Tag: therapy

How do you keep on trusting?

I’m really struggling at the moment with the fact that whenever I’m really counting on something it gets taken away. When I’m already at breaking point, things that should be simple are made incredibly difficult so I don’t get help I need or have to go through complicated, draining processes I can’t cope with.

I’m not even talking about more “abstract” ideas like complex relationships or values but very basic things like urgent appointments repeatedly being cancelled, having appointments for support booked but being told the wrong time or the booking not being made, completing lengthy forms for Benefits only for the wrong decision to be made with the wrong information, on and on. I suppose the apparent rejection, lack of care, implication I am undeserving and not allowed help, behind all this, makes it worse.

Most recently it was being discharged from 2 days in hospital after I’d overdosed at the weekend, having had a lengthy assessment with the duty psychiatrist, who discharged me on condition I would be seen by the psychiatrist at the personality disorder team the next day and my CPN within 24 hours, a report had been sent straight to them, and that I could hope for more support. So off I went to the PD team at the hospital on Monday. No report had been sent. The psychiatrist would not see me. The report has now been sent this afternoon. There is still no intention for the psychiatrist to see me despite the duty doctor and actually also my GP requesting it. They actually asked why did I think the psychiatrist needed to see me! No more support is forthcoming although I have had telephone support. The duty workers say haven’t I got any friends I could stay with to be safer. My 2 friends who are nearby have made it clear this is not possible.

There is an absolute pattern of this happening over and over, week after week. I can guarantee that if I’m desperate, just trying to hold on, relying on my next therapy appointment – I’ll get a call to say it’s canceled.

How do you cope with this kind of thing?

It feels like a cruel trick or a sick joke and spikes my anger and hurt out of control and I disintegrate and the feelings I was struggling with already explode as well.

I do not think it’s only me it happens to. In fact someone else in another online forum was saying a very similar thing and that it’s as if we’re never allowed to rest, it’s always the next test and the next thing to go wrong.

How do you keep trusting when you feel like this? How do you stop resenting and being consumed with anger? Becoming more and more self centred?

It is really hard to try to keep trusting the hospital and the doctors when I can’t count on anything and repeatedly hope then bang, it gets taken away again.

I shouldn’t put my trust in anything or anyone and I should detach from the need for it and not depend on anyone or anything. But how do we even start to reach that point?

Ginny xxx

Stupid little things like coffee

Stupid little things like coffee

It’s evening. I got to the end of the day at work. I told myself if I got through my shift I could get a nice vanilla latte on the way home. Not always the coffee I choose but the kick and the warm sweet milk is comforting for some reason.

It doesn’t really make sense. I’m still feeling confused and like it isn’t quite my life. It doesn’t seem to make sense. Not that it didn’t end exactly. But just that it doesn’t make sense. Therapy and the crowded bus stuck in the traffic; getting out and feeling I couldn’t make my legs work right because the balance and weight was all in the wrong place and I wanted to curl up and hide; pushing and pushing;  work – faster than I thought it would go, though staying listening to the real world was hard; out; coffee. It doesn’t make sense. How can this be when yesterday and Saturday and Friday were what they were, when it so “was” the end. I’m not expecting to get an answer to that or not right now anyway. It’s just a state that doesn’t seem to make sense. I suppose. ..the answer is that even the worst passed. The answer is I was helped. God is merciful and I have such need of His mercy.

Ginny xx

Somehow

[TRIGGER WARNING FOR SUICIDAL THOUGHTS AND ACTIONS, SELF HARM AND OVERDOSE This post may be disturbing please read with caution if this may be unhelpful for you. ]

Somehow it’s nearly morning. Well, it is morning. I’m numb and “out of it” like it’s not really me, but everywhere at the same time. I thought I came to the end. That was supposed to be it. But I’m still here.

I’m scared to write this because it makes it real. What I did. And what is. And that I’m still here and that it’s morning. No question.

(“The watchman counts on daybreak and Israel on the Lord” I can’t remember what Psalm that is right now. ..)

I’m scared to write because I don’t want anyone to hurt and it was noone’s fault but mine and no one’s doing but mine and my responsibility. I lost it, I snapped and gave in. I didn’t deserve it but they cared for me.

I know I was so nasty to someone who has only cared for me. I needed too much. I still do. I’m so sorry.

