Category: Hallucinations and Real or Not Real

I hate the girl in the mirror

 

The Ladies’ facilities at work have mirrors all along the walls right above the sinks. Inescapable. Two more full length mirrors in the locker rooms, one of them again inescapably right by the door out to the shop floor.

I hate what I have to see in the mirror.

Fat first of all.  Fat, ugly, just Too Big. Too Much. Ugly, wrong.

Nothing matches up and I don’t fit together.

Hate. Look at yourself. Hate. Fat, bulging, disgusting. Foul, no wonder they don’t want you, no wonder, who’d want you?

Remember they’re watching. Remember they know. Everyone knows really. You’re a fake. You’re a liar. They all know how weird you are and what a nasty little thing you are. Listen –

No. Stop, please. I don’t want to hear it again. I wish I could cut the evil out. (Go on, purge, get it all out.) I wish I could go back. Disappear. No more demands of my disgusting body.

Rationally I know these thoughts are always strongest when I’m unstable for a long period. But it still hits me every time I have to look in the mirror and hate.

I’m scared

I’m scared. I’m scared of the memories and scared of the hallucinations. I’m scared of what SHE did to me and the thought she got pleasure in it and what she accused my father of…

I’m scared of what I hear and see and remember and I don’t want it and I’m trying to block it out with the TV always on. I only know after that it’s not real and after I’ve been so scared.

Am I going to stop knowing they aren’t real?  

I think, therefore I am, as the saying goes. ..

[Sorry. I know this post makes little sense. It’s a mess of thoughts in my head tonight since I realised how much I “am” what I am experiencing and feeling and cannot stand it and get lost along the way. ]

“I think, therefore I am.” ??

I think…

I feel…

It’s harder than you’d expect to separate thoughts and feelings. Thoughts can hurt. Thoughts are (must be?) quickly judged. Thoughts desire; thoughts need and long and that again is judged at once, answered or unanswered, and that brings feeling.

Can thoughts be stopped? Those that come unbidden, spiraling or shouting and yet never to be trusted, tell me I am deceiving, tell me – too bad to write… memories…

And feeling. Nothing. Terrible nothing with something clawing at me to come back, or blessed numb. Or everything.

Everything. Everything I am. All I am – pain, hurt, need, frightened – everything I am, all I am. Can’t anyone else see? Can’t you see? Everyone is in so much pain. Feeling it and absorbing it – theirs or mine? But it hits me like a wall and it’s all there is that moment, separated from time, not knowing what to do or what to be but – pain.

I think, therefore I am? I’m not sure about that! But I feel, therefore – I am not. My self, my certainties, are lost and all I’ve become is the feeling and the fear.

What do you hold onto in the darkest times?

I’ve posted before about how, like many people with Borderline Personality Disorder, one of the things I find hardest when I feel really bad is to hold on to any knowledge that it will not always be this way. The overwhelming emotions – especially fear, sadness, loneliness, anger, pain, frustration, self hatred, self disgust, hurt, distress, longing or needing, or the feelings I can’t yet name that come with flashbacks – they eclipse everything else and become all that exists.

I wonder if their power is greater if I fear the emotion I sense. But the totality of the experience, their consuming nature, makes them the more frightening.

Descriptions of this emotional experience in BPD often term the feelings intolerable or unbearable. It is that but it isn’t quite either; it’s not all of it. Intolerable, more than I can stand, yes… but it’s not something I can’t stand because it’s me. In that state there is nothing but the emotion and there is nothing of me but the emotion. I cannot stand it but neither do I exist apart from it.

I hate it so I hate myself. I must get rid of it, purge it, so I must get rid of myself and cut away the bad – so I cut.

I can name some of the emotions afterwards. Maybe the therapy is helping me to do that. But in the experience, I cannot. I cannot recognise anything but hurt and pain and hate and evil (me); I cannot hold in mind anything but the impulses to cut, run, scream, end it, reach back for numb. .. and I am gone. ..and I spin between cut off and unable to feel and any attempt to engage being painful, and the state of total emotion, of only existing as that pain.

