Month: March 2016

Mothering Sunday

Mothering Sunday

Today in the UK we celebrate Mothering Sunday. I’m wishing good and lovely things to all you mothers and mothers to be out there. Have a blessed and joy filled day. You are special.

It is not an easy day for many of us, myself included, and I’m holding in mind especially everyone who has lost a mother or a child, or who is far from them, through geographical or emotional distance or irreconcilable hurt. I’m praying for you for comfort and some way to heal the longing, a little bit.

Mothering Sunday is a strange day for me. I am never quite sure what to do as my own relationship with my mother is so broken beyond any possible repair I can see, because of the abuse and her feelings towards me, and because it feels as if what I’ve discovered about her in recent years following the abuse has invalidated any previous attempts at a relationship with her.

I’m very fortunate that I have a caring step-mother and that my dad and she are very happy together and constantly busy, sociable, undertaking new things and many creative projects, all of which never happened in the family when my dad and my mother were together. I have three step-siblings and am slowly building more of a relationship in particular with my step-sister. Also, I am fortunate to have what can feel like a mother in a member of a close friend’s family – when I was very unwell and family life was traumatic, I was welcomed and cared for in their family and that is an amazing gift. I’m thankful.

I think that a loving bond between mother and child is needed by each of us at least at some point in our lives.

Happy Mothering Sunday.

Ginny xxx

Sing like never before, O my soul (Ten Thousand Reasons)

Lent sneaked right up on me this year and I felt so unprepared. Partly, because it began earlier than usual, Easter being about as early as possible* this year, but also because I have been through a period of having really given up hope. One of the most frightening things about my Borderline and PTSD is how the most terrible emotions can obscure everything good and important to me, even God and faith. It has been a period where God and heaven seem “hidden” for a while. Very slowly I am learning that the hidden times do not mean that my relationship with Our Saviour is lost or that He is gone away.

Bless the Lord, O my soul, worship His Holy Name. Sing like never before, O my soul, I’ll worship Your Holy Name… For all Your goodness I will keep on singing, ten thousand reasons for my heart to find.

Last night I went to a candlelit service of reflection, music and prayer, with the opportunity for conversation, guidance and the Sacrament of Confession (reconciliation).  I talked with one of the Priests about the feelings of anger that are coming and my fears of them; my fears of being out of control and consumed by this emotion that seems to block out all good and through which I cannot pray. His response really surprised me and I think it is going to change how I see my relationship with God and the work of each one of us in the church body and the community. He told me that the struggle I am going through with these feelings can itself be prayer. Prayer itself is not intended to be painful. If one kind of prayer, like praying with Bible verses, or reading, or trying to spend long periods in silence, is impossible at this time, perhaps God is leading me towards a different kind of prayer at the moment. Continuing to walk and struggle through this, even knowing that perhaps this pain will never be totally resolved this side of heaven; offering the work of every moment of every day; offering someone kindness or a smile; giving thanks for the small beautiful things that we notice along our way to work; writing to a friend; all these actions can be actions of love. The passion of anger may even be channelled into the passion of love. Perfection is not needed and could even lead to pride in our own achievements, or desperation feeling that we are useless. Continuing to walk forward when even the smallest things are an agonising struggle – that can be love, and that can be prayer.

And on that day when my strength is failing, the end draws near and my time has come, still my soul sing Your praise unending, ten thousand years and then forever more.

Perhaps then, this can be a new kind of prayer for me. Right here and now, even though I am so far from where I feel I am meant to be and even though so often I can lose sight of hope very easily. This kind of prayer, prayer in this moment, prayer in our offering of our current selves and current circumstances – that cannot be lost. It does not require even hope for the future, or tranquility in our hearts; it does not require success, much less perfection, but it does require the resolve to walk on.

Whatever may pass and whatever lies before me, let me be singing when the evening comes.

Italicised lyrics – extracts from “Ten Thousand Reasons” by Matt Redman. This is rather different from the kind of music I usually choose to pray with but it’s a song that speaks to me right now.

 

My cell phone is depressed (and Catholic) – on walking through cognitive dissonance

My cell phone is depressed (and Catholic) – on walking through cognitive dissonance

Just now I was typing a text message to my friend to say thank you for a good catch up that we had a couple of days ago. Like most Android phones now (I think – dodo alert!) it not only has predictive text in terms of suggesting the word you are currently typing, it also predicts the following words (so for example, if I type “hello how” it will prompt “are” then “you” “?” and so on). Sometimes it is rather over zealous in that function and inserts words you don’t want. Or, as I said, possibly dodo alert again.

