Tag: Borderline Personality Disorder

Out of it

I’m going between boiling anger that I can’t stand (a force rising inside me which I can’t swallow down, just force and power uncontrolled and bursting free) crushing anxiety with spiraling thoughts, lists, growing out of control faster than I can count, no air to breathe, dread that I can’t surmount, and numb.

Numb. Nothing. Stopped. Watching. Un-engaged. Dumb. Deaf. Hearing what everyone else says but it makes no sense and causes unbearable sensations if I try to respond – I need numb.

I’m drinking tonight to make sure I stay numb and make warmth and cotton wool replace the ache, distancing the hurt from my dissociated state so it can grow without sensing the raw pain or maddening and crushing demands of the ‘other’ (real) world.

The pain from my gynae problems has been scary too, as well as the arthritis. It’s almost funny – completely messed up inside and the physical stuff out of control too, things ‘breaking’ one after the other. Nothing medically serious but it does seem to make me as useless as possible in the real world.

I don’t often drink and it’s a dangerous and stupid choice, especially now. I’m in a really dangerous state right now. I tried and couldn’t get help. I can’t choose rationally what to do. I’m saying it’ll just be tonight and tomorrow I’ll try to face it all again.

Thoughts too close to the edge

I really don’t know if carrying on with therapy is a good thing or not at the moment. I am more broken now than before I started this route and know more certainly that I’m on my own in it. I can’t keep trying to fight through day to day, to go to work and to keep going to therapy. I’m starting to wonder if it wouldn’t be better to just push everything back down again and live in my imaginary world. I functioned better day to day when I was anorexic and numb to everything. There isn’t enough support outside therapy to keep it going.

I keep on hanging on to things desperately, for them to be snatched away. The only times I’m not alone are when I’m faking it, even if I’m doing a bad job of that. When I can’t do it, when I am on the point of taking my life, when I am cutting, when I am terrified by the flashbacks, I’m on my own every time. Apparently I’m not allowed anyone there. Apparently I “wouldn’t qualify” for any social care support, and no family or friend wants to be a carer for me. I know they have no responsibility for me but that still really hurts.

I am thankful for my friends. I am not trying to be ungrateful. They do much more than I could ever ask. I know they can’t be there. I know often they are there when I can’t possibly believe they would still want to know me, after I’ve lost it and screamed and snapped.

Trying to keep going used to help. But now I get closer and closer to complete breaking point every day.

I’m going for another appointment at the hospital tomorrow for my 1:1 and I think I’ll tell her I’m thinking about not carrying on therapy. Things feel very very dangerous and close to the edge right now.

Walking this Borderland #7: Pigs in the clouds

Walking this Borderland #7: Pigs in the clouds

It’s very easily impossible to believe “this too shall pass”.

In BPD, that can feel like the most hurtful thing to be told, in the midst of utter pain. Even if the pain was triggered by a very small thing, at the time, it is not minor – it is the proverbial straw that broke the camel’s back or the rope you were holding onto so so tight because everything else had been snatched from you, then this too disintegrates.

But the fact that is at once cruel and possibly hopeful, is that every time you go through that utter pain, and still continue, it is proved that “this too shall pass”.

On Friday afternoon this week I was about to end it because for the n’th time it was more than I could stand, more betrayals than I could bear, pain only for pain, the original source now lost amid the impossibility of existing beyond that moment. I was evil rubbish and the world was laughing at my hurt. It was time to overdose and walk in front of a train and end it. And perhaps I was going to hurt someone. My memory blacked out.

Somehow, on Saturday morning I was at my friend’s and she was cooking breakfast. She made “eggs in clouds” for a treat (look at the picture – literally a little egg yolk in a little savoury souflee cloud).  There’s chopped bacon in the soufflee cloud so we thought perhaps it should be “pigs in clouds” instead. We talked about everything, minutiae and serious: baby showers, Harry Potter, Alan Rickman, jogging, marriage, how to stay in love and what to do when something nobody else cares very much about is unbearable to you, a mutual friend who may be in a bad home situation, sunshine, work…

So you see, it turns out pigs do fly, and this too did pass. It seems ridiculous that both these scenarios were real and followed each other by less than one day. But both were real. The change, although I do not know what brought it about, was real.