But I have to write this. I have to write this in order to go on. I’m scared and I can’t remember chunks of time.

So…

I got to the end on Saturday. I screamed. I smashed things in the kitchen. I cut. I took an overdose. A lot more this time. This time it was the end.

But it wasn’t because I’m still here. And I have to get up soon. I have to get up and get dressed and go out and get something to eat and then go to the hospital to see the psychiatrist and my therapist. I promised I’d do it.

I’m okay. I don’t want to scare people. I’m okay physically. I got help. I’ve been in the hospital Saturday and Sunday. I came home late last night. They monitored me – blood tests and ECG and blood pressure and everything – so I’m fine physically. They were kind. They looked after me. I ate. I saw the duty psychiatrist. They’ve sent a report to the personality disorder team. I already had an appointment set with my therapist this morning and I’m to go early to see the psychiatrist too. So I’m safe. I don’t want people to worry.

I’m going on. Nearly time I can get up. It’s cold this morning. I have to decide what to do about work and what do I tell them. I’m meant to be in this afternoon.

“The watchman counts on daybreak and Israel on the Lord.” Keep saying that and get up and it’s morning.

Ginny xx

The 1000th last straw

[TRIGGER warning for mention of self harm, overdose and suicidal thoughts, and childhood sexual abuse;  and for anger, i am really angry and hurt writing this.  I am not meaning people to worry about me. When i say I’ve given up i mean on therapy and the doctors and everyone i trusted, not that I’m immediately suicidal.]

I am so far beyond angry. Hurting. They can decide I don’t get help. But it does come to a point I can’t just keep going one day more and being told the bad things are temporary.

In group and after I desperately needed to talk about the abuse and trauma and the decision I’ve now got to make whether to make a full statement to the police. I needed help when I told them I was really high, right on the edge, really unstable, not safe. Nobody heard.

I’d dared to ask a friend for help and to help me talk through some of what I have to decide about the police. She’s cancelled and changed arrangements so many times we’ve had to meet. I doubt she really wants to anymore. She keeps meetings to the most difficult and shortest times. She knows I’m ill, she knows I’m desperate, she surely knows how difficult it is to talk about abuse! She agreed to meet in the middle of the day at her work. Obviously I needed to talk in private but if that was all the time she had then I was thankful for it. I was at my wits end today after group. She changed the time and place back and forth through the morning today. She knows this puts me right on edge if I have no idea what’s happening. She told me she only had 30 minutes, then that she had work to do and hadn’t finished, then couldn’t I wait an hour and a half later, then asking where I was, 2 hours earlier,  when she knew I was still at my hospital appointment. When I finally pinned her down to a time she still came 20 minutes late without even letting me know and we had to meet in a crowded cafe where I obviously couldn’t talk about a thing – what did she expect me to do?! “How’s your cappuccino? Oh yes and by the way, I’m not quite sure how I’m going to cope when I tell the police about my mother sticking things up me when I was 7, any thoughts?” I don’t think so!

Then she told me I ask too much, it would be impossible to do what I ask (really? Is it so very hard to agree to meet a friend, stick to the arrangement and turn up?) And she doesn’t believe i wanted to meet in private because I thanked her for agreeing to meet in the middle of the day (well just because I thanked her and was grateful doesn’t mean I was happy or it was what I needed, I was just grateful for any help – or what I thought was help). She said she didn’t know we needed to meet in private (really? Is she that stupid she doesn’t know if you have to talk about abuse you won’t do it in the middle of a cafe? I don’t think so).

I was in bits and in so much pain as well  – and yet again the last hope of getting help or to talk to anyone was snatched away. It’s not just today. It’s every single time. I’ve had it now after this is just repeated – every one i should be able to trust,  every place i should get help. They don’t hear. They don’t believe me. They don’t help. It’s some sick joke or someone’s plan to find out when I break, to laugh at me, to test if I want help enough. Well I’m screaming and nobody can hear. I can’t scream louder. They can choose to keep up this game. Well I guess they’ve won. I can’t shout louder. I can’t make them believe. I can’t make it so that I deserve or am allowed help. I can stop trying anymore because it does just hurt too much. That one’s down to me. It’s not really a choice because it simply now is too painful. But I can choose not to let anyone near me again so they can’t trick me, so they can’t decide to keep a distance because I’m not allowed help and cut me down again because I’d just started to trust and go forward believing they’d be there, so they can’t disappear and show me how they don’t really want me around and it isn’t a friendship and they won’t be there.

