need for someone else to keep me safe and almost hold me and ground me and prove something exists beyond the fear and distress. But the PD Service seem absolutely against anything that would lead to me not being on my own in these situations (like being referred to the Crisis Team who’d come to see me at home, or being admitted when I’m overdosing etc). I’m not entirely sure why. They are written into my “crisis plan” as ways to keep me safe when I can’t keep myself safe, but when it comes to it they are withdrawn or refused. This is something I’ll be talking more to my 1:1 therapist and/or Care Coordinator about.

I guess I have to learn to discover earlier when the extreme feelings are coming – at the moment they spring up at me from nowhere and that’s terrible. It feels very out of control. There’s no doubt that as I’m experiencing more emotions, I’m becoming less stable.

I’ll post an update on how things are going with trying these techniques.

Ginny xxx

Sing like never before, O my soul (Ten Thousand Reasons)

Lent sneaked right up on me this year and I felt so unprepared. Partly, because it began earlier than usual, Easter being about as early as possible* this year, but also because I have been through a period of having really given up hope. One of the most frightening things about my Borderline and PTSD is how the most terrible emotions can obscure everything good and important to me, even God and faith. It has been a period where God and heaven seem “hidden” for a while. Very slowly I am learning that the hidden times do not mean that my relationship with Our Saviour is lost or that He is gone away.

Bless the Lord, O my soul, worship His Holy Name. Sing like never before, O my soul, I’ll worship Your Holy Name… For all Your goodness I will keep on singing, ten thousand reasons for my heart to find.

Last night I went to a candlelit service of reflection, music and prayer, with the opportunity for conversation, guidance and the Sacrament of Confession (reconciliation).  I talked with one of the Priests about the feelings of anger that are coming and my fears of them; my fears of being out of control and consumed by this emotion that seems to block out all good and through which I cannot pray. His response really surprised me and I think it is going to change how I see my relationship with God and the work of each one of us in the church body and the community. He told me that the struggle I am going through with these feelings can itself be prayer. Prayer itself is not intended to be painful. If one kind of prayer, like praying with Bible verses, or reading, or trying to spend long periods in silence, is impossible at this time, perhaps God is leading me towards a different kind of prayer at the moment. Continuing to walk and struggle through this, even knowing that perhaps this pain will never be totally resolved this side of heaven; offering the work of every moment of every day; offering someone kindness or a smile; giving thanks for the small beautiful things that we notice along our way to work; writing to a friend; all these actions can be actions of love. The passion of anger may even be channelled into the passion of love. Perfection is not needed and could even lead to pride in our own achievements, or desperation feeling that we are useless. Continuing to walk forward when even the smallest things are an agonising struggle – that can be love, and that can be prayer.

And on that day when my strength is failing, the end draws near and my time has come, still my soul sing Your praise unending, ten thousand years and then forever more.

Perhaps then, this can be a new kind of prayer for me. Right here and now, even though I am so far from where I feel I am meant to be and even though so often I can lose sight of hope very easily. This kind of prayer, prayer in this moment, prayer in our offering of our current selves and current circumstances – that cannot be lost. It does not require even hope for the future, or tranquility in our hearts; it does not require success, much less perfection, but it does require the resolve to walk on.

Whatever may pass and whatever lies before me, let me be singing when the evening comes.

Italicised lyrics – extracts from “Ten Thousand Reasons” by Matt Redman. This is rather different from the kind of music I usually choose to pray with but it’s a song that speaks to me right now.

 

My cell phone is depressed (and Catholic) – on walking through cognitive dissonance

My cell phone is depressed (and Catholic) – on walking through cognitive dissonance

Just now I was typing a text message to my friend to say thank you for a good catch up that we had a couple of days ago. Like most Android phones now (I think – dodo alert!) it not only has predictive text in terms of suggesting the word you are currently typing, it also predicts the following words (so for example, if I type “hello how” it will prompt “are” then “you” “?” and so on). Sometimes it is rather over zealous in that function and inserts words you don’t want. Or, as I said, possibly dodo alert again.

So there I am starting to write “It really was good to see you” and my phone changes it to “it really hurts”. Then tries to do it again the next time, too.

It’s not just me you see – now it’s official, my cell phone is depressed too. It’s going for all the sad options!

This made me laugh and also realise that I must whinge a lot more than I realise if it has learnt that word combination. Then it reminded me of the time a while back when I had to send numerous messages about the choir arrangements over  Holy Week* and Easter at my church, so frequently that come Easter Sunday my phone’s predictive text learnt how to spell “Triduum”* and  “Attende Domine”*. So I’ve got a Catholic phone too 😉 .

