Category: Supportive Community

Slipping through our fingers

There have been several cases in the news recently, in particular two this week, of children suffering unfathomable cruelty at the hands of their parents / caregivers. Much has and will be made of the failings on the part of social services and social workers. How could the horrors and suffering go unnoticed and why were concerns not followed up, staff nor taking a more joined up approach, so the children could slip through the net?

I don’t doubt that there certainly were failings in the services. I’m not denying that. I can’t imagine the guilt the workers involved in those two cases are feeling right now. I’ve suffered myself and so did my mother and so have several other people I care about, because of failings in the organisations that should give support and protection, which let us fall through the net without intervention in times of crisis and without promised follow up or communication across different services. Sometimes the services involved have seem totally unaware of the harm this causes and unwilling to take responsibility. That hurts even more. Fortunately I have never suffered anything approaching what the children in this week’s cases did.

I’m not trying to deny that there were failings and I don’t want to hurt anyone who has been through similar experiences. However I think the somewhat understandable jump to publicise the blame attributed to the social workers and agencies masks some important points.

First, the perpetrators of the terrible abuse the children suffered were their mothers, father’s and family members. That’s the greatest horror. It is terrifying that as humans we are capable of inflicting such suffering on another, let alone on one of our own family or our own child. It’s particularly horrific that a mother can do this to her own child. It so negates every good and nurturing thing a mother is. It means no relationship and no home is immune to evil actions and absence of love.

Secondly, that is such a frightening fact and we want to know why. How and why can a person do that? What does that mean about what’s possible? About our human race? That sounds like an overly broad concept really. But I think it shakes us. Can we conceive that our world is one where what should be the safest and most protective relationship, mother and child,  is used to inflict fear and hurt and pain?  We don’t want to. We at least need some explanation. It’s easier to label the failing of a particular social worker or agency, because that we can understand. That we can name. What brought the abusers to use their own children that way, we can’t.

Thirdly – and this is something that’s hard to explain but significant to me as a survivor of childhood abuse – these horrific abuses can and do happen in secret and undetected. Trying to come to terms with what happened to me and questioning over and over whether the things I can remember done to me are true, I’ve often doubted myself and told myself it must have been my fault or I must be mad and inventing it all, because at the time nobody else realised what was going on and nobody intervened and people thought my family was normal (er okay maybe not but they didn’t often suspect the full truth). These two tragic cases in this week’s news show the awful fact that abuse much worse than what I suffered can indeed continue in secret. Therein lies the abuser’s power to control, manipulate and deny.

Fourthly, no more resources are coming for social workers and care and protection teams at the moment. The little glimpses I’ve seen from my work in hospitals, psychiatric services, care teams and so on has shown me loud and clear that there simply are not enough hours in the day and not enough people on the ground to have the contact and communication and time to spend directly with children, families, patients in need,  as well as following the ever more extensive proformas and completing paperwork that is required to meet the rules and regulations (which are supposed to ensure good care is happening but at the same time take you away from doing it).

This is no new or ground breaking feeling. I think most people in nursing or caring services have been saying this for years. But it’s still frighteningly swept under the carpet and denied by those in power. When I worked in a service that supported teenagers and young adults with mental health needs and social support needs, I would take the minutes of clinical team meetings. In one such meeting, changes to documentation for care planning and recording were being introduced, which would require nursing staff to (a) spend much longer away from patients, sitting at computers completing databases and reports and (b) in many cases require nursing staff to spend already limited professional development time on training in IT packages, not in patient care.  Of course, the aim of all these whizz new care planning systems was supposed to be a magical improvement in compliance with regulations about good care. However, nobody could answer who was going to be delivering the care during the time that the already over stretched nurses were completing the compliance paperwork. I wonder whether there’s a box in the risk assessment screen to record the increased risk caused by the fact the nurses and carers are filling in the [expletive deleted] risk screen instead of assessing the patients? 😉 Time and time again there was no answer to this impossibility. In that meeting, one or two nurses directly asked, how in the same shift with the same staff,  were they to fit in their work with their patients, as well as completing the new compliance activities being introduced. How could they do both? Which was to go when the time ran out? In my eyes the response was appalling. The nurses were told that was an unacceptable attitude to display and there was simply no choice and the compliance work was to be done. This came from a senior clinician who I had greatly respected and her response was totally at odds with her usual very reflective approach. Of course I don’t know the history with that particular member of staff who asked the questions and perhaps there was more to it than that, but there seemed a forced denial of the impossibility of continuing to provide good care and the level of presence on the ground with those we are caring for,  which is so important if we are to prevent tragedies like the children who slip through the net where abuse and suffering goes undetected.