So there I am starting to write “It really was good to see you” and my phone changes it to “it really hurts”. Then tries to do it again the next time, too.

It’s not just me you see – now it’s official, my cell phone is depressed too. It’s going for all the sad options!

This made me laugh and also realise that I must whinge a lot more than I realise if it has learnt that word combination. Then it reminded me of the time a while back when I had to send numerous messages about the choir arrangements over  Holy Week* and Easter at my church, so frequently that come Easter Sunday my phone’s predictive text learnt how to spell “Triduum”* and  “Attende Domine”*. So I’ve got a Catholic phone too 😉 .

On a more serious note, this got me thinking that my cell phone mirrors what the cells in our brains – y’all see what I did there 😉 – what the cells in our brains do as we have our life’s range of emotional and interpersonal experiences. Like my phone literally expecting “hurt”, the more hurts and pains we experience, the more we can readily expect this, the more we feel it and the harder it may be to feel anything else. Perhaps the longer we’ve suffered in an abusive or otherwise harmful relationship, the more we are only able to see ourselves and others only in the light of how our reality and our identity and our relationships were in that abusive trap. It’s somehow sadly a lot easier to continue to believe a very painful belief about ourselves that we’ve always held, than to be able to dare to adopt a new belief and to tolerate the cognitive dissonance we need to go through in order to begin to switch our beliefs. It’s easier to continue to believe rubbish about ourselves that our abuser(s) indoctrinated to us, than to accept any good. We long for care and help but we may be unable to receive it. Which sounds bizarre and I hope that it does not sound offensive.

To give an example, in therapy this week I identified that I have lots of rigid and entrenched beliefs along the lines of: “if N. wanted to be my friend, s/he would do xyz” “if N. cared about me, s/he would have [replied straight away to this message because I said abc in it] and because s/he didn’t it shows s/he doesn’t care and doesn’t want to be in touch and couldn’t stand me anyway, what an idiot I was to think s/he’d want me around anyway” or “if you’re someone’s friend and they are upset you do xyz, it’s just obvious, and N. didn’t so it just shows they really think abc [negative thing / opinion that I’m evil] about me”. The thoughts that spiral from these beliefs mean that if they aren’t fulfilled and someone doesn’t do one of these things that I have set as absolutes in my mind (and which, incidentally, I would hold myself to in relationships as well, as rules I must follow as a friend) then very quickly I use them to confirm an even deeper-seated view of myself which stems from things my abuser told me. Such as that I’m evil really, I manipulate people, everyone will think it isn’t my fault but she and I will always know it’s because of how evil I am, xyz person I care about will die or be taken away because of the harm I’ve caused, I’m disgusting and ugly, etc, etc. It’s impossible for me to get past these beliefs and they are a big block in therapy and in everyday life. It’s impossible to believe that my beliefs and motivations are what I think they are and impossible to believe anyone could really want me. My cell’s predictive text is set to “hurt”.

I’m not sure how to get around this at all. I’m not sure if my psychiatrist is either. I met with her yesterday. It was a very helpful meeting and was about a lot of things other than this as well. However, I think to this there isn’t a short answer. How do I go through this? How do I learn a new setting, a setting in my mind that is open to a different belief? How do I dare to actually feel differently? I can try to explore other possibilities cognitively, but I cannot link it up to the emotions and what I really feel and believe about myself and others. I just cannot reach that. What the psychiatrist did help me identify is that only with repetition can we learn something new (as with my cell phone’s expanding Catholic vocabulary). I need to try to continue in relationships long enough to get past the point at which my default beliefs about myself as evil are (or so it seems) absolutely confirmed. Currently I don’t. Like my cell phone I go into “predictive” mode and I pull away from the interaction or even end the relationship at that point.

That’s the one thing I can change, though with a great deal of help from what I think would have to be incredibly supportive and understanding friends. That’s almost too much to ask. This is going to be a long road.

Ginny xx

*Quick (hopefully simple) explanation of Catholic terms: Holy Week is the week leading up to Easter Sunday. The Triduum is a term which refers to the Thursday, Friday and Saturday immediately before Easter Sunday: Maundy Thursday, Good Friday and Holy Saturday. “Attende Domine” is a piece of chant music often used during Lent at one of the churches I attend – “Attende Domine et miserere” or “Hear, O Lord, and have mercy”. I find it quite beautiful and relaxing to listen to.

https://youtu.be/t7Glyu7tEWU – Attende Domine – with thanks to Petrus Josephus for the video

Image from Gilmore Girls (sorry I am not sure which Season) – Lauren Graham and Scott Patterson – Gilmore Girls produced by Amy Sherman-Palladino and Daniel Palladino. All rights belong to respective artists.

