Category: Stories of coping strategies

Turning on the light

Turning on the light

“Happiness can be found in the darkest of times, if only one remembers to turn on the light.” – Albus Dumbledore, “Harry Potter and the Prisoner of Azkaban”

J K Rowling / screenplay by Steven Kloves

I think I’m still stumbling around in the dark banging into things whilst I’m looking for the switch, but I’m trying…. 🙂

xx

A closing drawbridge and a silent cry – Eating Disorders and Personality Disorder – #5

A closing drawbridge and a silent cry – Eating Disorders and Personality Disorder – #5

Protection in emptiness

Eating Disorders and Personality Disorder – #5

“You will never touch me”

[I am sorry I have not updated this series for a while!]

In my first period of anorexia, one of the greatest functions of my eating disorder was a kind of defiance and separation. Anorexia definitely changed my personality, or rather, it was often as if there was a separate personality, much stronger than my own, rising inside me and gaining strength as I got thinner. She was strong and defiant and could not be hurt. She could keep me away from everyone and every thing that hurt me.

I was about 15 by this time and had suffered at least 11 years of emotional, physical and sexual abuse and exploitation. The family unit of my mother, my father and I were increasingly isolated and cut off into my mother’s sick (in both senses of the word) world and anything that tried to penetrate it led to terrible consequences (her sickness, her threats to kill herself, her threats to abandon the family, her threats of breaking up the family or of me causing her and my father to die, be taken away and so on). Anything that posed a risk to the world of her twisted thinking, delusions and manipulation had to be invalidated or removed. Visitors weren’t allowed to come into the home. Any social contact had to be planned and rehearsed beforehand, carried out to Mother’s specifications, reported back to her, analysed against her pre-prepared script. The daily routine had to run exactly according to her needs. She had to be recognised as super-human, a genius that nobody could ever sufficiently understand, the victim of everyone’s cruelty and misunderstanding who was so gracious as to forgive everyone because she “loved” them so much. Appease, pacify, agree, conform….the disaster wouldn’t happen, maybe….

My eating disorder couldn’t appease, pacify, agree or conform. It couldn’t be manipulated or invalidated. My eating disorder could defy, protect, shield, consume, grow stronger, defend, refuse to succumb and refuse to be controlled or analysed by her and even refuse to recognise her at all.

I remember that eventually, as my weight dropped and dropped, even Mother started to worry I was too thin and getting weaker. She’d encouraged my eating disorder at first, requiring my weight loss and dieting and reminding me how ugly I really was. Eventually it snapped out of her control and I think it was the one thing that actually scared her.

One evening, she called me into her bedroom. She told me to get undressed and stand in front of the full-length mirror. She’d done this many times before in order to shame and humiliate me and to slowly and methodically point out all the bits of my body that were bad and “too plump” and “too much fat”. Usually it followed a ritual weighing and reporting of my weight to her, her disbelief and being forced to repeat weighing myself in front of her. Now I flatly refused to weigh myself in front of her, but delighted in doing it in my bedroom in secret (always in exactly the same place, lining the scales up with a particular pair of floorboards) and was satisfied with the thrill of seeing the pounds drop. But for some reason, this day, I did obey her to get undressed and stand in front of the mirror. This time, instead of pointing out the places I was too fat, she pointed out where it showed I was too thin. Even I was shocked when I was forced to look at where the normal shape of my behind had started to flatten and disappear at the base of my spine. She continued telling me I was too thin and how she was worried.

A thrill of power went through me. It was frightening but I had never felt power like that. No, I thought. No. This is my body. All mine and you will never touch me again. In total silence I walked away from the mirror, away from her, out of her bedroom back to mine and got dressed again. I resolved to lose as much more weight as I possibly could and get as sick as I could, because this meant she would never ever touch me again. I hated her at that moment. I don’t think I was thinking of the sexual invasions, specifically (and indeed a lot of them I didn’t even accept as invasions at that time), but of all the hold she had on me and all the hurt. She would never do it again.

