Category: Physical pain and physical health

A closing drawbridge and a silent cry – Eating Disorders and Personality Disorder – #6

A closing drawbridge and a silent cry – Eating Disorders and Personality Disorder – #6

Protection in Emptiness

Eating Disorders and Personality Disorder – #6

“Closing the drawbridge” – eating disorders and rigidity

PLEASE READ WITH CAUTION – this post contains discussion of eating disorders (primarily anorexia), description of my eating-disordered thinking patterns, and a link to an article about studies on calorie restriction

[Wow, again it has been too long since I have posted in this series. Sorry.]

Many books about eating disorders, in particular anorexia, mention rigidity of thinking as a symptom which emerges as restriction of food increases and weight drops. When I worked at an eating disorder service, it was frequently described in inpatients on the ward. I’ve been pondering why this is and how much did I experience it when I was anorexic. I never used to think that my eating disorder was about control, although I now would take that back and I think I did use it if not exactly for control, in order to separate myself from my mother’s abuse and protect myself (and, I thought, others too) from demands, emotions and the dangers I felt they presented.

Perhaps it is logical that counting calories and measuring portions and exercise, forcing yourself to adhere to a punishing regime of starvation and painfully excessive activity in the very weakened physical state of anorexia, requires a strong, almost angry, obsessional drive. Sticking to this above and against all the natural urges of your body to keep you well and nourished, to the point that your body consumes its own muscle for energy, requires a steely determination that must be fuelled from somewhere. This could be seen as rigidity. It could easily spread to other areas of cognition and daily routine.

Certain chemical changes in the brain are thought to contribute to this rigidity as well, I believe. Two studies were conducted in the 1950s, using as participants conscientious objectors to National Service and former prisoners of war. One of these is the Minnesota Starvation Experiment, where starvation was imposed on physically and psychologically healthy participants who had no history of eating disorders. As the participants’ calories were reduced and their weights dropped, their thinking patterns became more rigid and obsessional thought and behaviour patterns emerged. When their calories were no longer restricted, they also became vulnerable to binge-eating. You can read more about Ancel Keys’ Minnesota Study here. (It would be considered highly immoral by today’s standards, although perhaps it is worth bearing in mind that one purpose of the study was in order to find out how to care for and manage re-feeding and weight restoration in victims of starvation in several countries following World War II.)

I am not sure to what extent rigid thinking was a big feature in me when I was severely underweight. Others who knew me at the time might disagree! It was mentioned to me on a couple of occasions.

On further thought, perhaps I did not struggle so much with rigidity over, say, my daily timetable – with the notable exception of excessive exercise, as I forced myself to swim a certain distance a certain number of times per week, until I was so exhausted and weakened that I could no longer move through the water which felt ice cold, my legs cramping, and I would drag myself to the changing rooms with my skin purple and blue, bruises appearing that did not heal and no number of layers of clothing warming me up.

However, if the rigidity was not externalised, it was certainly internal. This is what I think of as the “closing drawbridge” of anorexia that locks up or locks away everything we fear. I’ve talked in previous posts about the blissful, safe numbness of anorexia, ensuring my emotions were in check and flattened, and ensuring the evil I perceived in me was locked away to hurt only me, weaken only me, so that I could not hurt anyone else. Locking up the perceived evil locked up feeling, too. No more panic – just obsessive counting calories, distances, how to hide or avoid food. No more fear – just explicable pain, wonderful blanks and emptiness, safe empty gnawing in my stomach. No need to feel others’ feelings. No need to be hurt or be overwhelmed. Just glorious numb, nothing, whiter. lighter, clearer than before. No needing; no taking; just closing down, separated, apart from everything, locked up safe, pushing away and always succeeding, taking nothing in, frozen.

As a friend pointed out to me recently, emotions take energy, just as physical exertion takes energy, so with vastly insufficient calorie intake, there simply is no energy with which to feel. Despite the lack of energy, the drawbridge was shut tight and closing harder. The further I starved and restricted, paradoxically, tighter shut the door and even stronger came the energy driving me on, not to need, not to feel, not to fear, not to touch anyone or anything.

Coupled with that strength came a desperation never to leave this closed up place and never to need or feel again, to remain unreachable, to keep safe away and to keep everyone else safe away from me. If I could just be sure to hurt myself enough and never to eat, this wonderful place would stay with me. The fear of everything the drawbridge kept away joined the energy and both drove me harder and deeper into the numb place of anorexia.