I cannot control it. I cannot bridge that gap. Therapy is helping me identify what feelings are. But it doesn’t separate them from me, from time, from permanent reality, from right and wrong. It doesn’t tell me how to feel, rather than be, the emotion. It doesn’t tell me how to bridge the gap between the different people I become – the cut off numb one;, the one that hides everything to cope day to day and do what I’m meant to and fulfil my responsibilities and pretend and hope I could ever be good but knowing all the time that everyone really knows how fake it is and how evil I am deceiving everyone; the frightened needing child; the angry, vengeful and impulsive one. More and more they seem to be separate personalities. I am fragmenting. I am more unstable. I lose more periods of the day – when I’m in one state I cannot “access” the other and I can’t remember things that happened (though I may remember the state). I flick so quickly between states without being able to engage my rational mind and try to employ any grounding techniques or DBT techniques to control my behaviour or my experience.

I guess it’s good that I can start to be curious about the process, from the temporary relative stability of my “coping” state. It must show I do have some ability to learn to mentalisa about what’s going on in my mind. Usually my “coping” state would be trying to suppress what I’m exploring right now. Perhaps eventually I’ll be able to build a more curious and stable personality at least alongside these others.

What do you hold on to when your whole reality, your whole existence, is unbearable sensation and emotion? It sounds utterly stupid. It sounds utterly out of proportion. It sounds self centred and I am forced to admit that though it’s the very last thing I want and one of the things I most hate in myself, in a way it is, though at the same time self has got totally lost in the feeling and emotion coming from everywhere.

What do you hold on to when you can’t access your coping strategies or even your most rooted beliefs and deepest cares? I love my God and know God is mercy and compassion, but in the bad states I can only conceive of a vengeful God or a God casting me out. I love my godchildren, I care about keeping my commitments at work,  but in those states I can conceive only that I do everyone harm and everyone knows I’m bad really and would rather I weren’t around. The centre of my beliefs and values warp according to the state I’m in.

What to I hold on to?

Ginny xxx

Hurting tonight

It hasn’t been a great week.

Hurting with physical pain from gynae problems and joint problems.

Going between guilt for worrying and burdening my family and not being able to do what I should, and feeling cut up that I’m “in the way” to them and need to be compartmentalised so I don’t intrude on their life – the part of it they actually want not just feel obligated to do.

Seeing far too many things. ..scary things. ..that aren’t there… that are hallucinations from memories that grip me and shake me.

Wishing someone would hold me and tell me it would be alright even when the flashbacks come.

Working through water or a fog each day and knowing I’m getting it wrong and doing wrong and so so tired.

I slept about 4 hours tonight if that. Tomorrow is group therapy again. I am so scared to go. I will go because I mace this commitment to everyone in the group, the therapists, and to trying to get better, to God, and I won’t throw away what I’ve been given. But I’m scared. I don’t know where we are, I don’t know how to be, I don’t know who to trust, and I can’t trust what I did trust or where I thought we were before. Everything unraveled last week. I wish I need not speak. I wish I could just sleep and stop it all.

I will try to go forward thankful. I will ask thankfulness for another day, to learn to thank our God for revealing His loving kindness in the tiny little helps of each day and pray to notice and see them not just the mess in my head. I will try to work to make something beautiful – even just draw, colour, sew, write to my family and my closest friends who mean so much to me simply by still somehow being here.

Somehow this moment will pass but good will remain. I’m trying to believe.

What if I don’t trust them?

I’m still struggling to process what I’m feeling after therapy group on Friday. Tomorrow I have my 1:1 appointment and I know we will be talking about it. It is going to be so hard to go and even harder to go back to group when it comes around this Friday.

Just when I’d dared to start to think it’s okay, it isn’t. Just when I’d started to think group might be a safe place, somewhere that you can dare to speak about things that are otherwise forbidden, it isn’t.

Just when I’d started to let my guard down a little and trust, it turns out I’ve hurt everyone and didn’t even know. How did I not know? Usually I can feel it right away and know it’s my fault and this time I didn’t. I so so needed to trust them there and now I can’t. I couldn’t understand what I was feeling then last night the thought hit me – what if actually I’m angry and hurting because I feel I can’t trust them? I did the wrong and I caused the hurt but what if I’m angry because I feel people didn’t say what was really happening?

What if I’m angry because I feel I can trust or speak anymore?