I had an awareness, somewhere, that she was worried for me and she was upset, and that my father was too. At that time, the need for the protection and power of my anorexia was much greater. I had become quite a nasty person, disregarding the hurt I was causing people who loved me (my dad loved me, if my mother didn’t). Or the anorexia in me was quite a nasty personality and I was becoming that personality. The power of anorexia was stronger than my usual nature.

Of course, it didn’t really stop me getting hurt, and it hurt lots of other people in the process. Eventually, it was acknowledging my father’s fear of what was happening to me that started to bring me out of this first period of starvation. To this day, I am not quite sure what, at that time, made me acknowledge that and shifted the balance of power towards empathy and reason, and away from the protective force of anorexia.

Ginny xxx

Walking this Borderland #7: Pigs in the clouds

Walking this Borderland #7: Pigs in the clouds

It’s very easily impossible to believe “this too shall pass”.

In BPD, that can feel like the most hurtful thing to be told, in the midst of utter pain. Even if the pain was triggered by a very small thing, at the time, it is not minor – it is the proverbial straw that broke the camel’s back or the rope you were holding onto so so tight because everything else had been snatched from you, then this too disintegrates.

But the fact that is at once cruel and possibly hopeful, is that every time you go through that utter pain, and still continue, it is proved that “this too shall pass”.

On Friday afternoon this week I was about to end it because for the n’th time it was more than I could stand, more betrayals than I could bear, pain only for pain, the original source now lost amid the impossibility of existing beyond that moment. I was evil rubbish and the world was laughing at my hurt. It was time to overdose and walk in front of a train and end it. And perhaps I was going to hurt someone. My memory blacked out.

Somehow, on Saturday morning I was at my friend’s and she was cooking breakfast. She made “eggs in clouds” for a treat (look at the picture – literally a little egg yolk in a little savoury souflee cloud).  There’s chopped bacon in the soufflee cloud so we thought perhaps it should be “pigs in clouds” instead. We talked about everything, minutiae and serious: baby showers, Harry Potter, Alan Rickman, jogging, marriage, how to stay in love and what to do when something nobody else cares very much about is unbearable to you, a mutual friend who may be in a bad home situation, sunshine, work…

So you see, it turns out pigs do fly, and this too did pass. It seems ridiculous that both these scenarios were real and followed each other by less than one day. But both were real. The change, although I do not know what brought it about, was real.

Perhaps it’s worth keeping a short note of the times that pigs did fly, that the darkness did end, what you did to change things, if you can remember – but if you can’t, even just record the fact that you did change things. That although that night you thought you could not go on one more moment, the next day you took a few steps out of your house, maybe walked down to the bottom of the road and back. That through the terrible flashbacks, you held on, and now you are back in today’s reality.

Both are real. Neither are permanent, both shall pass, but both are real. Note it down, however small it seems. Then the next time when the darkness starts to come, you can look back and be encouraged.

 

Victim roles – holding on tight and falling faster

Victim roles – holding on tight and falling faster

A couple of posts ago I said it is very hard not to be bitter. This week it continued to feel like a twisted game someone is playing. God, perhaps, and I have to keep looking back at the Cross to remember my God is not vengeful, twisted, scornful or delighting in our hurt.

This last week, things continued to snowball and I clung harder and harder to the smallest things. I felt completely alone and the importance of every tiny possible bit of help or hope increased.  The pattern repeated relentlessly that every time I counted on something, inside I built up to, “if I can just hang on to xyz, maybe then I can just manage, maybe then there will be help, maybe then I won’t die” and just as that had started to give me some security, whatever xyz was would be snatched away.