Perhaps it’s worth keeping a short note of the times that pigs did fly, that the darkness did end, what you did to change things, if you can remember – but if you can’t, even just record the fact that you did change things. That although that night you thought you could not go on one more moment, the next day you took a few steps out of your house, maybe walked down to the bottom of the road and back. That through the terrible flashbacks, you held on, and now you are back in today’s reality.

Both are real. Neither are permanent, both shall pass, but both are real. Note it down, however small it seems. Then the next time when the darkness starts to come, you can look back and be encouraged.

 

Victim roles – holding on tight and falling faster

Victim roles – holding on tight and falling faster

A couple of posts ago I said it is very hard not to be bitter. This week it continued to feel like a twisted game someone is playing. God, perhaps, and I have to keep looking back at the Cross to remember my God is not vengeful, twisted, scornful or delighting in our hurt.

This last week, things continued to snowball and I clung harder and harder to the smallest things. I felt completely alone and the importance of every tiny possible bit of help or hope increased.  The pattern repeated relentlessly that every time I counted on something, inside I built up to, “if I can just hang on to xyz, maybe then I can just manage, maybe then there will be help, maybe then I won’t die” and just as that had started to give me some security, whatever xyz was would be snatched away.

Whatever xyz was didn’t matter so much. I went to the Housing Benefit office to try to get some questions answered. I got some answers but also found out my Benefit will be suspended for weeks because of a 2-hours-per-week change in my working hours, likely putting me further in debt with my rent. I got another 3 page long form to fill out and supplementary statements to write. The time I’d counted on to rest to be able to work the next day was then filled with more anxiety over debt and more form-filling. In pieces losing it I phoned the hospital. We agreed that I could cope with telephone support until my care coordination appointment on Friday. 30 minutes later someone else from the hospital phoned to say that my appointment was cancelled (second month running) because my CPN is on training. I insisted I needed to see someone else.  My friend cancelled our meet-up for the second time within a week (not really for any fault of hers). But I snapped at this point.  The last thing I was hanging on to had been snatched away from me and I couldn’t take any more. Then Friday came and the day of the “replacement” appointment to try to talk about support I needed to cope with finances, Benefits, the threats from my landlord, the mountainous paperwork that needed to be completed and numerous telephone calls, and the effect all the confusion, delays, stress was causing to me, to the point that I was overdosing and cutting several times per week. I admitted that I’m not safe on my own, especially at night, and can’t manage simple things like cooking or keeping my flat in order, because the strain of trying to keep working, therapy, then all the financial problems, combine to be too much and leave me with nothing to go on with. The first person I was speaking to appeared to understand and suggested that there would be help available to me and that we could look at whether more social care support could be available. She asked one of the hospital social workers to see me straight away. The social worker came in and said I wouldn’t qualify for any help, that nobody gets anyone to intervene on their behalf or do forms etc for them, that I wouldn’t qualify for personal independence payment as they don’t recognise BPD and I’m working, and that I’m just “in a bit of a pickle” and that everyone has to deal with problems with benefits, tax and so on. She had no conception whatsoever of the extent of my distress, my self-harm, the danger I am in. I lost it totally and walked out.

At that point, yes it was a twisted game. In my mind, someone was delighting in my hurt, laughing at me, seeing just how far they could push me before I broke totally. And they were going to win that day. I was going to take an overdose or maybe I’d walk onto the train line because that was it and they had finally won. They’d had everything they wanted of me and there was nothing left. Everything had gone beyond possible to absolute desperation and this was the end. Everyone who was “supposed” to help me or whom I tried to rely on, was doing me the most harm when I had most hoped and could least take more hurt.

Obviously, I didn’t go and end it,  because I’m here writing this blog post. I can’t really remember exactly how I didn’t, though I’ll write another post about that later.

Something hit me today.

Vengeful. Ridiculing. Laughing at me. Hurting. Snatching from me. Hitting me when I’m most vulnerable. Rejection when I most need help, by those I most trusted. Scornful. Delighting in hurt. Delighting in making everything my fault and taking no responsibility. That’s what I find I meet with when I most need help and they push me to self-harm and suicide.

My abuser was all those things. Now the world takes that role to me and I am in the same position of being hurt. I’ve got away from my abuser, physically (though not in my head), but now the world takes that role to me and I am trapped and still its (her?) victim, not allowed to be saved. I got away (bodily) from her when I walked out, shut the door, got on the train, hung up the phone. That was hard enough and took over 20 years. Getting away from this abuser’s force in the world is going to be much much harder and the leaving I must do this time is going to take much much longer, I think. I don’t think it’s leaving, exactly, but changing something in me so as to receive something other than abuse.

