Tag: therapy

To blog anonymously or not…

When I first started this blog, I was certain that I was going to keep it anonymous. By “anonymous” I mean, for example,  I don’t use my full name, I avoid posting anything that would indicate the town I live in and I do not post photos of myself or my loved ones. Recently, I’ve been wondering whether I might change my approach slightly, for instance, disclosing a little more about me, or sharing photos sometimes, or no longer refraining from talking about local groups, services, activities etc that might give away where I live.

It’s a hard decision. I was talking about it with my friend S who suggested “Why don’t you ask other bloggers what they think?” I thought that was a great idea.

So, I’d like to ask you a question: what do you think about blogging anonymously versus revealing personal details? Was this a difficult issue for you? What led you to choose how much you reveal and whether you write anonymously? If you started your blog anonymously but later decided to share more about yourself, or vice versa, what led you to that decision? If you’d like to make any comments I’d be very grateful. Thank you.

I’ll share a few of my own thoughts on the decision I’m trying to make.

Ironically, it’s partly because some of what I post here about my emotions, experiences and relationships is so very personal that I refrain from sharing personally identifiable information. Many of the experiences I talk about are very painful and intimate, especially those from my childhood. If someone I know as an acquaintance or colleague (rather than a very close friend) came across my blog and learned what had happened to me then I might feel really uncomfortable to say the least. At the start of my blogging, anonymity let me write more freely. Also, I didn’t know what kind of reaction I might meet with. Allowing myself to be identified could have made me vulnerable if I encountered unpleasant or harassing “followers”. In fact this hasn’t happened at all; since I started my blog I’ve been very blessed to have caring and supportive visitors to my pages who have become friends and that’s a huge gift.  THANK YOU! It’s now partly because you have become friends that I’d feel comfortable sharing, and indeed would like to share, a little bit more.

However I also know that if I were to be identified my blog might affect not only me but my friends, family and the professionals who care for me.

I’ve written about relationships breaking down and hurt I feel. I’ve shared sensitive experiences that involved others, such as my childhood abuse and relationships in my family when I was growing up. When I mention someone else I never give their name, only an initial sometimes, but if I were to be identified through my blog by someone who knows me (say, through work or a friend of a friend) then other people I’ve mentioned in my posts potentially are more likely to be identifiable too. It’s a small world, as the saying goes, and I don’t have that many friends! 😉 My friends and family may not want to be identified, or they may be upset. The anonymity of the internet does not give me the right to be horrible about people and I try hard not to write personal things about other people or things I wouldn’t say to the person directly. However I’m inevitably only writing my own experience and perception. In another person’s view it may not be balanced. On the flip side of this, I try to write positive things and express gratitude about the good friends I do have in my life and it would be nice to share more of that.

As well as considering my friends, I have to consider the hospital and my doctors and the therapy programme I attend. There aren’t many specific personality disorder services in the UK and if I say where I live, which hospital I attend will likely become clear to anyone else vaguely local with knowledge of PD. I might worry about anyone making a judgment about the hospital or therapy on the basis of what I write. It’s just me, after all.

Equally there is a lot about the support I get that is great and I would like to share this to help others. Having experienced at least 15 years of mental health issues, slowly I’ve come across sources of support and services that can really really help, some in times of crisis and some day to day. A lot of them are not easy to find. I’d love to write about them and how they’ve helped me, in case this in turn helps others and because I think they deserve recognition. So far I’ve held back so as to avoid revealing my location. Perhaps that is over-cautious of me.

You get the picture that I’m in two minds about this at the moment!

Ginny xxx

Do you think hope is a choice?

Two things were said to me yesterday which have given rise to strong feelings and thoughts for me.

The first was that hope is always there and it’s a choice and we choose whether to accept or deny it.

The second was that healing of even awful pain is possible but we have to want it.

These statements and what they imply and the thoughts they lead to are very hard for me.

Tomorrow I will post again on this topic. For now I’m really interested to know what you think. Do you agree? What do you think? Do the statements imply particular things for you or give rise to strong feelings?

I know it’s a bit strange without the context but I did not want to cloud the issue with my own strong interpretations and what I felt. Tomorrow I’ll write about that…but first I’m really interested in any thoughts you may want to share in the comments.

Thank you.

Ginny xxx

Pop goes the weasel…

Do you ever have so many things in your head it feels ready to go “pop”?!

