Tag: Borderline Personality Disorder

The 1000th last straw

[TRIGGER warning for mention of self harm, overdose and suicidal thoughts, and childhood sexual abuse;  and for anger, i am really angry and hurt writing this.  I am not meaning people to worry about me. When i say I’ve given up i mean on therapy and the doctors and everyone i trusted, not that I’m immediately suicidal.]

I am so far beyond angry. Hurting. They can decide I don’t get help. But it does come to a point I can’t just keep going one day more and being told the bad things are temporary.

In group and after I desperately needed to talk about the abuse and trauma and the decision I’ve now got to make whether to make a full statement to the police. I needed help when I told them I was really high, right on the edge, really unstable, not safe. Nobody heard.

I’d dared to ask a friend for help and to help me talk through some of what I have to decide about the police. She’s cancelled and changed arrangements so many times we’ve had to meet. I doubt she really wants to anymore. She keeps meetings to the most difficult and shortest times. She knows I’m ill, she knows I’m desperate, she surely knows how difficult it is to talk about abuse! She agreed to meet in the middle of the day at her work. Obviously I needed to talk in private but if that was all the time she had then I was thankful for it. I was at my wits end today after group. She changed the time and place back and forth through the morning today. She knows this puts me right on edge if I have no idea what’s happening. She told me she only had 30 minutes, then that she had work to do and hadn’t finished, then couldn’t I wait an hour and a half later, then asking where I was, 2 hours earlier,  when she knew I was still at my hospital appointment. When I finally pinned her down to a time she still came 20 minutes late without even letting me know and we had to meet in a crowded cafe where I obviously couldn’t talk about a thing – what did she expect me to do?! “How’s your cappuccino? Oh yes and by the way, I’m not quite sure how I’m going to cope when I tell the police about my mother sticking things up me when I was 7, any thoughts?” I don’t think so!

Then she told me I ask too much, it would be impossible to do what I ask (really? Is it so very hard to agree to meet a friend, stick to the arrangement and turn up?) And she doesn’t believe i wanted to meet in private because I thanked her for agreeing to meet in the middle of the day (well just because I thanked her and was grateful doesn’t mean I was happy or it was what I needed, I was just grateful for any help – or what I thought was help). She said she didn’t know we needed to meet in private (really? Is she that stupid she doesn’t know if you have to talk about abuse you won’t do it in the middle of a cafe? I don’t think so).

I was in bits and in so much pain as well  – and yet again the last hope of getting help or to talk to anyone was snatched away. It’s not just today. It’s every single time. I’ve had it now after this is just repeated – every one i should be able to trust,  every place i should get help. They don’t hear. They don’t believe me. They don’t help. It’s some sick joke or someone’s plan to find out when I break, to laugh at me, to test if I want help enough. Well I’m screaming and nobody can hear. I can’t scream louder. They can choose to keep up this game. Well I guess they’ve won. I can’t shout louder. I can’t make them believe. I can’t make it so that I deserve or am allowed help. I can stop trying anymore because it does just hurt too much. That one’s down to me. It’s not really a choice because it simply now is too painful. But I can choose not to let anyone near me again so they can’t trick me, so they can’t decide to keep a distance because I’m not allowed help and cut me down again because I’d just started to trust and go forward believing they’d be there, so they can’t disappear and show me how they don’t really want me around and it isn’t a friendship and they won’t be there.

(Funny. She’ll threaten to call an ambulance – and if I do go to a&e I just talk to someone then get bounced back out after a few hours and I’m alone again – but she won’t come to see me when I’m not safe, understand how hard it is, sit with me when I’m terrified, come to see me when I was in hospital – every time I was in I was the only person on the ward who didn’t get a single visitor -or hug me when I’m crying. Why is it so hard to do any of that? The doctors don’t care and don’t help me and the only friend I have nearby doesn’t want me around and says go to the emergency services. So I’m not allowed medical help and not allowed friends.)