Ginny xxx (Very confused)

I can’t. ..

I’m going to be disloyal, or hypocritical, I don’t know which the word is, to my last post. But I’m crashing tonight. I can’t do it. I’m done and I haven’t got anything to be able to go on. I know it’s stupid and they say it’s not worth getting worked up over, it can be fixed; but it’s done and I ran out a long time ago. Why can’t anyone hear me? Why do they tell me it’s okay? It’s not anxiety it’s desperation and just needing one tiny thing to hold onto – no I’m not strong enough without anything to cling to and I know it’s stupid it’s so small but it really, really matters when everything else is too much and spiraling apart.

So it’s taken away as well and I’m done. Nobody will come and nobody can hear me screaming (stupid nasty spoiled child inside me and stupid ugly needing. ..) Even now I’ve told them the very worst and how much I can’t do it and nobody will come. And I won’t go to the hospital and I don’t deserve it and I don’t want them to stop me because I don’t want to go on and it’s nobody’s fault or responsibility but mine. I should have been able to do it.

I don’t think I can do any good…

I cut and cut but it wasn’t enough. I don’t think I can feel anything but this spent, hurting, screaming silently, needing it over.

I don’t think I can go to work tomorrow or anymore. Not even go out. I don’t know how to get to tomorrow. I’ll lose my job again. Well it’s clear enough I’m rubbish anyway. They’ll want me out of my house. I’ve wasted so much again. I should have done good. But I’m so so … just had it…

And everything I say I’m scared and whoever I tell I might manipulate or they think it’s to threaten or think it’s just stupid and not worth it and just get over it. ..and I’m scared of my anger. I’m sliding in and out of dissociative states right now.

To me it can be all I am holding to and I’m on the edge of ending it all, but to someone else it’s nothing, not worth it, and just fine that more and more is taken that I was clinging to and more and more heaped on that I cannot cope with. I can’t cope with this detachment itself either and knowing every worst feeling is invalid.

You don’t waste good

“You don’t waste good.” [Or, Gibbs’ Rule #5, for NCIS fans 😉 ]

Don’t waste good…. I’m trying to hold on to that right now. Hold on. There is good even though it’s very hard to feel it right now. I have a home (for now). I have a job. I have an understanding employer. These things can be built on. Two very good friends seem to be able to see some hope that it will be alright, even though I can’t. Don’t waste good. Don’t waste it because I give up right now because it’s so scary and I don’t know how to get through this night. Don’t waste it because everything crumbles and I lose my job because I stop going to work and give in to the fear and drowning sensation that tells me to stay at home. Don’t waste it because I stop looking for little gifts and little joys – or big ones – my beautiful god children, compassion of a friend, something at work that makes me laugh, being able to try to do at least something to help people at work. Don’t waste it because I assume rejection and punishment is all I deserve and all I will get in the end. Don’t waste it because I get so wrapped up in my own little world and little problems that I miss chances to serve, chances to thank, chances to show compassion or do that little bit more to help another in some small way.

You don’t waste good.

Ginny xx

[“You don’t waste good,” – from NCIS Series ?8 episode “Baltimore”. All rights to NCIS series belong to CBS / Channel 5 and respective directors and artists]

Snowballing. Not the white fluffy kind.

It feels like breaking over and over at the moment. I hang onto something then it gets taken away. I don’t know why I’m quite so stupid and childish that I keep hanging on to things and people. Last week it was trying to get my tax credits sorted, so things wouldn’t be so tight. Resistance and obstructions all the way. Then it was trying to negotiate a payment plan for my rent arrears. No response (again) to my phone call and letters, so another letter to write. Then trying to get the harassment and discrimination at my last employer investigated. Dismissed without any consideration whatsoever by the regulator. Another complaint to write and my case to be presented again. Then plans with a friend – cancelled. Then hanging on until my appointment with my CPN on Friday – cancelled, because he has to go on training. I can absolutely understand he has to do the training, but I so needed that. Last month’s appointment was cancelled too. Letters I can’t understand about my Housing Benefit and yet another form to fill out to claim for a Discretionary Payment…terrified I’ll lose my home and so my job….