Whatever xyz was didn’t matter so much. I went to the Housing Benefit office to try to get some questions answered. I got some answers but also found out my Benefit will be suspended for weeks because of a 2-hours-per-week change in my working hours, likely putting me further in debt with my rent. I got another 3 page long form to fill out and supplementary statements to write. The time I’d counted on to rest to be able to work the next day was then filled with more anxiety over debt and more form-filling. In pieces losing it I phoned the hospital. We agreed that I could cope with telephone support until my care coordination appointment on Friday. 30 minutes later someone else from the hospital phoned to say that my appointment was cancelled (second month running) because my CPN is on training. I insisted I needed to see someone else.  My friend cancelled our meet-up for the second time within a week (not really for any fault of hers). But I snapped at this point.  The last thing I was hanging on to had been snatched away from me and I couldn’t take any more. Then Friday came and the day of the “replacement” appointment to try to talk about support I needed to cope with finances, Benefits, the threats from my landlord, the mountainous paperwork that needed to be completed and numerous telephone calls, and the effect all the confusion, delays, stress was causing to me, to the point that I was overdosing and cutting several times per week. I admitted that I’m not safe on my own, especially at night, and can’t manage simple things like cooking or keeping my flat in order, because the strain of trying to keep working, therapy, then all the financial problems, combine to be too much and leave me with nothing to go on with. The first person I was speaking to appeared to understand and suggested that there would be help available to me and that we could look at whether more social care support could be available. She asked one of the hospital social workers to see me straight away. The social worker came in and said I wouldn’t qualify for any help, that nobody gets anyone to intervene on their behalf or do forms etc for them, that I wouldn’t qualify for personal independence payment as they don’t recognise BPD and I’m working, and that I’m just “in a bit of a pickle” and that everyone has to deal with problems with benefits, tax and so on. She had no conception whatsoever of the extent of my distress, my self-harm, the danger I am in. I lost it totally and walked out.

At that point, yes it was a twisted game. In my mind, someone was delighting in my hurt, laughing at me, seeing just how far they could push me before I broke totally. And they were going to win that day. I was going to take an overdose or maybe I’d walk onto the train line because that was it and they had finally won. They’d had everything they wanted of me and there was nothing left. Everything had gone beyond possible to absolute desperation and this was the end. Everyone who was “supposed” to help me or whom I tried to rely on, was doing me the most harm when I had most hoped and could least take more hurt.

Obviously, I didn’t go and end it,  because I’m here writing this blog post. I can’t really remember exactly how I didn’t, though I’ll write another post about that later.

Something hit me today.

Vengeful. Ridiculing. Laughing at me. Hurting. Snatching from me. Hitting me when I’m most vulnerable. Rejection when I most need help, by those I most trusted. Scornful. Delighting in hurt. Delighting in making everything my fault and taking no responsibility. That’s what I find I meet with when I most need help and they push me to self-harm and suicide.

My abuser was all those things. Now the world takes that role to me and I am in the same position of being hurt. I’ve got away from my abuser, physically (though not in my head), but now the world takes that role to me and I am trapped and still its (her?) victim, not allowed to be saved. I got away (bodily) from her when I walked out, shut the door, got on the train, hung up the phone. That was hard enough and took over 20 years. Getting away from this abuser’s force in the world is going to be much much harder and the leaving I must do this time is going to take much much longer, I think. I don’t think it’s leaving, exactly, but changing something in me so as to receive something other than abuse.

Ginny xxx (Very confused)

What do you do “out of hours”?

I really needed crisis support on Friday but didn’t get it. After therapy group I was spiraling down and out of control, then a number of bad events came snowballing, knocking me further down. I had a brief conversation with the duty line at the hospital and was supposed to get to speak to them again later in the afternoon but they didn’t have time. I was in pieces, cut and was on the edge of the very dangerous place I cannot take a single step more and decide to end it. Thanks be to God I didn’t but I took a higher dose of my tablets than I should to knock me out and stop the hurt (not really an overdose as it wasn’t over the maximum dose of anything, but I took more than I’m prescribed and everything together).

I’ve been fighting through this weekend as I’m working. What I want is numb, stay at home, stay under a blanket, no more feeling, no more thinking, no more hallucinations, no more noise in my head, never have to speak again, never do more harm, someone to hold me, to go to the dissociated place, forget everything I have to fight through and just stop and be allowed to need it to be no more, stop, sleep.

What do you do when you feel this and you can’t get help? It’s the weekend and/or evening. I couldn’t get help from the hospital on Friday. There will be nobody available until Monday and who knows if they will have time then to see or call me.

