Tag: PTSD

Walking this Borderland #3: Good things happen over tea

 

 

Please read Walking…#1: Introduction before this or any other post in this Series. Thank you.

 

Good things happen over tea. I saw that quote on a gift mug today. It’s true. Perhaps I’m particularly English 😉 though it’s my coffee I really can’t get through a day without!

This one follows quite well from#2 and is another way of practising grounding and mindfulness.

If it’s not too wet a day, I like to sit outside for a few minutes with my tea. I don’t mind if it’s cold – I wrap up well and the nip in the air adds to the sensations that keep me rooted in the present.

I hold the cup. Enjoy the smell. Watch the delicate progress of the steam wafting upwards and maybe feel it on my cheeks if it’s a particularly cool day. I sip slowly and really enjoy the flavour and the comfort the warm milky drink brings inside.

Then I turn my attention further outwards. A good place to start, I’m told,  is to name 3 things you can see, 3 things you can touch, 3 things you can hear, 3 things you can smell. Sometimes I start there and then go on to appreciate in detail something in my familiar surroundings. For example, how many different shades of green / gold / brown are there in the big tree opposite my flat? Count them. What shape are its leaves? Are there fewer today,  if it has been windy?

By this time, if I was feeling okay when I started I may be feeling calm enough to try some slow breathing exercises. If I was in a state of very high emotion, turning my attention outwards in this small way may have been enough to just slightly take me away from the extreme, to a place I can be a bit further from acting on dangerous impulses.

Ginny xx

Alone again, naturally

What do we do when we desperately wish someone could hear us? When we know fully that it is not anyone else’s responsibility to save us, yet we wish there were someone beside us. Is it disallowed, not to find oneself alone in the end?

Why do we keep trusting when we know what will come and know soon enough they will no longer choose to be there and why does the alone hurt more every time?

When we know nobody would choose us first, nobody would willingly turn and open to us, nobody really thinks we can bring good, but we long most desperately to give, give at any cost, and we are always here, for it is just obvious and right to us to be, though we are almost always dismissed – where can we try to be a friend?

When we’re screaming and hiding and hurting and clinging by a thread and falling over the edge, fragmenting, when maybe we dared share a little to someone or count on a tiny thing – and even that doesn’t come or they don’t respond – what do we do as we fall apart?

Is it terrible to be angry when we’re left there?

I don’t ask anyone to rescue me but just someone to answer and sometimes stay a little while beside me and please, please not disappear. To sometimes name the first move, come willingly and share and please not hate me when I cannot do all you think I should, please remember it is not an equation and I can’t always give out what you think I should.

I so so much need you right now and I am so much here if only you would allow me.

But perhaps most of all I should stop longing because I’ve learnt well enough what the end will always be – gone away, left alone. Alone should cause less pain as there would be no more losses so why does my inside scream and make alone so painful too?

I wish I could trust someone to answer. To ask how I am and actually want to know the answer, nor just the portion of it they deem acceptable or allow to be considered. To maybe call me or send a text if they know it’s a very bad time. To keep to an arrangement to meet and know how I will shatter if they cancel at the last minute because I was clinging so very very tight to that little bit of strength the meeting would give.  To stay a little while in understanding when I’m terrified, not just say it’ll soon be over.

All these little things are obvious  to me and so natural to give to a friend I would not think of doing anything else. Yet so very rarely do I ever encounter them myself. I suppose this tells me again if I had any doubt that I’m not if any value in a relationship to anyone and am not allowed even these most basic things.

And anger burns behind the hurt, with everyone who left and with myself, for needing, yet again.

 

(Title from song ‘Alone Again’ by Vonda Shepherd)

Love me there

I stumbled across this quotation a few days ago and thought it just perfectly expresses a deep longing I dare never verbalise,  and I wonder if others with BPD, PTSD, or other mental health conditions may find something that resonates with them.

Here it is:

“Crawl inside this body.

Find me where I am most broken.

Love me there.”

Anne Lazuli

(I do not know anything about the author and plan to see if I can find out.)

Ginny xx

Walking this Borderland #2: Grounding

Please read Walking…#1: Introduction before this or any other post in this Series. Thank you.