(Funny. She’ll threaten to call an ambulance – and if I do go to a&e I just talk to someone then get bounced back out after a few hours and I’m alone again – but she won’t come to see me when I’m not safe, understand how hard it is, sit with me when I’m terrified, come to see me when I was in hospital – every time I was in I was the only person on the ward who didn’t get a single visitor -or hug me when I’m crying. Why is it so hard to do any of that? The doctors don’t care and don’t help me and the only friend I have nearby doesn’t want me around and says go to the emergency services. So I’m not allowed medical help and not allowed friends.)

I’m not allowed any help. I need a friend and I need someone with me and I need to trust someone but every single thing I trust gets taken. It’s not just today it’s every time and I’ve had enough. Oh, you must keep going to work, they say. You’ll feel worse if you have nothing to do. No, I won’t. All I want is it to stop. I don’t want to go out. I want to sleep. I want drugs to stop me feeling.

Oh it won’t help you if you have anyone with you it won’t help you get better you have to be independent. Why is it for her to decide what I need? She’s not my doctor! She doesn’t know what it’s like! I need help. I need someone with me. I want a friend. I want someone to help me. I want someone to care. I want someone to be there when I can’t cope. Not only when I can say everything is fine. Not only when it suits them. Not only because they’ve decided I have to learn to be independent. I’ve always been independent. Nobody has ever been there when I needed them. Now I Can’t cope anymore. It’s even more cruel that every time I’m most desperate I have to be deceived into thinking someone’s there then left alone.

If you’re friends with someone, if you care for them, you are there when they need help. You don’t decide what they need or that something else is best for them or they have to learn something. You don’t see them sometimes then walk off when they’re ill. You don’t constantly change every arrangement. You don’t only allow them in certain situations and certain parts of your life. If they need you you’re there for them. If they’re sick you help them and care for them. You don’t just disappear because it isn’t convenient. That’s just utterly basic friendship and actually basic morality. I’d do it and do do it for anyone.

Is it really so terribly much to ask? Every other person in therapy has family, a carer or a spouse with them. I’m the only person who doesn’t, who lives totally alone. Is it really so terribly awful to want someone to be with me when I’m in crisis, to hug me when I’ve been crying for hours, someone to stick to a commitment, someone to be a friend, someone to help me when I’m cutting as soon as I’m alone, when I’m terrified of the hallucinations?

And the doctors know and they don’t care. They don’t help me. My friend says call them if I’m not safe. She says persist. I’ve been persisting for years. I’ve been accepting nobody wants me. I’ve told them in not safe. I’ve told them I’m cutting and overdosing and when I was planning to end it. They didn’t help me. I don’t want some stupid phone number for a few minutes of so called support. That doesn’t keep me safe or get me help or a friend or anyone with me. I’m on my own again. Left to just go back to the same cutting and overdosing. There’s no other way to cope. They tell me just keep going is temporary. I don’t care if it’s temporary. I can’t right now.

After years of making sure never to say what I needed and always to do weekday I’m meant to, I’ve had it. I’m a disgusting selfish b*tch and a baby and I’m screaming and I need help now and nobody can hear me. I’m not allowed help and I know I’m not but every time it’s proved the kick hurts even harder. I know it’s selfish and disgusting but actually the need and the hurt has taken over. Nobody wants me. Nobody wants me really, not what’s really me.

 

 

What do you hold onto in the darkest times?

I’ve posted before about how, like many people with Borderline Personality Disorder, one of the things I find hardest when I feel really bad is to hold on to any knowledge that it will not always be this way. The overwhelming emotions – especially fear, sadness, loneliness, anger, pain, frustration, self hatred, self disgust, hurt, distress, longing or needing, or the feelings I can’t yet name that come with flashbacks – they eclipse everything else and become all that exists.

I wonder if their power is greater if I fear the emotion I sense. But the totality of the experience, their consuming nature, makes them the more frightening.