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In therapy group on Friday, I felt I could identify really strongly with what a couple of other group members were saying. We talked about so many themes that are really pertinent to my life right now. My thoughts started spiraling and firing off faster and faster in my head and I felt I couldn’t keep hold of them all. I wanted to write them all down right after group as it seemed so important they didn’t get lost. There were so many things I wanted to ask the group members.

I often get spiralling thoughts. In my 1:1 therapy we identified this often happens when I’m starting to experience a strong out of control emotion. The spiralling thoughts are somehow safer or more possible to name than the emotion. Focusing on them can suppress some of the emotion. If I can’t – like in group last week where they were just too fast and I was trying to stay focused on what others were saying – the emotion intensifies and is really uncomfortable, though I can’t name it or understand it. I just know I feel panic. I’m working on trying  to sit with the emotion and explore that rather than plunging straight into compulsively following the thoughts.

Interestingly, my thoughts used to do something similar when I was studying. I’d frantically try to get them all down. They seemed important. Sometimes they were and sometimes they were not. But it was often really hard for me to explain the links between them to other people or get them down coherently.

Writing this, it’s occurring to me – does this sound like I experience manic episodes? I have never felt as though I have manic periods in terms of hyperactivity or boundless energy but can manic episodes affect your thoughts alone? The spiralling thoughts can stop me sleeping and if i miss any medication doses at this time i can end up going all night without sleeping. Though the thoughts take the focus away from the uncomfortable emotion at first, eventually it returns, often more extreme than before and together with a lot of anxiety and physical exhaustion.

After the spiralling thoughts have squirmed and pushed their way round my head for a while, it’s as if part of my brain shuts off. I feel frozen inside my head. It’s a huge effort to fight to interact with people and speak and respond appropriately. I can’t bear the emotion and spiraling energy. It hurts. I can barely understand what’s happening round me. I want to get out. Go home, shut off and curl up somewhere safe, or have someone hold me (though there’s almost never anyone. ..) If anyone talks to me and I’m required to interact I am likely to somehow jump to irritation and frustration, though it isn’t really irritation I’m feeling inside.

I’ve never talked to my therapist about the idea of manic states but perhaps I should. Do others with Borderline experience this kind of thing, I wonder? Do you struggle with this?

It’s been worse in the past week or so because I’ve had more stress with my Tax Credits being stopped and consequent further financial panic. I’ve also been exhausted from low physical health with a lot of pain. Every day off has been taken up with hospital appointments and trying to sort out my finances. I’m worried I won’t be able to keep up my job as I’m struggling with the physical aspects of it and it is also very discouraging that pushing myself to the limit of what I can do to keep working, I’m left without enough to meet basic expenses. I’m so fortunate I have a very good friend and a family member who are helping me from time to time. Without them I think I’d have ended up on the street by now.

Ginny xxx

 

I wish we knew we’d get to the end of this together

I feel so sad today. Too many people are leaving in all areas of my life.

Someone has left our therapy group and will not be returning. I can’t post too much about it so as not to break confidentiality. I’m scared for her. We don’t know why she left. We did not get to talk with her about it because she stopped coming suddenly a few weeks ago and then the therapists told us today that she isn’t coming back. I miss her. Already. She saw herself as so bad but clearly had so much good about her. I really really wish we could have helped her. I’m scared for her – for what will happen to her, where she’ll get help and what she may do. I felt a lot in common with her. Often she spoke what I was too afraid to. She had been so so hurt by terrible experiences in her life. I so wanted to keep her safe but feared she was so hurt and kept running into so many circumstances of further pain and not being able to trust people, that she would not be really happy this side of heaven. I have to accept her decision and know I can only give her into Our Lord’s hands and pray for her now.

In the last couple of sessions people have been leaving group early because it has been too distressing or unhelpful for them. I panic when someone leaves. Or people withdraw and don’t want to talk anymore. Again I panic. I don’t want anyone else to go away. So often it seems to be my fault and so often I’m flashing back to being a child and my mother threatening to go away because of me or that she and my dad would be taken away because of me. ..or to the times she stopped speaking and I couldn’t elicit any response or her “absences”… and I wish, please please don’t go away. I wish we knew at least in group that we’d all get to the end of the course together.

I miss N, I miss two other people I thought were close and I’ve lost in the past weeks. I miss the hope there was in the existence of that relationship that I could do some good for them or be needed. I miss what little sense of safety there was that I wouldn’t be left that time and wasn’t doing harm.

