Category: BPD

When Love sees you – How was your Christmas Day?

When Love sees you – How was your Christmas Day?

How was your Christmas Day, and Christmastide so far?

There can be so much pressure from all sides at this time – different places and people, trying to keep everyone happy, trying to conceal when we feel anything but happy, a sense of distance from other people, endless rush, emotions all felt more keenly, on top of what we struggle with day to day. There can be great joy, laughter, hope and good surprises too, and I pray they abound for you.

I discovered this song, “When Love Sees You” online recently.

It’s written as Our Lord Jesus, who is all love, telling us what he sees when he looks at us and telling us what is happening when we feel hope is lost or that we have failed or when we don’t know what good the little we have can do. It lifts me up because it tells me that God coming to us just like He did at Bethlehem and as He does in prayer every day, isn’t about success and perfection. It’s about Him meeting us, as we “show [God] the pieces, broken and bruised” when we’re hurting; when we’re hopeless to answer needs around us “shaking our heads at two fish and the bread*”; when we fall in “sinful disgrace” and everyone around judges and condemns us; when we are overwhelmed and cry at His feet. He is in love with us, He sees His beautiful creation and beautiful work He’s bringing about in us, and He’s right here with us and always will be here.

God bless you this Christmas.

Ginny xxx

“When Love Sees You” from Music Inspired by The Story sung by Mac Powell

*ie at the feeding of the 5000 when the only food brought to Our Lord to feed the crowds was two fish and two loaves, yet everyone ate their fill. The Lord accepts the little we have that we give generously and in His power makes it into something wonderful.

Christmas Day – “O hush the noise ye men of strife and hear the angels sing!”

Christmas Day – “O hush the noise ye men of strife and hear the angels sing!”

Christmas morning! We’ve arrived. Christ Our Lord gives Himself to us in tender love and mercy. Come, let us adore Him, the Christ Child in the manger.

What a year it has been, personally for me, for my loved ones, for this whole world. Falling over the same stumbling blocks and falling into the same sins, or losing sight of hope in the face of fear, flashbacks, overwhelming emotions that can block out everything I want to believe in, it does not take much to make me despair and think God’s mercy has run out for me and He will cast me aside and say I do not know Him. Looking at what’s happening, here, in my family, in the UK, in stricken countries like Syria, never have I felt so helpless here and now faced with such need, fear, suffering, the very present threats of acts of terrorism, the devastation and loss wracking so many people. It is so hard to know how to respond and easy to feel very afraid.

At the vigil Mass last night, we sang “It came upon a midnight clear” after Communion. This is not one of the carols I know best but never did this verse seem so apt:

Yet with the woes of sin and strife, this world has suffered long;

Beneath the angel-strain have rolled two thousand years of wrong,

And man at war with man hears not the love song which they bring –

O hush the noise ye men of strife and hear the angels sing!”

So often I, we, cannot hear the song that Our God sings to us His beloved. Shame, fear, despair, self-disgust, pride, all can make this “still small voice” harder to hear. I was praying, feeling despair and the voices were saying to me, how could God look at me now, how could He look at my foul disgusting weak lazy heart. The Lord answered me in prayer, “My gaze is longing Love.” And He called me to draw near in prayer to the manger at Bethlehem, with His Holy Mother and St Joseph’s protection.

The nativity is the sweetest song of love for us. God who brought this whole world into being, who shaped the seas and land and skies, who brought each of us into being in love, is come in humility, even vulnerability, as a little Baby, reaching out to us, fully sharing our human lives. He was born into darkness, poverty, homelessness, a world confused and at war. The Priest told us in his homily last night, when we look at the Christ Child, we see the certain knowledge that God never gives up on us. He delights in each of us. He delights in us so much that He chose to be born as one of us. And I think He chose to be born, needing us, needing our simple answer “yes” to receiving Him, yes to resting in His loving gaze, to holding Him in our minds and hearts, to carrying His hope into the world, to encountering Him anew each day but most especially this Christmas morning. So we learn to “give back the song which now the angels sing” in the words of the carol.

