Tag: Anxiety

What do you do to stay safe?

Today I’m going to the hospital again for another meeting with the CPN. I’m very scared of going after I lost it there on Tuesday. I think I’m scared what will happen, scared of losing it again, ashamed about what happened and still feeling very out of it, although not in the way I usually am when I dissociate. That gives some kind of protection. This is raw at the same time as shaken and disconnected.

Also I’ve got an inescapable question that has been in my mind for several weeks. I’m not at all stable or safe at the moment. I want to continue with therapy. I committed to the group that I’d do it and not give up. I promised to God and Mother Mary in prayer. I’ve made quite a few sacrifices for it – I don’t think I’d have had to leave my last job if it weren’t, at least in part, for my therapy appointments (though my last employer were definitely at fault too, in my opinion). I’ve seen the therapy as the only hope of learning how to get better and manage my condition. I’m privileged to live somewhere MBT is actually available (there aren’t specific PD services in all areas of the UK). I really don’t want to have to stop therapy.

However, at the moment I’m actually more unstable, at least in part because of the therapy and the emotions, memories and questions that it raises. This isn’t necessarily a bad thing. Other people tell me they can see positive changes in me, for example communicating more clearly about emotions and things that happened to me in my childhood, none of which I can yet see for myself. However I trust the people who tell me this and think it has to be a good thing. It’s another thing I don’t want to waste.

So the big question is, what to do.  I can’t keep myself safe at the moment. For example I’m “coping” by cutting, taking overdoses or higher than prescribed doses of medication, drinking* (and this really isn’t me, I do not enjoy drinking in this way), escaping from daily life by ignoring letters, calls, etc and not able to keep on top of the basics of looking after my home and myself (cleaning, cooking etc). I’m more unstable in my moods, especially anger, and I’m struggling more to hide everything to try to participate in daily life by eg going to work. Things like hallucinations or paranoid thoughts or feeling dissociated are pushing their way more into the working day.

I don’t know what to do to change this.

I’ve some hope that medication changes could help and I’m seeing the psychiatrist on Friday. But I doubt that’s going to be the only answer. I’ve tried to exhaustion (both daily and when in crisis moments like the extreme distress or wanting to end everything) the techniques I know like distraction and grounding and self care / self soothing (this latter is very hard for me to do when I feel as I do about myself). It isn’t working. And I feel that the things other people could do to keep me safe, many of which are on my crisis plan, are not happening or not working either. I’m experiencing more and more let downs where xyz help is promised then doesn’t materialise (appointments canceled, calls not returned, planned sources of support withdrawn, mistake after mistake, discharge plan not followed). Or I’m told that the help I want to keep safe doesn’t exist or I don’t qualify. What is offered – and don’t get me wrong I’m grateful that it is offered and I know it’s more than many other services provide – is not enough to keep me safe. For example when I’m suicidal a 5 minute telephone call may calm me a bit for a few minutes but an hour later in usually feeling worse than before and – this is key I think – still on my own trying to cope.

What do I do in this position? Are there other techniques I can learn to cope better? Are there other or higher doses of medications? When I so so much feel I am not safe on my own and really need someone with me (especially when I’m really distressed but also day to day because the slightest thing, as little as a letter that makes me panic or a canceled appointment,  can thrown me into extreme distress, self harm etc) what can I do? The PD service are adamant I mustn’t be admitted and don’t qualify for any carer help and ongoing support in person isn’t possible. I haven’t any other way of getting that kind of support. I live alone, my dad and step mum live hours away and I don’t have friends very locally or whom I see regularly.

So how do I do my therapy and stay safe as well? How do I either answer this need not to be on my own when I’m so much at risk and unstable, or what solution do I have to learn instead?

What do you do to stay safe between therapy appointments or between times you can access support?

I know this probably sounds silly and I do get a lot more support than most people and all I’m talking about coping with is simple daily life. Right now this is where I am.

Ginny xxx

*just to be clear, I’m not diagnosed with any alcohol problem and I’m not comparing my struggle with that of someone who is struggling with alcohol or other substance use. That is a much more painful place. I sometimes use what is probably an objectively average amount of alcohol taken with my tablets to make myself fall asleep when I can’t cope. Not a great thing to do but I’m not trying to compare the two.

