Category: On the borderline

A super quick question about BPD / PTSD and physical pain

This is a theme I want to come back to in a longer post. I have been meaning to write something on this for a long time. For now, a very quick question, if I may.

As well as my mental health problems, I suffer with fibromyalgia, endometriosis, chronic back pain following an injury, some degree of hypermobility and potentially now a nerve pain condition as well.

I have noticed from therapy and support groups I have attended that pain conditions and joint conditions seem to be suffered by lots of people with personality disorders, PTSD / complex PTSD and/or who have suffered abuse (often in childhood). Certainly in a group I participate in at the moment, I think a higher percentage of us suffer these physical problems than you would expect to find in a random sample of the general population, if that makes sense. I have also read a couple of articles on this theme recently.

I don’t want to push people to disclose something that feels too personal so please don’t feel any need to answer. I just wonder if anyone reading this also suffers pain conditions as well as mental health difficulties? And do you find any interaction between them eg when one is worse, another also is? Or do you feel that psychological things you have suffered have had a physical impact as well as an emotional one? If anyone did want to exchange thoughts on this I’d be really interested.

Ginny xx

Financial disaster again

Financial disaster again

Disaster is a strong word, I know, but it’s what it feels like right now. I know that many people have suffered and struggled with far more and I am fortunate that I do not have my own family to support – no partner, no children – it is only me, otherwise this would be hundreds of time worse.

I had to leave my last job for my health. I could no longer cope and I was getting daily bullying, harassment, intimidation, pressure, then was told I was completely useless anyway. I tried to make a choice to stop my health deteriorating further and to enable me to keep on going to my therapy sessions. I hoped it would be a choice for the positive. I was so so thankful when I was able to find another job quickly. Although it was much lower paid I could do part-time hours that I needed and I thought it would at least give me a chance. I was just starting to hope again.

Mistake.

Wrong again.

Why haven’t I learned my lesson by now?

I found out last night that instead of the nearly 1 month’s pay I was expecting next week, I will get just 1 week. They have some strange system for temps of pay being at least 2 weeks behind everyone else, and something I don’t understand about different cut-off dates according to when you start for when you get paid. Apparently you get the pay you’re missing at the end of the temp contract. I assume so that if you leave without giving notice they can withhold it.

Even my manager didn’t know about this and couldn’t believe it. I am very thankful and appreciative that she phoned payroll and tried to get things sorted out for me, or an advance. She really did much more than I would expect a manager too. It isn’t really her problem. But payroll flatly said there was nothing they could do.

So now I have the prospect of living on 1 week’s pay until the end of December, which evidently is impossible. Rent? Council tax? Electricity, gas and water bills? Food? Travelling to my hospital appointments? And let’s just pretend to forget that Christmas is coming up and I have nothing to give some of my family or my godchildren! It was already a total pardon-my-French mess because I was paid only Statutory Sick Pay when I was signed off in my old job, and wasn’t told this until after the event, so I didn’t know to claim Housing Benefit as soon as I should have done.

I had just climbed out of debt and now I will be straight back in again – overdraft? Applying for credit cards? I don’t know. That would be the best case scenario. I do not know how I’m going to live. I’m already eating rubbish because things are so desperate financially, trying to live on coffee and toast and whatever I can find in the pound store.

This really was the last straw last night and I was completely wrecked. It had been awful already before this. Just as soon as there was a tiny bit of hope it was smashed away again, like God and the world is saying, how dare you hope, how dare you think you can have anything good, you don’t deserve it, you’re dirt.

I was put through to a support line and there may perhaps be a possibility of a loan until next month, but if it were all to be paid back next month I have no idea whether it would help or just postpone the same situation happening again next month.

I was distressed at work (in private) after this was all dropped on me – none of it was explained before I started work and even my manager didn’t know. I know I’m fortunate to possibly be in a situation of getting help from my employer and not many people would have that assistance. But I just don’t know.

And the support service were helpful and did seem to appreciate some things when I explained my situation but they also said if you think you want to be kept on you will really have to prove yourself, perhaps they will forgive you this time for having a meltdown but if you ever let it happen again there are any number of people standing beside you, if you aren’t strong or if you have any time off your job will be taken away and given to the next person. This was the support team, not my manager, and they do not actually have any say on my performance or whether I have a job or not. I already thought and knew the things they said but it did make it even more painful and anxiety provoking to have it spelled out by another person who is there to provide support.