Combined with my mother’s illness and abusive actions, there was no shortage of reinforcement from the outside that this numb place was good. The only period of my life in which my mother’s emotional abuse and threats reduced and in which she was even caring towards me, in which interactions with her were free of threats and scorn and twisted statements about the harm I was doing to her and my father, was when I was severely underweight with anorexia so severe it was probably life threatening. I was no longer a danger and no longer seemed to be so evil. I even thought perhaps she loved me. I even dared to hope perhaps the evil thing I was sure was in me and that came out and hurt and controlled and deceived everyone, was gone. If I could just stay like this, perhaps it wouldn’t come back. On the other hand with the drawbridge tight shut my body was mine as well, only mine, and the anorexia was mine, and she would never come near me again, literally never touch me again.

(Perhaps that was the one thing that was eventually true in all my twisted anorexic thinking. She did abuse me sexually during the anorexia but afterwards, she didn’t ever abuse me sexually again.)

Until I started to eat again and weight restore, there was only one thing that cut through my rigid defences, and that was singing. I’m not a particularly good singer but I was in a musical at my school (more because I used to be able to dance, than for my voice, I think!) and afterwards I took singing lessons, which were about the only part of my later school years that was enjoyable. Although I enjoyed singing, during the anorexia I would find that the music had a peculiar effect. We didn’t usually sing particularly emotive songs but I would often find music bringing me to want to cry or causing a strange twisting feeling of unease inside me, as though it was draining away the rigid kind of energy but I wouldn’t let it go. My mother prevented me seeking any professional help for my eating disorder but the only two people to whom I did talk about it honestly at all at school were my singing teacher and my art teacher. (My swimming coach was also very concerned about me and to some extent I did talk to her but, for some reason, although I knew she cared and was a safe person to trust, I was never able to be truthful to her, I think because in some way I feared hurting or disappointing her too much.) I don’t know why music and to some extent art, broke through the rigid protective mechanisms, but it did. I know that music can be very helpful in therapy for people with various conditions, including dementia and depression. I’ve never read about it in relation to anorexia but that might be something I should look into!

The struggles I have with overpowering, overwhelming emotions in my Borderline Personality Disorder, are the complete opposite of the protective place I entered in my anorexia, and they are an excess of feeling and needing which are probably, actually everything I feared. If I’m honest the numb place was safer. I’ve long lost the way back there and lost the key to the drawbridge and I hate that and I’ll admit that in the worst times, when I really hate myself and everything I feel and need, I wish I could return and it’s hardest at these times to try not to punish myself with cutting or purging. I’m trying to learn how to choose life and staying connected to other people – and to my body and my emotions – without the unbearable and dangerous becoming all that there is.

Ginny xx

Walking this Borderland #10 – bat naps and counting sheep: the struggle of sleep

 

[NCIS produced and written by Donald Bellisario and Don McGill; all rights belong to CBS / Channel 5 and the respective artists. With thanks to Dream-A for the clip (Season 8).]

Sleep is one of the first things that I find becomes difficult when I’m going downhill. Just when I’m thinking about going to bed, my psychotic symptoms usually get up. My auditory hallucinations and sometimes the visual ones will be worse when I’m alone at night. The re-experiencing of traumatic memories definitely is worse. For long periods at a time, because of historic abusive experiences and fears, I’m too scared to sleep in my bed and then if I try but have to get up, I can become terrified to open the door to go out of the room as well. I’m locked into a flashback of a terror I had as a child that I’d find my mother dead outside my room, because of a threat she made. To escape it I’ve been back to sleeping on the sofa again for weeks.

Anyway, I’m going off topic a bit. At the moment to try to get back into a proper routine of relaxation and proper sleep, I’m trying the following three tips for a better night:

First, I’ve moved things around in my room (for example, putting the bed in a slightly different place) so as to create a change of environment and make it as different as possible from the one associated with my fears and flashbacks.

Second, I have found a relaxing CD which I am playing specifically before sleep time and only before sleep time, so as to make the association between that music and those words, and relaxing for sleep.

Third, I’m going back to trying a technique one of the nurses told me at the hospital, which is a modified version of counting the proverbial sheep. When you are in bed, close your eyes, and then close them a little bit tighter – not scrunching up your eyes, but just pressing the eyelids closed a little harder than you would if you were just blinking, maybe. Then count very slowly back from 100, concentrating on each number. Or, try imagining a colour which you enjoy looking at, and hold a cloud of that colour in your mind. Focus on it but try to prevent it taking on any particular shape or form. Though the latter sounds strange I found it to be curiously effective as relaxation for a few minutes, together with some music, even if I did not fall asleep!