I could go to A&E but I wasn’t sure what they’d do, and it’s not really an emergency and there isn’t an instant solution. I need more help day to day. I could call 111 the NHS out of hours line, but they tend to tell you to go to A&E if you admit to self harming or being suicidal. They’d probably take my tablets away too. When I’ve been put in touch with a community crisis team before I’ve actually found it really unhelpful. They did not (in my uneducated opinion) understand BPD. What they said piled on the guilt and made me closer to ending my life and they were determined to show me I didn’t need (or deserve,  I feel) any help and Iwasn’t genuine. If i got that right now I would go through with ending it.

Part of the problem needing help out of hours is having to try to explain your whole story – trauma, abuse,  flashbacks, hallucinations, voices, BPD, hurt, fear, desperation and needing to end it – to someone who doesn’t know you or the therapy you’re having. It’s too frightening to do and the cost of being misunderstood too great.

I promised a friend that if it got to the worst I’d go to A&E before I did anything. I would,  I’d keep that promise.  I made it only because she would be more worried about me and stressed if she thought I wouldn’t. I would go at that point, out of honesty to her. Even though having reached that point I’d not want to be stopped.

What do you do when you need support out of hours and can’t see your GP or your usual clinic / hospital team? I’d be interested to know what others do.

I know a lot of it may involve other coping strategies not going to someone else for help. But what about when it’s bad enough they don’t work?

Ginny xx

Walking this Borderland – You’re not going THAT way

Walking this Borderland – You’re not going THAT way

Don’t look back.

You’re not going that way.

I don’t think we should never look back. Sometimes it can be helpful to look back, analytically, or in gratitude, or recognising how things have changed or how far we have come.

Yet, I like this quotation because it reminds me that, no matter how terrible things have been and are, we try to have courage to face each day hope-fully, and to trust that even if we don’t know where we are going, each day we struggle is a day we are going on, and that God promises us “plans for prosperity and not disaster; plans to give you a future and a hope.”

Ginny xx

I know they’re angry

Guilt. Guilt, unease, fear, trepidation of what will come.

Therapy group was painful today. My mind was spiraling with so many thoughts of what I desperately needed to say but couldn’t communicate. Everyone had so much they were feeling and so much that had happened.

I just know I’ve hurt and upset everyone. I know they’re all thinking you’re nasty, stupid, weird, fraud, go away, angry with me, hurt because of me. Cold and away and just wanted me to go and didn’t want to speak to me anymore and didn’t want me there… and I think someone left because of me and I’m scared what she’ll do and what have I done?

And I really really needed this group so much.

I’d just started to trust and now I’ve hurt everyone and they’re frustrated and angry and I can’t give what they need and it’s wrong and why why ever did I start trusting or thinking it would be okay? Why did I let my guard down and not see the hurt I was causing? Why haven’t i learnt that if I think something will be alright and start to trust that’s right when I cause harm?

I can’t put the details of what happened or what we talked about here because it would break confidentiality for other people.

It will be very hard to go back next week. It will be very hard to go to my 1:1 therapy on Monday too. I can tell they don’t want me now. I’d really started to need them. I’ve messed it all up like every other time.

Ginny xx

Walking this Borderland #4 : 5 more minutes

 

please read the Introduction to Walking this Borderland before this or any other post in this Series. Thank you.

 

When I feel the compulsion to do something to hurt myself I find it very hard to resist and do something else to cope with the feeling or the desperate need to obey the voices in my head telling me to punish myself.

On the occasions I have a little bit of control, I sometimes say to myself,  “Wait 5 minutes. You can do it, but not yet – just wait 5 minutes. ” If I can force myself to wait 5 minutes then when I do harm myself, then sometimes a little of the initial force of feeling has passed and I do it less viciously.  I’m hoping eventually I’ll be able to wait longer, little by little,  and then eventually sometimes not to self-harm.