Six ways to ground yourself when you notice the early stages of an overwhelming emotion building (eg, panic, fear, anxiety)

I find these particularly help me. The aim is not to deny or stop feeling the emotion, but to reach a safe state where you are not overwhelmed with distress or driven to compulsive actions, and where you can perhaps begin to recognise your emotions and also recognise that they are not permanent and are not all there is of you or of the world – they are valid and they are allowed and also, they will sometime, somehow, pass.

I know the ideas below sound as if they couldn’t possibly make any difference when you’re feeling terrible but somehow, sometimes, they do. I was taught that it is good to practice using them when you are feeling okay, so that they become familiar, and to try to use them as early on as you can when you first feel your emotions rising, because when you are already in a state of peaked, extreme emotion, it can be too difficult to be able to try to use them.

  1. Step outside if you can, or if not, just into another room. Notice all the sensations around you. What does the ground feel like under your feet? What can you hear? What can you see? Can you touch anything – the wall, the door? What does it feel like? You are here and now. These things you see around you are concrete. They will remain. The emotion, no matter how terrifying, really will somehow pass.
  2. Touch a favourite object. What does the surface feel like? What colour is it? Does the sensation of touch calm you? Is it an object that reminds you of a happy time or place or someone you love?
  3. Count backwards in [threes] from 100 to 0. [Especially occupies your attention if, like me, you are not very good at maths/logic 😉 !]
  4. Clench and unclench your hands rapidly, focussing on the sensations in your muscles and on your skin.
  5. Make a hot drink. Hold the cup whilst it’s still hot. Focus on the sensation of the spreading heat relaxing the muscles in your hands. Breathe in and out deeply and focus on the scent of the drink or the warmth of the rising steam.
  6. Repeat a grounding “safety statement”, even if you can’t really believe it at first. For example (replace the […] as appropriate): “I am [Jane Doe]. The date is [5 December 2015]. I am [35] years old. I am [in my room in my flat] in [name city].  I am in the present, not the past. I am safe now.” I am relatively new to using safety statements but my CPN told me that this is a good way to recover from flashbacks / re-experiencing memories.
Walking this Borderland #1: Introduction to the “Walking…” series

Walking this Borderland #1: Introduction to the “Walking…” series

I’ve decided to start a new series which I’ve called “Walking this Borderland”. I’m going to try to make each post in this series short and readable. My idea is that each will share an idea, skill, or thought that I find helpful in coping with an aspect of the symptoms of my Borderline Personality Disorder. Some of these are things that have been suggested to me by health professionals. Some are ideas a friend (perhaps who also has BPD) has given me permission to share. Some I have come up with or encountered myself in my path living with BPD.

I am sharing these in the hope others may find them interesting or helpful. Perhaps if you suffer with BPD or another Personality Disorder or know someone who does, you may find they are things you can identify with or are relevant or helpful to you. Perhaps they might equally be helpful to people who struggle with other mental health conditions – or even to anyone curious about emotions. Perhaps as a reader you would like to share your own experiences and ideas that help you, in the comments. I’d love it if you did want to do that.

As I have said many times before on this blog, what I’m sharing is personal and every person is very different in what is helpful to them or how they experience emotions. I really hope there is nothing I post in this “Walking…” series that would be unhelpful to anyone reading but please bear in mind that I am only sharing from my experience. Though I have worked in many mental health treatment settings and had some non-clinical training, and receive therapy myself, I am not a doctor, I am not clinically trained, I am not medically qualified to provide support or help to people with a mental health condition. So whilst I hope that this series is going to be useful, I very much urge you to please please access and rely on support from clinicians who are trained to help you.

Ginny xx

The fear of what lies within

It was my MBT therapy group this morning.

I was very sad at the end and the frightened abandoned child part of me was crying.

I do not want to risk breaking any confidences so I will just say that we shared our feelings and thoughts around abuse suffered, memories, trauma, and times of finding out that a loved or trusted person has done something very very wrong, perhaps the most terrible wrong of violating the most delicate and intimate part of another person’s physical being and emotional soul.

I wish I could write more freely but I am very afraid to break or betray confidences, even though I do not give personal information or write under my real name. Too much rides on that to ever risk it and it would cause too much pain to everyone else in the group.