 

Walking this Borderland #9: My rescue box

Eee, it’s been a long time since I’ve added to this Series.

My CPN and I talked about the following idea today. I’ve been meaning to put this together for a while.

All the other ideas / coping techniques I’ve written about so far in this Borderland series are things I’ve tried or do use currently myself. This post is a bit different because this idea is new to me and I’m going to be trying it out for the first time, so I can’t yet say how helpful I’ve found it. (Updates will follow and I’d love to hear from you if you use something like this!)

I’m going to make a “rescue box”. I’m not quite sure if that’s what I want to call it but for now, it’s what I’ve named it. Apparently some people call it a suicide box because it’s a box full of things to turn to when you’re feeling absolutely at your worst. I didn’t want to call it that because it emphasises the terrible feelings more than the good I’m trying to climb towards.

The basic idea is to make up a box filled with things that help you to cope in times of extreme distress. This works well, I’m told, if like me, you find sensory or tactile things helpful and grounding. As I think I’ve mentioned earlier in this series, in personality disorder when emotions are overwhelming, introducing other, soothing sensations can help bring the emotions down. You can also put things in the box that remind you of good times or reasons that you do keep going every day, or anything that triggers positive memories and thoughts in the hope that in the long run making more and more positive memories makes these stronger than bad memories or obsessional thoughts.

I’m new to this. I’ve been trying to think of things I could put in my box. Here are a few things I came up with:

  • A special smooth pebble that I collected on the beach one good day, which I find very soothing and grounding to touch. It also reminds me of the sea. Walking along the coastline and watching the sea always assures me of the presence of creation and love far greater than ourselves.
  • A small stuffed animal – yes I may be an adult (perhaps 😉 ) but I still find soft toys comforting.
  • A particular book that never fails to encourage me (more on that in another post).
  • Photos of my godchildren whom I love very much; seeing them always brings me joy.
  • A list of people I care about whom I can pray for or do something nice for – maybe write a letter or a card. This reminds me I’m not alone and helps me focus outwards on other people rather than my own problems.

That’s what I’ve come up with so far. I’ll post some pictures as I make up the box.

I have the feeling that the hard thing is going to be remembering it is there and being able to use it when I really need to. I can have coping strategies but being able to turn to them rather than a destructive “coping mechanism” is the hardest thing.

Do you use a box like this or anything similar? How do you remember to use it in the hardest times? Does it help when you’re distressed as well as when you’re feeling okay?

Ginny xxx

Some “good” gynae news

This morning I’ve been feeling more encouraged after a positive outcome at the gynaecology clinic. (Apologies gents who may wish to read no further 🙂 !) I know this is off my usual topics but I thought I’d share some good news.

I’ve had extremely painful periods as long as I can remember, especially over the past 10 years, very  heavy and painful. I’ve been in A&E 3 times in the last year or so because of it, have low iron levels, distressing bladder symptoms too which are apparently connected as the endometriosis has grown across the bladder; all in all it is having a big impact on my life. This year I’ve had to take days off work because of it.

Today I finally had an appointment with a specialist at the hospital. It has taken so long to get a referral, after trying several different medications and having scans. She was very compassionate and thorough. I am going to have an MRI scan of my womb and then a minor operation partly to investigate, partly to remove endometriosis  (hopefully – if it’s too bad they won’t be able to do it at the same time and would need to operate again), and to insert a coil (I didn’t really want this but it may be one of the only options).

I’m so grateful that at long last the problem is being investigated and treated rather than just trying different tablets which all affect your hormones a lot, which “should” help because it’s “probably” this or that, without really knowing what is going on. It has taken years to get here but now I’m feeling optimistic there will be some answers at least, even if the operation doesn’t get rid of the problem straight away.

This has to be the first time for a while where it feels as if things are moving in the right direction!

Ginny xxx

What do you do to stay safe?

Today I’m going to the hospital again for another meeting with the CPN. I’m very scared of going after I lost it there on Tuesday. I think I’m scared what will happen, scared of losing it again, ashamed about what happened and still feeling very out of it, although not in the way I usually am when I dissociate. That gives some kind of protection. This is raw at the same time as shaken and disconnected.

Also I’ve got an inescapable question that has been in my mind for several weeks. I’m not at all stable or safe at the moment. I want to continue with therapy. I committed to the group that I’d do it and not give up. I promised to God and Mother Mary in prayer. I’ve made quite a few sacrifices for it – I don’t think I’d have had to leave my last job if it weren’t, at least in part, for my therapy appointments (though my last employer were definitely at fault too, in my opinion). I’ve seen the therapy as the only hope of learning how to get better and manage my condition. I’m privileged to live somewhere MBT is actually available (there aren’t specific PD services in all areas of the UK). I really don’t want to have to stop therapy.