Right, here’s to “bat naps”, and eventually a night in bed.

Ginny xxx

Some “good” gynae news

This morning I’ve been feeling more encouraged after a positive outcome at the gynaecology clinic. (Apologies gents who may wish to read no further 🙂 !) I know this is off my usual topics but I thought I’d share some good news.

I’ve had extremely painful periods as long as I can remember, especially over the past 10 years, very  heavy and painful. I’ve been in A&E 3 times in the last year or so because of it, have low iron levels, distressing bladder symptoms too which are apparently connected as the endometriosis has grown across the bladder; all in all it is having a big impact on my life. This year I’ve had to take days off work because of it.

Today I finally had an appointment with a specialist at the hospital. It has taken so long to get a referral, after trying several different medications and having scans. She was very compassionate and thorough. I am going to have an MRI scan of my womb and then a minor operation partly to investigate, partly to remove endometriosis  (hopefully – if it’s too bad they won’t be able to do it at the same time and would need to operate again), and to insert a coil (I didn’t really want this but it may be one of the only options).

I’m so grateful that at long last the problem is being investigated and treated rather than just trying different tablets which all affect your hormones a lot, which “should” help because it’s “probably” this or that, without really knowing what is going on. It has taken years to get here but now I’m feeling optimistic there will be some answers at least, even if the operation doesn’t get rid of the problem straight away.

This has to be the first time for a while where it feels as if things are moving in the right direction!

Ginny xxx

Fat, and hot, and horrible.

The hardest thing about the quetiapine (and venlafaxine maybe, though I attribute it more to the quetiapine) and clonazepam is what it’s done to my body, or rather what I’ve let happen.

Fat. Disgusting. Sweating and hot (that’s the pain meds too I guess). Conscious of my expanded body. I have gained so much weight in the last couple of years. And I’ve let it happen. It’s true the drugs make you gain weight and increase your appetite, but I’ve failed. I haven’t stopped it.

I’m repulsed when I pass a mirror and see the foul reflection, bigger and bigger; when I feel the flab around my stomach and waist, the one thing I used to be able to keep flat and small even if I did have chunky thighs I hid under skirts. It’s everywhere. Crawling disgusting flesh and fat.

Why did I let it? Why? Why did I return to this demanding sick big disgusting body? I want to rip and claw and cut. It’s out of control. It’s all wrong. Growing and needing and hungry and hurting inside and out, aching within, stabbing in my stomach, darts and shooting burning pains as my feet touch the ground and my joints feel like they’ve been smashed and bruised.

Failure. Why. Hate. Hate hate hate this growing sick too big too present body. Even in my dreams I’m fat fat fat, running and clawing to get out of my body. My mother is there, shouting and mocking and threatening and I wake up drenched in sweat and shaking because the nightmare is real now. I couldn’t save her and the foul thing I am stares back at me out of every mirror.

And I cry.

Shattered

I feel so drained. Every part of me aches. Even the joints in my hands. It takes a stupid amount of effort to do a tiny thing like hang the laundry or wash up. I want to stay wrapped in blankets and pillows in the safety of my sofa. I stayed there all morning clutching my stuffed animals that for some reason I still find childishly comforting. It felt like I was shaking and couldn’t calm and just wanted to cry.

It took an immense effort to go outside, but I did because I had to meet someone. My movements felt wrong and unsteady, my body going from sweaty to chilled and back again and so so tired.

Since I told to the police I feel a more vulnerable sadness. This is a new feeling I am even less able to control. Sadness separate from anger. Sadness of loss. Is it sadness perhaps for the first time separate from self disgust and self hate? Sadness of the little child part of me, that’s always with me, although she’s also lost.

Inexplicably disturbed

Near the end of the day at work today, someone was apprehended in the store for shoplifting. She looked young, about 14 or 15 or maybe younger; a small,  plainly dressed girl, who would have been almost studious looking in another context.

Something had been going on all day because all afternoon whilst I was working on the till, our security staff were on the shop floor in much higher numbers than usual, all apparently observing a particular area of the shop. It was one of those situations where your gut tells you “something is not right” – apart from the security presence my attention kept being drawn to a similar area of the store as if clocking something unusual that was slightly off.

I get those feelings. I group them with the way I pick up too strongly on others’ emotions and sense and know things others don’t. It can be a help, empathising, or sensing danger faster, but it’s so draining and an aching weight too.