I’m not allowed any help. I need a friend and I need someone with me and I need to trust someone but every single thing I trust gets taken. It’s not just today it’s every time and I’ve had enough. Oh, you must keep going to work, they say. You’ll feel worse if you have nothing to do. No, I won’t. All I want is it to stop. I don’t want to go out. I want to sleep. I want drugs to stop me feeling.

Oh it won’t help you if you have anyone with you it won’t help you get better you have to be independent. Why is it for her to decide what I need? She’s not my doctor! She doesn’t know what it’s like! I need help. I need someone with me. I want a friend. I want someone to help me. I want someone to care. I want someone to be there when I can’t cope. Not only when I can say everything is fine. Not only when it suits them. Not only because they’ve decided I have to learn to be independent. I’ve always been independent. Nobody has ever been there when I needed them. Now I Can’t cope anymore. It’s even more cruel that every time I’m most desperate I have to be deceived into thinking someone’s there then left alone.

If you’re friends with someone, if you care for them, you are there when they need help. You don’t decide what they need or that something else is best for them or they have to learn something. You don’t see them sometimes then walk off when they’re ill. You don’t constantly change every arrangement. You don’t only allow them in certain situations and certain parts of your life. If they need you you’re there for them. If they’re sick you help them and care for them. You don’t just disappear because it isn’t convenient. That’s just utterly basic friendship and actually basic morality. I’d do it and do do it for anyone.

Is it really so terribly much to ask? Every other person in therapy has family, a carer or a spouse with them. I’m the only person who doesn’t, who lives totally alone. Is it really so terribly awful to want someone to be with me when I’m in crisis, to hug me when I’ve been crying for hours, someone to stick to a commitment, someone to be a friend, someone to help me when I’m cutting as soon as I’m alone, when I’m terrified of the hallucinations?

And the doctors know and they don’t care. They don’t help me. My friend says call them if I’m not safe. She says persist. I’ve been persisting for years. I’ve been accepting nobody wants me. I’ve told them in not safe. I’ve told them I’m cutting and overdosing and when I was planning to end it. They didn’t help me. I don’t want some stupid phone number for a few minutes of so called support. That doesn’t keep me safe or get me help or a friend or anyone with me. I’m on my own again. Left to just go back to the same cutting and overdosing. There’s no other way to cope. They tell me just keep going is temporary. I don’t care if it’s temporary. I can’t right now.

After years of making sure never to say what I needed and always to do weekday I’m meant to, I’ve had it. I’m a disgusting selfish b*tch and a baby and I’m screaming and I need help now and nobody can hear me. I’m not allowed help and I know I’m not but every time it’s proved the kick hurts even harder. I know it’s selfish and disgusting but actually the need and the hurt has taken over. Nobody wants me. Nobody wants me really, not what’s really me.

 

 

Walking this Borderland #8: when it costs to smile

I don’t think that the saying “it doesn’t cost anything to smile” is true. It can cost a very great deal to get up, step outside, meet anyone’s gaze, smile, speak, even keep breathing, when you are crippled with anxiety, voices in your head, emotional pain, traumatic flashbacks and hurt or sadness that hits you any time, anywhere.

I believe in still trying. Through this cost, keep on trying to smile. Through the awful feelings, trying to do one little kind thing for another person and one little kind thing for ourselves. We may not succeed but the will is there. Only we ourselves and God may know the huge cost. Yet good will surely still come of the action, however small. We have taken an action opposite to our illness, opposite to the inclination of our anxiety and hurt, choosing goodness and strength.

This is a small victory and a small step forward in hope.

I emphasise that I do not mean we should try to push away what we are feeling, deny it or tell ourselves we mustn’t feel it or aren’t allowed to. Far from it. We should do quite the opposite. But every little action done in love – for others and ourselves – is a choice for good. When we are suffering very much and when it costs very much to smile, then every smile and every action is worth all the more because it is necessarily done with greater effort and greater love.

What makes you feel loved?  How do you love?

Ginny xx

I think, therefore I am, as the saying goes. ..