I left the service I mentioned because more and more changes were taking clinicians, and support staff like myself, away from being able to maintain the personal contact with patients.  (I’ve since regretted leaving, I’ll admit.) Clinicians left too, at least in part due to stress and sadness around similar issues. They were a great loss to their patients, in my opinion.

A little later I worked a temp cover role as a secretary for the legal team that supported my local county council’s child protection services. Round about this time I thought about training as a social worker. I didn’t in the end. I thought I’d find far too many situations where my hands were tied and too many times bureaucracy stopped me doing the good that was needed.

….

I cry for the children that suffered and for those who so want to be present on the ground to help those at risk but who are taken away and whose voices are silenced when they highlight the lack of resources and impossibility of meeting the demands of keeping children safe in the field, and complying with everything that’s supposed to be ensuring children’s safety. One thing is sure and that’s that it is far too easy to be silenced – again both in the case of the victims and the carers pointing out the shortage of resources to help them. Let’s keep on speaking out.

Ginny xxx

Sad for what we cannot heal

I don’t watch the news very often. I feel bad about that. I worry it’s irresponsible, running away from the world, detaching or not caring enough. I think lots of people would say I need to be more engaged. But in fact the reason I can’t watch is precisely the opposite of not caring enough. When I watch all I see is danger, anger, loss, violence, threats, pain, instability…. all I feel is dread, fear, sadness, grief, shaken, panic, disintegrating… and I don’t know what to do with it. I don’t know how to carry the feelings, or what the proper response is. What do we do with this hurt we can’t heal and trauma we can’t stop?

I don’t know if the world is on the whole becoming a more dangerous place. On the one hand I can’t say there’s no hope. Our God has assured us of His love for us and that no war, disaster or loss can separate us from Him. There is always something in this world to give hope. I think there’s always somewhere in each crisis where you can find some tiny piece of good. On the radio a while back I heard someone say when we are afraid of the bad things we see happening, look for the people who are trying to help and do good because they are always there somewhere.

On the other hand, there does seem to be more and more danger, terrorism, violence and unrest. What was once distant and occasional now seems a real and present danger. So many people are suffering and afraid and trying to escape threats to their homes and their lives. The scale of it scares me too.

Other people sometimes say, we have come through worse and we will get through this. Especially people who lived in the Cold War era. Perhaps it’s a great difference of perspective.

It all still leaves me with the question of what to do. How are we supposed to respond when fear seems to be taking hold and when we see so much suffering that we can’t do anything directly to heal? How do we cope with the scale of such unrest, when we don’t know what good we can do and it feels so out of control?

These questions really shake me at the moment.

Ginny xxx

Not my day off

Today has been demanding. It’s one of those days that seems too much to have been only one day. I got big stuff done but also I’m losing time in unsettling ways and I know I was dissociating a lot between the different tasks and meetings I had to do, slipping out of being engaged with what’s going on and what I’m feeling and struggling to come back. Nevertheless I got through quite a few challenges.

Last night I knew I needed to tidy and clean my flat. My support worker was coming today. Also I hadn’t been on top of the housework since my operation and it was bothering me more and more. Recently I’ve started to find a greater sense of order and calmness if I don’t have too many things disorganised around me. This is interesting because til now, I’ve tended towards accumulating things I don’t need and not being able to keep my house ordered, not exactly hoarding but not being able to face items and paperwork and household tasks without going into panic.

Yesterday I was very anxious about today but put some of the physical drive from the anxiety into cleaning and then went on to clearing out some of my cupboards. By late evening I’d cleared 7 big bags (between rubbish and charity shop) and set 3 more big bags of things to try to sell at a car boot sale. The fact I don’t have a car for the boot element of that plan is potentially problematic 🙂 but there are the odd few table-top, largely indoor, sales in community centres / church halls here in the summer and I’m hoping I can find one to join in.

Today was a struggle to get up. Everything hurt. Still, I got together the papers I needed to show my new support worker (more on this tomorrow), then it was off to my care coordination appointment with my CPN. This wasn’t easy to go to because, although my last appointment was okay, in the two previous appointments I’d been really distressed and felt I didn’t get heard when I was desperate and at risk. Today’s appointment was actually really good. We looked at some DBT skills and we did a review which was overdue (every 6 months or so is a review appointment). I’ve not yet felt able to discuss with my care coordinator exactly what went wrong in the difficult appointments earlier this year when everything was going to pieces. I’m scared I’d lose control and the feelings of anger and not being believed would return and I’d do bad things and be back where I was. However my care coordinator and I have managed to move forwards having 2 positive appointments. I was scared after what I’d done – how upset and angry I’d got – he wouldn’t believe me or want me anymore and they’d know how bad I am and that I didn’t deserve help. That hasn’t happened. That’s something that I don’t usually get to experience.