I’m sorry for being rubbish this week

I’m sorry for being rubbish this week

I’m sorry for being rubbish this week. I’m sorry for being so slow to reply to comments and not being there enough for you (lovely readers / bloggers) as well as other people important to me in my life. I have been so shattered and sinking and though that’s true and consuming, I hate yet again using that as an excuse. Someone I was close to told me a little while ago that at first maybe you can hope people will understand but not after it’s gone on for years. Certainly “it” has gone on for years for me. Whilst it hurt when she said that I can also sort of see that you cannot expect endless understanding and it feels like asking more and more the longer I am not there and not well.

It is only very special and very empathic people who continue to understand and to be there. I am very very thankful for you. I care about you and I am so sorry for the times I fail to show it when I cannot write or say or otherwise show the love and support I wish I could. You mean so much to me. Thank you.

***

Also, in the past few days I have been trying to put together something in writing, a kind of open letter, about how I feel about my current care and how I have been treated by different services in my struggle to get help. I’m going to finish this tonight in preparation for, hopefully, meetings with a nurse practitioner and the Psychiatrist at the hospital this week. I think I may share some of it on here because I don’t think I’m the only person fighting the failings that have pushed me nearer the edge.

Ginny xx

Silly post, but just to hold myself to it!

This is a pretty silly post but I’m writing it here in order to hold myself to it, because if I write it here I’ve made the commitment to all of you (lovely readers) as well as myself.

I went to group this morning. I’m so boiling with feelings and hurt and loss and anger (not with group or anyone in it but with the whole PD Service). I desperately need to shut off and the best ways I know without help are things that hurt me. And it’s very possible I could just go home and do that and dissociate or literally knock myself out. I am going to try to make myself take another action instead.

I commit that this afternoon I will write a card to send something to my step-sister that she needs. Then I will clean in every room in my flat. It is in a complete state as i have not cleaned or cared for it in the state I’ve been in in the last two weeks. I may not finish all of it but I will vacuum everywhere and I will clean at least three things in every room (it’s a small flat!).

And to keep going in the promises I made in my commitment to getting better, 5 things I’m thankful for today are:

  • I have a flat of my own to live in (well I say my own; it’s rented but it’s home and I’m blessed to have my place and my safe space).
  • I went to therapy today and talked about horrible feelings and the other members of the group listened and didn’t treat me like a freak. They actually seemed to understand.
  • I saw an old friend yesterday who I have not met in years. She seemed happy and well and she’s having a baby very soon.
  • My step-sister and I are getting in contact with each other more.
  • Um… I didn’t have to wait ages for the bus back to town after therapy, does that count 🙂 ?!

I’m wishing for something good to happen to you today.

Ginny xxx

Group and no more trust

Tomorrow is MBT (mentalisation based therapy) group. I don’t know whether to go.

All trust I had in the service has gone. It’s been completely wiped out by the lies and let downs of the past months, the proofs they don’t believe me, the tricks, the cuts that open me more and more vulnerable then leave me with nothing and noone.

I don’t really want anything to do with a service that does this, but I’m desperate and have nowhere else to go. I’m desperate for help but it’s denied, it’s promised then withdrawn, or I’m deemed not in need or not believed. I want to do the therapy but I can no longer go forward safely with it. I cannot cope between sessions except by overdosing to black everything out and self harming to punish myself, temporarily quiet the voices, temporarily be something other than the utter pain. I’m not allowed any of the things that would keep me safe between sessions.

If I go tomorrow, I will be so angry. I can’t say I’ll keep it under control in the session. I can’t say I’ll stay “stable”. Nothing keeps it in anymore. I can’t mentalise like this and really I don’t want to. These things just are as they are. There’s nothing to be “curious” about or explore my feelings or someone else’s thoughts. Their thoughts have been made totally clear – they don’t believe me, I’m not allowed help, they’re tricking me, they’re cutting me open then leaving me and finding more and more ways to do it. My feelings are exploding and total. Fury. Hurt. Trapped. Over the edge. Liar. Fake. Fraud. Pain. Screaming.