I miss any sense of there being a few narrow circumstances at least, where I could think I did a good job or the right thing. The last part of that was lost with my failure in my last job and the loss of so many important relationships.

I cry and cry again but it doesn’t go away.

Ginny xxx

A shaky week

This week I planned to get all caught up here on comments and visiting your blogs. However as so often happens, things took a different term and I seem to be as useless as the proverbial handbrake on a tortoise. And moving at a similar speed too!

This hasn’t been a very stable week. I had a meeting with my new support worker, a difficult consultation with my GP, two relationships breaking down very painfully, an important but emotional group therapy where something that occurred brought flashbacks of a frightening incident in my childhood for which I feel responsible. Also I got some very unexpected news and had a conversation that seemed to throw everything. I’ll post about it in due course once I’m more able to cope.

Not big things in the grand scheme but I’ve got behind again. So once again, I’m sorry for being so slow to answer messages. I care and I’m praying for you and I’m sorry for how I struggle to write.

Ginny xxx

Not my day off

Today has been demanding. It’s one of those days that seems too much to have been only one day. I got big stuff done but also I’m losing time in unsettling ways and I know I was dissociating a lot between the different tasks and meetings I had to do, slipping out of being engaged with what’s going on and what I’m feeling and struggling to come back. Nevertheless I got through quite a few challenges.

Last night I knew I needed to tidy and clean my flat. My support worker was coming today. Also I hadn’t been on top of the housework since my operation and it was bothering me more and more. Recently I’ve started to find a greater sense of order and calmness if I don’t have too many things disorganised around me. This is interesting because til now, I’ve tended towards accumulating things I don’t need and not being able to keep my house ordered, not exactly hoarding but not being able to face items and paperwork and household tasks without going into panic.

Yesterday I was very anxious about today but put some of the physical drive from the anxiety into cleaning and then went on to clearing out some of my cupboards. By late evening I’d cleared 7 big bags (between rubbish and charity shop) and set 3 more big bags of things to try to sell at a car boot sale. The fact I don’t have a car for the boot element of that plan is potentially problematic 🙂 but there are the odd few table-top, largely indoor, sales in community centres / church halls here in the summer and I’m hoping I can find one to join in.

Today was a struggle to get up. Everything hurt. Still, I got together the papers I needed to show my new support worker (more on this tomorrow), then it was off to my care coordination appointment with my CPN. This wasn’t easy to go to because, although my last appointment was okay, in the two previous appointments I’d been really distressed and felt I didn’t get heard when I was desperate and at risk. Today’s appointment was actually really good. We looked at some DBT skills and we did a review which was overdue (every 6 months or so is a review appointment). I’ve not yet felt able to discuss with my care coordinator exactly what went wrong in the difficult appointments earlier this year when everything was going to pieces. I’m scared I’d lose control and the feelings of anger and not being believed would return and I’d do bad things and be back where I was. However my care coordinator and I have managed to move forwards having 2 positive appointments. I was scared after what I’d done – how upset and angry I’d got – he wouldn’t believe me or want me anymore and they’d know how bad I am and that I didn’t deserve help. That hasn’t happened. That’s something that I don’t usually get to experience.

Straight after my care coordination I met my support worker, H., who is from a housing support charity I was referred to recently. He is going to help me sort out my benefits like Housing & Council Tax Benefit, Tax Credits and disability benefits,  as well as liaising with my landlord about the rent arrears that I got into when I lost my job last year. It was a long appointment. We went through the background to how I’d got here, financially and in terms of my health, and we looked at lots of documentation, my income and my benefit and Council Tax notices. This took a lot out of me and I came so close inside to panic and losing it and emotions shooting too high. H. was very calm and non judgemental, which helped a lot. (More on this in the next couple of days.)

Then I had to rush to my GP appointment, which was the first since I’d been very distressed and angry at the surgery a couple of weeks ago;  also the first since my operation and finding out endometriosis isn’t actually the explanation for my pain and gynae issues. I’m still working through what happened in today’s appointment. I was dreading going into the surgery because I’m still terrified of what I did and how much I lost it. I was ashamed and embarrased and knew that they probably didn’t want me around again. I knew I’d really upset and inconvenienced and disturbed people. I’d scared people. That’s the worst thing,  the harm I caused, the bad I’ve always feared getting out of me. Talking to the GP  and discussing what happened and then also talking about my physical health was really emotionally charged.  It’s hard trying to deal with a lot of uncertainties about my physical symptoms. I know not having endometriosis is a really good thing but not having any explanation for all the things I thought it explained, and the fact the doctor isn’t really interested any more in investigating what may be wrong – well, that’s hard and triggers all my fears that it’s all in my head, I’ve made it up or I’m mad, it’s my fault. …

After the GP it was off to the pharmacy with my prescription, then finally home.