Descriptions of this emotional experience in BPD often term the feelings intolerable or unbearable. It is that but it isn’t quite either; it’s not all of it. Intolerable, more than I can stand, yes… but it’s not something I can’t stand because it’s me. In that state there is nothing but the emotion and there is nothing of me but the emotion. I cannot stand it but neither do I exist apart from it.

I hate it so I hate myself. I must get rid of it, purge it, so I must get rid of myself and cut away the bad – so I cut.

I can name some of the emotions afterwards. Maybe the therapy is helping me to do that. But in the experience, I cannot. I cannot recognise anything but hurt and pain and hate and evil (me); I cannot hold in mind anything but the impulses to cut, run, scream, end it, reach back for numb. .. and I am gone. ..and I spin between cut off and unable to feel and any attempt to engage being painful, and the state of total emotion, of only existing as that pain.

I cannot control it. I cannot bridge that gap. Therapy is helping me identify what feelings are. But it doesn’t separate them from me, from time, from permanent reality, from right and wrong. It doesn’t tell me how to feel, rather than be, the emotion. It doesn’t tell me how to bridge the gap between the different people I become – the cut off numb one;, the one that hides everything to cope day to day and do what I’m meant to and fulfil my responsibilities and pretend and hope I could ever be good but knowing all the time that everyone really knows how fake it is and how evil I am deceiving everyone; the frightened needing child; the angry, vengeful and impulsive one. More and more they seem to be separate personalities. I am fragmenting. I am more unstable. I lose more periods of the day – when I’m in one state I cannot “access” the other and I can’t remember things that happened (though I may remember the state). I flick so quickly between states without being able to engage my rational mind and try to employ any grounding techniques or DBT techniques to control my behaviour or my experience.

I guess it’s good that I can start to be curious about the process, from the temporary relative stability of my “coping” state. It must show I do have some ability to learn to mentalisa about what’s going on in my mind. Usually my “coping” state would be trying to suppress what I’m exploring right now. Perhaps eventually I’ll be able to build a more curious and stable personality at least alongside these others.

What do you hold on to when your whole reality, your whole existence, is unbearable sensation and emotion? It sounds utterly stupid. It sounds utterly out of proportion. It sounds self centred and I am forced to admit that though it’s the very last thing I want and one of the things I most hate in myself, in a way it is, though at the same time self has got totally lost in the feeling and emotion coming from everywhere.

What do you hold on to when you can’t access your coping strategies or even your most rooted beliefs and deepest cares? I love my God and know God is mercy and compassion, but in the bad states I can only conceive of a vengeful God or a God casting me out. I love my godchildren, I care about keeping my commitments at work,  but in those states I can conceive only that I do everyone harm and everyone knows I’m bad really and would rather I weren’t around. The centre of my beliefs and values warp according to the state I’m in.

What to I hold on to?

Ginny xxx

Turning on the light

Turning on the light

“Happiness can be found in the darkest of times, if only one remembers to turn on the light.” – Albus Dumbledore, “Harry Potter and the Prisoner of Azkaban”

J K Rowling / screenplay by Steven Kloves

I think I’m still stumbling around in the dark banging into things whilst I’m looking for the switch, but I’m trying…. 🙂

xx

Thoughts too close to the edge

I really don’t know if carrying on with therapy is a good thing or not at the moment. I am more broken now than before I started this route and know more certainly that I’m on my own in it. I can’t keep trying to fight through day to day, to go to work and to keep going to therapy. I’m starting to wonder if it wouldn’t be better to just push everything back down again and live in my imaginary world. I functioned better day to day when I was anorexic and numb to everything. There isn’t enough support outside therapy to keep it going.

I keep on hanging on to things desperately, for them to be snatched away. The only times I’m not alone are when I’m faking it, even if I’m doing a bad job of that. When I can’t do it, when I am on the point of taking my life, when I am cutting, when I am terrified by the flashbacks, I’m on my own every time. Apparently I’m not allowed anyone there. Apparently I “wouldn’t qualify” for any social care support, and no family or friend wants to be a carer for me. I know they have no responsibility for me but that still really hurts.

I am thankful for my friends. I am not trying to be ungrateful. They do much more than I could ever ask. I know they can’t be there. I know often they are there when I can’t possibly believe they would still want to know me, after I’ve lost it and screamed and snapped.

Trying to keep going used to help. But now I get closer and closer to complete breaking point every day.