I wonder whether it’s worth going on. Is it just postponing ultimate complete disaster? I should be more thankful and hopeful but I’ve really run out of strength. I really needed something to hope in.

Ginny xx

Sorry for my absence this week….

Warning: this post mentions hallucinations, self-harm and suicidal thoughts, my distressing thoughts and voices and the darkness I’m feeling right now. If this may be distressing or triggering for you, please take care.

…. It has been a very bad week. I am sorry for not posting for a while. As I do not have the internet at home at the moment it’s difficult anyway. It has also been a really bad week. The hallucinations are growing / getting more frequent and it’s scary. I am so so tired and really wish I could escape and things all stop. I’m so scared and I wish someone were with me, I wish someone would hold me and tell me it would be alright although in my head it never, never is and I feel so stupid and needy and incompetent and childish and everything else for so much needing that right now. I feel so alone. It hurts but it’s numb as well. I really need to be able to talk to and see a friend but the only two people who live close by are just too busy, their lives too full and too difficult already and I know I would be everyone’s last choice to spend time with, kind as they are, and as much as they have given me. I cannot ask for more. Then the horrible monster inside me tells me that if I had a friend feeling like this and needing help I’d go to be with her straight away, why am I always alone and not allowed anyone? Then the guilt comes crashing back, how dare I be so childish and needy, greedy, ugly, disgusting, go on, get it out, cut and cut and scratch and vomit til you get it all out you sick revolting evil thing…

I want it to stop. I nearly ended it last night. There is really a limit somewhere and mine has been reached over and over again. It’s very dark right now.

I need to write and want to write and perhaps this will build some way to keep going.

Ginny xx

My first week – 3 days in

(Please see footnote)

I don’t think I’ve ever had as much online training as I have in the past 3 days. Plus one 2 1/2 hour Powerpoint presentation – I can only imagine how tiring that was for the trainer as well as us! I find it much harder to take information from a computer screen than if I have it in hard copy – does anyone else find that?

Fortunately the training was rather more appropriately tailored to the specific needs of the department than the above (Just for any other NCIS fans out there – if you have never watched NCIS you will now think I’m even weirder than you probably already think I am 😉 Which would probably be about accurate anyway. Please see disclaimer below).

There is certainly a lot for me to learn in my job and I feel very useless right now. I can’t answer customers’ questions properly as my department requires specialist knowledge. It is a blessing that most people have been patient so far. It is also a very different team to work in from those I am used to. There seems to be genuinely understanding and support and a willingness to welcome new staff members, answer questions, explain and value everyone from the start. That is just so far from what I usually encounter at work and that is a great gift. It will make a massive difference to me being able to cope in this workplace.

Ginny xx

Please note: with thanks to Kksuig for the clip from NCIS season 4 episode 11 “Driven”. NCIS created by Donald Bellisario and Don McGill; all rights belong to CBS Studios International / Channel 5 and the relevant artists. 

I do not intend to cause any offence by insertion of this clip. Sexual harrassment or any other form of harrassment in the workplace or elsewhere is a serious and damaging act and in no way do I wish to belittle the harm and suffering it causes.

On panic, lemons and stitching patterns

On panic, lemons and stitching patterns

I’ve posted before about how I find that colouring intricate patterns can be very calming.

When I was an inpatient I drew and painted a few times, which I had not done for many years. I go through phases of doing a lot of cross-stitch embroidery or making greetings cards. It seems to be something that I do a lot of and then leave for a while then return to it. Sometimes I find it helpful and calming but other times, I really want to be able to do it but am not able to. If I try to push myself to, it just doesn’t work – I go wrong all the time when I try to follow a pattern, or I just can’t put together anything pretty. Then far from helping I feel dragged down lower. It’s as if when I am completely drained and lacking in emotional / mental energy, there is nothing with which to be creative. In those states I often need to sleep, or paradoxically, to do something physical like getting outside and walking.

I’ve been on two different wards as an inpatient. One of them had a variety of craft activities available and support to use them and discover and learn new ideas for projects. For example we learnt to make plaited bracelets, worked together to put together a collage display, coloured stained-glass window images, and so on. The peer support worker spent a lot of time facilitating these activities. The other ward did not really have such resources and there was nobody to support these kinds of activities. The first ward seemed much more an environment in which it was possible to focus on having hope of getting better and learning skills to cope. Of course the access to creative materials was not the only reason (I think the work of the peer support worker was very important and I will post about that separately). However I think it made considerable difference to how the days passed.

