Tag: help

What you aren’t allowed to admit – the shameful secret that I want to be cared for

The service where I am in therapy at the moment has suddenly (from our point of view as patients at least) changed our care coordination appointments from monthly to quarterly. Less than quarterly, in practice. I was supposed to see my care coordinator today. The appointment has been moved to the end of September. This will be 4 months since my last appointment at the start of June. This comes at a time that I desperately needed care coordination and when everything feels on the edge of fragmenting.

I am furious at how this change has been made, for myself and for other people in my therapy group. I’ll post about that next.

I spoke to my care coordinator about it on the phone and one of the most hurtful things that he said was that this has been an “ongoing clinical decision over several months” and they think this is the best way to challenge us to have more independence because instead of having a care coordinator we’ll have to take the initiative to sort out our problems. I’ll set to one side for the time being the hurt caused by having been kept in the dark, not warned, let alone involved, in the “ongoing decision”; the apparent total lack of awareness of why care coordination is needed; the assumptions about knowing what is best for us….

One thing that really really hurt and I wanted to scream and felt utterly betrayed again by the people supposed to help me and understand me was – we do not need a test, or a challenge, or to be forced to be “more independent”. We desperately need to be heard and to get help. I have been in this service since November 2014 and I am still screaming inside and falling to pieces and trying to be heard over the same issues as when I first came to the service. We have always been on our own. We have had to do everything with no help and knowing everyone will leave us. We just start to trust this service and dare to think perhaps they’ve understood a tiny bit of what it’s like, and then we get proof it was all an illusion. Never in my whole time with the service have I felt safe, been kept safe.

And here comes the thing it’s so very shameful and not allowed to admit. Sometimes – even a lot of the time – I don’t want to be independent. I want to be heard and I want to be cared for. The abused and terrified and frightened child inside me has never ever been heard or believed and has never been cared for. I have fought and fought on my own and I cannot do it anymore. I need help. I can shut up the child for so long by cutting and starving and drinking and overdosing. But there is a point of breaking. And I’ve passed it. I’ve never been safe. Never been safe from my abuser. Never been safe from what goes on in my mind, the pain, the hallucinations and flashbacks. 

I know these feelings aren’t allowed. We have to take responsibility. We have to be independent. We have to be adults. We have to function.

Is it so very wrong to want to be kept safe? To want someone to hear and know how utterly painful it is? To want someone to care for us? To want someone to stick to what they agree to and not trick us, not tell us they understand but then leave us alone when we most need help? If I am not independent is that really the most important awful thing? Why should I not be allowed the help I need because it’s so desperately important I be independent? Nobody kept me safe as a child. Nobody cared for me. Over and over again my abuser tricked me and left me powerless. The service I should be able to rely on now in my treatment, to understand and help me, makes me feel the same. In no way is it an empowering kind of being made independent. It’s being pushed away and tricked and all the cuts made deeper still.

I’m ashamed to admit it but I want someone to care for me. Before I can start to get any more ability to cope on my own I desperately need someone to understand how loud I’m screaming and how much it hurts and not to leave me, hold me and stop me from falling to pieces, stop me from losing all grip on reality because the pain and terror is so utterly consuming, hold me and allow me not to be okay. Then maybe I might be able to take very gradual steps to take back responsibility for one thing at a time. I don’t need to be tested, tricked, pushed away, not believed, not heard, used over and over again and taken to the most vulnerable desperate point then what tiny little things we hoped in taken.

I am full of anger and pain and rage at being tricked and used all over again.

G.

The 1000th last straw

[TRIGGER warning for mention of self harm, overdose and suicidal thoughts, and childhood sexual abuse;  and for anger, i am really angry and hurt writing this.  I am not meaning people to worry about me. When i say I’ve given up i mean on therapy and the doctors and everyone i trusted, not that I’m immediately suicidal.]

I am so far beyond angry. Hurting. They can decide I don’t get help. But it does come to a point I can’t just keep going one day more and being told the bad things are temporary.

In group and after I desperately needed to talk about the abuse and trauma and the decision I’ve now got to make whether to make a full statement to the police. I needed help when I told them I was really high, right on the edge, really unstable, not safe. Nobody heard.

I’d dared to ask a friend for help and to help me talk through some of what I have to decide about the police. She’s cancelled and changed arrangements so many times we’ve had to meet. I doubt she really wants to anymore. She keeps meetings to the most difficult and shortest times. She knows I’m ill, she knows I’m desperate, she surely knows how difficult it is to talk about abuse! She agreed to meet in the middle of the day at her work. Obviously I needed to talk in private but if that was all the time she had then I was thankful for it. I was at my wits end today after group. She changed the time and place back and forth through the morning today. She knows this puts me right on edge if I have no idea what’s happening. She told me she only had 30 minutes, then that she had work to do and hadn’t finished, then couldn’t I wait an hour and a half later, then asking where I was, 2 hours earlier,  when she knew I was still at my hospital appointment. When I finally pinned her down to a time she still came 20 minutes late without even letting me know and we had to meet in a crowded cafe where I obviously couldn’t talk about a thing – what did she expect me to do?! “How’s your cappuccino? Oh yes and by the way, I’m not quite sure how I’m going to cope when I tell the police about my mother sticking things up me when I was 7, any thoughts?” I don’t think so!