I’m going for another appointment at the hospital tomorrow for my 1:1 and I think I’ll tell her I’m thinking about not carrying on therapy. Things feel very very dangerous and close to the edge right now.

Victim roles – holding on tight and falling faster

Victim roles – holding on tight and falling faster

A couple of posts ago I said it is very hard not to be bitter. This week it continued to feel like a twisted game someone is playing. God, perhaps, and I have to keep looking back at the Cross to remember my God is not vengeful, twisted, scornful or delighting in our hurt.

This last week, things continued to snowball and I clung harder and harder to the smallest things. I felt completely alone and the importance of every tiny possible bit of help or hope increased.  The pattern repeated relentlessly that every time I counted on something, inside I built up to, “if I can just hang on to xyz, maybe then I can just manage, maybe then there will be help, maybe then I won’t die” and just as that had started to give me some security, whatever xyz was would be snatched away.

Whatever xyz was didn’t matter so much. I went to the Housing Benefit office to try to get some questions answered. I got some answers but also found out my Benefit will be suspended for weeks because of a 2-hours-per-week change in my working hours, likely putting me further in debt with my rent. I got another 3 page long form to fill out and supplementary statements to write. The time I’d counted on to rest to be able to work the next day was then filled with more anxiety over debt and more form-filling. In pieces losing it I phoned the hospital. We agreed that I could cope with telephone support until my care coordination appointment on Friday. 30 minutes later someone else from the hospital phoned to say that my appointment was cancelled (second month running) because my CPN is on training. I insisted I needed to see someone else.  My friend cancelled our meet-up for the second time within a week (not really for any fault of hers). But I snapped at this point.  The last thing I was hanging on to had been snatched away from me and I couldn’t take any more. Then Friday came and the day of the “replacement” appointment to try to talk about support I needed to cope with finances, Benefits, the threats from my landlord, the mountainous paperwork that needed to be completed and numerous telephone calls, and the effect all the confusion, delays, stress was causing to me, to the point that I was overdosing and cutting several times per week. I admitted that I’m not safe on my own, especially at night, and can’t manage simple things like cooking or keeping my flat in order, because the strain of trying to keep working, therapy, then all the financial problems, combine to be too much and leave me with nothing to go on with. The first person I was speaking to appeared to understand and suggested that there would be help available to me and that we could look at whether more social care support could be available. She asked one of the hospital social workers to see me straight away. The social worker came in and said I wouldn’t qualify for any help, that nobody gets anyone to intervene on their behalf or do forms etc for them, that I wouldn’t qualify for personal independence payment as they don’t recognise BPD and I’m working, and that I’m just “in a bit of a pickle” and that everyone has to deal with problems with benefits, tax and so on. She had no conception whatsoever of the extent of my distress, my self-harm, the danger I am in. I lost it totally and walked out.

At that point, yes it was a twisted game. In my mind, someone was delighting in my hurt, laughing at me, seeing just how far they could push me before I broke totally. And they were going to win that day. I was going to take an overdose or maybe I’d walk onto the train line because that was it and they had finally won. They’d had everything they wanted of me and there was nothing left. Everything had gone beyond possible to absolute desperation and this was the end. Everyone who was “supposed” to help me or whom I tried to rely on, was doing me the most harm when I had most hoped and could least take more hurt.

Obviously, I didn’t go and end it,  because I’m here writing this blog post. I can’t really remember exactly how I didn’t, though I’ll write another post about that later.

Something hit me today.

Vengeful. Ridiculing. Laughing at me. Hurting. Snatching from me. Hitting me when I’m most vulnerable. Rejection when I most need help, by those I most trusted. Scornful. Delighting in hurt. Delighting in making everything my fault and taking no responsibility. That’s what I find I meet with when I most need help and they push me to self-harm and suicide.

My abuser was all those things. Now the world takes that role to me and I am in the same position of being hurt. I’ve got away from my abuser, physically (though not in my head), but now the world takes that role to me and I am trapped and still its (her?) victim, not allowed to be saved. I got away (bodily) from her when I walked out, shut the door, got on the train, hung up the phone. That was hard enough and took over 20 years. Getting away from this abuser’s force in the world is going to be much much harder and the leaving I must do this time is going to take much much longer, I think. I don’t think it’s leaving, exactly, but changing something in me so as to receive something other than abuse.