I think in working with simple materials to create something beautiful, you can empty your mind, practise mindfulness techniques, slow some of the frantic anxiety as you become absorbed in the task. The concentration it requires and the different sensations you encounter – textures of fabric and materials, sounds, colours, deciding how to combine them, perhaps repetitive and rhythmic motions, the sense of putting together something lovely from all the separate parts – all of this helps occupy your mind. In  a similar way to distraction techniques, by filling your mind with all these sensations, they can become the focus, rather than obsessional thoughts, sadness, anger and so on. It does not solve anything but can replace some of the intensity of an emotion for a time. I can find it helpful in trying to delay self-harming as well as in times of generalised anxiety or after panic attacks. My friend who suffers with an eating disorder said that in particular having something to do with her hands can calm her after eating and help her resist the urge to binge-eat and/or purge.

My clinicians explained that there is a limited number of sensations the body and mind can experience at any one time. In personality disorder, our emotions may reach a higher level more quickly and in this heightened state, we cannot think rationally or mentalise or make good decisions. We cannot see outside of the emotion. It also takes longer than it does in most people for the level of emotion to fall. One thing that can help the emotion to fall, to get to a level where we can start to mentalise, use distraction techniques or choose to do other things that help us, is to “shock” the body with another strong sensation. For example, putting your hands under very cold water, holding ice, or (this one works well for me) eating something with a sharp taste. I use pieces of lemon, or lemon juice, with a sharp and bitter taste. This can help to lead you out of extreme distress or a panic attack, to the point that you can then address how you are feeling with other techniques. Then continuing to do something that gives positive sensations can continue to calm you – for example, something self-soothing like hugging a soft pillow or wrapping up in a soft blanket, or perhaps one of the creative activities which provides a range of tactile sensations.

There is also something encouraging to me in being able to create a picture, object, etc, which is useful or attractive or perhaps can be given as a gift to someone else, even when we are really not feeling great. It’s another way to make it true that the overwhelming emotions are not all that there is and to start to hope that there could be some good somewhere in me.

Ginny

xXx

Eeek :( – shortest post ever?!

I feel wound up like a spring about to explode, really really anxious and really angry with myself.

I start my new job tomorrow. I’m so scared. I have no confidence. I feel like rubbish. I know it could be good. I’m thankful for it and for having something to go to that will fill the day, be constructive, ease financial problems, let me try to contribute something. But I have no confidence at all that I can do it, after everything that went wrong.

I’ve just had no end of technical problems too with the internal website and had to phone up for tech support, who were very unhelpful, and after I had insisted for about 40 minutes that I needed assistance as I could not do essential things I needed to before starting work tomorrow, was basically told by a tech manager that I am rubbish and will not be a good employee and do not fit in with the firm’s ethos!! It was a completely bizarre conversation and a horrible start. Now I’m even more terrified and sure they hate me before I’ve even started. And still haven’t been able to get onto the website to do what I needed to before starting, so it feels like a mess.

Eeeeek….. Dear Lord, help me please….

The only good thing is that I will be seeing a very good friend later this afternoon and I will be very thankful to share in her company.

Ginny xx

Making it home

Today, I had some new furniture delivered – fantastic bargains in a local furniture charity shop. (The large number of charity shops round here is a particular blessing for those of us on a tight budget and possibly more creativity than money 🙂 .) So I spent the best part of the day re-arranging and cleaning and installing the items.

I have been in my flat several months now and it is my first place of my own, as opposed to renting a single room as lodger. I am thankful beyond words to finally have a housing association flat. Without this I would never have been able to afford to rent a whole flat as rents are incredibly high here. I cannot believe this place should be mine and thank the Lord for it every day.

I was a lodger in a family home before moving here. The family could not have been nicer and gave me privacy but I was struggling a lot, just as I had been in all my previous properties. That was probably one reason I moved around so much. Apart from financial issues or having to move when jobs ended and new jobs started, getting to a new place sometimes provided a temporary illusion of escape. When the illusion came crashing down it would just be worse than ever.