Then she told me I ask too much, it would be impossible to do what I ask (really? Is it so very hard to agree to meet a friend, stick to the arrangement and turn up?) And she doesn’t believe i wanted to meet in private because I thanked her for agreeing to meet in the middle of the day (well just because I thanked her and was grateful doesn’t mean I was happy or it was what I needed, I was just grateful for any help – or what I thought was help). She said she didn’t know we needed to meet in private (really? Is she that stupid she doesn’t know if you have to talk about abuse you won’t do it in the middle of a cafe? I don’t think so).

I was in bits and in so much pain as well  – and yet again the last hope of getting help or to talk to anyone was snatched away. It’s not just today. It’s every single time. I’ve had it now after this is just repeated – every one i should be able to trust,  every place i should get help. They don’t hear. They don’t believe me. They don’t help. It’s some sick joke or someone’s plan to find out when I break, to laugh at me, to test if I want help enough. Well I’m screaming and nobody can hear. I can’t scream louder. They can choose to keep up this game. Well I guess they’ve won. I can’t shout louder. I can’t make them believe. I can’t make it so that I deserve or am allowed help. I can stop trying anymore because it does just hurt too much. That one’s down to me. It’s not really a choice because it simply now is too painful. But I can choose not to let anyone near me again so they can’t trick me, so they can’t decide to keep a distance because I’m not allowed help and cut me down again because I’d just started to trust and go forward believing they’d be there, so they can’t disappear and show me how they don’t really want me around and it isn’t a friendship and they won’t be there.

(Funny. She’ll threaten to call an ambulance – and if I do go to a&e I just talk to someone then get bounced back out after a few hours and I’m alone again – but she won’t come to see me when I’m not safe, understand how hard it is, sit with me when I’m terrified, come to see me when I was in hospital – every time I was in I was the only person on the ward who didn’t get a single visitor -or hug me when I’m crying. Why is it so hard to do any of that? The doctors don’t care and don’t help me and the only friend I have nearby doesn’t want me around and says go to the emergency services. So I’m not allowed medical help and not allowed friends.)

I’m not allowed any help. I need a friend and I need someone with me and I need to trust someone but every single thing I trust gets taken. It’s not just today it’s every time and I’ve had enough. Oh, you must keep going to work, they say. You’ll feel worse if you have nothing to do. No, I won’t. All I want is it to stop. I don’t want to go out. I want to sleep. I want drugs to stop me feeling.

Oh it won’t help you if you have anyone with you it won’t help you get better you have to be independent. Why is it for her to decide what I need? She’s not my doctor! She doesn’t know what it’s like! I need help. I need someone with me. I want a friend. I want someone to help me. I want someone to care. I want someone to be there when I can’t cope. Not only when I can say everything is fine. Not only when it suits them. Not only because they’ve decided I have to learn to be independent. I’ve always been independent. Nobody has ever been there when I needed them. Now I Can’t cope anymore. It’s even more cruel that every time I’m most desperate I have to be deceived into thinking someone’s there then left alone.

If you’re friends with someone, if you care for them, you are there when they need help. You don’t decide what they need or that something else is best for them or they have to learn something. You don’t see them sometimes then walk off when they’re ill. You don’t constantly change every arrangement. You don’t only allow them in certain situations and certain parts of your life. If they need you you’re there for them. If they’re sick you help them and care for them. You don’t just disappear because it isn’t convenient. That’s just utterly basic friendship and actually basic morality. I’d do it and do do it for anyone.

Is it really so terribly much to ask? Every other person in therapy has family, a carer or a spouse with them. I’m the only person who doesn’t, who lives totally alone. Is it really so terribly awful to want someone to be with me when I’m in crisis, to hug me when I’ve been crying for hours, someone to stick to a commitment, someone to be a friend, someone to help me when I’m cutting as soon as I’m alone, when I’m terrified of the hallucinations?

And the doctors know and they don’t care. They don’t help me. My friend says call them if I’m not safe. She says persist. I’ve been persisting for years. I’ve been accepting nobody wants me. I’ve told them in not safe. I’ve told them I’m cutting and overdosing and when I was planning to end it. They didn’t help me. I don’t want some stupid phone number for a few minutes of so called support. That doesn’t keep me safe or get me help or a friend or anyone with me. I’m on my own again. Left to just go back to the same cutting and overdosing. There’s no other way to cope. They tell me just keep going is temporary. I don’t care if it’s temporary. I can’t right now.

After years of making sure never to say what I needed and always to do weekday I’m meant to, I’ve had it. I’m a disgusting selfish b*tch and a baby and I’m screaming and I need help now and nobody can hear me. I’m not allowed help and I know I’m not but every time it’s proved the kick hurts even harder. I know it’s selfish and disgusting but actually the need and the hurt has taken over. Nobody wants me. Nobody wants me really, not what’s really me.