Snowballing, snowballing, problems everywhere there should be help.

Only able to carry on one day more, then one day more, and only by cutting and taking more pills than I should to knock myself out so at least then I can’t take even more and end it.

Hallucinations and flashbacks shaking me too much to breathe.

Hating myself for being so so weak and so childish and for hanging on to things I should by now have learned well not to count on. Hating myself for needing to be cared for and needing help and not being a proper adult, just a burden.

It is very hard not to become bitter and not to give up. I can only try to think, God is teaching me to trust in nothing and no-one except Him alone. “God alone suffices,” St Teresa of Avila wrote. It is right, of course. His Love is all we need and all we cannot lose. But it is very hard not to be angry, bitter, childish and wrapped in my own hurt.

Ginny xx

What do you do “out of hours”?

I really needed crisis support on Friday but didn’t get it. After therapy group I was spiraling down and out of control, then a number of bad events came snowballing, knocking me further down. I had a brief conversation with the duty line at the hospital and was supposed to get to speak to them again later in the afternoon but they didn’t have time. I was in pieces, cut and was on the edge of the very dangerous place I cannot take a single step more and decide to end it. Thanks be to God I didn’t but I took a higher dose of my tablets than I should to knock me out and stop the hurt (not really an overdose as it wasn’t over the maximum dose of anything, but I took more than I’m prescribed and everything together).

I’ve been fighting through this weekend as I’m working. What I want is numb, stay at home, stay under a blanket, no more feeling, no more thinking, no more hallucinations, no more noise in my head, never have to speak again, never do more harm, someone to hold me, to go to the dissociated place, forget everything I have to fight through and just stop and be allowed to need it to be no more, stop, sleep.

What do you do when you feel this and you can’t get help? It’s the weekend and/or evening. I couldn’t get help from the hospital on Friday. There will be nobody available until Monday and who knows if they will have time then to see or call me.

I could go to A&E but I wasn’t sure what they’d do, and it’s not really an emergency and there isn’t an instant solution. I need more help day to day. I could call 111 the NHS out of hours line, but they tend to tell you to go to A&E if you admit to self harming or being suicidal. They’d probably take my tablets away too. When I’ve been put in touch with a community crisis team before I’ve actually found it really unhelpful. They did not (in my uneducated opinion) understand BPD. What they said piled on the guilt and made me closer to ending my life and they were determined to show me I didn’t need (or deserve,  I feel) any help and Iwasn’t genuine. If i got that right now I would go through with ending it.

Part of the problem needing help out of hours is having to try to explain your whole story – trauma, abuse,  flashbacks, hallucinations, voices, BPD, hurt, fear, desperation and needing to end it – to someone who doesn’t know you or the therapy you’re having. It’s too frightening to do and the cost of being misunderstood too great.

I promised a friend that if it got to the worst I’d go to A&E before I did anything. I would,  I’d keep that promise.  I made it only because she would be more worried about me and stressed if she thought I wouldn’t. I would go at that point, out of honesty to her. Even though having reached that point I’d not want to be stopped.

What do you do when you need support out of hours and can’t see your GP or your usual clinic / hospital team? I’d be interested to know what others do.

I know a lot of it may involve other coping strategies not going to someone else for help. But what about when it’s bad enough they don’t work?

Ginny xx

Hurting tonight

It hasn’t been a great week.

Hurting with physical pain from gynae problems and joint problems.

Going between guilt for worrying and burdening my family and not being able to do what I should, and feeling cut up that I’m “in the way” to them and need to be compartmentalised so I don’t intrude on their life – the part of it they actually want not just feel obligated to do.

Seeing far too many things. ..scary things. ..that aren’t there… that are hallucinations from memories that grip me and shake me.

Wishing someone would hold me and tell me it would be alright even when the flashbacks come.

Working through water or a fog each day and knowing I’m getting it wrong and doing wrong and so so tired.

I slept about 4 hours tonight if that. Tomorrow is group therapy again. I am so scared to go. I will go because I mace this commitment to everyone in the group, the therapists, and to trying to get better, to God, and I won’t throw away what I’ve been given. But I’m scared. I don’t know where we are, I don’t know how to be, I don’t know who to trust, and I can’t trust what I did trust or where I thought we were before. Everything unraveled last week. I wish I need not speak. I wish I could just sleep and stop it all.