If I go to group I can’t avoid it being clear I have no hope and no trust left. If everyone or anyone else does trust the service and does believe they’ll help them, then maybe that gets them through and helps them and is a lifeline for them. I don’t want to destroy that.If I say what’s happened to me, even in the last couple of days, I could destroy it.

I could go and just try not to talk about anything to do with me and just be there for other people and listen to them and try to mentalise about what other people bring. But I’m so far gone over the edge I don’t think I can trust myself not to explode.

When the group started committed to do it all. I committed to not leaving. I committed it to everyone in the group – not out loud, we didn’t do that, but in my head I did. I promised to God and Mother Mary too. If i leave I break my commitment to everyone, not just the service. I really don’t want to do that.

Yet at the moment I’m just ending up in more and more danger. It seems as if I should just accept this’ll never end, dissociate as much as possible, hope for something sometimes bearable…. but I think I’m too far gone for that. I wish I’d never trusted them.

Punished for hope

Go on then. Smash me into the ground and kick me as hard as you can.

That’s what they do to me.

I was promised “victim support” when I went to the police about the abuse. I was promised support from the victim support team’s specialist CPN and to finally get help with the trauma, flashbacks and PTSD. A phonecall with the CPN was booked in for today by the support team. The police officer who took my statement knew.

I got the call from the CPN who told me she is employed by the same mental health trust as the hospital I’m seen at for my personality disorder. Oh good,  I thought, that should help, shouldn’t it? She’ll know my mental health background and have my records. Wrong! She said that she’d organise support for people who aren’t currently seen in the mental health trust and get them therapy to help them deal with the trauma of what they’d had done to them but because I’m seen in the personality disorder service I’m “already in the most appropriate pathway” and she can’t help me.

But the personality disorder service specifically don’t address trauma and PTSD. The therapy I have there doesn’t deal with flashbacks, memories, hallucinations etc.  It deals with here and now. Which is great and important but leaves all the trauma untouched. I need help with that.

Why am I not allowed that because I have personality disorder, when a victim who does not have personality disorder, would be allowed to access it? Why am I denied help with one condition because I also have another diagnosis? You wouldn’t say to someone who had been in a car accident and fractured their leg as well as aggravating a pre existing back injury, “oh sorry we aren’t going to get a surgeon to set your leg to heal because you’re already being seen in the spine clinic.” So why is it deemed okay to deny me victim support because I have BPD?

The CPN said I should make a list of all my unmet needs and take it to my appointment with the psychiatrist next week. Oh my days have I not already begged for help with all the “unmet needs”! She just didn’t seem to grasp that the personality disorder service simply do not address the PTSD area. Which in itself is fair enough, it’s a specialist PD service – but it’s not okay if you’re denied access to other specialist services!

Why was I promised psychological help from this victim support team and this CPN if this is the outcome?! Everyone knew I am being seen in the PD service.

Then the CPN said oh they just don’t offer this help in the community teams. Yes and don’t you think I know, after fighting for 15 years plus. … and that’s why it’s speed to be coming from her!

This is yet another kick and yet another betrayal. Yet another thing I held on to snatched away. Yet another desperate hope gone. Yet another trick, this time effectively from the police, it feels like, though it isn’t the officer’s fault, he was nothing but supportive and this victim support team is separate…. but this is the last hope of people believing me and allowing me any help. And it’s now gone.

It’s absolutely proved everything my mother threatened. People would think the fault was hers, if they ever found out, and they’d take her away. Nobody would imagine a child could do all this. But really she’d know and I’d know that it was my fault all along, and what I’d done (and how evil I am, the voices add). I told. They found out. They think the fault is hers. But I must remember, the voices say, really it’s me all along, really I don’t deserve anything because I’m so evil. It’s confirmed it. 

It’s the hardest kick and tightest grip of the terror and memories again.

I was promised support when I went ahead to make the statement. Now I’m left and left more raw than before. I don’t regret doing it but can’t cope and I’m not okay and I’m not safe.