For some reason as I watched a policeman and two security guards handling this young girl and escorting her, gripped tightly, off the shop floor, suddenly I felt a surge of fear. Not just anxietybut fear. I was completely disturbed. I wanted to run. It took a massive effort to concentrate on helping close down the till and complete my tasks. I can still feel this fear now over an hour later.

Why? Why was I frightened? What of? Was I frightened for her? She was silent but struggling and clearly very strong. I couldn’t read fear in her eyes exactly but something was wrong, not there. After some time the conscious thought occurred to me that she wasn’t alone shoplifting, she was someone’s marionette.

Admittedly I was stressed already, tired and feeling physically ill from the latest OD (don’t worry not life threatening or anything) and I’d had several difficult interactions with customers already.

Yet I can’t understand the level of fear I felt. Perhaps I was reminded of the police having to forcibly “escort” my mother into the transport to hospital, restraining her, with her alternately violently struggling or “playing dead”. Did I remember that? But I didn’t see and hear it although the level of emotion was the same as in a flashback.

Can you have a flashback only of emotion?

Ginny xxx

Utter betrayal and a sick joke

TRIGGER WARNING FAIRLY MASSIVE I GUESS

My friend has left me. Hates me and thinks I’m a selfish demanding b*tch making drama over nothing.

My PD service have basically chucked me. They’ve been playing a cruel game for a while. I beggedand begged them for help again today. I am not safe. I cannot go on. I’m cutting daily and overdosing more than every week. I cannot get a single simple little thing promised to help me even a phonecall. The game of deceiving me and shoving me nearer the edge has gone on for a while now and thoroughly broken me and ripped the wounds apart.

Now I’m utterly unable to go on and falling over the edge they will not catch me just watch me fall and laugh. I begged and begged for help. I won’t detail everything here because it would cause distress but I made it clear if I do not get help – and I need hospital or someone with me all the time now – I will seriously harm myself as much as I can and can’t be sure I won’t harm others because I’m utterly out of control.

It became crystal clear they don’t believe me and think I’m a liar and a fake and doing it for attention and don’t need help and don’t really feel these things. That was the final twist of the knife. I had known all along they thought that really but today was the ultimate proof. Nobody thinks you need hospital, they said. It’s fine for you to go. Let’s leave it there. No help. .. I want you to ring me when you get home when you’re going to take the overdose, he said. Why on earth would I do that? I had spent 2 hours telling them that’s what I’m going to do and begging for help and they didn’t help me and sent me off alone. Why on earth would I phone them to go through all that again?

Do they literally just not believe me and think I’m faking or do they think I’m such an evil bitch that I deserve this punishment and pain and they hope I do it, hope I die?

When I tell them what it’s really like and beg for the help I need they think I’m a fake. So that’s the truth. I’m evil sh*t and I do deserve hell.

WHY. (This ends tonight.)

I have been wondering for a couple of days whether to post about this or not, considering various thoughts about whether this would be too triggering or disturbing and whether potential dangers would outweigh the benefits.

However, I think this is so personally specific that I hope it isn’t triggering, if you see what I mean. Also I’m bearing in mind the advice that acknowledging and talking and asking about suicidal feelings doesn’t cause people to become suicidal.

Something else prompted me to post this tonight, which I’ll explain momentarily.

This post attempts to describe a tiny bit of what I was feeling on Saturday when I overdosed and why I did.

Someone I know has just essentially described my overdose as drama because of a cancelled coffee date. This is so incredibly far from the truth of what led to my overdose and what I felt. It was massively painful to realise that is what it was for her. She is not by nature a judgemental person. She has herself suffered with mental health problems. She is highly intelligent. She is medically trained.

I’m not posting this to tell her she’s hurt me. I don’t understand how she could possibly think that’s why I overdosed.  Perhaps my “why” is equally incomprehensible to her. I do wonder if anyone wanting to understand more about why people overdose or attempt suicide may be interested to read this. But as I said, it’s only very personal to me. Every person’s story and pain is different.

I want to be very clear I am not glorifying overdose or self harm – I am describing what I felt. I am not describing a solution. At the bottom of this article I’ve listed a couple of details of organisations that I think can help towards getting support.

In italics below I’ve tried to describe some of what happened to me in the days and minutes before I overdosed. Though factors and thoughts had been multiplying over days and weeks and months, the actual “1000th last straw” kind of feeling and the final loss of control and “snap” came very suddenly that night.