What if I’m angry because I really needed to trust and yet again it all breaks down, just as usual, every other time? I know and felt so so strongly they hate me, they are angry, they don’t want me there, they hate me, they’re angry, and they’re angry for each other too because I’ve done wrong and got it wrong and they think I’m nasty, a fake, no right to be there, they just want me to go away and just put up with me because they had to. What if that made me angry as well as guilty because I can never know where I am and know I must never ever let anyone close but so desperately need people?

Does anyone else ever just wish they could never have to speak again?

The hallucinations are multiplying as my thoughts spiral through all these things.

Ginny xxx

Can’t you see they’re in so much pain?

NB this post refers to the films The Green Mile and The Perks of Being a Wallflower. This post is about BPD and experiences of others’ emotions however:

Slight movie “spoilers” alert if you haven’t seen the films and are planning to 🙂 ! Also, whilst both films were interesting and I definitely identified with characters, the first contains a few highly disturbing scenes and themes and part of the second was triggering to me at the time I watched it, though I think only through similarity with my personal experiences. Therefore to be on the safe side, I’d advise caution if you do decide to watch the films.

 

“Mostly I’m tired of people being ugly to each other. Tired of all the pain I feel and hear in the world every day. There’s too much of it. It’s like pieces of glass in my head all the time.” – John Coffey in Stephen King’s The Green Mile

Someone shared this quote with me today. It was years ago I saw the film “The Green Mile”. It is not the kind of film I normally go for;  it was watched as someone else’s choice. It was thought provoking and also deeply disturbing. I would not watch it again now as it’s too harrowing but it has a lot to say about our judgement of good and evil in ourselves and others and how this affects how we treat our peers, those we work for and those in our charge.

“The Green Mile” is set on death row in the USA. John Coffey is a black American prisoner who has been sentenced to death accused of the murder of the two children of the plantation owner for whom he worked. If i remember right he was sentenced because he was found at the scene. In fact he was not the killer; he was trying to save the children. Coffey has a super-normal (supernatural or spiritual?) power to heal people. He touches them and draws the illness out of them through his own body and then “breathes” it out and away. Coffey knew the children had been lured away and attacked and he was at the scene of the crime because he was trying to save them. During the film, Coffey seems unbelievably calmly accepting of the horror that he will be executed and shows astounding compassion to his guards and other prisoners.

In the horror of death row the introduction of this super healing power seems somewhat jarring. Perhaps that’s part of Stephen King’s intention. When we watched it my friend wondered wouldn’t it have been better if it were totally realistic without the introduction of the supernatural realm. I can see her point. Then again I think King integrates it powerfully into the story. In a place of utter despair and darkness on death row, good cannot be extinguished. Compassion and healing still exists through one poor man who continues to do good through being utterly judged, rejected, broken and condemned. No matter how weakened he is, he can still do good and he’s a channel for healing.

He is in the broken and condemned state he’s in precisely because of his desire to help, to heal, to do good even when people judge him wrongly, and because of how much he knows other people’s pain and hurt and needs. Had he not recognised the children were in danger, searched and tried so hard to save them, he would not have been found at the crime scene and would not have been accused…. through the film we see other examples of how Coffee’s compassion and feeling for others overrides his own needs or his own pain.

The quote I started this post with expresses some of the cost to Coffey of feeling so much other people’s pain and needs. I those of us with personality disorders and post traumatic stress disorders, or who have suffered abuse or traumatising relationships,  can struggle just the same.

We feel so very much what others feel. It goes beyond empathy. It goes beyond wanting to help. It is a mental and bodily sensation. We actually feel what the other person feels. Sometimes we feel it more suddenly, more clearly or more overwhelmingly than our own emotions and needs. It can be a shocking or crushing wave or grip. We can’t breathe or we tense and jump as though we’ve been hit. We feel something in us twist painfully and connect to the other person’s hurt and we feel more than a need to take it from them – perhaps a longing, draining need to take it, rather as if we could do as Coffey does in the film.

It can be too much to bear. Too much to be around anyone and so very tiring. After social situations we may need time to rest and recover and go away to some quieter, colder, more numb place in our mind. Or we need something desperately to distract us and this may be dangerous impulsivity, self harm, drink, drugs and so on, because we need anything at all to get away from the knowledge of such hurt and pain in the world that we can’t draw out.