Straight after my care coordination I met my support worker, H., who is from a housing support charity I was referred to recently. He is going to help me sort out my benefits like Housing & Council Tax Benefit, Tax Credits and disability benefits,  as well as liaising with my landlord about the rent arrears that I got into when I lost my job last year. It was a long appointment. We went through the background to how I’d got here, financially and in terms of my health, and we looked at lots of documentation, my income and my benefit and Council Tax notices. This took a lot out of me and I came so close inside to panic and losing it and emotions shooting too high. H. was very calm and non judgemental, which helped a lot. (More on this in the next couple of days.)

Then I had to rush to my GP appointment, which was the first since I’d been very distressed and angry at the surgery a couple of weeks ago;  also the first since my operation and finding out endometriosis isn’t actually the explanation for my pain and gynae issues. I’m still working through what happened in today’s appointment. I was dreading going into the surgery because I’m still terrified of what I did and how much I lost it. I was ashamed and embarrased and knew that they probably didn’t want me around again. I knew I’d really upset and inconvenienced and disturbed people. I’d scared people. That’s the worst thing,  the harm I caused, the bad I’ve always feared getting out of me. Talking to the GP  and discussing what happened and then also talking about my physical health was really emotionally charged.  It’s hard trying to deal with a lot of uncertainties about my physical symptoms. I know not having endometriosis is a really good thing but not having any explanation for all the things I thought it explained, and the fact the doctor isn’t really interested any more in investigating what may be wrong – well, that’s hard and triggers all my fears that it’s all in my head, I’ve made it up or I’m mad, it’s my fault. …

After the GP it was off to the pharmacy with my prescription, then finally home.

It’s been quite a day. I had a soothing bath tonight. Today was the first day I could have a bath since the operation (don’t worry I promise I did still wash 😉 !). The doctor sealed the wound with dissolvable stitches so it was important not to soak them in water too soon or they could have come undone. Also it was not safe to try to get in and out of the bath whilst my mobility was further reduced with post op effects. Falling is a risk for me anyway because of the problems the fibromyalgia and arthritis cause in my legs. So, tonight was a good little relaxation and refreshment. The little things do help!

How has your day been?

Ginny xxx

 

Carers who really care

The doctors and nurses who looked after me when I was in hospital for my operation last week were fantastic. I owe them huge thanks. It was really busy on the ward the two days I was there, probably all the more so because a lot of surgeries had had to be rescheduled from the previous day. From my arrival, they were sensitive and compassionate. I was there because of my physical health but they knew about my mental health as well and we discussed it during my assessment when I arrived. The nurse taking care of me took time to be really aware of how both my physical and my mental health issues were affecting me and to enquire about whether I was getting the help I felt I needed and would be supported once I returned home after the operation.

It was a minor op but still daunting to me. The nurses and doctors’ compassion, communication, availability to answer questions, even simply their general presence, genuinely doing all they could to help, made such a huge difference. One nurse even taught me the instant ice trick!

I wasn’t an emergency, an urgent or complicated case, thanks be to God. They treated so many people in those two days, most of whom I’m sure needed much more care than I did. Yet they still had time for me.

I am so thankful for these people who give so much.

Ginny xxx

“Keep to two subjects, the weather and everybody’s health”

“Keep to two subjects, the weather and everybody’s health”

“She’s to keep to two subjects – the weather and everybody’s health.” – Henry Higgins, “My Fair Lady” (the musical)

I rather like the quote I stumbled across a few years ago,  I can’t remember where, along the lines of: I hate it when anyone starts talking about the weather because I instantly begin to suspect they are avoiding talking about something else!  It’s true I think.  I’ve also read that the two topics on which normally reserved British people strike up a conversation with strangers are the weather and delays to public transport. Again, probably true, I think.

Nevertheless today’s weather was rather worthy of note. I woke up to sunshine, though it was very cold. It then began to pour although only half the sky was cloudy. I walked to my Tuesday coffee group in sunshine and a cold wind. Beautiful deep pink blossom was coming into bloom in the park, almost overnight. Here is a photo of it (sorry not fantastic because of the strong breeze). Rain returned and then I left group in a mixture of snow and hail lasting several minutes. Hail when it’s almost May?!

Ginny xx

 

I’m sorry —

I don’t know what to do about the hurt I’ve caused.