It’s been quite a day. I had a soothing bath tonight. Today was the first day I could have a bath since the operation (don’t worry I promise I did still wash 😉 !). The doctor sealed the wound with dissolvable stitches so it was important not to soak them in water too soon or they could have come undone. Also it was not safe to try to get in and out of the bath whilst my mobility was further reduced with post op effects. Falling is a risk for me anyway because of the problems the fibromyalgia and arthritis cause in my legs. So, tonight was a good little relaxation and refreshment. The little things do help!

How has your day been?

Ginny xxx

 

A closing drawbridge and a silent cry: too much; too big

 

A closing drawbridge and a silent cry

Eating disorders and personality disorder

My body becoming too much

WARNING: this post contains potentially triggering content on the topic of eating disorders, weight, body image and emotions. Please proceed with caution. Please note that in this post I express my distressed thoughts about my body and the relationship between my body, needs, emotions and relationships. I’m aware that a lot of these thoughts are part of my personality disorder and historic eating disorders. I am not advocating or encouraging these perceptions and feelings but describing what the process of trying to live with my body and face emotions is like. I think the stage of therapy I’m going through is bringing a lot of this distress to the surface. 

My body is changing. It’s out of my control (or so it feels, though the angry punishing eating disordered voice in my head says it’s me that’s out of control – disgusting fat b*tch – and my own disgusting failure).

I have gained so much weight in the past 2 years. I have tried hard in the last few weeks to lose and done all the things that used to be my trusted go-to solutions, with the exception of using illicit medications. I have failed and no matter that I succeeded in restriction, my weight has hardly dropped. If anything, now I feel more out of control. Sometimes I wonder if any of it is to do with being in my 30s now (quarter aged spread instead of middle aged spread?!) and my mobility being poorer with so much physical pain just now.  But that does nothing to justify the gain or calm me. Many people taking the medications I take report weight gain as a side effect even when restricting.  I think it increases my appetite but I know so does my need for comfort and my lonely emptiness and my…feeling. Feeling that’s dangerous and unchecked and explosive.

Anorexia meant I was never alone. I was cold and numb and empty and hurting, but needs and unbearable feeling stayed where they belonged and I dissociated, living somewhere whiter, higher, safer, always with the twisted pleasure of bitter success in my spiral to greater protection and greater weakness. Anorexia was my companion, that reassured me all would be well if I did not deviate from this path,  spurring me on with wild energy to control and deprive and make dangerous need and demands unreachable. Soon enough I would detach and dissociate totally then maybe disappear.

Anorexia left me. Abandoned me. I failed yet again. Just like my friends, even my family, my protector and guide left me. Found out I was a vile disgusting greedy failure, undeserving of that whiter place. Anorexia too abandoned me, and sped away to a place I can no longer reach, now that it is proved yet again that really the evil inside consumes and demands and if anyone else thinks differently, it’s only that I’ve tricked them into staying and caring. They’ll leave soon, when they find out.

I could take it if it were only for my protection that I needed my friend anorexia. But the thing is, it was to protect everyone else, first and foremost, from the danger and “too much” “too big”that I am. Without my friend I hurt beyond control and I hurt others beyond control.

I look in the mirror and I’m frightened and recoil from what I see. I wish I could rip myself away from the “too much” in the presence that I see, hating every part of the space I occupy, the weight, the body that absolutely does not seem to fit together right and screams too much, too much. I cannot escape. I cannot get rid of this body and these needs. I cannot stop what it contains, the out of control, the demanding, aching. … alone without my friend to starve and cut and numb and leave this place, I cannot stop the damage I will cause to everyone I so care for and so wish to save, protect and love.

Ginny xxx

Losing her

Warning: this post contains one very brief mention of suicidal thoughts and overdose.

(Also I’ve a feeling it’s a load of rambling junk. Sorry.)

I’ve lost my friend. It really feels like a loss and hurts like she’s gone away, disappeared, except it’s worse because it’s entirely because of me that she’s chosen to go. She doesn’t want to be close anymore, she said; not close like she says she tried to be or like she says I wanted us to be. My personality disorder, me, my thoughts and needs, have made our relationship something stressful she doesn’t want.