For some reason it’s the feelings ofhurt and need or pain or anger that overwhelm us and fill us more powerfully than good feelings in others such as joy or excitement. I don’t entirely know why.

There’s another film that spoke to me about this too, “The Perks of Being a Wallflower”. The main character has suffered childhood abuse and at the end of the film, he asks the doctor treating him, “can’t you see that they’re in so much pain? ” – can’t you see that everyone around is in so much pain, because he can see it and doesn’t know what to do. I can see it and feel it and take it all on and I don’t know what to do. It can be so impossible to carry on through that feeling and so tiring, that we withdraw totally to protect ourselves. Then we seem cold and that we aren’t making any effort to help anyone and thinking only of ourselves – when actually we ate feeling so very much and so much wishing we could heal others’ pain.

In “The Green Mile”, despite being judged and condemned, Coffey continues to feel everyone’s pain and continues to heal people. He is utterly misunderstood. His power for good is hidden to almost everyone. But even there in death row it can’t be stopped.

Even if we are utterly weakened and broken, even if nobody understands, even if we can’t tell anyone yet what is really happening,  the good we can do will still remain. Even if we feel we’ve totally failed, there is good in us, even if it’s hidden from us too just now. Not seeing it doesn’t mean it isn’t there. Paradoxically, though our ability to feel so much has a great cost to us in pain, in being drained and spent and hurting, it may not be a bad thing. It may become something that enables us in the end to help and actually even connect to people.

I think learning to believe good in ourselves lasts even in weakness and apparent failure is a big part of getting there. So is finding a way to stand experiencing what we feel of others’ emotions and our own, so that we can use these feelings beyond empathy to be able to help people rather than having to withdraw because we cannot stand it. So far I really don’t know what the answer to this is, as yet.

Ginny xx

Scared of imagining

My imaginary world used to be safe. My escape and my protection. I’d call it up at first and hide myself in it.

Later it came unbidden, with an invitation to slip through the ‘door’ to safety.

Later still, I just suddenly find myself there. Protected and dissociated. I’m safe and maybe others are too. Usually I know I’ve gone there and can hold on to an imaginary line and fight my way back into the present world.

But lately I dissociate into a place I don’t like where there’s anger and hurt and uncontrolled expressions of needs left wide, raw and empty.

And another where I’m the scared and frightened child and I’m back THERE again.

The latter two I can’t choose to leave. I have to wait til they eventually chuck me back out. I am terrified of who I am in them and how they hold me.

The lines between the worlds are blurring with more and more of my hallucinations and flashbacks. The scared child world is flashing into the present.

Knowing that as a child I could enter, at will and without will, the alternative worlds, I’m scared that other things are also false. That things I thought were in the present world then, are actually not true. That this means the awful frightening things – the abuse – things my mother did and said – did not really happen. What if I’ve somehow imagined it happened? And it didn’t really and I’ve invented it? What if I was a horrible sick evil child? Or what if I was psychotic?

So much that happened when my mother and I were alone means it can’t be corroborated.

What about the things I’m sure happened when my father was there or that I told him? And that he now says he didn’t know?

I do not know what the answer is I just know it could mean I’ve done something terrible I can never make up or make right or hurt myself enough to punish myself for.

How ever do I get an answer?

 

 

 

Psychosis… trying to process that word…

I saw a psychiatrist at the personality disorder service yesterday. I’d asked if I could have a medication review and talk to someone about my fears about my hallucinations (because of the focus of MBT therapy we don’t really talk about them at length in group or regular 1:1 sessions).

I was scared why are the hallucinations getting worse and why it seemed to be getting harder to know they aren’t real. They used to be voices inside my head. Now they’re often outside and at the time they’re totally real. Only after can I work out they couldn’t have been. And I’m seeing things too.

My mother had hallucinations and I’m just a year younger than she was when she gave birth to me and after that things got really bad for her. So I was scared is the same thing happening to me at the same age?

The psychiatrist was really nice,  understood me, understood my terror, understood the frightening experiences of my childhood and she took more interest in this background than I’d expected. Which was important because it allowed me to tell her about unusual, possibly hallucinatory (is that a word?!) visual experiences as a child and the very strong imaginary world I created to escape into, away from the bizarre experiences day to day caused by my mother’s weird beliefs and behaviour. I told her about feeling I dissociate into different personalities and worlds.

