Tag: recovery

My rescue box – update

A while ago I posted about making up a “rescue box” as a tool to help me cope in times of crisis. You can read more about the principle and how the box helps here and I’d strongly recommend reading that before reading this post. In brief, the Box is a way of putting together in one place, easily visible and quickly accessible, the things that will help you cope when you are feeling bad. For me feeling bad tends to mean very upset, crying, struggling with voices and other hallucinations, and re-experiencing traumatic memories. The Box is not a cure for how you are feeling and is not meant to make the emotions go away. It isn’t intended to be a way to suppress them. Having said that, it is to some extent distraction, and a way to access tools to lower your very heightened emotional state so that you can then be more able to cope, to think, or to avoid impulsive actions that may be harmful to you. The CPN who explained the idea to me recommends it as a tool for BPD sufferers. I would imagine it could help people dealing with a variety of other situations / conditions too.

I promised an update about my box once I had put it together, so here goes. I’m new to this technique and I’m sharing updates as I go along.

I made my Box by covering a cardboard packaging box in gift wrap. I’ve started to stick some pretty things to the outside of it as well – a flower, some Hello Kitty stickers because they make me smile, a few little snippets of encouraging text – and I’ve put a little plastic pouch on top with a pretty card and a message from a dear friend. I’ll continue decorating the box with more sensory, pretty, attractive things and things that have a meaning for me and remind me of good times. I think this increases the likelihood the Box will be in my mind and be an appealing thing. (Half the problem with coping strategies, I find, is remembering to use them when the hard times come – often the distress can be so consuming I just don’t think of how to access helpful tools and techniques! Anything that helps me call them to mind has to be a plus!)

rescuebox

The contents of the Box is very much a personal thing, of course, as different things will be important to each of us. In case it’s of interest, here are some of the things I keep in mine (you can see them in the picture).

  • A couple of little stuffed animals – I’ll freely admit I am very childish! 🙂 I find them comforting and have quite a collection. To be honest, Bunny is usually next to me on the sofa, not in the box 🙂 and I collect “ty” Beanie owls and my-little-ponies. I guess stuffed toys also give a soothing tactile experience when you hold them, which can be useful for BPD sufferers. As a soothing sensation increases, the unpleasant sensation of very heightened emotion may reduce (again, I explain this better in my earlier post).
  • For similar reasons, a little bottle of scent. It’s soothing and distracting and if you are trying to control your breathing, the pleasant aroma can help you be aware of exhaling and inhaling.
  • A coaster, to remind me – make a soothing cup of tea! Drink it really focussing on the warmth and taste.
  • A special smooth, flat pebble from the beach, which is calming to hold (feeling the cool, polished surface) and which reminds me of the happy day on which I collected it.
  • A CD – at the moment it’s a CD I like with songs that lift my mood. This is a new one for me to try and I’m not sure which way it will go. When I am not in crisis, I enjoy listening to music. Putting on particular kinds of music and even dancing to it (well okay that’s a strong word – bouncing, at least!) can really pick me up. I’m not sure what kind of effect listening to upbeat music when I feel absolutely dreadful will have, but I’ll give it a go! It’s a way of trying to take an “opposite action” i.e. forcing yourself to do something “happy” or good for you when you are feeling sad and bad about yourself. The idea is this may in turn lift your thoughts. So listening to happy music and making myself move around to it might help lift my thoughts and feelings. Equally, at times music that expresses some of the anger or sadness I’m feeling can help as a way of “letting it out”.  I think I am going to trial both and then put together a playlist of favourite tracks specially for times I’m feeling down. Good job I live alone so there’s nobody to suffer for the fact that if I sing along I sound like a mouse with a particularly bad chest cold 😉
  • A favourite book I know well, which encourages me at the very hardest times, and some prayer cards with very short prayers. I can read over passages of the book, or say the prayers in my head, to repeat a hopeful and loving message to take the place of spiralling panicky thoughts, or the voices I hear telling me that I’m evil.
  • A few cards and a pen, to remind me – could I write a note to a friend? I.E., something nice to take me “out of” my own mixed up head, to force myself to do something positive, thus acting against the negative thoughts in my head, and making somebody else happy too?
  • A ball of wool – could I do something creative? Make pom poms? Do some cross stitch embroidery? Colouring?