I really care for her, I still do. My feelings for her haven’t changed. I still love her as a friend, want to thank her for all the times she has been there, want to do something to make right the hurt I caused, want to be able to be there for her when she wants or needs me – except she didn’t and doesn’t.

I don’t know exactly how long she’d been feeling she didn’t want to be close anymore before she told me. I’d suspected it for a long time. I really hate what I’ve done to her and that I’ve stressed her and been no good to her. I hate that my illness, essentially, me (my thought, my feelings, my needs, my actions) have been too much. Another person has gone away. Another relationship has gone. I’ve hurt someone else.

You can read a bit morehere (around paragraphs 5, 6, 7) and  here and here about some of the history of what happened with N. Our contact had been strained for several months.

After another period of not hearing from her following my last letter, call and texts, last week before my operation I decided to be more open than usual. I sent N an email, thanking her for forgiving me and explaining I was still really worried about the hurt and upset if caused her, and saying that as I wasn’t hearing from her and she hadn’t said anything beyond that she forgave me,  I was not sure if she wanted to stay in touch. The way I see it, N forgiving me for the hurt I caused did not have to mean she wanted to have contact with me going forward. I directly said I wasn’t sure what she wanted, and asked her.

Also, I took quite a risk and explained to her some of the thought process I talked about in my last post on this topic. I explained how when I don’t hear back from someone I really care about, when they stop communicating, or cancel plans, or don’t show without making any contact,  my thoughts are instantly either: that this proves how they can’t possibly want me around really (who would?) and as soon as I start trusting they leave because all along they knew I’m an evil fake really;  or that they are seriously hurt, or ill,  or got in an accident, and it’s my fault. Often both one after the other. Usually I never admit to these thoughts. I know it’s crazy. I know it’s weird. I know it doesn’t make sense I have these thoughts then get angry with people. I don’t want my friends to feel obliged to take into consideration my weird ill thought processes and make allowances for them in what they do. For example, I don’t want them to feel they have to be more careful what they say to me or to keep in touch more regularly with me than they would with another friend. (Paradoxically I don’t know if, in the way I think and what I need, I do require of people an abnormal level of contact. I’m diagnosed Borderline but I think I have features of dependent personality disorder too!) However things had reached such a point with N that I felt I had to be explicit about what I was feeling and why I had found it so hard to cope when over a few months she stopped keeping in touch and seemed to be restricting contact and canceled or altered several plans to meet (this was one of the things we first fell out over a few weeks ago).

I explained all this as well, as my hesitancy to explain it because I didn’t want to pressure her. I said I know that I make it too complicated and I need too much and my illness makes it too hard to be friends. That I really wanted to be there for her but it was clear I totally failed at that and it’s my fault there’s nothing good for her in the relationship. I said I’d rather know straight if it would be better for her not to be in touch with me.

I’ve never been that open with someone about my thought processes about my relationship with them, outside of my therapy group.

N wrote back a few days later. She was empathic – she said she is sorry there is so much distress going on for me. She said she doesn’t keep in touch regularly across the board when she’s busy. She said it’s stressful for both of us to communicate, when there is so much meaning for me in each interaction. She thinks it’s too distressing for me to cope with the likelihood of her changing plans. She said she can’t be as close a friend as she tried to be or as I want her to be. She offered that we can still meet sometimes or email – which surprised me, actually.

I know it isn’t a total end of the relationship. I’m hoping we can in some way keep in touch and I can remember she doesn’t want to be as close. I hope I can do that and not need too much. But I always need too much. Maybe this whole thing wouldn’t be so bad if I didn’t. Never would have happened if I didn’t.

One of the things that hurts the most is that I can never now make right the hurt I’ve caused N. I have made her and needed her to be closer than she wanted to be. I have made her stressed and upset when she’s done so much for me. It has been as I feared. I was too much, yet again;  I needed too much, asked too much, my thoughts and my behaviour made everything too much for the other person.

I told N some of that briefly too, and I thanked her for telling me honestly. I tried to tell her I’m sorry and thank you. I fear it appears it has little meaning now. I really meant it. I need to thank her for so much over the years I’ve known her. I don’t know if she knows. It seems to me all I’ve done is stress her. I don’t know exactly how long I’ve been making her be closer than she wanted. She doesn’t know it but she has possibly literally saved my life. One night I was on the brink of a massive overdose. She happened to call me at that time and as we spoke, she and her husband gave me some hope back and pulled me back from the edge. She knew I was distressed but not how close to ending it I was. I didn’t tell her explicitly at the time or afterwards, because I didn’t want to scare her or make her feel responsible for keeping me safe from that in the future if she knew how unstable I was and the potential influence ordinarily insignificant interactions and events could have on me. Now I wish I had told her.