On a more serious note, this got me thinking that my cell phone mirrors what the cells in our brains – y’all see what I did there 😉 – what the cells in our brains do as we have our life’s range of emotional and interpersonal experiences. Like my phone literally expecting “hurt”, the more hurts and pains we experience, the more we can readily expect this, the more we feel it and the harder it may be to feel anything else. Perhaps the longer we’ve suffered in an abusive or otherwise harmful relationship, the more we are only able to see ourselves and others only in the light of how our reality and our identity and our relationships were in that abusive trap. It’s somehow sadly a lot easier to continue to believe a very painful belief about ourselves that we’ve always held, than to be able to dare to adopt a new belief and to tolerate the cognitive dissonance we need to go through in order to begin to switch our beliefs. It’s easier to continue to believe rubbish about ourselves that our abuser(s) indoctrinated to us, than to accept any good. We long for care and help but we may be unable to receive it. Which sounds bizarre and I hope that it does not sound offensive.

To give an example, in therapy this week I identified that I have lots of rigid and entrenched beliefs along the lines of: “if N. wanted to be my friend, s/he would do xyz” “if N. cared about me, s/he would have [replied straight away to this message because I said abc in it] and because s/he didn’t it shows s/he doesn’t care and doesn’t want to be in touch and couldn’t stand me anyway, what an idiot I was to think s/he’d want me around anyway” or “if you’re someone’s friend and they are upset you do xyz, it’s just obvious, and N. didn’t so it just shows they really think abc [negative thing / opinion that I’m evil] about me”. The thoughts that spiral from these beliefs mean that if they aren’t fulfilled and someone doesn’t do one of these things that I have set as absolutes in my mind (and which, incidentally, I would hold myself to in relationships as well, as rules I must follow as a friend) then very quickly I use them to confirm an even deeper-seated view of myself which stems from things my abuser told me. Such as that I’m evil really, I manipulate people, everyone will think it isn’t my fault but she and I will always know it’s because of how evil I am, xyz person I care about will die or be taken away because of the harm I’ve caused, I’m disgusting and ugly, etc, etc. It’s impossible for me to get past these beliefs and they are a big block in therapy and in everyday life. It’s impossible to believe that my beliefs and motivations are what I think they are and impossible to believe anyone could really want me. My cell’s predictive text is set to “hurt”.

I’m not sure how to get around this at all. I’m not sure if my psychiatrist is either. I met with her yesterday. It was a very helpful meeting and was about a lot of things other than this as well. However, I think to this there isn’t a short answer. How do I go through this? How do I learn a new setting, a setting in my mind that is open to a different belief? How do I dare to actually feel differently? I can try to explore other possibilities cognitively, but I cannot link it up to the emotions and what I really feel and believe about myself and others. I just cannot reach that. What the psychiatrist did help me identify is that only with repetition can we learn something new (as with my cell phone’s expanding Catholic vocabulary). I need to try to continue in relationships long enough to get past the point at which my default beliefs about myself as evil are (or so it seems) absolutely confirmed. Currently I don’t. Like my cell phone I go into “predictive” mode and I pull away from the interaction or even end the relationship at that point.

That’s the one thing I can change, though with a great deal of help from what I think would have to be incredibly supportive and understanding friends. That’s almost too much to ask. This is going to be a long road.

Ginny xx

*Quick (hopefully simple) explanation of Catholic terms: Holy Week is the week leading up to Easter Sunday. The Triduum is a term which refers to the Thursday, Friday and Saturday immediately before Easter Sunday: Maundy Thursday, Good Friday and Holy Saturday. “Attende Domine” is a piece of chant music often used during Lent at one of the churches I attend – “Attende Domine et miserere” or “Hear, O Lord, and have mercy”. I find it quite beautiful and relaxing to listen to.

https://youtu.be/t7Glyu7tEWU – Attende Domine – with thanks to Petrus Josephus for the video

Image from Gilmore Girls (sorry I am not sure which Season) – Lauren Graham and Scott Patterson – Gilmore Girls produced by Amy Sherman-Palladino and Daniel Palladino. All rights belong to respective artists.

 

Walking this Borderland #9: My rescue box

Eee, it’s been a long time since I’ve added to this Series.

My CPN and I talked about the following idea today. I’ve been meaning to put this together for a while.