I’ve tried to include a mixture of things that are happy and soothing of themselves (eg the stuffed animals, the scent) and things to encourage me to do something positive (eg the cards or the music). I’m also going to add to the box some pictures of my family and my close friends and my godchildren, basically people that matter to me, as a reminder of reasons to keep going and all the good things and good times that I can be thankful for – all things that can so easily be eclipsed in times of extreme distress.

So, that’s my Box! I hope perhaps this might be of interest…. I’m new to this and I will post another update about whether / how I find that it helps me.

Do you use any kind of toolkit like this to help you in the hard times? What would you put in your rescue box?

Ginny xxx

 

Did I actually just enjoy something?!

Since I came back from my lovely weekend stay with my friend L and her family a couple of weeks ago, I’ve been thinking back to it thankfully and often. In that weekend I felt genuinely positive emotions that have been absent for me for a long time (we’re talking years). Things like happiness at my goddaughters’ interest and excitement at our little activities and projects.  Their unboundedly curious questions showing perspectives so different from mine, especially different from my exhausted autopilot. Time with L. and real thankfulness for the strength and comfort her non-judgmental empathy gave me and really wanting to be there for her too, glad to be able to talk and share in her life, worries, joys, and so on.

Yes, the hard things were still there too. Voices, doubts, exhaustion, anxiety, it doesn’t magically go away. But the good experiences were so unusual for me that they particularly give me pause and I am all the more grateful for them.

Their good is lasting beyond the days I spent with L (nearly 2 weeks so now) in a way that’s more than just a happy memory. Perhaps it’s because it isn’t just a memory in my factual thought; it’s an emotional memory too. That’s stronger and more active and has a more continously creative effect on how I feel. I’m enjoying it and trying to nurture it, in thought and in prayer and in trying to build up some more creative, good experiences, especially where I can give or share something to someone else in even a small way. One thing I’ve been doing in recent days is making greetings cards, which I used to love but had completely lost all motivation or creativity to do. And I’m actually enjoying it, even looking forward to it. I can’t think when I last genuinely looked forward to an activity like this.

Maybe I’m starting to understand what a doctor told me when I was an inpatient in 2014 – that the more good experiences and memories you create, they can slowly begin to replace the terrible re-experiencing of traumatic past events and the automatic nature of obsessional thoughts and the power of the voices. I could not understand how this could work at the time though I really wanted to believe it. Later, in the most desperate times I was furious if anyone began to suggest anything like it. The suggestion seemed to trivialise the terror I was locked into. Yet now, I think I might be beginning to understand it.

Ginny xxx

All I want is to be your harbour

Sail your sea, meet your storm. All I want is to be your harbour. The light in me will guide you home, all I want is to be your harbour. Fear is the brightest of signs – the shape of the boundary you leave behind….

I love this song by Vienna Teng, “Harbour“. I feel it will inspire a couple of posts over the next few days 😉

I pray I can grow stronger and be able to be there for the people I care about so much, as a safe place and a harbour and a faithful, un-judging, unwavering, companion. I pray we can all find our own harbour.

To everyone who sails this turbulent sea and just by being here, helps me meet this storm –

THANK YOU.

Ginny xxx

 

Happy Easter to you, with love

Happy Easter to you, with love

I should have posted this yesterday, but better late than never!

Wishing you a very happy Easter! I pray that this time bring you good in all the little things, and that each day something brings you hope, something makes you smile, something makes you remember good times, someone shows you friendship, someone helps you know that you are dearly loved, and that peace enfolds your heart.

Thank you so so much for taking the time to come by here. I am very thankful for you. You mean more than I can express.

Sending big hugs.

Ginny xx

Today I will find good

Ouch. The pain is really bad this morning and I’m exhausted, anxious and don’t know if I’ll get through the day at work.