You are in my prayers today. I feel deeply thankful to you for reading, commenting, your thoughts, prayers and support and the experiences you share on this journey. I know that for many of us Christmas and New Year is not an easy time and it gives rise to deep, erratic emotions and maybe painful memories. I struggle at this time. Through all the joy of the gift of God this day, I feel overwhelmed and unstable, emotions heightened, the pain of losses and traumatic effects associated with this time and deepened, and the needs, expectations and rush of the holiday period are not easy to face. I’m very blessed not to be alone, to have two special friends to celebrate with quietly today, and to have these couple of friends and the blogging community here with whom I can share honestly. Thank you.

I’m wishing you plenty of moments of happiness; peace deep in your heart through whatever path you are on; that you can experience friendship, care and support; that in the hardest times there are little things to give you hope bit by bit; most of all, that you know the love of God who delights in you.

“…And ye, beneath life’s crushing load
Whose forms are bending low,
Who toil along the climbing way
With painful steps and slow,
Look now! for glad and golden hours
come swiftly on the wing.
O rest beside the weary road,
And hear the angels sing!
For lo! The days are hastening on,
By prophet bards foretold,
When with the ever-circling years
Comes round the age of gold
When peace shall over all the earth
Its ancient splendors fling,
And the whole world give back the song
The blessed angels sing.”

[From “It came upon a midnight clear” by Edmund Sears (music by Richard Storrs Willis) – see here for full lyrics ]

Wishing you a blessed Christmas.

Ginny xxx

[Image from “The Nativity Story”]

 

 

Meet Bert

Hello. Meet Bert.

No, not that Bert! (NCIS joke, sorry.)

I have a way of naming inanimate objects, especially in the kitchen. This is my slow cooker, Bert:

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I’ve had Bert for a year but only today taken him out for his first use (and naming). How bad is that, I know. That’s how reluctant I can be to cook for myself and I’m trying to break that. Hopefully, Bert is going to cook a nice soup tonight, for tomorrow’s buffet dinner. I know I’ll be up til late finishing preparations for tomorrow so I can keep an eye on it. It takes 3 hours.

Two friends will be coming tomorrow, one when she finishes her shift at the hotel where she works, and the other will arrive earlier and we’ll go to Mass together. He has had an indescribably difficult time recently so I’m glad we can celebrate a little together.

I realise soup (and hippos) is a fairly un-festive topic for Christmas Eve. A more appropriate post follows very shortly!

Wishing you a happy evening…

Ginny xxx

Clip from NCIS – possibly series 2 episode 23 according to YouTube, though I am not sure about that, I think it is series 3 ; with thanks to MetalRixer for the extract. NCIS directed and produced by Donald Bellisario / Don McGill, property of CBS / Channel 5 and respective artists.

Tinsel, trees and memories

[Written on Tuesday 20th December]

Thanks be to God I made it in to the day centre yesterday, despite having been ill and “out of it” over the weekend. It was a ridiculous struggle to go, on the way I thought I was going to faint as I was so dizzy and all the way I was praying and fighting what the voices were telling me (and my body aching to stay in bed!). I feel so sick with myself that I was reluctant in doing a simple thing, just keeping my commitment to the day centre for half a day. Then again I did want to do it, really, in my heart. It’s the voices and pain, mental pain having more hold than the physical, that stop me. I pray my resulting weakened and ungenerous desire will be forgiven and eventually transformed if I do all I can to keep on the path and make my actions loving, whatever is going on in my head.

The Lord heard my prayers and guided me. Doesn’t He tell us He keeps us beneath the shelter of His Spirit’s wings! When I felt I could do nothing He gave me the peace I needed and carried me to the right place. It turned into a beautiful morning.