[Sorry. I know this post makes little sense. It’s a mess of thoughts in my head tonight since I realised how much I “am” what I am experiencing and feeling and cannot stand it and get lost along the way. ]

“I think, therefore I am.” ??

I think…

I feel…

It’s harder than you’d expect to separate thoughts and feelings. Thoughts can hurt. Thoughts are (must be?) quickly judged. Thoughts desire; thoughts need and long and that again is judged at once, answered or unanswered, and that brings feeling.

Can thoughts be stopped? Those that come unbidden, spiraling or shouting and yet never to be trusted, tell me I am deceiving, tell me – too bad to write… memories…

And feeling. Nothing. Terrible nothing with something clawing at me to come back, or blessed numb. Or everything.

Everything. Everything I am. All I am – pain, hurt, need, frightened – everything I am, all I am. Can’t anyone else see? Can’t you see? Everyone is in so much pain. Feeling it and absorbing it – theirs or mine? But it hits me like a wall and it’s all there is that moment, separated from time, not knowing what to do or what to be but – pain.

I think, therefore I am? I’m not sure about that! But I feel, therefore – I am not. My self, my certainties, are lost and all I’ve become is the feeling and the fear.

What do you hold onto in the darkest times?

I’ve posted before about how, like many people with Borderline Personality Disorder, one of the things I find hardest when I feel really bad is to hold on to any knowledge that it will not always be this way. The overwhelming emotions – especially fear, sadness, loneliness, anger, pain, frustration, self hatred, self disgust, hurt, distress, longing or needing, or the feelings I can’t yet name that come with flashbacks – they eclipse everything else and become all that exists.

I wonder if their power is greater if I fear the emotion I sense. But the totality of the experience, their consuming nature, makes them the more frightening.

Descriptions of this emotional experience in BPD often term the feelings intolerable or unbearable. It is that but it isn’t quite either; it’s not all of it. Intolerable, more than I can stand, yes… but it’s not something I can’t stand because it’s me. In that state there is nothing but the emotion and there is nothing of me but the emotion. I cannot stand it but neither do I exist apart from it.

I hate it so I hate myself. I must get rid of it, purge it, so I must get rid of myself and cut away the bad – so I cut.

I can name some of the emotions afterwards. Maybe the therapy is helping me to do that. But in the experience, I cannot. I cannot recognise anything but hurt and pain and hate and evil (me); I cannot hold in mind anything but the impulses to cut, run, scream, end it, reach back for numb. .. and I am gone. ..and I spin between cut off and unable to feel and any attempt to engage being painful, and the state of total emotion, of only existing as that pain.

I cannot control it. I cannot bridge that gap. Therapy is helping me identify what feelings are. But it doesn’t separate them from me, from time, from permanent reality, from right and wrong. It doesn’t tell me how to feel, rather than be, the emotion. It doesn’t tell me how to bridge the gap between the different people I become – the cut off numb one;, the one that hides everything to cope day to day and do what I’m meant to and fulfil my responsibilities and pretend and hope I could ever be good but knowing all the time that everyone really knows how fake it is and how evil I am deceiving everyone; the frightened needing child; the angry, vengeful and impulsive one. More and more they seem to be separate personalities. I am fragmenting. I am more unstable. I lose more periods of the day – when I’m in one state I cannot “access” the other and I can’t remember things that happened (though I may remember the state). I flick so quickly between states without being able to engage my rational mind and try to employ any grounding techniques or DBT techniques to control my behaviour or my experience.

I guess it’s good that I can start to be curious about the process, from the temporary relative stability of my “coping” state. It must show I do have some ability to learn to mentalisa about what’s going on in my mind. Usually my “coping” state would be trying to suppress what I’m exploring right now. Perhaps eventually I’ll be able to build a more curious and stable personality at least alongside these others.

What do you hold on to when your whole reality, your whole existence, is unbearable sensation and emotion? It sounds utterly stupid. It sounds utterly out of proportion. It sounds self centred and I am forced to admit that though it’s the very last thing I want and one of the things I most hate in myself, in a way it is, though at the same time self has got totally lost in the feeling and emotion coming from everywhere.