[Note – at this point I know that my writing that follows has not become very coherent. This post is a lot of things I had to get written down for me and it may not make any sense whatsoever to readers. I am sorry for that. I am not sure that any good can be gained from reading it, actually. I feel I have to write it to start to unravel some of the terror I’m feeling right now about the experiences we explored and to start to pick out some of the emotions. I don’t know well what they are right now. This comes with a warning about painful and scary themes in the writing that follows although because I don’t know if it makes any sense at all, I’m not quite sure what exactly to warn for. It does mention a memory of someone threatening and abusing and physical violence. Just…. warning…. xxx]

I am sad and cold now and desperately wish someone were with me to hold me; to hold me here and tell me what’s real, what’s not real, what’s no longer real, and maybe the hurting child part of me would be protected. She knows only she is wrong and she has harmed and she could drive someone to death – and the flashes come of the terror of finding her, there, like that – and she must be alone and she must know the bad that she has done and if she just watches hard enough perhaps she can get away before it all happens again. But still she’s crying and hurting and nobody comes. Nobody held her, nobody told her it was alright, nobody told her being loved and being able to love didn’t mean being able to get it right enough, disappear enough and fill everything she needed without fail. She cried on her own and she wished alone would stay forever then, in the little room and her make believe world with the “children” she cared for and made real in her mind and for her eyes only, where she didn’t do harm, and later where she was even allowed to cry and someone would hold her and tell her she was good and it would be alright. She could even save people in that world, be brave and strong and rescue and save, suffer hurt herself to protect and save the others. She could slip into that world.

If only the alone time always lasted. If he didn’t come home, didn’t open her door, and know instantly from her frightened watching and sometimes her attempts to block the door, and her mother in her own bedroom in the dark in bed (sleeping? Silent and still, certainly.) If he didn’t come and Mother didn’t get up (one day would she not get up? would it have happened that she’d gone away as she threatened, or even that she was dead?) then alone would last. It was frightening and panicky and hollow but it was safe and she could slip back into the other world, with her “children”. But he always came home. He knew straight away – without a shadow of a doubt she thought this – what had happened that day and what she had “done” to her mother and what had happened and what her mother was going to do because of her. He’d go in to her mother and her mother would tell him what she’d done. Then down they’d come, and he’d be cooking dinner, and the evening and night “session” would start, of Mother crying and screaming and threatening and asking her over and over why she had done it, until Mother came up with the explanation for the evil thing she had done, to punish Mother and get her own back in some twisted way. And the child wouldn’t even understand what the initial deception was supposed to have been, sometimes, let alone how that was punishing. The wrong, you see, was only a wrong if she had intended the evil and the punishment in her action. The action wouldn’t have been wrong without it because it had not any value, it just was. But there was the evil motive and intention and Mother always knew it exactly. And all the time she’d be asking, watching, shouting, accusing. And the child would be crying. Nobody came to her. Nobody helped her. Father comforted Mother, hugged her, sat beside her, stroked her feet and legs, sat with her when she went up to bed when she’d made her so sick she couldn’t cope. He brought Mother the wine and coffee she drank and the cigarettes she chain smoked. (Did he know she threw the glass jars at her? With practised precision to smash into thousands of shards directly at her feet, I know now.) Nobody brought the child anything to comfort her and nobody held her when she cried at the threats and shouting or being left alone when Mother went away and she wondered if that would be the time Mother didn’t come back – look what you’re doing to your Mother… stop crying like that, that’s what people do when they’ve had something really serious happen to them, stop sitting there dripping like a blood machine – and nobody went to her when she cried at night and nobody was there when she got up and was terrified to move and terrified of the stairs. She couldn’t tell anyone when she wet herself because she was too frightened to open the door of her bedroom to go to the bathroom in the night because she thought Mother would be dead outside and that would be the night she would find her – but if she didn’t go out it wouldn’t be real in that child’s mind – she tried to hide the wet things and when Mother found them stuffed into the back of the wardrobe, smelling, she didn’t answer why she had done it. Mother was always there. Father took completely her side and the totality of everything she claimed was the entire truth in his eyes. But nobody was there for that child.