Then we talked about psychosis and schizophrenia. The psychiatrist used the words psychosis and psychotic symptoms for what I was describing. I asked if she thought I had Psychosis as another illness separate from my Borderline PD. She said it is hard to separate because having unusual external experiences is part of Borderline and I could be at a more extreme end of that, worsened by stress and perhaps as therapy is opening things up. Also she thinks I had a sort of ‘propensity’ towards it as a child – I can’t remember the word she used – and this interacted with my mother’s schizophrenic behavior and the abuse to make things worse.

I knew I have hallucinations. I was scared of Psychosis. One of the drugs I take is actually anti psychotic though I didn’t realise that.

It’s still scary that the word psychosis and psychotic symptoms is used for what I have. Partly, I think this is because I fear I’m going to lose all knowledge these things aren’t real and lose contact with the world and become as my mother did. Partly, it’s saying for sure I’m experiencing things that aren’t real. And I’ve so many fears about what’s real and what’s not real. Partly I don’t know yet.

I’m holding on to what the psychiatrist said, that if you keep taking the medication you do not tend to lose the knowledge that the hallucinations aren’t real. They might even go away.

So she’s writing to my GP for changes in my medication and higher dose of the anti psychotic meds.

I don’t know what to think right now. There seems a lot to get my head round again.

Ginny xx

The fear of what lies within

It was my MBT therapy group this morning.

I was very sad at the end and the frightened abandoned child part of me was crying.

I do not want to risk breaking any confidences so I will just say that we shared our feelings and thoughts around abuse suffered, memories, trauma, and times of finding out that a loved or trusted person has done something very very wrong, perhaps the most terrible wrong of violating the most delicate and intimate part of another person’s physical being and emotional soul.

I wish I could write more freely but I am very afraid to break or betray confidences, even though I do not give personal information or write under my real name. Too much rides on that to ever risk it and it would cause too much pain to everyone else in the group.

[Note – at this point I know that my writing that follows has not become very coherent. This post is a lot of things I had to get written down for me and it may not make any sense whatsoever to readers. I am sorry for that. I am not sure that any good can be gained from reading it, actually. I feel I have to write it to start to unravel some of the terror I’m feeling right now about the experiences we explored and to start to pick out some of the emotions. I don’t know well what they are right now. This comes with a warning about painful and scary themes in the writing that follows although because I don’t know if it makes any sense at all, I’m not quite sure what exactly to warn for. It does mention a memory of someone threatening and abusing and physical violence. Just…. warning…. xxx]

I am sad and cold now and desperately wish someone were with me to hold me; to hold me here and tell me what’s real, what’s not real, what’s no longer real, and maybe the hurting child part of me would be protected. She knows only she is wrong and she has harmed and she could drive someone to death – and the flashes come of the terror of finding her, there, like that – and she must be alone and she must know the bad that she has done and if she just watches hard enough perhaps she can get away before it all happens again. But still she’s crying and hurting and nobody comes. Nobody held her, nobody told her it was alright, nobody told her being loved and being able to love didn’t mean being able to get it right enough, disappear enough and fill everything she needed without fail. She cried on her own and she wished alone would stay forever then, in the little room and her make believe world with the “children” she cared for and made real in her mind and for her eyes only, where she didn’t do harm, and later where she was even allowed to cry and someone would hold her and tell her she was good and it would be alright. She could even save people in that world, be brave and strong and rescue and save, suffer hurt herself to protect and save the others. She could slip into that world.