I guess this comes against a background of mounting external stresses – numerous cancelled appointments, lost support, lost relationships, lost job, financial hardship, threats from my landlord, debt, endless difficulties with numerous benefits and being stuck in hopeless inextricable messes with error after error on the authorities’ part despite my best efforts, poor physical health and constant pain – as well as the internal stresses of my mental health like hallucinations, flashbacks, reexperiencing, voices in my head, memory gaps and dissociation.

Because:

Because everything is utter pain and nothing else exists. All of me is lost outside it. Because nothing, no cutting, no purging, no screaming voices or obedience to their call, is enough to rid the sick evil inside me.

Everyone knows I’m a fake, a liar, foul, ugly, greedy, everyone knows what I’m really like. But I can never stop the evil.

Because the voices do not stop and I so badly need to sleep.

No matter how much more you say, just one more day, one more hour, there really is a limit somewhere, don’t they see? And I know it’s weak but I passed it long ago. It’s true when I say in tired. Let me sleep.

Because I’m screaming, crying, and no one ever came and no one hears today either.

Cruellest – every person has left me when I was most raw. They tricked me to trust, they got at the most bad and vulnerable – then they left. [Like my abuser.] First this hurts with utter fear. Utter loss yet again of all I am. Loss of any hope.

Then rising anger boils and it is just one sick joke or cruel game too many, where they delight in punishing me, I can never win, tricked and tricked again, delighting in hurting me – like HER abuser] – and God delights in my downfall and hurt and he has crushed me to the ground and taken all of me.

No good is visible, no hope exists; no caring is possible, only no more; no more; only sleep.

Then in one moment, comes blinding rage and tears. From numb, dissociated, to intolerable existence to exploding anger, cutting and smashing, no hurt enough. Fears of this exploding monster turning outward now, to someone else, no longer just assuredly to me?

This is all now. ..

In some vague place in another part of my mind, knowing and hoping my heart will stop now I’ve taken the pills.

Running.

Blank.

Slowing.

Tired and the screaming pain is silenced and the voices gone. I can sense my heart, my breathing high and caught and slow but rising. ..

So. This is it now. After that unbearable state consuming – …. the end seems very simple.

 

Of course, it is not at all simple. One most bitter thought in my mind right now, after the comment that it is drama over a minor thing and can’t be dealt with, is that having reached this absolute end point of not being able to go on, even in this I am causing anger and harm and manipulating without wanting to, because to others it’s not real, just drama, trouble, unnecessary, manipulative, can’t be dealt with. I cannot go on and I cannot even stop. Twisted, but definitive, proof ending it isn’t the solution.

FOR HELP, THE FOLLOWING NUMBERS AND SITES COULD BE OF USE:

Samaritans, call for help 24 hours – 08457 90 90 90

http://www.stopsuicidepledge.org

http://www.mind.org.uk

http://www.b-eat.co.uk (eating disorders support)

Ginny xxx

 

She needs someone to hold her

Tonight I’m aching. Physically with my back hurting and a stabbing pain all round my hips and stomach with the endometriosis; inside with something I can’t soothe like a loss that’s pulling me apart. I know it’s childish. .. the little child I turn back into when I’m as drained and feeling as… left …as this really needs a hug. I really need someone to hold me as if that would stop me losing it, stop some of this fragmenting.

Nobody ever held her. Not when she needed it. She doesn’t want pity. She knows it’s no great wrong in the scheme of things and her problems no greater than anyone else’s, in fact far smaller. But she wishes someone understood and accepted and held her.

Stupid little things like coffee

Stupid little things like coffee

It’s evening. I got to the end of the day at work. I told myself if I got through my shift I could get a nice vanilla latte on the way home. Not always the coffee I choose but the kick and the warm sweet milk is comforting for some reason.

It doesn’t really make sense. I’m still feeling confused and like it isn’t quite my life. It doesn’t seem to make sense. Not that it didn’t end exactly. But just that it doesn’t make sense. Therapy and the crowded bus stuck in the traffic; getting out and feeling I couldn’t make my legs work right because the balance and weight was all in the wrong place and I wanted to curl up and hide; pushing and pushing;  work – faster than I thought it would go, though staying listening to the real world was hard; out; coffee. It doesn’t make sense. How can this be when yesterday and Saturday and Friday were what they were, when it so “was” the end. I’m not expecting to get an answer to that or not right now anyway. It’s just a state that doesn’t seem to make sense. I suppose. ..the answer is that even the worst passed. The answer is I was helped. God is merciful and I have such need of His mercy.

Ginny xx