Some while ago someone I care about told me, “look at what your friends do for you, why isn’t it enough for you? It’s nobody else’s responsibility to make you feel better,” and they told me I have to be more together so my emotions don’t dominate everything. Yet again I’ve acted on the basis of my weird thoughts, I’ve needed other people to do more than they wanted to, more than normal, and I’ve needed them to make it better.

I’m going to stop now. This post is a mess. I’m feeling so empty, hurting for losing N, hurting and angry for the harm I’ve done her, desperate because of how my PD and just …me….wrecks relationships and makes me too much.

Ginny xxx

 

It just doesn’t stretch, whatever I do

I’m scared I’m so close to everything falling apart. Financially. But it feels like everything.

I got an automated voicemail message from my landlord telling me I’m to call them urgently to discuss “ways we can help you to pay your rent”. They had closed by the time I finished work so I have to wait til tomorrow to call them and find out exactly what it’s about but I know it will be about my rent arrears. I doubt they will be “helping” me pay, somehow! I know the fact of having to call them doesn’t instantly change anything but I’m really panicking.

I was struggling already today, feeling very sad after a difficult 1:1 therapy session on Monday, a friendship having broken down and a few other things. After getting this message I just wanted to crawl under my duvet, cry, shut off, everything and nothing…and the urge to cut is very strong but I’m trying to resist.

Nothing is working out. I got into arrears last year when I lost my job, wasn’t paid notice and holiday pay as expected, and my housing benefit didn’t come through for 10 weeks. Working part time I’ve been entitled to some housing benefit but my claim has been messed up, suspended, altered back and forth from start to finish and I’ve had more periods of weeks with no money coming in. I’ve been paying my rent, with great difficulty, but not able to clear the arrears.

Now they have stopped my housing benefit because my salary has increased by a few pence per hour. This leaves me unable to meet even the tightest budget. I do not have enough money to cover the bare minimun of rent, council tax, bills like electricity, telephone, prescriptions, travel to the hospital, some access to the internet and food (let alone any other expenses like buying clothes when needed, any longer distance travel, or socialising). I’ve cut back as much as I can, especially on food. I don’t make proper meals, just toast, cereal and cheap snacks. It makes me feel awful (plenty of guilt for bad fattening food) but I can’t afford anything else.

I know the arrears are my responsibility and I have to pay. I feel panic and guilt every day over them. I know that in the past when very unwell I made poor financial decisions and was irresponsible with money, which has contributed to why I don’t have savings. So has the fact that I’ve been too ill physically to work full time at several points in the last 10 years.

Part of what is so upsetting is that I am now doing all I can but I still can’t stretch to cover the tightest budget or see any way to change things. I am pushing myself as hard as I can to keep going to work. It’s very difficult mentally – and I’m sad that it is so hard to do it but that is the situation I have to accept right now. It’s very difficult physically too. The pain I’m in from the fibromyalgia, arthritis and so on has been increasing since I started and each day it gets harder to do certain things (going up and down stairs, staying on my feet for lengths of time, etc) and if it carries on it’ll get to a point the pain is too much or I can’t stand long enough or something like that. I hoped if I kept pushing I’d get better at dealing with it but that isn’t happening and instead everything is flaring up.

I really want to keep working. I’m blessed with kind and happy colleagues, a caring employer, a creative environment, varied days, lots to learn and so many good things. Psychologically this job is so much less stressful than the legal secretarial work I couldn’t cope with. There’s so much that should be positive that I don’t want to waste.

However I’m in a situation that I just can’t cover day to day living going forward let alone clear the arrears I owe. It shouldn’t be a reason to give up but when things seem to be falling apart anyway, it’s harder to keep pushing through the physical pain and mental struggle to keep working.

I feel really trapped because with the rent situation alone I think I’m going to end up losing my flat. I know the landlord, being a housing association, has given me more time with the arrears than many other landlords would. A private landlord would have thrown me out ages ago. I know that’s another way I’m fortunate. It’s my responsibility but I don’t know how I can or will be able to pay.