All the other ideas / coping techniques I’ve written about so far in this Borderland series are things I’ve tried or do use currently myself. This post is a bit different because this idea is new to me and I’m going to be trying it out for the first time, so I can’t yet say how helpful I’ve found it. (Updates will follow and I’d love to hear from you if you use something like this!)

I’m going to make a “rescue box”. I’m not quite sure if that’s what I want to call it but for now, it’s what I’ve named it. Apparently some people call it a suicide box because it’s a box full of things to turn to when you’re feeling absolutely at your worst. I didn’t want to call it that because it emphasises the terrible feelings more than the good I’m trying to climb towards.

The basic idea is to make up a box filled with things that help you to cope in times of extreme distress. This works well, I’m told, if like me, you find sensory or tactile things helpful and grounding. As I think I’ve mentioned earlier in this series, in personality disorder when emotions are overwhelming, introducing other, soothing sensations can help bring the emotions down. You can also put things in the box that remind you of good times or reasons that you do keep going every day, or anything that triggers positive memories and thoughts in the hope that in the long run making more and more positive memories makes these stronger than bad memories or obsessional thoughts.

I’m new to this. I’ve been trying to think of things I could put in my box. Here are a few things I came up with:

  • A special smooth pebble that I collected on the beach one good day, which I find very soothing and grounding to touch. It also reminds me of the sea. Walking along the coastline and watching the sea always assures me of the presence of creation and love far greater than ourselves.
  • A small stuffed animal – yes I may be an adult (perhaps 😉 ) but I still find soft toys comforting.
  • A particular book that never fails to encourage me (more on that in another post).
  • Photos of my godchildren whom I love very much; seeing them always brings me joy.
  • A list of people I care about whom I can pray for or do something nice for – maybe write a letter or a card. This reminds me I’m not alone and helps me focus outwards on other people rather than my own problems.

That’s what I’ve come up with so far. I’ll post some pictures as I make up the box.

I have the feeling that the hard thing is going to be remembering it is there and being able to use it when I really need to. I can have coping strategies but being able to turn to them rather than a destructive “coping mechanism” is the hardest thing.

Do you use a box like this or anything similar? How do you remember to use it in the hardest times? Does it help when you’re distressed as well as when you’re feeling okay?

Ginny xxx

What do you do to stay safe?

Today I’m going to the hospital again for another meeting with the CPN. I’m very scared of going after I lost it there on Tuesday. I think I’m scared what will happen, scared of losing it again, ashamed about what happened and still feeling very out of it, although not in the way I usually am when I dissociate. That gives some kind of protection. This is raw at the same time as shaken and disconnected.

Also I’ve got an inescapable question that has been in my mind for several weeks. I’m not at all stable or safe at the moment. I want to continue with therapy. I committed to the group that I’d do it and not give up. I promised to God and Mother Mary in prayer. I’ve made quite a few sacrifices for it – I don’t think I’d have had to leave my last job if it weren’t, at least in part, for my therapy appointments (though my last employer were definitely at fault too, in my opinion). I’ve seen the therapy as the only hope of learning how to get better and manage my condition. I’m privileged to live somewhere MBT is actually available (there aren’t specific PD services in all areas of the UK). I really don’t want to have to stop therapy.

However, at the moment I’m actually more unstable, at least in part because of the therapy and the emotions, memories and questions that it raises. This isn’t necessarily a bad thing. Other people tell me they can see positive changes in me, for example communicating more clearly about emotions and things that happened to me in my childhood, none of which I can yet see for myself. However I trust the people who tell me this and think it has to be a good thing. It’s another thing I don’t want to waste.

So the big question is, what to do.  I can’t keep myself safe at the moment. For example I’m “coping” by cutting, taking overdoses or higher than prescribed doses of medication, drinking* (and this really isn’t me, I do not enjoy drinking in this way), escaping from daily life by ignoring letters, calls, etc and not able to keep on top of the basics of looking after my home and myself (cleaning, cooking etc). I’m more unstable in my moods, especially anger, and I’m struggling more to hide everything to try to participate in daily life by eg going to work. Things like hallucinations or paranoid thoughts or feeling dissociated are pushing their way more into the working day.

I don’t know what to do to change this.