What do you hold on to when you can’t access your coping strategies or even your most rooted beliefs and deepest cares? I love my God and know God is mercy and compassion, but in the bad states I can only conceive of a vengeful God or a God casting me out. I love my godchildren, I care about keeping my commitments at work,  but in those states I can conceive only that I do everyone harm and everyone knows I’m bad really and would rather I weren’t around. The centre of my beliefs and values warp according to the state I’m in.

What to I hold on to?

Ginny xxx

Turning on the light

Turning on the light

“Happiness can be found in the darkest of times, if only one remembers to turn on the light.” – Albus Dumbledore, “Harry Potter and the Prisoner of Azkaban”

J K Rowling / screenplay by Steven Kloves

I think I’m still stumbling around in the dark banging into things whilst I’m looking for the switch, but I’m trying…. 🙂

xx

Blessings of friendship

I’m thankful for the visit of a special friend tonight. She came for tea and a catch up and we exchanged much belated little Christmas gifts. We’re going to meet again in a couple of weeks.

It always amazes me that she wants to be my friend. It amazes me she wants to meet up again soon. I’m not good enough to have friends – I’m not any good to be around – that’s what’s in my head.

I’m very thankful that she has kept in touch and continues to want to meet up,  when I’m well and when I’m struggling and when I’m very sick. Very few people stay around in all those times.

Ginny xxx

Back to work

I go back to work tomorrow after a few days’ annual leave. I’m really anxious right now. It’s harder than usual for me to go out at the moment. I’m better than in the last few days where I was crying all the time, but still feel dangerously out of control and shaky. This makes me feel like I have to double check how I’m behaving and what I’m saying all the more and the thoughts and voices in my head are all the stronger – you’re stupid, freak, ugly, fake, selfish, why did you say that, stop talking, deceitful, it’s your fault, disgusting, you’ve made it all up, why did you do that, not good enough, they know how bad you are now, they’re angry with you….it would all have been fine without you, everyone knows it’s your fault – until the frightening emptiness comes back and I just want to sleep.

I know it’ll just get worse if I don’t go to work and it does no good to think about all this. I need to turn outwards, look at everyone else, work, try to do good, try to do my job, try to just ignore the ache and the anxiety, not let it take everything over.

I’m going to try to do some things immediately to overcome it. I’m going to call a friend who I know has been having a bad time recently, having recently lost a friend of hers; I’m going to try to make some cards in preparation for a charity fundraiser in the Spring; I’m going to prepare my clothes for work tomorrow. I’m going to be thankful for having a job to go to.

Ginny xxx

Thank you, Daisy! The Liebster Award

Thank you, Daisy! The Liebster Award

I am extremely surprised and honoured to have been nominated by Daisy in the Willows for the Liebster blog award. This came as a wonderful surprise. Thank you so much, Daisy!!

Blogging is very new to me (I’ve been writing for around 6 months, I think). I was not sure what shape this blog would take. I don’t think I’m a particularly skilled writer but I do try to write honestly and not skip or hide the painful things because they are just as much a part of reality as the good things – of which there are many and writing this blog helps me to find them as well as keep going through the hardest times.

It’s my hope that we can encourage each other and build support and hope, sharing pain, joy, success, struggles, sickness, recovery, health, the extraordinary and the day to day.

There are 5 rules to the Liebster Award (I have found various versions on the internet. I sourced this version from Daisy’s page at https://daisywillows.wordpress.com/2016/01/22/5620/ )

1 Link back to your nominator

2 Let him or her know, by leaving a comment on their blog

3 Nominate 5 bloggers for the Award

4 Tell your nominees the rules, and invite them to do the above

5 Write 5 things about yourself that others may not know.

I am not quite sure whether I am meant to nominate only blogs with under a certain number of followers? When I looked up online, I found various suggestions such as that the award is for blogs with under 200 followers, however this is not consistent. I am afraid that I have ignored this part of the rules and simply nominated blogs that I find interesting, helpful, etc – I hope that nobody minds this too much.