Today I am deciding to find as much good as I can. Today I commit to notice and be thankful for 5 good things around me. Today I commit to hold onto hope. Today I commit to find every small way I can to go that little bit further and bring help and happiness to others.

I’ll post the 5 thankful things later today.

Wishing you good today.

Xxx

This is My Body broken for you – Good Friday of the Passion of Our Lord

Today is Good Friday (for another 40 minutes anyway, as I’m so late posting!).

Today we remember Our Lord Jesus’s suffering and death and begin the watching and waiting with Him – in His prayer in Gesthemane, in His arrest, scourging, crowning with thorns, trial, carrying the Cross, crucifixion, death and burial. At the Cross and at the tomb we wait and watch with Mary his Mother and the disciples.

Today tells us Love came down to us. Our Jesus suffers with us and we with Him. He too cried out in desperation, feeling forsaken. He too wept. He too hurt and bled. Today tells us that in the hardest and darkest times when everything seems lost, everything covered in darkness, everything of you poured out – in that very moment love can still be at work and hope, though yet unseen, can be falling to the earth. At the Cross, all seemed lost, all seemed hopeless, in terrible pain Jesus our hope – died. Yet in that moment His love is poured out and His saving work accomplished.

We wait. We kneel with Mary, watching and waiting. Hope is hidden. Our Lord is in the tomb.  Yes, we wait.  We trust. Today tells us, even in this darkness, even in despair, hold on, because you are beloved of God, and nothing is lost. Love and hope fell to the earth and was hidden – but then love arose! We wait in sure and certain hope of the resurrection on Easter morning and when Jesus is lifted up He calls us to Himself.

When we see so much suffering as there is throughout the world right now, when we are struggling with our own pain, when darkness covers everything for us, we don’t know how to respond. It can seem so huge our efforts seem to be of little worth. Perhaps first, part of holding on is learning to wait, and kneel, not in a passive waiting, but in certain hope that though we cannot yet see it, through our time of darkness, love is at work.

We are never alone. We the church are the Body of Christ. As He suffered so do we. At times He draws us closer to His Cross. Just as He is fully present with us and fully sharing every moment of our lives, so He gives us an active part in His Father’s saving plan. In His suffering on the Cross His love poured out and so in the suffering we – His Body – go through,  so His love also pours out. We cannot see the way out of the darkness but we can be sure love is at work and love has won the victory.

“I will see you again and your hearts will rejoice, and noone will take your joy from you.” John 16 v 22

A visit to my goddaughters

A visit to my goddaughters

This Palm Sunday weekend has been a special one. The last couple of days, I have been staying with my goddaughters’ family. They are several hours away by coach so I do not get to visit as often as we might all like, partly as I am very anxious about travelling and my physical pain exacerbated makes the journey tiring too. Visits have always been a blessed time. My goddaughters’ mum L. is my closest friend and when I was at college, I lived with her and her family in holidays when I was unable to live with my own. Though a long while may go between times we see each other at the moment, we stay close in friendship and prayer for each other and don’t seem to lose the closeness despite the geographical distance.

L. is a very non-judgemental person, extremely compassionate and reflective, talented especially in work, study and music, selfless and giving, gentle and sensitive to others and extremely accepting. I am so thankful, in recent years especially, that she accepts me however I am, whatever I cannot do, whatever I’m feeling, however rubbish I feel. She makes it okay. I dare to tell her more than any other friend how I really feel.

My goddaughters bring abounding energy and a lot of happiness. Everything is exciting and new. They ask questions that make me smile and open my eyes to notice and be mindful. They find purpose and feeling in every moment.

We made cookies and iced them. This took several stages through the day and a lot of floury stickiness along the way – mixing, forming the dough, kneading in dried fruits and peel, waiting, rolling out the dough, cutting shapes, building new ones, then finally icing. We coloured. We went to the soft play centre. We read books. We played with the inevitable Peppa Pig Princess Palace. We went to Mass for Palm Sunday of Our Lord’s Passion. I got to watch my eldest goddaughter in her very first ballet show where she danced as a twinkling star.