A few weeks ago I posted about how I’d fallen out with my good friend N. I have been wanting to apologise to her. I don’t feel I can ask her to forgive me. I know I hurt her. I know I spoke when I was angry and distraught and I caused her a lot of pain.

I was hurt too. I was desperate and unstable and in crisis and I did really need help, need someone; I was going to pieces. But this doesn’t mean I had the right to demand things from her or that she had to be there for me when she couldn’t. I acted ungrateful and angry. I lost sight of all the care she’d given me.

Then there’s the knowledge that she had found me a burden and my certainty I was an annoyance and inconvenience and angered her and she saw seeing me as a duty and there was nothing good for her in the relationship and she didn’t want to be around me anymore. Who would. She was clear she thought nobody would stay with me when I was in the state I was in. That was true and it was also true I needed someone but that didn’t mean it had to be her.

I know I’ve caused her a huge amount of upset and hurt and been very childish and selfish and needed too much. I know I’ve probably angered and hurt her in ways I don’t know yet or understand. She told me I had.

I don’t know what to do. I wanted to tell her I’m so sorry. I wrote to her so many times and tore it up because each time it seemed so stupid and self centred and a rubbish apology. I wrote several letters that I didn’t tear up. I went to her place to see her and took the letters. If she was in, I’d see if I could speak to her face to face if she’d let me. Then I’d go. If she wasn’t I’d post the letters through the door. I went and she was not in so I posted the letters through the door.

I didn’t ask for us to start meeting up again. I think that might not be good for her because I’m still so unstable. I’m still going from crisis to crisis and needing too much help and so upset and angry at times it wouldn’t be fair to her or anyone to try to be meeting up. That said I miss her and care for her a lot and really really really wish I could be there for her and thank her and support her when she needs it. (But I’m not the one she goes to when she needs anything, much as I’ve tried to be there.) I can’t ask her to meet again but I wish I could tell her I’m sorry. And know if she hears it or accepts it.

I haven’t heard anything from her since I dropped off the letter. It was 2 weeks ago. I wondered if she might be away but at this time of year it isn’t likely and the car was “home” when I left the letter. I am worrying if she could be ill. This turned into panicky, extended worrying that she is ill because of me, or worse. That’s what I worry about if I’ve upset someone.

I think she is so hurt and angry and disgusted with me she wants no more contact. I deserve that. Yet I wasn’t prepared for silence. I was prepared for her furious anger and hurt and her to tell me never to contact her again. Or for her to tell me how she felt about what I said and did. I did not expect and am not asking forgiveness. I wish I could know something I could do to make her know I really really am sorry and how much she matters to me and how wrong I was. I wish that even though I don’t think she can forgive me could she accept that I am sorry?

However needing to know that she hears and accepts that I am sorry is a very selfish part of apologising, when I think about it. It’s something that would stabilise the horror I feel at what I said and did and ease my own hurt.  I should accept not having it.

The amount I’ve hurt her is really raw and I’m really scared at what I’ve done. I’m sad and hurting for losing N. as well. It’s my fault but I’m still missing her and scared at what I’ve done. What I’ve done to the relationship and what I’ve done to her.

Ginny xxx

I’msorry for getting so behind

I’m sorry for getting so behind on responding to comments and visiting other blogs. I owe several replies and I’m not ignoring you, I’m sorry. In the past few weeks I seem to have been almost constantly under the weather with colds / flu and my fibromyalgia has really flared up now – I’m quickly fatigued, have a lot of pain, glands inflamed etc. Together with the endometriosis it isn’t a great combination. I spent most of yesterday and today sleeping (I wasn’t well enough to go to group therapy yesterday) apart from some attempts at cleaning up my flat. I feel so useless right now.

You are in my thoughts and I’m very grateful to you for still reading when I’m so rubbish at keeping in touch. I promise I’ll get back to you as soon as possible and I’m sorry for being useless.

Ginny xxx

Mixed up

It’s a night of confusing feelings. It felt like a strange day from the start as group therapy was cancelled. Tonight I keep nearly crying for no reason. My chest hurts. Feels like there’s a weight under my ribs. Anxiety? I don’t know. I just want a hug.

It wasn’t all bad today. Actually there was a lot of good. I met my friend for coffee. She has a beautiful baby girl, six months old. Baby was in the mood for cuddles, despite not having seen me for a couple of months, and giggled away in my arms. Being loved and trusted by her just made me really happy. With a little baby there’s no room for the second guessing and doubting that comes into all my other relationships (like the voices telling me they can’t stand me really even if they pretend to like me and finding proof all too easily of how bad I’m sure they think I am). With a baby it’s open emotion that I don’t doubt.