She’s still there and scared and she wants a hug and in the flashbacks she’s all I am and I’m frozen and terrified. She needs someone to take her and not let go and never let go and she really really wants to be real and not be bad, just be the real little girl she is and not the terrible other evil things that Mother said she was doing. Is she a little girl or is she manipulation and evil and danger and damage? Is she real? Is the world she prefers to escape into real? Because it’s so much better and so much safer and it’s there that somebody wants and needs her. Please could she be real.

It really really hurt when Mother did the things she did with her body, in front of the mirror and on the bed and in the bathroom and……. inside…… it really hurt and Mother told her how to breathe so she could do it.

Why didn’t she know it was wrong?

Why was it her normal?

Why didn’t she tell? Why didn’t she stop it?

Especially in the bathroom. Because she was older then. Why did she just let her. Why even when the problems started later did she still not connect it.

Why.

Why is she so dirty and disgusting.

And most terrifying of all what if all this is a lie. What if she’s a foul ugly silly little thing and she’s repeatedly punishing Mother and that’s all this is and it’s all a lie.

Voices. Voices. And crying. Crying tired. Crying for it to stop. Cold.

And was there anything that was good?

****

And what if someone so bad – as what Rev. F. did with the young men… what about me? I thought he was kind to me. I thought he encouraged me. I thought he was kind and he always remembered my name, said hello and said he’d pray for me, and told me hope when I was in the grip of bulimia and losing the plot. I held on to the peace in the evening services as we prayed. But then he did – was doing? – that with the young men. And that was pure hurt and wrong and never never can in any way be alright and so so much harm has been caused to them. What does it mean that I thought something he did was good? What was his thinking when he did the things I thought were good? Would I have become complicit? Why did I think he was kind – someone who could do things like that? Am I so so bad too if I could think he was kind? Am I somehow open to being taken? Taken and used and used to hurt even without knowing?

Yet again. There it is. Used to hurt, doing bad, doing bad without knowing.

Can good be done without good being the intention?

Does that just reinforce that bad can be done without knowing too? Does that mean you can be bad without knowing?

Ginny – – – but not Ginny, really, tonight. Ginny’s got a bit lost right now. Tonight I’m still the frightened child. (Dissociating again.)

I’ve called her Lily – the child. I’ve called her Lily. She’s always there.

Lullaby (5) – Makes my heart smile, to know that you give love so freely

I met my friend and her new baby B. today. She is perfect, beautiful, adorable, cuddly, with inquisitive eyes (when she woke up!), rosy little cheeks and already crowned with lots of soft black hair that loves to stick straight up and you can tell will soon make cute little bunches on top of her head.

There is something very special about the rush of love that fills me when I hold a little child. Much as I fear having my own children and fear I would not know what to do, would not know how to be gentle enough or how to keep my patience when they cry and cry or do not sleep the night for months, or how to know what they need, holding B. today the perfect trust she showed as she cooed and nestled in to me and went to sleep soundly, as though she had found a “safe place” of her own, pulled at my heart with protective love.  As she laid on my chest I knew it was a privilege to be loved by her unconditionally and to protect and adore her and wish to give her everything good.

And B. is not my child – how much more must those feelings be as a mother!

B’s mother, who has encountered with varying degrees of proximity many distressing family and childhood situations, including ill treatment and abuse, said that she has asked herself how inconceivable it is that anyone could ever do a child harm.

Part of me would long for my own family and I have been touched by love for and delight in my friends’ children, including my godchildren. Equally I am stunned that my friends did choose me as a godmother, being so sure myself that I do not have anything good to give and if only they knew how very bad inside and dangerous I really am. I even won’t go to spend time with my friend if her boys will be there, sometimes, because I am so afraid I might do something that hurt them – either unconsciously, in a dissociative state, or because I’m just bad really – or that I would only upset them. If I were a mother I’d be afraid I had no idea how to raise a child, what to give them, how to teach them, and that my patience would run out.

My fears intensified when I was babysitting years ago and the child I was caring for was in the midst of a tantrum and the voices in my head started telling me that I was going to hit her. I was terrified. So terrified that I shut the child in her room and myself into another room and left her alone crying because I thought that was safer than what I was going to do. I was very disturbed afterwards and starved myself in the following days as punishment. I have never babysat since. It was all the proof I needed how the evil was going to erupt from me.