Anyhow, at the last place my OCD and obsessional thoughts were very hard to cope with and hide and my anxiety was increased because there was a young baby in the household, which seemed to increase my fears that I would cause people harm. At my worst times, which was becoming most of the time, I would dread bumping into anyone in the shared kitchen and having to speak, so I just stopped preparing food. The close proximity to others made me want to run and hide. So hide I did, in my room, which was the only place to spend time anyway, since there was not a shared lounge, only a kitchen (and bathroom, but that’s not exactly the place for small talk or hanging out). Then once I was in my room for any length of time, I felt trapped. The panic attacks, flashbacks and terrifying thoughts would come and there was literally nowhere to run.  There was not anywhere to go to get a breathing space or a different environment or to be in a different place for a while to help me step out of what was happening in my head. I’d lie on the bed or sit on the chair and do my best to employ the distraction or self-soothing techniques the clinicians told me but feel I was just suffocating in the world inside my head.

I can’t say how helpful it now is to have more space. It turns out that it really is true that you rest better when the bedroom is set apart as a relaxing place. I have the space I need in the kitchen to cook when I am able to. It is rare that I am able to at the moment, for many reasons, but the fact that I have my own kitchen does at least increase the likelihood that I will prepare food. My lounge is cosy and I’m even so fortunate as to have a view out to the communal garden. I have a very tiny garden and a flowerbed and although I do not enjoy gardening, I do like to keep it tidy and there is a certain satisfaction in pulling the weeds from the earth to let the little plants breathe.

In some way, I can begin to make this flat my own. Having a place where I can start to feel safe in the space, make some choices about how to lay it out, use my creativity to make it the way that I enjoy and even bring other people into it, makes it a home. Caring for it (cleaning, tidying, doing the little flower bed outside, feeling thankful for what I have) gives a constructive focus.

Much as I was longing for a home for a long time, I am still surprised at the difference that it makes to have one. Often I do not realise the value of doing something quite simple towards making it more of a home – such as tidying and choosing how to arrange things, as I did today, or perhaps painting the walls the colour that you like. Even on the very bad days, being in this home makes it slightly better, somehow. Maybe it’s a little bit less scary, a little bit safer, a little less unpredictable, a little more space, or a little bit more of beautiful or positive things around me.

Thank you dear Lord, for HOME.

Ginny xx

 

My new way to relax

swirls

Currently, one of my preferred ways to relax whilst I’m alone at home watching TV or the like, is colouring in complex swirly patterns like this one. It can switch off some of the thoughts for a while, passes time and gives a creative focus outside of oneself, even a way to practice mindfulness. The results can even be used for something pretty, for instance, made into pictures or coasters. Seeing something lovely that you have managed to create, despite perhaps feeling depressed or low, can be encouraging. It is a relatively cheap hobby, especially as at the moment we seem to be fortunate that there is a range of “colouring books for grown-ups” around, often to be found in discount book stores / stationers’ / supermarkets. No doubt you could find template patterns on line as well, which could work if you have access to a printer. Then all that is required is a packet of crayons or coloured pens (note to self, curb tendency to multi-buy pretty pens!).

Happy colouring! 🙂

Ginny xx

Deeper Still

I feel so tired and cold inside today. Last night and this morning my emotions were rocking between extremes of sadness and anxiety and hurt and I cannot justify any of it. Now, even though I have done some nice things today and received some very good news, which really is a gift – I went to coffee group this morning so I was not on my own, and my offer of work was finalised which means I will have some form of financial security – despite all these things, instead of feeling thankful, I’m feeling scared, empty, useless, lost and numb. I’ve slipped into that cold state of feeling that I am only watching and desperately wishing I were not alone, sad but angry with myself at the same time.

These times make me doubt even more what’s really in my heart.

I’ve been listening to this prayer song :-

Deeper Still by Bebo Norman

She turned her head as if to hide, there was just nowhere to go. ‘Cause standing tall on every side, the mighty fear of letting go. She said, my God I’m so ashamed, thirty years a tragedy. I still believed that he could change, but he pulled me down like gravity.
He broke my will, but it’s deeper still, deeper still .