It was good to talk to my friend and I realised how much I miss her. She’s special, very astute and empathic and reflective. She is really supportive to me and still so through the fulness of her own life as a mum when she has do many demands and many people might understandably lose touch or be less “present” for friends.

We talked some about how I feel really unhappy with the hospital at the moment. On the way to meet her I’d had another upsetting phonecall with the hospital which I won’t bore you with detailing right now. Talking helped at the time for a little while and stopped me losing it but soon after the crashing guilt hit me, that I shouldn’t have said anything and shouldn’t moan and it’s my fault anyway and that I took up her time and took over the conversation; although I really tried not to and tried to turn the conversation back to her quickly, I worry what if it did. I’m trying to trust she meant it when she said she enjoyed meeting.

Through the afternoon spikes of anger kept hitting me about the phonecall. I kept actively choosing to do things other than self-harm, which did have the one positive effect that I cleaned my flat as distraction!

This evening I made a card for my colleague B’s golden wedding anniversary. Tomorrow evening B and her husband are having a party and she’s kindly invited us from work. I’m very happy for her and it’s very generous of her indeed to include us. At the same time I’m anxious already. I’m getting a lift with another colleague as it’s not really on a bus route, which means I don’t have control over when I can leave if I don’t feel good. I worry about spoiling things for other people. There’ll be lots of people, it’ll be busy, it’s in the evening, I don’t know the venue and it’s the first socialising I’ve done with colleagues outside work (apart from one coffee with someone). All challenges for me right now. I’m trying to just focus on being happy for B. and being warm towards new people I meet. I don’t want to waste all the good of the lovely celebration with my anxieties.

I’m missing N. and feeling very upset with how I left things with her. I’m determined to do something, go to see her, to tell her meaningfully I’m sorry and try to sort it all out but I’m not sure how she’ll feel about me approaching her or if it’s better for her that I leave things be now and don’t try to get in touch if I’d only cause more hurt.

Anyhow. It’s a lot of feelings to sit with tonight. I’m tired and I need to try to be still. Thanks be for tea and hot water bottles!

Goodnight. I’m praying for you.

Ginny xxx

Did I actually just enjoy something?!

Since I came back from my lovely weekend stay with my friend L and her family a couple of weeks ago, I’ve been thinking back to it thankfully and often. In that weekend I felt genuinely positive emotions that have been absent for me for a long time (we’re talking years). Things like happiness at my goddaughters’ interest and excitement at our little activities and projects.  Their unboundedly curious questions showing perspectives so different from mine, especially different from my exhausted autopilot. Time with L. and real thankfulness for the strength and comfort her non-judgmental empathy gave me and really wanting to be there for her too, glad to be able to talk and share in her life, worries, joys, and so on.

Yes, the hard things were still there too. Voices, doubts, exhaustion, anxiety, it doesn’t magically go away. But the good experiences were so unusual for me that they particularly give me pause and I am all the more grateful for them.

Their good is lasting beyond the days I spent with L (nearly 2 weeks so now) in a way that’s more than just a happy memory. Perhaps it’s because it isn’t just a memory in my factual thought; it’s an emotional memory too. That’s stronger and more active and has a more continously creative effect on how I feel. I’m enjoying it and trying to nurture it, in thought and in prayer and in trying to build up some more creative, good experiences, especially where I can give or share something to someone else in even a small way. One thing I’ve been doing in recent days is making greetings cards, which I used to love but had completely lost all motivation or creativity to do. And I’m actually enjoying it, even looking forward to it. I can’t think when I last genuinely looked forward to an activity like this.

Maybe I’m starting to understand what a doctor told me when I was an inpatient in 2014 – that the more good experiences and memories you create, they can slowly begin to replace the terrible re-experiencing of traumatic past events and the automatic nature of obsessional thoughts and the power of the voices. I could not understand how this could work at the time though I really wanted to believe it. Later, in the most desperate times I was furious if anyone began to suggest anything like it. The suggestion seemed to trivialise the terror I was locked into. Yet now, I think I might be beginning to understand it.

Ginny xxx

All I want is to be your harbour

Sail your sea, meet your storm. All I want is to be your harbour. The light in me will guide you home, all I want is to be your harbour. Fear is the brightest of signs – the shape of the boundary you leave behind….

I love this song by Vienna Teng, “Harbour“. I feel it will inspire a couple of posts over the next few days 😉

I pray I can grow stronger and be able to be there for the people I care about so much, as a safe place and a harbour and a faithful, un-judging, unwavering, companion. I pray we can all find our own harbour.

To everyone who sails this turbulent sea and just by being here, helps me meet this storm –

THANK YOU.

Ginny xxx