I nominate the following for the Liebster Award:

Daisy in the Willows – https://daisywillows.wordpress.com I have not yet had the chance to read as much of your blog as I would like to have done. However, I’m eager to read more and I am very thankful for your caring, supportive, responsive comments and suggestions. I am very thankful that you reached out here to me.

Cathy Lynn Brooks https://cathylynnbrooks.wordpress.com – for telling a beautiful *story* full of love, respect and curiosity, and for posts that help us to be thankful for the hope in the every day.

a2eternity https://a2eternity.wordpress.com – for strikingly honest posts that do not hide or diminish the truth through a journey full of uncertainty, pain and change; for your amazing strength to keep fighting on through recovery.

Breaking Sarah https://breakingsarah.wordpress.com – for walking on through such a traumatic struggle to encourage me and others to keep on going one day more when it is so very hard. Again, I have to say that I have not yet had the chance yet to read your blog as much as you would like to. (That probably applies to everyone I have nominated here, to be honest! Which maybe shows all the more the value of what we share.)

Elsie’s Borderline Personality Journey https://elsiesjourney.wordpress.com – for sharing so honestly your fears and your path, building common ground and encouraging and understanding me so much. (And for reminding me when it’s hardest that “you don’t waste good” 😉 x)

Now for 5 things about me. This part is difficult! For all I write on here, when I’m tasked to say something about myself I find it very tricky! Kind of want to disappear sometimes 🙂 But here goes, though I’ve no idea how interesting these facts are.

1 – My dream job (disregarding all practicalities such as ability and finances!) would be to run my own coffee place with a retro theme. I’d organise small meetings and drop-ins there to bring together people who might be lonely in the local community, especially those suffering from poor (mental or physical) health.

2 – I love taking photos and making my own greetings cards.

3 – Sometimes I think I was born in the wrong era 🙂 hee hee… because I love 1950s / 60s retro and vintage styles.

4 – I’m thinking about getting a pet, possibly rehoming a rescue animal.

5 – I’m blessed to have 3 beautiful godchildren (2 girls and 1 boy, aged 2, 4 and 4). Though I often worry very much about being no good to them, they never fail to lift me up when I’m feeling shattered and numb inside and to remind me how as children, we live as though every moment is a gift.

Thank you again Daisy.

Ginny xxx

 

 

A closing drawbridge and a silent cry – Eating Disorders and Personality Disorder – #5

A closing drawbridge and a silent cry – Eating Disorders and Personality Disorder – #5

Protection in emptiness

Eating Disorders and Personality Disorder – #5

“You will never touch me”

[I am sorry I have not updated this series for a while!]

In my first period of anorexia, one of the greatest functions of my eating disorder was a kind of defiance and separation. Anorexia definitely changed my personality, or rather, it was often as if there was a separate personality, much stronger than my own, rising inside me and gaining strength as I got thinner. She was strong and defiant and could not be hurt. She could keep me away from everyone and every thing that hurt me.

I was about 15 by this time and had suffered at least 11 years of emotional, physical and sexual abuse and exploitation. The family unit of my mother, my father and I were increasingly isolated and cut off into my mother’s sick (in both senses of the word) world and anything that tried to penetrate it led to terrible consequences (her sickness, her threats to kill herself, her threats to abandon the family, her threats of breaking up the family or of me causing her and my father to die, be taken away and so on). Anything that posed a risk to the world of her twisted thinking, delusions and manipulation had to be invalidated or removed. Visitors weren’t allowed to come into the home. Any social contact had to be planned and rehearsed beforehand, carried out to Mother’s specifications, reported back to her, analysed against her pre-prepared script. The daily routine had to run exactly according to her needs. She had to be recognised as super-human, a genius that nobody could ever sufficiently understand, the victim of everyone’s cruelty and misunderstanding who was so gracious as to forgive everyone because she “loved” them so much. Appease, pacify, agree, conform….the disaster wouldn’t happen, maybe….