I had been a bit worried because the activities leader was on holiday, so we were to be short staffed and about 15 elderly people come to the centre on a Monday. When I arrived, I found out a new volunteer had started the week before and of course this was a huge help. I was facilitating a craft activity session. Four ladies joined me and we started making mini Christmas trees from empty plastic bottles, tinsel, felt and card. Whilst it was a difficult start, the idea of having an ornament to take home seemed to appeal, as did the brightly coloured tinsel. I was amazed how everyone got right into it and quickly adapted their designs so each little tree was unique. One lady in particular seemed very discouraged and for several minutes kept telling me how rubbish she was at anything like this and that she should throw her tree away. She has a disability affecting use of one of her hands and I think this makes her feel very sad and frustrated. However, during the activity somehow, she grew a little happier and interested in choosing the colours of felt and glitter for a star to top her tree. By the time she finished, she was talking about taking her tree home and she started everyone talking about where they would display their trees. “I’m going to put mine in the front window so all the children can see it when they go past,” one lady said. I was overjoyed that together we’d created some happiness and a sense of achievement.

The other activity I had planned was making a paper star / snowflake. This didn’t go down quite as well on a practical level, partly as we were a bit short of time. It also seemed to be more confusing and less enjoyable than I’d anticipated. This is a valuable experience for me to learn what’s enjoyable and what’s not. I thought the snowflake would be easier than the trees but that was not so. Possibly it was harder to see what we were working towards and for people with some dementia maybe following a set sequence of steps which had to be done in a specific way, was more frustrating than an activity like the trees which didn’t have such a right or wrong. However, though we didn’t make snowflakes, the topic of paper decorations brought back memories for the ladies of Christmases in wartime or when their children were young, when making ornaments from newspaper and scrap paper was popular because there weren’t the materials or money to purchase decorations.

My soul is emptied of a little of the chaos in times like these mornings at the day centre, as I’m focused as completely as I can on creativity and trying to bring encouragement to another person, love them and show them care.

Ginny xxx

Getting ready for the day centre – trying to keep reaching out

I’ve had a really bad dissociative episode this weekend. After therapy group on Friday my mind just shut down and didn’t even seem to slide into my safe escape world. I was frozen and gone and my body wasn’t working either. I think I slept quite a lot and several times was locked into hallucinations, conscious but unable to move. This afternoon I started to be “here” again though I’m longing to escape into sleep. Every movement hurts so much. Returning from these episodes is scary. I’m fighting through fog to speak to anyone and I’ve lost so much time. Where have the last 2 days gone?

I forced myself to go out this afternoon and bought supplies I need for volunteering at the day centre tomorrow (I go every other week to do craft activities with a small group of elderly people). As I was leaving, I bumped into a neighbour who wasn’t well so I picked up a couple of things she needed too. This evening I’ve been preparing for tomorrow. I am dreading it and don’t know how I’ll be able to leave the house, I feel so bad. I feel guilty for dreading it because they need me at the centre and all the elderly people there are struggling with far worse than I am. By God’s grace the harder I have to force myself to go, the more love I will put into it, and in my weakness He is strong and He will lead me.

Tomorrow at the day centre we are going to make mini Christmas trees from empty squash bottles, tinsel and decorated card, and make stars for the top from felt and pretty buttons. If there’s time we’ll make paper stars (or snowflakes). Here’s one I practiced making with scrap paper just now. They’ll look much prettier tomorrow made from glittery paper.

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I thought it would be nice for people to have ornaments to take home. I particularly like the star because you can start with scraps and still make something pretty. It’s a bit like what I’m trusting in God to do with my life – bring something beautiful from the mess of my heart.

Ginny xxx

Magic carpet – update :)

My carpets were fitted a week ago.  I still feel surprised each morning as I get out of bed and step onto squishy carpet instead of cold bare floor! It has made even more difference than I expected. The simple carpet makes a much gentler effect than all the mis-matched off-cuts and rugs I was making do with. It feels luscious underfoot – really soft and springy. I did not expect that. It’s cosier, literally too as it seems much warmer; I think the extra insulation it provides will cut my heating bills.