Even if I could clear the arrears  I don’t know how I’d pay the rent going forward. If I can’t,  I don’t know where I’d live because I have no money for a deposit to rent privately. If I went back to renting a room as a lodger my mental health would crash downhill but at this point I would have to be grateful for anything. If I lose this place and end up homeless I’d lose my job. I might anyway if my physical health keeps going down.

It’s horrible thinking even if I get evicted and lose my flat, I don’t know how I’ll change my situation. It’s horrible that trying as hard as I can to do the work I can, I’m not able to live on what I earn and I’m assessed not to be entitled to any benefits despite this. I want to work as much as I can but I’m actually in a worse situation, it appears, than if I were not working at all signed off sick. My rent and council tax would then be covered by benefits. Not that that would help with the arrears but it would at least cover rent going forward. The system says it shouldn’t happen that you are worse off working than not, but it does. I’m actually put into a situation where doing the most work I can means I’m left with not enough to live.

I was referred well over two weeks ago to an organisation that would help me sort all this out and talk to my landlord. I was supposed to have been seen by them within two weeks. I chased up as I hadn’t heard, only to find out they said they had not received my referral from the support worker. It had got lost in the secure email system somewhere,  ironically. It has been sent to them again but now they are not likely to see me til after my operation.

I have no idea what to do. There are so many “if”s and a spiraling whirl of consequences that make it feel that everything’s already falling apart.

I don’t want to make out I have it harder than the next person. I know so many people are in this situation. I know I have to deal with it. It’s a time I wish someone could catch me when I’m falling like this but I know that’s nobody’s responsibility. I’m scared and everything’s already unravelling inside.i suppose I have to try not to listen to the spirals in my head until at least after I’ve spoken to my landlord tomorrow.

Ginny xxx

Trying to be curious about trust #1

As you may know if you stop by regularly ( 🙂 thank you lovely people!!) I’m finding it very hard to trust the personality disorder service at the hospital (where I go for therapy) at the moment. It has become harder and harder over the last few months, in part due to repeated occasions where, in my experience at least, I’ve been let down, not had the promised support, or been turned away when in desperate need of help. I feel they do not believe me and do not think I deserve help and the more I’m in crisis the more they don’t believe me. Everything that happens confirms this now. In my last care coordination appointment I felt again completely dismissed, not listened to and that what was recorded on my care plan did not reflect what I was going through or needed, until I’d insisted time and time again that my care coordinator write what I actually said rather than re-phrase it in a way that minimised and avoided a lot of the issues at stake. Aargh….

I can’t explain it more than this right now because I will get so angry and out of control. Plus you’ve all probably heard me go on about it so much you’re bored 😉 ! Sorry.

I’m trying to be curious about my feelings about trusting the service and how they see me, as Mentalisation Based Therapy focuses on this and trying to be curious and open to different feelings and uncertainties about what is in our mind and other peoples’.

Right now, although I can try to examine different possibilities, I’m certain in my heart that the service don’t believe me. This doesn’t apply so much to my 1:1 and group therapy sessions. In some way the group feels honest and safe. Perhaps it’s something to do with my commitment being to the other people in the group, listening to them and being there for them, present with them, and sharing honestly as much as I’m able, rather than it being a relationship just with the service or the therapists. It applies more to when I need support between sessions, or when I’m in crisis, or talking about support outside therapy with managing daily life, or in my care coordination appointments.

After the experiences I have had so far, I am not sure what would now reassure me that they did and do believe me and do want me. I got on to thinking about how my recent falling out with a close friend N. involved my absolutely unchangeable feeling that she didn’t believe me, didn’t really want me, didn’t think I deserved help, and I was just a burden and irritation. I don’t know what would convince me otherwise (except, just perhaps, if she had come to help me when I was at my worst, in some of the times she was adamant she could not or should not come).

Not being believed and not deserving help is a big theme for me. Ultimately, I do it to myself too, because I can’t really believe myself. Some of my psychotic symptoms feed into that, with the voices in and outside my head telling me I’ve lied, I’m a fraud, that everyone knows and is thinking and saying I’m a disgusting fraud, cheated people to get help, and no matter if I may think I want to be good and try to do good, there’s all the bad things in me really and everyone else knows and I’ll hurt everyone in the end. Only self-harming in some form quiets this.