My eating disorder couldn’t appease, pacify, agree or conform. It couldn’t be manipulated or invalidated. My eating disorder could defy, protect, shield, consume, grow stronger, defend, refuse to succumb and refuse to be controlled or analysed by her and even refuse to recognise her at all.

I remember that eventually, as my weight dropped and dropped, even Mother started to worry I was too thin and getting weaker. She’d encouraged my eating disorder at first, requiring my weight loss and dieting and reminding me how ugly I really was. Eventually it snapped out of her control and I think it was the one thing that actually scared her.

One evening, she called me into her bedroom. She told me to get undressed and stand in front of the full-length mirror. She’d done this many times before in order to shame and humiliate me and to slowly and methodically point out all the bits of my body that were bad and “too plump” and “too much fat”. Usually it followed a ritual weighing and reporting of my weight to her, her disbelief and being forced to repeat weighing myself in front of her. Now I flatly refused to weigh myself in front of her, but delighted in doing it in my bedroom in secret (always in exactly the same place, lining the scales up with a particular pair of floorboards) and was satisfied with the thrill of seeing the pounds drop. But for some reason, this day, I did obey her to get undressed and stand in front of the mirror. This time, instead of pointing out the places I was too fat, she pointed out where it showed I was too thin. Even I was shocked when I was forced to look at where the normal shape of my behind had started to flatten and disappear at the base of my spine. She continued telling me I was too thin and how she was worried.

A thrill of power went through me. It was frightening but I had never felt power like that. No, I thought. No. This is my body. All mine and you will never touch me again. In total silence I walked away from the mirror, away from her, out of her bedroom back to mine and got dressed again. I resolved to lose as much more weight as I possibly could and get as sick as I could, because this meant she would never ever touch me again. I hated her at that moment. I don’t think I was thinking of the sexual invasions, specifically (and indeed a lot of them I didn’t even accept as invasions at that time), but of all the hold she had on me and all the hurt. She would never do it again.

I had an awareness, somewhere, that she was worried for me and she was upset, and that my father was too. At that time, the need for the protection and power of my anorexia was much greater. I had become quite a nasty person, disregarding the hurt I was causing people who loved me (my dad loved me, if my mother didn’t). Or the anorexia in me was quite a nasty personality and I was becoming that personality. The power of anorexia was stronger than my usual nature.

Of course, it didn’t really stop me getting hurt, and it hurt lots of other people in the process. Eventually, it was acknowledging my father’s fear of what was happening to me that started to bring me out of this first period of starvation. To this day, I am not quite sure what, at that time, made me acknowledge that and shifted the balance of power towards empathy and reason, and away from the protective force of anorexia.

Ginny xxx

“I will not abandon you”

“Can a woman forget her nursing child And have no compassion on the son of her womb? Even these may forget, but I will not forget you,” says the Lord God (Isaiah 49 v 15)

These lines from the Bible came into my head just now. Thank you Jesus. It’s very hard to hang onto anything when everything I trusted in, so much – too much – seems to be taken away. The Lord alone suffices, St Teresa of Avila wrote. The Lord alone will never forget us and never fail us, even if His face is hidden from us for a little while. He loves us like a mother or a father, and more.

“When my father and my mother forsake me, then the Lord will take me up.” (Psalm 27). When everything else crumbles, when we are totally alone, still God who is love remains. One translation of the Aramaic actually says “Because my father and mother forsake me,”; “because” rather than “when”. The Lord knew we would be abandoned, and so, He never leaves us and He takes us up in His arms.

I struggle very much to pray when I feel as I do now. The hurt and obstacles and anger and frustration and alone-ness, all obscure my hope in God and too quickly I allow them to cloud who God is and who He created us to be. If all I run into is this pain, He must be angry, He must wish me punished, He must take pleasure in my pain. I must return to His Cross and return to listen to His Word in the Bible. This is God, not my pain of itself. Love surely brings pain, but it is not the pain and hurt and isolation itself.

And then in prayer, came my Jesus’s tender promise – “My gaze is longing love.”