Tag: Coping Strategies

How often do you “need” to spend time with others?

I’ve been trying for a long time to arrange to meet to catch up with a particular friend. We used to be close and live in the same city, but we haven’t met since a very brief meeting at Christmas, and before then the last time we met was at a an event at her Church in September. I miss her a lot and have been feeling very sad that we live so close but meet a handful of times a year and never in such a way we can catch up properly.

Part of the reason we don’t is that she has a family now, including young children, and I completely understand and agree that family comes first before friends. Still I’m sad to see her so very little – and also (and this is a big part of my feeling) worried for her. She gives all her time to her children and various numerous volunteer works at her church and parish. She home-schools her two older children. She almost never suggests meeting up, she never seems to socialise except for seeing other mothers at home-ed groups, and she told me she hasn’t met up with a friend for over a year. She never takes any time for herself and she does not seem to have any desire to socialise.

Should I be worried about her? I am, very. I feel like she must be so tired and drained and stressed and never have a moment to take care of herself or do something she wants to. Most of all I fear she never has any time that really is for talking and sharing with her friends. I know I wouldn’t be able to cope with even one day of her schedule let alone the foreseeable future.

I think she is amazingly strong, dedicated and generous to her family and she is responsive to their every need (let alone all the time she volunteers). She has clearly made big sacrifices. She says she loves it and never feels the need for any break or to see any one. I just can’t see how she can possibly be well or happy and it seems really isolating to have so little contact with others.

At first I was hurt that she had no interest in meeting – i made no end of suggestions and she declined them all and didn’t suggest any alternatives and pretty much said she doesn’t do that kind of thing. I was lonely and upset already and I’m sad that we are no longer close friends. She really matters to me and I care for her and miss her. There’s only so much you can keep a friendship going and only so close you can be when you only text message and email. And I’m worried for her welfare, as I said.

Perhaps I should just accept that she says she’s happy and she is. It got me thinking, perhaps it’s a difference of personality. She’s happy not to leave the house for several days at times, whereas I usually feel compelled to go outside, see the outdoors, be around people,  even if I’m not meeting or speaking to anyone (except when I’m very low and not going out is then a sign I’m very unwell). Meeting up with someone is of no interest to her, whereas it’s very important to me, although there are few people I trust and am able to be with at the moment. That probably is a particularly bad combination and makes me particularly needy with the few people I do trust! I need time alone too and have times it’s all too much but loneliness is a big struggle for me. So I’d silence, which is another thing she loves. Perhaps it’s as impossible for her to understand my needs, or values in a relationship, as it is for me to understand hers and how she can be well and happy in her current situation.

I wonder whether she doesn’t value meeting in person, spending time together in friendship, catching up, doing some things for herself outside the family and so on? Or does she just need less of them?

This got me thinking, do we all have such very different needs firstly for contact with other people, and secondly beyond that, what I somewhat inadequately call deeper or more meaningful interactions (a good conversation with a friend you trust and can be “real” with,  as opposed to eg a passing interaction in a shop or talking to a work colleague – all are important but I know I very much need to be able to share how things really are sometimes, not just keep up the acceptable businesslike front where I seem to be well and in control of myself! ).

What do you find that you need? What is important to you in a friendship? How do we know which is normal?! I think my therapist would say that’s one of those questions where there isn’t a definite answer right or wrong. … I’m left wondering in this friendship,  firstly if she’s really okay or not and then how can I be there for her, when she has no interest in regular contact? How do we keep up a friendship with someone whose values here are very different from ours?

Ginny xxx

Scared I’ll lose it again

Tomorrow I have my usual weekly group therapy, then I have my monthly care coordination appointment (it’s supposed to be monthly but has been canceled more often than not since October last year). It’s challenging at the best of times when this appointment comes round, especially when it closely follows therapy group on the same day, which is draining in itself.