To top it all off I called the personality disorder service to be told there are no calls back today because the team have gone on an away day. Shame the voices and flashbacks haven’t gone on an away day. Shame the planning for how much hurt I can cause myself hasn’t.

 

In person

I phoned the GP Surgery last week to try to get an appointment. I wasn’t feeling well at all after trying to cope with memories and flashbacks and really high anxiety. It’s unusual I ask for help like that but this time I did. The duty GP phoned me back. After we’d talked very briefly she said there weren’t any appointments left and it sounded as if I “had insight” and knew the coping strategies (which means distraction, grounding etc) so there wouldn’t be anything to gain in having a face to face appointment. She would not book me in. Actually there’d have been everything to gain in seeing someone and it would have helped me greatly.

This and many other incidents got me thinking how much it helps me to meet with someone in person or have someone with me. It’s very important to me. I’ve been very upset when a friend has canceled meetings. I find the telephone support offered by the clinic is not enough to keep me safe and I’ve longed for a safe place and someone with me when I’ve exhausted all possible coping techniques i can do alone.

In my last 1:1 therapy we talked about what does it mean to me to have a meeting with someone arranged, whether it’s friend or professional. I think it means a certain amount of hope, something I desperately try to keep going until, it means I have some worth if anyone would spend time with me, it means not being alone. .. It’s easier to find what it means when meetings are canceled or refused – I’m worthless, nobody wants to be with me, I’m clearly the last person anyone would choose, everything else in their life is of more worth, I can’t do any good to the other person, they have written me off, I don’t deserve help, they don’t believe me, I don’t deserve. … all along they just couldn’t wait to get rid of me, how stupid I was to ever think differently. It just confirms what I already knew.

Then there are also certain rules, I guess, which I hold myself to and which define rrelationships. Like that friendship means always being there for the other person no matter what. Or that it’s important to keep arrangements and commitments to friends and do what you promise and if you don’t you’re rejecting the other person and not treating them with respect or kindness.

This means I really struggle when meetings are cancelled. Also, having someone with me and someone I can rely on is a huge and fairly childish longing in me. The concrete presence of someone with me is often the only thing that calms me or prevents my self destructive behaviors. Equally though, it has to be someone I absolutely trust not to leave, which means very few people. And part of me is always waiting for them inevitably to leave, when I show too much what it’s really like inside me. It’s something that can almost never be fulfilled (and the people who make decisions about the support I’m allowed seem set to prevent that need being answered and in my most desperate times that can lead me to very paranoid thoughts). Needing it brings me massive feelings of guilt now I’ve admitted it.

Does anyone else feel this desperate need for the concrete presence of someone with you?

Ginny xx

The penguins look a bit funny round here this week (On calming colouring)

The penguins look a bit funny round here this week (On calming colouring)

I’ve posted before about enjoying colouring as therapy. I’ve now built up quite a collection of “colouring books for grown-ups”. Here are some crazy penguins I did today. This book has smaller pictures than I usually do but it is great to take with you if you’re on the move or for a quick distraction. I find it works better than reading to combat anxiety whilst, for example, waiting for hospital appointments. My good friend R. gave me that idea.

If I’m waiting for someone or something, my anxiety increases ridiculously. I’m never quite sure why. I’ve only just started to become aware of it. I feel the physical symptoms of the emotion before the mental ones – becoming hot and sweaty, or alternatively cold; shaking; finding my breathing tight and constrained; being restless. I’ve identified before that uncertainty over times and meetings with people is very stressful for me. Perhaps part of the reason why is that since childhood, if someone is running late I’ve always imagined something awful has happened to them, like a road accident. I think that stemmed from some of my mother’s threats when I was a young child, usually made when my father was at work and she was at home with me, that if my father ever found out what I was doing to her he would be so upset that he would have a car accident or a heart attack – then she’d phone him and tell him what I’d been doing to her (though it later turned out a lot of the time she was only pretending to phone him)  – so if he was ever late I’d become frightened the threatened accident had occurred. But I think a good part of it is just my inability to cope with uncertainty.