As the fitting day approached, I was so nervous and felt panicked about coordinating everything and about being able to get the furniture moved since I can’t do it myself because of my physical disability. Thoughts of postponing the date came to the fore, though I knew that would not be a good idea. I’m so pleased I went through with it now. I had the help of knowledgeable, patient staff in the carpet shop and the very personable carpet fitter, not to mention my dad and step-mum and friends L and S’s encouragement to go ahead.

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For some reason, now the carpet is done I’m more inclined to do other things to make my home pretty, for example, I’m looking forward to repainting where it’s greatly needed, or even very simply putting up a Christmas tree this year. This is a hard time of year for me as for many people, and I haven’t been able to bring myself to decorate for several Christmases. Yesterday, I bought a little tree.

Ginny xxx

Awake but locked into my dreams

I had a terrifying experience whilst I was waking this morning. Recently my flashbacks and intense dreads have blended with nightmares so that the flashback will first work its way into the dream, then I’ll be locked for a long time into a state where I feel I’m conscious (and I’m aware of physical sensations in the real world like the feel of the mattress under me or noise outside) but the flashback continues all around me and I can’t move  and often can’t open my eyes from it. In my hallucination / dream I’m screaming and panicking to move and get free but for a long time I can’t. Usually when it eventually ends I’ll be able to move and full consciousness returns and I’ll be very upset. Occasionally I go back into sleep for a time.

Today’s experience has left a peculiraly lasting fear with me although it was bizarre and did not involve explicitly reexperiencing a past event or threat. Afterwards my anxiety was really high, I was shaking, crying and for about 4 hours I felt as if I was bordering on a panic attack. I spoke on the phone to a family member, about what had happened but also about other nice things like how they were decorating for Christmas, to ground me and draw me back to the real world. A little later I forced myself to go out, pushing through the panic and feeling so dizzy and faint. This also helped and I was rewarded with beautiful gentle afternoon sunlight. Ducks and gulls were circling over the river and the sunlight in the trees through the mist gave a delicate pastel glow. I went into town and got the last couple of Christmas gifts on my list. Somehow, reality became a little firmer and safer.

I apologise that the rest of this post may not be terribly interesting to anyone but me. Reading about my dream or hallucination probably isn’t very appealing! I have written about what I experienced as a way of processing it and accepting that it happened, facing it and hopefully making it a bit less scary. Also, I think what I experienced tells me about ways I am feeling (in the real world) trapped, scared and dissociated from a couple of identities within me which I don’t allow to speak or feel and one of which doesn’t really dare be heard. I think it may be useful for me to come back to this later.

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In one of these bizarre conscious-but-trapped states (is this the horror people with Locked In Syndrome feel?), I was panicking desperately trying to fully awake, open my eyes and get off the bed, when a woman I couldn’t see came to me and told me that my friend A was very sick and going to die. She had not asked for me and wouldn’t, but I must go to see her.

In real life I lost touch with A several years ago. We were never very closest friends but we connected over various work and discussions at church and spent some time together and I felt somehow that A, an extremely private person who very rarely spoke of herself at all and shrank away from any time spent on her, struggled deeply inside with fights I could somehow empathise with.

In my hallucination this morning, I decided immediately that yes, I must go to her, and so I stopped screaming and panicking about not being able to force myself up off the bed. I started to go with the woman I couldn’t see to A’s house. I asked her, what about A’s husband G (in real life A is married). The woman told me G was overcome with sadness for A and couldn’t any longer reach her. He didn’t know what to do but he wanted me to come. The woman I couldn’t see and I went to some kind of building I don’t remember, except that there was lots of wood and it had lots of rooms or passages. The woman I couldn’t see was gone suddenly and I wondered how would I know where A was. But then suddenly I found myself in A’s room. I was aware that her husband G was in the room but further away in the corner not able to come closer, though he wished he could. At the same time my terror resurfaced and came to its peak and I remembered again how I was trapped and couldn’t move. I was being crushed by terror and dread. A was in her bed; she was really sick; she was dying; though I was really afraid I absolutely had to look at her without fear. Despite the fear I was longing to look and be with her.