In my last 1:1, we talked about my recent falling out with N. We started going slowly through my feelings and thoughts step by step from the beginning of the day things really fell apart between us. We didn’t get very far through. Nevertheless it brought back a lot of the feelings of that day. I’d been feeling very bad about things I said and how things were left at our meeting and in our exchanges the week after (since which, we haven’t been in touch – I couldn’t anymore and felt she didn’t want to either, really). I’d been trying to write to apologise. But in the 1:1, what was even harder than this was that guilty as I felt (and still feel), a lot of the hurt is still there too.

As the memories of these feelings, and more of the feelings, surfaced in the 1:1, I suddenly felt sure that my therapist must think I’m a horrible, childish, needy, jealous, selfish, demanding, nasty person who thinks terrible things about people. Then I started thinking these things about myself together with feeling guilt, disgust that I was so evil, and worry about what would happen to my relationship with my therapist now she thought these things – I couldn’t say what I thought would happen at the time but now I think it was feeling that, oh now she’s started to realise that I really am bad after all and she’ll leave me and not want me around any more.

I was certain about what my therapist must think. Just as I was/am certain about what N. thinks about me. It was actually very hard for me to think curiously about what N. (or my therapist for that matter) would feel. I spend a lot of time certain and horrified about what the people I’m interacting with think about me, and feeling bad for what I am (because of what they’re thinking), what I cause, and the feelings that are then in me, confirming my self-disgust and self-hate. My self identity is somehow, in a way I can’t yet express properly, bound up with what I am certain the other person is thinking about me. My own feeling follows immediately being so certain of their thoughts. I am not necessarily at all able to access beforehand what I am feeling, and I am not necessarily able to think about what the other person is feeling (separate of me, as opposed to being convinced about their thoughts about me).

I am not necessarily bad at picking up what other people are feeling. Actually, I can be very accurate in it, and sense it before other people do. I’ll post about that separately and will put a link here when I’ve posted. However, in these situations, I’m entirely sucked into the certainty of their thoughts.

I am not at all able to “mentalise” – to reflect and be curious about what is in their minds and what they are feeling and what I am thinking and feeling. There is no possible questioning or genuine entertaining of different possibilities about the other person’s mind. I am absolutely certain of their thoughts about me and I have absolutely certain thoughts and feelings as a result. Even though I may at some level be able to come up with a distant idea of other possible thoughts that could be in the other person’s mind, it is completely disconnected from my beliefs and emotions.

Written down like this, it is quite easy to see that this could lead to or be part of my psychotic experiences. I am certain of other people’s thoughts about me. The voices repeat them to me. I feel disgust and guilt and horror of what I’m doing to people. Somehow I become linked with the thoughts I think the other person is having and I am all those horrible things.

I am starting to wonder whether I am actually having the thoughts (which I attribute to the other person) myself, and having the resultant feelings myself, but I am unable to recognise them or feel them in myself, and then for some reason attribute them to the other person as though I know for sure that they are thinking these things. Really they are just my own thoughts or feelings about myself.

Perhaps my certainty nobody believes me or wants me and my resultant inability to trust, is in fact simply nobody else’s thought but rather just what I think of myself – and the fact that I cannot trust or believe myself because I always doubt my own motivation for good or evil, because I have no identity except what I find in what I think are others’ thoughts.

I don’t know quite where this came from. Certainly my mother’s very unwell beliefs about thoughts and emotions during the time I was growing up, clouded my learning about my and others’ feelings and thoughts and the demarcation between them. Her deeply psychotic beliefs were pervasive and persistent. She believed that I knew exactly her thoughts even in advance and when I did not, she told me this was deceptive; she believed she knew my thoughts and intentions; she frequently presented to me my intentions as malevolent and manipulative in incredibly complex ways, when I was unaware of any such motives or thoughts (precisely because they didn’t exist, but I didn’t know that as a child); she made inconsequential, morally neutral actions (such as being able to do some particular thing or not) have a moral value or manipulative power (“repeatedly punishing her” for example); she perceived my emotions as controlling her and done to her (unless they perfectly matched hers); and this was coupled with dire threats (including her suicide, my father’s death, the family breaking apart, my parents being taken away) because of my emotions and thoughts – and of course, with the abuse.

I don’t know quite how to unpick that to find out how much does it explain how I now feel about others’ thoughts about me. Maybe I don’t need to and just need to find out how to change my certain, set-in-stone thought patterns now.

Oh my days I’m tired now and I need a hug. Think I’m going to have a hot bath and curl up under my blanket when I get home.

Ginny xxx