Today B. slept in my arms. Today she just wanted cuddles and love. Today the love cast out some of the fear, whilst I held her. It really touched me that I had been open with my friend about some of the awful things going on in my head – my BPD, my hallucinations and obsessional thoughts – and still she wanted to come to see me and let me hold her child and trusted me.

“For perfect love casts out fear,” the Gospels say. In the moments that little baby melted the fear in my heart, I began to understand.

There’s a fight in my heart and my head right now because as soon as I left my friend and baby B., the anxiety grabbed at me and I’m terrified again; something cold and horrible is clutching at my chest. It’s as though all the knowledge that I’m bad and fears of the evil in me are redoubling their efforts to break me, so as to punish me for loving and trusting and being happy with B. Tonight’s going to be a very hard and scary night. I’m going to try to keep loving.

Ginny xx

This song by Vienna Teng, “Anna Rose”, speaks very much to me of the tender love between a parent and child and the delight children’s non-judgemental acceptance and trust gives us.

A super quick question about BPD / PTSD and physical pain

This is a theme I want to come back to in a longer post. I have been meaning to write something on this for a long time. For now, a very quick question, if I may.

As well as my mental health problems, I suffer with fibromyalgia, endometriosis, chronic back pain following an injury, some degree of hypermobility and potentially now a nerve pain condition as well.

I have noticed from therapy and support groups I have attended that pain conditions and joint conditions seem to be suffered by lots of people with personality disorders, PTSD / complex PTSD and/or who have suffered abuse (often in childhood). Certainly in a group I participate in at the moment, I think a higher percentage of us suffer these physical problems than you would expect to find in a random sample of the general population, if that makes sense. I have also read a couple of articles on this theme recently.

I don’t want to push people to disclose something that feels too personal so please don’t feel any need to answer. I just wonder if anyone reading this also suffers pain conditions as well as mental health difficulties? And do you find any interaction between them eg when one is worse, another also is? Or do you feel that psychological things you have suffered have had a physical impact as well as an emotional one? If anyone did want to exchange thoughts on this I’d be really interested.

Ginny xx

On panic, lemons and stitching patterns

On panic, lemons and stitching patterns

I’ve posted before about how I find that colouring intricate patterns can be very calming.

When I was an inpatient I drew and painted a few times, which I had not done for many years. I go through phases of doing a lot of cross-stitch embroidery or making greetings cards. It seems to be something that I do a lot of and then leave for a while then return to it. Sometimes I find it helpful and calming but other times, I really want to be able to do it but am not able to. If I try to push myself to, it just doesn’t work – I go wrong all the time when I try to follow a pattern, or I just can’t put together anything pretty. Then far from helping I feel dragged down lower. It’s as if when I am completely drained and lacking in emotional / mental energy, there is nothing with which to be creative. In those states I often need to sleep, or paradoxically, to do something physical like getting outside and walking.

I’ve been on two different wards as an inpatient. One of them had a variety of craft activities available and support to use them and discover and learn new ideas for projects. For example we learnt to make plaited bracelets, worked together to put together a collage display, coloured stained-glass window images, and so on. The peer support worker spent a lot of time facilitating these activities. The other ward did not really have such resources and there was nobody to support these kinds of activities. The first ward seemed much more an environment in which it was possible to focus on having hope of getting better and learning skills to cope. Of course the access to creative materials was not the only reason (I think the work of the peer support worker was very important and I will post about that separately). However I think it made considerable difference to how the days passed.

I think in working with simple materials to create something beautiful, you can empty your mind, practise mindfulness techniques, slow some of the frantic anxiety as you become absorbed in the task. The concentration it requires and the different sensations you encounter – textures of fabric and materials, sounds, colours, deciding how to combine them, perhaps repetitive and rhythmic motions, the sense of putting together something lovely from all the separate parts – all of this helps occupy your mind. In  a similar way to distraction techniques, by filling your mind with all these sensations, they can become the focus, rather than obsessional thoughts, sadness, anger and so on. It does not solve anything but can replace some of the intensity of an emotion for a time. I can find it helpful in trying to delay self-harming as well as in times of generalised anxiety or after panic attacks. My friend who suffers with an eating disorder said that in particular having something to do with her hands can calm her after eating and help her resist the urge to binge-eat and/or purge.