I’m thankful. My heart melted to see happy eyes, smiling faces, hands outstretched to me for a hug, genuinely and fully pleased to see me, which astounded me. Their trust and unreserved enjoyment found me deeper within and for once I did not feel as though I was only watching from the outside and for a while, the real was stronger and louder than the voices and the noise in my head. I truly am blessed by my wonderful friends in this family.

Tomorrow morning I go home. This weekend is a gift I will carry with me. I am so thankful and so fortunate to be cared about and welcomed and loved in this way.

Ginny xxx

Tuesday coffee group

Tuesday coffee group

Today is my day off. This morning was horrible with very bad back pain and feeling really low, but I managed to get out to a weekly coffee meeting. I can’t always go to this because of my work but I like to go when I can. I first started after I was in hospital, when another patient told me about it. It’s a kind of support group for local people with mental health needs, although it doesn’t take any particular structured form and is just like friends meeting for coffee. Most of us, including the lady who coordinates it – a lovely caring person who unobtrusively helps and advises many people in need – have been inpatients at some point in our lives. We all face a variety of mental health challenges. We don’t necessarily tend to be in touch between meetings but it is something regular in the diary to look forward to and where we know that we can talk about how things are if we need to, not talk if we don’t want to, where we empathise with each other and where there isn’t the usual pressure to keep up a front and appear “fine”. I think these sources of peer support are few and far between and I’m very grateful for it and the little cafe that welcomes us for a few hours every week.

Ginny xxx

[Image from “Gilmore Girls” (episode PS I love you) – created by Amy Sherman Palladino, all rights belong to respective artists]

“Be soft…”

“Be soft.

Do not let the world make you hard.

Do not let pain make you hate.

Do not let bitterness steal your sweetness.”

Kurt Vonnegut

Too often, I do not know how not to be taken over by bitterness. It’s one of the most frightening things about the out of control emotions in BPD. That anger comes from nowhere. That nothing else exists of me but unbearable pain and I cease to be able to conceive of everything I most care about.

How do I keep on going, holding on to a truth of a permanence greater than my emotions? It’s one of the reasons faith matters to me so much. God is Love and always Love, unchanging and infinitely greater than me or anything I can feel or conceive. God made us in His image, ultimately good, for unity with Him. No matter what we fear or feel, our hearts are His. We cannot lose Him. No matter what we suffer, He is not a product of our emotions or our actions. No matter what we cannot see, He is giving us a purpose and a share in His work in this world.

xxxxxxx

Be soft.

Your heart is a fertile ground, tilled and turned in pain as in joy, to receive seeds of hope and love and newness. It is not a comfortable process, yet what tender flowers will grow there.

Be soft.

Receive the sun, receive the water, sometimes gentle as the evening dew and other times torrents of salty tears. Precious grows the rose from these streams.

Every flower has value, from the most elegant rose to the tiniest blade of grass or timid daisy. Just so, each heart and each step upon this way .

Be soft, still when the rose bears thorns. Let this pain be turned to purer love and stronger hope; let compassion and mercy spring unchecked along this path of testing and pain. Do not let this ground freeze over, to try to flatten the land, hide the barren earth and cover the sharp edges of the pebbles on the way. Anger may be swifter, indifference may be safer, indifference is cold, and nothing can take root in its frozen land. Freezing ground may be hard and seem strong and impenetrable – but then it shatters, fragments and is gone to nothing. The tilled earth, soft, accepts beauty taking root and good multiplies, gives and gives on.

Be soft, let the vines take root and bear much fruit, sweeter for the gentle ripening, sun and rain. The grains of sand and stones are slowly refined and turned, polished and strengthened, and become the brightest gems and precious stones. The fruit is rich and plentiful and feeds many needing and hungry souls, for this is love, compassion and mercy.

Be soft. Be soft and you will give and sustain so many more than you imagine. Be soft and you will shine, much brighter than you know.

With thanks to Cathy for the inspiration of the quotation “Be soft…” – visit her lovely blog at http://www.cathylynnbrooks.com 

xxx