I’ve some hope that medication changes could help and I’m seeing the psychiatrist on Friday. But I doubt that’s going to be the only answer. I’ve tried to exhaustion (both daily and when in crisis moments like the extreme distress or wanting to end everything) the techniques I know like distraction and grounding and self care / self soothing (this latter is very hard for me to do when I feel as I do about myself). It isn’t working. And I feel that the things other people could do to keep me safe, many of which are on my crisis plan, are not happening or not working either. I’m experiencing more and more let downs where xyz help is promised then doesn’t materialise (appointments canceled, calls not returned, planned sources of support withdrawn, mistake after mistake, discharge plan not followed). Or I’m told that the help I want to keep safe doesn’t exist or I don’t qualify. What is offered – and don’t get me wrong I’m grateful that it is offered and I know it’s more than many other services provide – is not enough to keep me safe. For example when I’m suicidal a 5 minute telephone call may calm me a bit for a few minutes but an hour later in usually feeling worse than before and – this is key I think – still on my own trying to cope.

What do I do in this position? Are there other techniques I can learn to cope better? Are there other or higher doses of medications? When I so so much feel I am not safe on my own and really need someone with me (especially when I’m really distressed but also day to day because the slightest thing, as little as a letter that makes me panic or a canceled appointment,  can thrown me into extreme distress, self harm etc) what can I do? The PD service are adamant I mustn’t be admitted and don’t qualify for any carer help and ongoing support in person isn’t possible. I haven’t any other way of getting that kind of support. I live alone, my dad and step mum live hours away and I don’t have friends very locally or whom I see regularly.

So how do I do my therapy and stay safe as well? How do I either answer this need not to be on my own when I’m so much at risk and unstable, or what solution do I have to learn instead?

What do you do to stay safe between therapy appointments or between times you can access support?

I know this probably sounds silly and I do get a lot more support than most people and all I’m talking about coping with is simple daily life. Right now this is where I am.

Ginny xxx

*just to be clear, I’m not diagnosed with any alcohol problem and I’m not comparing my struggle with that of someone who is struggling with alcohol or other substance use. That is a much more painful place. I sometimes use what is probably an objectively average amount of alcohol taken with my tablets to make myself fall asleep when I can’t cope. Not a great thing to do but I’m not trying to compare the two.

Fat, and hot, and horrible.

The hardest thing about the quetiapine (and venlafaxine maybe, though I attribute it more to the quetiapine) and clonazepam is what it’s done to my body, or rather what I’ve let happen.

Fat. Disgusting. Sweating and hot (that’s the pain meds too I guess). Conscious of my expanded body. I have gained so much weight in the last couple of years. And I’ve let it happen. It’s true the drugs make you gain weight and increase your appetite, but I’ve failed. I haven’t stopped it.

I’m repulsed when I pass a mirror and see the foul reflection, bigger and bigger; when I feel the flab around my stomach and waist, the one thing I used to be able to keep flat and small even if I did have chunky thighs I hid under skirts. It’s everywhere. Crawling disgusting flesh and fat.

Why did I let it? Why? Why did I return to this demanding sick big disgusting body? I want to rip and claw and cut. It’s out of control. It’s all wrong. Growing and needing and hungry and hurting inside and out, aching within, stabbing in my stomach, darts and shooting burning pains as my feet touch the ground and my joints feel like they’ve been smashed and bruised.

Failure. Why. Hate. Hate hate hate this growing sick too big too present body. Even in my dreams I’m fat fat fat, running and clawing to get out of my body. My mother is there, shouting and mocking and threatening and I wake up drenched in sweat and shaking because the nightmare is real now. I couldn’t save her and the foul thing I am stares back at me out of every mirror.

And I cry.

I’m sorry for being rubbish this week

I’m sorry for being rubbish this week

I’m sorry for being rubbish this week. I’m sorry for being so slow to reply to comments and not being there enough for you (lovely readers / bloggers) as well as other people important to me in my life. I have been so shattered and sinking and though that’s true and consuming, I hate yet again using that as an excuse. Someone I was close to told me a little while ago that at first maybe you can hope people will understand but not after it’s gone on for years. Certainly “it” has gone on for years for me. Whilst it hurt when she said that I can also sort of see that you cannot expect endless understanding and it feels like asking more and more the longer I am not there and not well.

It is only very special and very empathic people who continue to understand and to be there. I am very very thankful for you. I care about you and I am so sorry for the times I fail to show it when I cannot write or say or otherwise show the love and support I wish I could. You mean so much to me. Thank you.

***

Also, in the past few days I have been trying to put together something in writing, a kind of open letter, about how I feel about my current care and how I have been treated by different services in my struggle to get help. I’m going to finish this tonight in preparation for, hopefully, meetings with a nurse practitioner and the Psychiatrist at the hospital this week. I think I may share some of it on here because I don’t think I’m the only person fighting the failings that have pushed me nearer the edge.

Ginny xx