I will try to go forward thankful. I will ask thankfulness for another day, to learn to thank our God for revealing His loving kindness in the tiny little helps of each day and pray to notice and see them not just the mess in my head. I will try to work to make something beautiful – even just draw, colour, sew, write to my family and my closest friends who mean so much to me simply by still somehow being here.

Somehow this moment will pass but good will remain. I’m trying to believe.

Hitting when you’re already down…

I really don’t want to talk as if I think the state or the world owes me something. It owes me nothing. However it does hurt when it seems that the systems that are supposed to help you actually hit you down hardest when you most need help.  On its own it shouldn’t be a big thing but when it seems to be the norm it gets too much on top of being ill already.

Recently I claimed for tax credits (for readers from abroad or who otherwise don’t know, this is a small benefit paid to those who are working but on a low income, have children, or have disabilities).

I had first claimed in Spring last year and my claim was rejected before they had even gathered all the information needed. I was so ill at the time I just let it go. I claimed again since starting my new job in November, because I am working part time on a very low salary. The first step is to fill out a form online to request a claim form, then to wait up to 2 weeks to receive the actual claim form.

Monday, I received an email saying that I am already in receipt of tax credits and if I believe this is not true, call this (expensive) number. I called this number and asked to be called back as the call was so expensive for me since I had no landline (can’t afford more bills) so had to call from a mobile. They refused and said they have no facility in the building to make outgoing calls, which I found very hard to believe.

I explained that I am not in receipt of tax credits. I was told that I do have a tax credits award and the award is nil. Right, so I’m not in receipt of tax credits. Yes, you have a tax credits award and the award is nil. Sigh….this could go on for a while. .. eventually I persuaded them to take the details of my change in circumstances. Then the operator’s computer froze so he transferred me to another operator without explaining any of the background and I had to repeat the entire process again. By this time I’d been on the call for about 30 minutes.  They repeatedly asked the same questions and did not listen to my answers. I repeatedly told them I couldn’t afford this call and needed to be called back. I have a few pounds a day to live on and the call had taken just about all my food money for the week. The operator actually told me that because my phone bill does not arrive for a week or two they hadn’t cost me anything! At this point even I could not quite believe their determination to prove they had no responsibility for anything.

Then came to trying to claim for the disability element of tax credits.  I was told that I wasn’t entitled unless I was already in receipt of PIP. I knew this was wrong – that is only one of the qualifying conditions. Online and paper documentation I had when I made my claim made this clear. The operator refused to budge. I insisted to speak to a manager. 5 minutes on hold. …

The manager immediately contradicted what the previous operator had said. But still insisted they would not consider the disability element unless I was in receipt of PIP. I pointed out that he, his colleague, the online and paper documentation each said something totally different, so I needed to know which was the case. He threatened to terminate the call and told me I was making things very difficult.

I suspect I was making it very difficult for him to continue reading from his script without listening to what I was actually asking…. :/ 😦

Then I had to insist that he give me a straightforward answer – was it essential to be in receipt of PIP as he was saying, or was the written information around having a disability which puts you at a substantial disadvantage getting work, correct?  He refused to answer and put me on hold. When he came back on the line he read a lengthy script about the qualifying conditions which confirmed that all the information I’d been given up to that point was wrong. Had I not insisted to this point, I would have been assessed incorrectly for the benefit. I still believe I will be assessed incorrectly because when I tried to tell him the reasons I qualified for the disability element and to ask what proof they needed of this, he talked and shouted over me and forbade me to speak otherwise he would terminate the call. 

By the end of this process I had been on the phone 55 minutes to a cost to me of £25. I still had not been able to get an answer as to how to submit the documentation that would support my claim (and that would have supported the claim I had been rejected for last year, had I only been given the opportunity to provide it). I had been given different information about eligibility from each person I spoke to and from all the written information I had.

By the end of the call I was so distressed, panicked, angry, for seeing yet more financial problems …. this was the very last straw this week and I couldn’t cope anymore. I went home, cut and took a handful of pills, not enough to try to end it, though that was what I wanted at that time, but in order to make it stop and knock me out. All through the next day I didn’t leave the sofa and took more pills to sleep.

Stupid and childish not to be able to cope I know but there really comes a point you can’t go anymore and when you meet obstruction even where you should be able to get help you’re entitled to, sometimes you just crumble.

Ginny xx