I got the idea when I worked with people with eating disorders. One technique that may help people who struggle with purging after eating, is as a first step to delay a few minutes after eating before purging rather than doing it straight away. Then you can try to make the gap longer and longer and in this time, with support of a therapist or carer, try techniques for acknowledging and coping with the awful feelings and thoughts that are contributing to the compulsion to purge.

I’m new to doing this technique to delay self-harming. I think it’s working a little bit.

Ginny xx

 

Walking this Borderland #3: Good things happen over tea

 

 

Please read Walking…#1: Introduction before this or any other post in this Series. Thank you.

 

Good things happen over tea. I saw that quote on a gift mug today. It’s true. Perhaps I’m particularly English 😉 though it’s my coffee I really can’t get through a day without!

This one follows quite well from#2 and is another way of practising grounding and mindfulness.

If it’s not too wet a day, I like to sit outside for a few minutes with my tea. I don’t mind if it’s cold – I wrap up well and the nip in the air adds to the sensations that keep me rooted in the present.

I hold the cup. Enjoy the smell. Watch the delicate progress of the steam wafting upwards and maybe feel it on my cheeks if it’s a particularly cool day. I sip slowly and really enjoy the flavour and the comfort the warm milky drink brings inside.

Then I turn my attention further outwards. A good place to start, I’m told,  is to name 3 things you can see, 3 things you can touch, 3 things you can hear, 3 things you can smell. Sometimes I start there and then go on to appreciate in detail something in my familiar surroundings. For example, how many different shades of green / gold / brown are there in the big tree opposite my flat? Count them. What shape are its leaves? Are there fewer today,  if it has been windy?

By this time, if I was feeling okay when I started I may be feeling calm enough to try some slow breathing exercises. If I was in a state of very high emotion, turning my attention outwards in this small way may have been enough to just slightly take me away from the extreme, to a place I can be a bit further from acting on dangerous impulses.

Ginny xx

Walking this Borderland #2: Grounding

Please read Walking…#1: Introduction before this or any other post in this Series. Thank you.

Six ways to ground yourself when you notice the early stages of an overwhelming emotion building (eg, panic, fear, anxiety)

I find these particularly help me. The aim is not to deny or stop feeling the emotion, but to reach a safe state where you are not overwhelmed with distress or driven to compulsive actions, and where you can perhaps begin to recognise your emotions and also recognise that they are not permanent and are not all there is of you or of the world – they are valid and they are allowed and also, they will sometime, somehow, pass.

I know the ideas below sound as if they couldn’t possibly make any difference when you’re feeling terrible but somehow, sometimes, they do. I was taught that it is good to practice using them when you are feeling okay, so that they become familiar, and to try to use them as early on as you can when you first feel your emotions rising, because when you are already in a state of peaked, extreme emotion, it can be too difficult to be able to try to use them.

  1. Step outside if you can, or if not, just into another room. Notice all the sensations around you. What does the ground feel like under your feet? What can you hear? What can you see? Can you touch anything – the wall, the door? What does it feel like? You are here and now. These things you see around you are concrete. They will remain. The emotion, no matter how terrifying, really will somehow pass.
  2. Touch a favourite object. What does the surface feel like? What colour is it? Does the sensation of touch calm you? Is it an object that reminds you of a happy time or place or someone you love?
  3. Count backwards in [threes] from 100 to 0. [Especially occupies your attention if, like me, you are not very good at maths/logic 😉 !]
  4. Clench and unclench your hands rapidly, focussing on the sensations in your muscles and on your skin.
  5. Make a hot drink. Hold the cup whilst it’s still hot. Focus on the sensation of the spreading heat relaxing the muscles in your hands. Breathe in and out deeply and focus on the scent of the drink or the warmth of the rising steam.
  6. Repeat a grounding “safety statement”, even if you can’t really believe it at first. For example (replace the […] as appropriate): “I am [Jane Doe]. The date is [5 December 2015]. I am [35] years old. I am [in my room in my flat] in [name city].  I am in the present, not the past. I am safe now.” I am relatively new to using safety statements but my CPN told me that this is a good way to recover from flashbacks / re-experiencing memories.