So, with all my courage and in so much pain I looked. Suddenly I was right by her bed kneeling on the floor wanting to take her in my arms and hug her. Then the utter terror returned because at first I couldn’t see her. Then I realised with horror she was all covered over with these richly embroidered sheets and cloths – like altar cloths or priests’ vestments, I thought – and her hair was covered as though she were a nun… but somehow she had become fused or blended with the bed. It was surreal and frightening. Then she looked straight at me and I remembered the pain she was in and how her husband was hurting so much but couldn’t reach her anymore and couldn’t go on. She smiled at me and told me I do not need to be afraid.

Then suddenly she was in intense pain. It gripped her. She was no longer fused to the bed but sat up then fell forwards near the foot of the bed. She was no longer covered up by the sheets or dressed as a nun; instead her hair was loose and she wore a childlike flowery dress. I reached out to soothe her and rub her back and cried out, what should I do, all her muscles were rigid with pain. Was she going to die? Panic cosumed me. I started to pray the Hail Mary, but part way through I suddenly could not remember the words even though I pray that prayer many times a day. I was looking right at her hurting, and completely helpless.

Then suddenly the bed and room was gone. She was taking me through corridors I didn’t know. Where was G, I thought. Where were we going? I wanted to get out and get away. I couldn’t even say one simple prayer. I must be going to go to hell. That must be where she’s taking me. I’ve run out of time. Again, I was fighting and crying so hard to move and get off the bed and open my eyes and make it stop. Still I was totally frozen.

Then somehow, we were in an elevator going up through different floors. My friend A was in front of me now. She was still wearing the flowery dress. She was going to heaven, I thought, and I wished I could go too. A wasn’t ill anymore. She was happy. As the elevator went on I got more and more scared and kept trying to move though I still could not. Each time we stopped at a floor I was sure this was my punishment and damnation. I was going to be thrown out of the elevator doors. I couldn’t see or don’t remember what was on the floors we stopped at. I was scared but eventually A was smiling and telling me not to be afraid. We were on the way up.

Eventually we stopped and the doors opened. You see, A said. It’s all alright. We walked out into a room full of tables and there were people I somehow knew to be A’s family members, as well as her husband who was no longer separated far away and could now reach her, and the woman who I couldn’t see when she had led me earlier. Don’t be afraid, it’s the way to heaven, said the woman.

Then the hallucination ended and suddenly, at long last I could move and stand up. I was in intense pain through all my joints and in my muscles, as though they had been cramped or under exertion for a long time. Despite having felt so frozen still, actually at some point during the night I had moved a lot because I had kicked covers off the bed and knocked booklets off the bedside table. Waking, I felt unengaged from the real world for a few minutes, then dread and anxiety boiled up inside me and it became terrifying how I had been unable to move and unable to step out of the hallucination. I was intensely afraid for a short time that something had happened to A, yet then I saw clearly that what I’d seen did not mean that, this time. Sometimes I do have thoughts and dreams about people that tell me something isn’t right with them, but this was not one of those times.

I think this is all to show me important things but I have not yet figured out how to express them.

Ginny xxx

An evening of baking

What a week it’s been. I feel frazzled. Every day my anxiety has been hitting hard and every challenge exhausting, needing rest and feeling every chance for it is snatched away by the next problem. Therapy was really hard today and I’m very worried for someone else in my group. I told the PD Service and I don’t think they heard or recognise the danger I can see so clear and imminent for the person.

It’s Advent. It’s a precious time. It’s slipping away from me so fast. I really need stillness, to acknowledge what I’m feeling and to draw close to God in prayer. Every day passes and I have the same weaknesses and struggles.

Tonight part of me wants to curl up and escape – but I’m baking because some friends from my old job are coming for coffee tomorrow morning. I put some Christmas carols on and feel a little bit of peace creeping into my heart in the simple repetitive tasks.