If only the alone time always lasted. If he didn’t come home, didn’t open her door, and know instantly from her frightened watching and sometimes her attempts to block the door, and her mother in her own bedroom in the dark in bed (sleeping? Silent and still, certainly.) If he didn’t come and Mother didn’t get up (one day would she not get up? would it have happened that she’d gone away as she threatened, or even that she was dead?) then alone would last. It was frightening and panicky and hollow but it was safe and she could slip back into the other world, with her “children”. But he always came home. He knew straight away – without a shadow of a doubt she thought this – what had happened that day and what she had “done” to her mother and what had happened and what her mother was going to do because of her. He’d go in to her mother and her mother would tell him what she’d done. Then down they’d come, and he’d be cooking dinner, and the evening and night “session” would start, of Mother crying and screaming and threatening and asking her over and over why she had done it, until Mother came up with the explanation for the evil thing she had done, to punish Mother and get her own back in some twisted way. And the child wouldn’t even understand what the initial deception was supposed to have been, sometimes, let alone how that was punishing. The wrong, you see, was only a wrong if she had intended the evil and the punishment in her action. The action wouldn’t have been wrong without it because it had not any value, it just was. But there was the evil motive and intention and Mother always knew it exactly. And all the time she’d be asking, watching, shouting, accusing. And the child would be crying. Nobody came to her. Nobody helped her. Father comforted Mother, hugged her, sat beside her, stroked her feet and legs, sat with her when she went up to bed when she’d made her so sick she couldn’t cope. He brought Mother the wine and coffee she drank and the cigarettes she chain smoked. (Did he know she threw the glass jars at her? With practised precision to smash into thousands of shards directly at her feet, I know now.) Nobody brought the child anything to comfort her and nobody held her when she cried at the threats and shouting or being left alone when Mother went away and she wondered if that would be the time Mother didn’t come back – look what you’re doing to your Mother… stop crying like that, that’s what people do when they’ve had something really serious happen to them, stop sitting there dripping like a blood machine – and nobody went to her when she cried at night and nobody was there when she got up and was terrified to move and terrified of the stairs. She couldn’t tell anyone when she wet herself because she was too frightened to open the door of her bedroom to go to the bathroom in the night because she thought Mother would be dead outside and that would be the night she would find her – but if she didn’t go out it wouldn’t be real in that child’s mind – she tried to hide the wet things and when Mother found them stuffed into the back of the wardrobe, smelling, she didn’t answer why she had done it. Mother was always there. Father took completely her side and the totality of everything she claimed was the entire truth in his eyes. But nobody was there for that child.

She’s still there and scared and she wants a hug and in the flashbacks she’s all I am and I’m frozen and terrified. She needs someone to take her and not let go and never let go and she really really wants to be real and not be bad, just be the real little girl she is and not the terrible other evil things that Mother said she was doing. Is she a little girl or is she manipulation and evil and danger and damage? Is she real? Is the world she prefers to escape into real? Because it’s so much better and so much safer and it’s there that somebody wants and needs her. Please could she be real.

It really really hurt when Mother did the things she did with her body, in front of the mirror and on the bed and in the bathroom and……. inside…… it really hurt and Mother told her how to breathe so she could do it.

Why didn’t she know it was wrong?

Why was it her normal?

Why didn’t she tell? Why didn’t she stop it?

Especially in the bathroom. Because she was older then. Why did she just let her. Why even when the problems started later did she still not connect it.

Why.

Why is she so dirty and disgusting.

And most terrifying of all what if all this is a lie. What if she’s a foul ugly silly little thing and she’s repeatedly punishing Mother and that’s all this is and it’s all a lie.

Voices. Voices. And crying. Crying tired. Crying for it to stop. Cold.

And was there anything that was good?

****

And what if someone so bad – as what Rev. F. did with the young men… what about me? I thought he was kind to me. I thought he encouraged me. I thought he was kind and he always remembered my name, said hello and said he’d pray for me, and told me hope when I was in the grip of bulimia and losing the plot. I held on to the peace in the evening services as we prayed. But then he did – was doing? – that with the young men. And that was pure hurt and wrong and never never can in any way be alright and so so much harm has been caused to them. What does it mean that I thought something he did was good? What was his thinking when he did the things I thought were good? Would I have become complicit? Why did I think he was kind – someone who could do things like that? Am I so so bad too if I could think he was kind? Am I somehow open to being taken? Taken and used and used to hurt even without knowing?

Yet again. There it is. Used to hurt, doing bad, doing bad without knowing.

Can good be done without good being the intention?

Does that just reinforce that bad can be done without knowing too? Does that mean you can be bad without knowing?

Ginny – – – but not Ginny, really, tonight. Ginny’s got a bit lost right now. Tonight I’m still the frightened child. (Dissociating again.)

I’ve called her Lily – the child. I’ve called her Lily. She’s always there.