My clinicians explained that there is a limited number of sensations the body and mind can experience at any one time. In personality disorder, our emotions may reach a higher level more quickly and in this heightened state, we cannot think rationally or mentalise or make good decisions. We cannot see outside of the emotion. It also takes longer than it does in most people for the level of emotion to fall. One thing that can help the emotion to fall, to get to a level where we can start to mentalise, use distraction techniques or choose to do other things that help us, is to “shock” the body with another strong sensation. For example, putting your hands under very cold water, holding ice, or (this one works well for me) eating something with a sharp taste. I use pieces of lemon, or lemon juice, with a sharp and bitter taste. This can help to lead you out of extreme distress or a panic attack, to the point that you can then address how you are feeling with other techniques. Then continuing to do something that gives positive sensations can continue to calm you – for example, something self-soothing like hugging a soft pillow or wrapping up in a soft blanket, or perhaps one of the creative activities which provides a range of tactile sensations.

There is also something encouraging to me in being able to create a picture, object, etc, which is useful or attractive or perhaps can be given as a gift to someone else, even when we are really not feeling great. It’s another way to make it true that the overwhelming emotions are not all that there is and to start to hope that there could be some good somewhere in me.

Ginny

xXx

Hearing things

Hearing things

This post contains discussion of experiencing hallucinations, or sensations, which are not “really there”, as well as in very general and brief terms touching on self-destructive ideas. I put this as a warning because I am not sure whether this may be disturbing, distressing or triggering to anyone. I have discussed this very little before. Please consider not reading further if it may not be helpful to you. Thank you.

I have a question on which I would be very grateful to hear any thoughts or answers.

My understanding is that in borderline personality disorder, heightened states of emotion for a prolonged period of time can cause transient psychosis and that people who have Borderline may experience hallucinations.

A few other people I’ve met who have Borderline have shared that they experience things which I think might be termed hallucinations, for example, hearing voices, sensing presences, seeing people or things, sensations of touch, and so on. These seem to be with varying degrees of – I cannot find an adequate term – solidity? For example, ranging from the sensation of a presence with you or a sound, to clearly and specifically seeing another person in the room.

I’m frightened by hallucination experiences I have.  I know I am more likely to have them when I am in a state of high emotion. Until recently, I was more likely to have them when alone. Most commonly (I think) they are auditory – hearing someone calling my name (most commonly my mother’s voice), hearing something happening or being said again which happened a long time ago (this is closely bound to my experiencing flashbacks as part of my PTSD), hearing a voice which I am aware is in my head but which appears to come from outside of me telling me to do self-destructive things or telling me how stupid, disgusting, ridiculous, greedy etc I am, or hearing non-distinct voices but knowing that it is accompanied by a sense of pain / anger / urgency in some way. Sometimes I am aware that what I am hearing is in my head (like the voice telling me to do things to myself), but increasingly, sometimes I am certain it was in the world outside (like my mother calling me). More recently, the hallucinations are visual as well, for example, inanimate objects seeming to move or shine. I am always aware immediately afterwards that this cannot be real. Or they can be sensory – this tends to be bound up with the flashbacks again, for example, during a flashback believing that the people present when the traumatic thing happened, the people I feared, or just a non-specific sense of terror that is much more an external sensation than emotion should normally be.

These things are all intensifying. I am scared. I fear am I developing psychotic symptoms? I know my mother’s illnesses started to worsen when she was just a little older than me. Is the same thing happening to me? I would like to know, does anyone else with PTSD or personality disorder experience this kind of thing? Or even, if you are not diagnosed with a personality disorder or PTSD, have you ever experienced anything similar? How do you deal with it? At the moment I have an awareness on some level that these things I’m experiencing aren’t real. How do I make sure that I do not lose that?

I know that these are hard questions and personal questions and I understand you may not feel comfortable to answer. Anything you would like to share, I would be very very grateful for. I really do not want to distress anyone or trigger anyone in any way and if discussion of this kind of thing is not helpful for you I do not want to draw you in.

Ginny xx

With thanks for image to: http://freewallpaperdekstop008.blogspot.co.uk/