She told me morning was the time, when the sun burned bright and clean, and love grew fragile on the vine, all wrapped up in gold and green. ‘Cause after all we know we all are after all the same things – but for the sun no rain would fall, and it burned him up and turned him mean.
This fire that kills me, it’s deeper still, deeper still.
Tonight I rose up with the moon, and looking down from high above, I saw a world carved and confused into valleys deep in need of love, and falling down all thick with grace, Heaven’s cloud of mystery was filling every empty space, down to the depth of human need.
This love that heals, it’s deeper still.

Love that heals me, love that heals me, love that’s deeper still.

This love that heals me, it’s deeper still, it’s deeper still.

“Broke my will, but it’s deeper still; this fire that kills me is deeper still; and filling every empty space, Heaven’s cloud of mystery – this love that heals is deeper still.” This is the only thing that lets me carry on in these times. Without it I am nothing. The promise that no matter how black and cold it is in our reality of this moment, how matter how much we are hurting, no matter how much we fear what is within us, what is always deeper still is God’s love for us that created us to do good, God’s love that longs to fill us in every empty depth of our hearts.

I hate what I see that I am and the fight that goes on in my head and the frozen darkness that stops me seeing anything good. But this does not change the truth that God is love, God is beside us on this road, and the greater my emptiness and my need, all I have to do is cry out to Him, plainly admitting how things are and everything I cannot change. Then, deeper still, deeper still, will He come into my need and sustain me.

https://www.youtube.com/watch?v=xJ7g9Gf64ns – not my video. With grateful thanks to Marco Bonaccorso. From Bebo Norman’s album “Ten Thousand Days”.

Ginny xx

Hearing things

Hearing things

This post contains discussion of experiencing hallucinations, or sensations, which are not “really there”, as well as in very general and brief terms touching on self-destructive ideas. I put this as a warning because I am not sure whether this may be disturbing, distressing or triggering to anyone. I have discussed this very little before. Please consider not reading further if it may not be helpful to you. Thank you.

I have a question on which I would be very grateful to hear any thoughts or answers.

My understanding is that in borderline personality disorder, heightened states of emotion for a prolonged period of time can cause transient psychosis and that people who have Borderline may experience hallucinations.

A few other people I’ve met who have Borderline have shared that they experience things which I think might be termed hallucinations, for example, hearing voices, sensing presences, seeing people or things, sensations of touch, and so on. These seem to be with varying degrees of – I cannot find an adequate term – solidity? For example, ranging from the sensation of a presence with you or a sound, to clearly and specifically seeing another person in the room.

I’m frightened by hallucination experiences I have.  I know I am more likely to have them when I am in a state of high emotion. Until recently, I was more likely to have them when alone. Most commonly (I think) they are auditory – hearing someone calling my name (most commonly my mother’s voice), hearing something happening or being said again which happened a long time ago (this is closely bound to my experiencing flashbacks as part of my PTSD), hearing a voice which I am aware is in my head but which appears to come from outside of me telling me to do self-destructive things or telling me how stupid, disgusting, ridiculous, greedy etc I am, or hearing non-distinct voices but knowing that it is accompanied by a sense of pain / anger / urgency in some way. Sometimes I am aware that what I am hearing is in my head (like the voice telling me to do things to myself), but increasingly, sometimes I am certain it was in the world outside (like my mother calling me). More recently, the hallucinations are visual as well, for example, inanimate objects seeming to move or shine. I am always aware immediately afterwards that this cannot be real. Or they can be sensory – this tends to be bound up with the flashbacks again, for example, during a flashback believing that the people present when the traumatic thing happened, the people I feared, or just a non-specific sense of terror that is much more an external sensation than emotion should normally be.

These things are all intensifying. I am scared. I fear am I developing psychotic symptoms? I know my mother’s illnesses started to worsen when she was just a little older than me. Is the same thing happening to me? I would like to know, does anyone else with PTSD or personality disorder experience this kind of thing? Or even, if you are not diagnosed with a personality disorder or PTSD, have you ever experienced anything similar? How do you deal with it? At the moment I have an awareness on some level that these things I’m experiencing aren’t real. How do I make sure that I do not lose that?

I know that these are hard questions and personal questions and I understand you may not feel comfortable to answer. Anything you would like to share, I would be very very grateful for. I really do not want to distress anyone or trigger anyone in any way and if discussion of this kind of thing is not helpful for you I do not want to draw you in.

Ginny xx

With thanks for image to: http://freewallpaperdekstop008.blogspot.co.uk/