However, at the moment I’m actually more unstable, at least in part because of the therapy and the emotions, memories and questions that it raises. This isn’t necessarily a bad thing. Other people tell me they can see positive changes in me, for example communicating more clearly about emotions and things that happened to me in my childhood, none of which I can yet see for myself. However I trust the people who tell me this and think it has to be a good thing. It’s another thing I don’t want to waste.

So the big question is, what to do.  I can’t keep myself safe at the moment. For example I’m “coping” by cutting, taking overdoses or higher than prescribed doses of medication, drinking* (and this really isn’t me, I do not enjoy drinking in this way), escaping from daily life by ignoring letters, calls, etc and not able to keep on top of the basics of looking after my home and myself (cleaning, cooking etc). I’m more unstable in my moods, especially anger, and I’m struggling more to hide everything to try to participate in daily life by eg going to work. Things like hallucinations or paranoid thoughts or feeling dissociated are pushing their way more into the working day.

I don’t know what to do to change this.

I’ve some hope that medication changes could help and I’m seeing the psychiatrist on Friday. But I doubt that’s going to be the only answer. I’ve tried to exhaustion (both daily and when in crisis moments like the extreme distress or wanting to end everything) the techniques I know like distraction and grounding and self care / self soothing (this latter is very hard for me to do when I feel as I do about myself). It isn’t working. And I feel that the things other people could do to keep me safe, many of which are on my crisis plan, are not happening or not working either. I’m experiencing more and more let downs where xyz help is promised then doesn’t materialise (appointments canceled, calls not returned, planned sources of support withdrawn, mistake after mistake, discharge plan not followed). Or I’m told that the help I want to keep safe doesn’t exist or I don’t qualify. What is offered – and don’t get me wrong I’m grateful that it is offered and I know it’s more than many other services provide – is not enough to keep me safe. For example when I’m suicidal a 5 minute telephone call may calm me a bit for a few minutes but an hour later in usually feeling worse than before and – this is key I think – still on my own trying to cope.

What do I do in this position? Are there other techniques I can learn to cope better? Are there other or higher doses of medications? When I so so much feel I am not safe on my own and really need someone with me (especially when I’m really distressed but also day to day because the slightest thing, as little as a letter that makes me panic or a canceled appointment,  can thrown me into extreme distress, self harm etc) what can I do? The PD service are adamant I mustn’t be admitted and don’t qualify for any carer help and ongoing support in person isn’t possible. I haven’t any other way of getting that kind of support. I live alone, my dad and step mum live hours away and I don’t have friends very locally or whom I see regularly.

So how do I do my therapy and stay safe as well? How do I either answer this need not to be on my own when I’m so much at risk and unstable, or what solution do I have to learn instead?

What do you do to stay safe between therapy appointments or between times you can access support?

I know this probably sounds silly and I do get a lot more support than most people and all I’m talking about coping with is simple daily life. Right now this is where I am.

Ginny xxx

*just to be clear, I’m not diagnosed with any alcohol problem and I’m not comparing my struggle with that of someone who is struggling with alcohol or other substance use. That is a much more painful place. I sometimes use what is probably an objectively average amount of alcohol taken with my tablets to make myself fall asleep when I can’t cope. Not a great thing to do but I’m not trying to compare the two.

I lost it.

I lost it today. And I wasn’t on my own this time. I went to an appointment with one of the CPNs. I was shaky before I got there, anger rising in the waiting room as two other patients and I were talking about how let down they felt by services, and in my appointment everything I said it felt like it was minimised or dismissed, I think. I can’t remember what we talked about or what we said.

I snapped. I screamed and screamed and then I can’t remember. Pain. Then I was on the floor screaming and then I couldn’t breathe and I was crying and couldn’t stop. I thought I’d hurt the CPN and took a long time to believe I hadn’t. Then I couldn’t speak and somehow nearly an hour had passed with all this, though I couldn’t understand it. I was so tired.

I’ve never flipped out like that in front of anyone. I cut so I don’t get there. Now it isn’t working. Usually it just happens on my own usually at night. Now they’ve seen the worst of me. Now I’ve lost control. I want to take responsibility but I’m losing it more and more. Nothing is working.

I’m home now. On the way home I felt out of my body but unable to get away from everything being shaken. Tea and blankets and NCIS tonight, my usual escape. But I have to face it.