Ginny xxx (Very confused)

Snowballing. Not the white fluffy kind.

It feels like breaking over and over at the moment. I hang onto something then it gets taken away. I don’t know why I’m quite so stupid and childish that I keep hanging on to things and people. Last week it was trying to get my tax credits sorted, so things wouldn’t be so tight. Resistance and obstructions all the way. Then it was trying to negotiate a payment plan for my rent arrears. No response (again) to my phone call and letters, so another letter to write. Then trying to get the harassment and discrimination at my last employer investigated. Dismissed without any consideration whatsoever by the regulator. Another complaint to write and my case to be presented again. Then plans with a friend – cancelled. Then hanging on until my appointment with my CPN on Friday – cancelled, because he has to go on training. I can absolutely understand he has to do the training, but I so needed that. Last month’s appointment was cancelled too. Letters I can’t understand about my Housing Benefit and yet another form to fill out to claim for a Discretionary Payment…terrified I’ll lose my home and so my job….

Snowballing, snowballing, problems everywhere there should be help.

Only able to carry on one day more, then one day more, and only by cutting and taking more pills than I should to knock myself out so at least then I can’t take even more and end it.

Hallucinations and flashbacks shaking me too much to breathe.

Hating myself for being so so weak and so childish and for hanging on to things I should by now have learned well not to count on. Hating myself for needing to be cared for and needing help and not being a proper adult, just a burden.

It is very hard not to become bitter and not to give up. I can only try to think, God is teaching me to trust in nothing and no-one except Him alone. “God alone suffices,” St Teresa of Avila wrote. It is right, of course. His Love is all we need and all we cannot lose. But it is very hard not to be angry, bitter, childish and wrapped in my own hurt.

Ginny xx

What do you do “out of hours”?

I really needed crisis support on Friday but didn’t get it. After therapy group I was spiraling down and out of control, then a number of bad events came snowballing, knocking me further down. I had a brief conversation with the duty line at the hospital and was supposed to get to speak to them again later in the afternoon but they didn’t have time. I was in pieces, cut and was on the edge of the very dangerous place I cannot take a single step more and decide to end it. Thanks be to God I didn’t but I took a higher dose of my tablets than I should to knock me out and stop the hurt (not really an overdose as it wasn’t over the maximum dose of anything, but I took more than I’m prescribed and everything together).

I’ve been fighting through this weekend as I’m working. What I want is numb, stay at home, stay under a blanket, no more feeling, no more thinking, no more hallucinations, no more noise in my head, never have to speak again, never do more harm, someone to hold me, to go to the dissociated place, forget everything I have to fight through and just stop and be allowed to need it to be no more, stop, sleep.

What do you do when you feel this and you can’t get help? It’s the weekend and/or evening. I couldn’t get help from the hospital on Friday. There will be nobody available until Monday and who knows if they will have time then to see or call me.

I could go to A&E but I wasn’t sure what they’d do, and it’s not really an emergency and there isn’t an instant solution. I need more help day to day. I could call 111 the NHS out of hours line, but they tend to tell you to go to A&E if you admit to self harming or being suicidal. They’d probably take my tablets away too. When I’ve been put in touch with a community crisis team before I’ve actually found it really unhelpful. They did not (in my uneducated opinion) understand BPD. What they said piled on the guilt and made me closer to ending my life and they were determined to show me I didn’t need (or deserve,  I feel) any help and Iwasn’t genuine. If i got that right now I would go through with ending it.

Part of the problem needing help out of hours is having to try to explain your whole story – trauma, abuse,  flashbacks, hallucinations, voices, BPD, hurt, fear, desperation and needing to end it – to someone who doesn’t know you or the therapy you’re having. It’s too frightening to do and the cost of being misunderstood too great.

I promised a friend that if it got to the worst I’d go to A&E before I did anything. I would,  I’d keep that promise.  I made it only because she would be more worried about me and stressed if she thought I wouldn’t. I would go at that point, out of honesty to her. Even though having reached that point I’d not want to be stopped.

What do you do when you need support out of hours and can’t see your GP or your usual clinic / hospital team? I’d be interested to know what others do.

I know a lot of it may involve other coping strategies not going to someone else for help. But what about when it’s bad enough they don’t work?

Ginny xx