Anyhow, colouring calms the anxiety more effectively than reading, or counting backwards, or counting objects or colours and so on. Perhaps because you are physically engaged in doing something and have to make a certain amount of decisions about the colours to use and so on. And it has the added bonus that you can turn your picture into something pretty in the end – frame larger designs, or make cards out of them.

I often pass the evenings this way too, when I’m too tired to do much else.

Ginny xx

This week, I will…

I’m trying to turn things around. It feels as though things have been spiralling down and down since Christmas. Since I spoke to the police, I think things are starting to shift almost imperceptibly. It is true it hasn’t been easy and I cannot change the hurt, but I think there are a few positive things I can try to keep doing, which I have given up on in the last months because it was just too dark and painful.

Inspired by one of a2eternity’s posts (you can visit her wonderfully frank and brave blog at https://a2eternity.wordpress.com/ ) I am making a list of some things that I am going to commit to trying to do this week:

  • Every day before bed, I will write down 5 things that I am thankful for in that day.
  • I will do something creative every day – a bit of my colouring books, make a card, take a photo, write a card to a friend, whatever it be.
  • I will do something positive for my body every day (like do my makeup, have a nice bath with some bath foam, put on some moisturiser) even when I am hearing voices telling me how ugly, foul and disgusting I am.
  • I will choose a passage from the Bible that encourages me with hope in God’s unconditional love for us. Whenever the voices tell me to hurt myself, whenever I hear them saying I’m evil and a fake, when the flashbacks come, I will repeat this line in place of what the voices say.
  • Something that I have meant to do for a long time: I will think about what I could put in my memory box and find a box to use (I’ll post again about what this is for, later in the week).

Here’s to thankfulness.

Ginny xxx

Tea and scones

Today I met my good friend S. She’s a very good friend who was my manager in a previous job. After we both left at separate times we actually get along even better than we did at work. S is very caring and excellent at seeing things from another person’s view and not shocked by the hardest things. She still wants to know me with them. She does not assume I’m useless because of them and can’t contribute anything a relationship  until I’m completely well. I’ve lost relationships I think through that being assumed. I’m thankful for S.

We went to a local garden centre and looked round the flowers and gifts, then had tea and scones in the cafe. (Sorry USA readers, I’m not sure what you call scones…). It was the nicest afternoon for a long while.

Ginny xx

Inexplicably disturbed

Near the end of the day at work today, someone was apprehended in the store for shoplifting. She looked young, about 14 or 15 or maybe younger; a small,  plainly dressed girl, who would have been almost studious looking in another context.

Something had been going on all day because all afternoon whilst I was working on the till, our security staff were on the shop floor in much higher numbers than usual, all apparently observing a particular area of the shop. It was one of those situations where your gut tells you “something is not right” – apart from the security presence my attention kept being drawn to a similar area of the store as if clocking something unusual that was slightly off.

I get those feelings. I group them with the way I pick up too strongly on others’ emotions and sense and know things others don’t. It can be a help, empathising, or sensing danger faster, but it’s so draining and an aching weight too.

For some reason as I watched a policeman and two security guards handling this young girl and escorting her, gripped tightly, off the shop floor, suddenly I felt a surge of fear. Not just anxietybut fear. I was completely disturbed. I wanted to run. It took a massive effort to concentrate on helping close down the till and complete my tasks. I can still feel this fear now over an hour later.

Why? Why was I frightened? What of? Was I frightened for her? She was silent but struggling and clearly very strong. I couldn’t read fear in her eyes exactly but something was wrong, not there. After some time the conscious thought occurred to me that she wasn’t alone shoplifting, she was someone’s marionette.

Admittedly I was stressed already, tired and feeling physically ill from the latest OD (don’t worry not life threatening or anything) and I’d had several difficult interactions with customers already.

Yet I can’t understand the level of fear I felt. Perhaps I was reminded of the police having to forcibly “escort” my mother into the transport to hospital, restraining her, with her alternately violently struggling or “playing dead”. Did I remember that? But I didn’t see and hear it although the level of emotion was the same as in a flashback.

Can you have a flashback only of emotion?

Ginny xxx