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Ginny xxx

 

Magic carpet time

“…and I’ve been wanting a word with you, too, Arthur,” said Mr Crouch, his sharp eyes falling upon Mr Weasley. “Ali Bashir’s on the warpath. He wants a word with you about your embargo on flying carpets.”

Mr Weasley heaved a deep sigh. “I sent him an owl about that just last week. If I’ve told him once I’ve told him a hundred times: carpets are defined as a Muggle Artefact by the Registry of Proscribed Charmable Objects, but will he listen?”

“I doubt it,” said Mr Crouch, accepting a cup from Percy.

“He’s desperate to export here.”

“Well, they’ll never replace brooms in Britain, will they?” said Bagman.

“Ali thinks there’s a niche in the market for a family vehicle,” said Mr Crouch. “I remember my grandfather had an Axminster that could seat twelve – but that was before carpets were banned, of course.”

(From “Harry Potter and the Goblet of Fire” by J K Rowling)

The long-awaited day has arrived. My carpets are being fitted in my flat today. I’ve been here 1 year 9 months and it has taken til now to have the resources – financially and mentally – to get this done. Right now I’m feeling very anxious and tired. It has been a big job getting all my furniture moved, cleaning and painting (the skirting boards for example, where I don’t want to get paint on the carpets). I’ve done the last bits this morning; my legs are shaking now and the pain’s really bad but I’m so pleased I’ve done it. The fitters will be here any time now. It will be so much cosier with carpets, as well as being easier to clean and probably reducing my heating bills too. I think the colour will work well and be quite calming.

There are some amusing moments to come, I’m sure! For example, I’ve moved most of the furniture to the kitchen, which is not being carpeted. I can’t fit any more in there now. So where could I put everything that I then had to empty from the hall and bedroom cupboards and wardrobe?

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Yup, in the bath, of course! 🙂

I’ll post some before and after shots later.

Have you got anything exciting happening in your week?

Ginny xxx

Exercise without returning to extremes

WARNING – this post discusses weight loss and eating disorders

I saw the nurse today as I had to have an ECG. I’ve had a lot of chest pain lately which is thought to be costocondritis but the GP wanted to check my ECG again. I’ve also been potentially diagnosed with another condition but that’s a story for another time.

Whilst I was there, the nurse took my weight and height and we decided I’m going to try the exercise referral scheme again (to a different gym this time), to have support to try very gentle swimming or at least exercises in the water.

It is time for me to do something about the fact that I am really upset at how much weight I have gained in the last 2 years, through poor diet and through my medications and being very sedentary as I often can’t walk more than a very little way unaided. The weight is increasing my hate of myself and my body. Not succeeding in losing it by my familiar means over the last few months has increased this hate even more. I know this isn’t a healthy thought pattern and I know many of my “familiar means” are eating disorder behaviors. At the same time, I am now slightly overweight according to BMI recommendations, so I need to lose weight for my physical health; also I need to care for my body’s needs by eating healthful meals rather than oscillating between starving and junk food, as has become my habit through lack of money and depression. I need to try to do some kind of exercise to improve my physical strength to manage the pain from my chronic conditions better.

So I have to figure out how can I manage my situation now and the changes I need to make without plunging deeper into eating disorder thoughts? How do I start an exercise programme without using it to punish my body? How can I keep track of my weight and control my diet without returning to my totally addicted state and the ever-present revulsion at my body tipping back over into self-harm and purging?

Does anyone have any thoughts about how to lose weight and change your eating to get back to a healthy weight range, when you have a history of binge-eating and bulimia? Are there any particular resources on this topic? I know that somehow I need to address the pervasive disgust I feel towards my body and ideally I’d do that first, but it has been present most of my life and I can’t allow my weight to grow to an even more unhealthy level. Most of my life since age 3 when my abuser started to use weighing me and controlling my food as one way of punishing and shaming me, I’ve been overweight, severely underweight or plummeting or ballooning between the two. I have lost all concept of normal food intake and normal appetite.

Ginny xxx