I’m very worried about the care coordination tomorrow. Last month I was really upset and desperate in the appointment, didn’t get the help I felt I needed to stay safe and left wanting to end my life and overdosed. There was a complete lack of understanding between me and my care coordinator.

I’m scared something similar may happen. I’m scared that I might lose it like I did a couple of weeks ago. I’m so so ashamed of that and I feel dread when I think of it. I’m scared I won’t be able to control what I do and it’ll happen again because I’m so unstable right now, flicking into distress and hurt and anger so quickly.

Also, I’m scared because there are really difficult things I want and need to say. I can’t say everything’s good and fine or that I’ve made progress; I can’t say I think I have the support I need because there are massive issues and have been huge failures in communication and so many things promised have not been acted on. I now operate by expecting nothing from the service and expecting whatever is arranged not to happen. It’s “safer” that way. It doesn’t open me up with hope and trust then twist the knife with another let down or betrayal. It means I don’t ask for help either.

I need to communicate these things. I never do, usually, but if I don’t there’s no going forward. So I’m going to try to say at least some of them and write a letter as well in the next few days.

I do not know how to stay calm whilst I do it. How do you stop yourself losing it? How do you control the aftermath of feelings without harming yourself? How do you keep your emotions level when things that are really deep hurts to you, are unanswered or ignored?

I’d be seriously thankful for any suggestions!

Ginny xxx

Monday again

I’ve been off work nearly a week because of annual leave for hospital appointments and my usual rota’ed weekend off. I’m really nervous about going back tomorrow. I seem to remember posting on this topic before! Such a small thing but causing me so much anxiety at the moment and the more I think how I shouldn’t be anxious the worse it is, so I’m just trying to walk forward and give my best in each moment and find every little opportunity to see good things and do good things.

How do you feel as the new week starts? You are in my thoughts and I wish you something joy-giving and something grounding in every day.

Ginny xxx

Crisis Plans

Last week, after the really distressing meeting on Tuesday, where I completely lost it and just screamed and screamed, I had another meeting with the same CPN on Thursday. It went quite well although I am still reeling from Tuesday. I never lose it like that when anybody else is around. I do that alone at home, usually at night, usually cutting myself before I can reach that point, because it stops some of the noise in my head for a while and quiets the fury and hurt. On Tuesday all my control methods didn’t work and the worst of me exploded. Since then I’ve been feeling both raw and outside myself at the same time.

We tried to come up with other ideas for what to do when I am extremely distressed when I am on my own, other than always turning to cutting or overdosing. The problem is that no matter how harmful those things are, they do “work” to stop the feelings (if only by stopping me being conscious!) punish myself, so bring down the emotion and enter a state of numb nothing for a while, or at least explicable pain.

One of the things we came up with was the Rescue Box, which I’ve posted about previously. I’ve committed to making that up this week.

The other things my CPN suggested were: putting my head under cold water eg cold shower for 20 seconds, to shock the body and so bring down the emotion (a bit like the lemon juice idea!), starting some activities that would give me more social interactions and so leave me on my own less, developing a relaxing routine for evenings (which I’ve got out of the habit of), and sorting out my dodgy internet access so that I can have more contact with people via blogs and similar, as well as making use of online resources for relaxation and mindfulness.

I’m not very sure how this is going to go. I’m starting with small steps, making up the Rescue Box this week and getting in contact with my internet provider.

A large part of the problem for me is that all these techniques are great ideas but I too quickly reach too high a level of distress to be able to use them. When I’m in that state, or when I have more of the psychotic symptoms (which tend to accompany higher distress), it’s as if the part of my brain that would reflect enough to try one of these techniques just shuts off. I have an overwhelming need for someone else to keep me safe and almost hold me and ground me and prove something exists beyond the fear and distress. But the PD Service seem absolutely against anything that would lead to me not being on my own in these situations (like being referred to the Crisis Team who’d come to see me at home, or being admitted when I’m overdosing etc). I’m not entirely sure why. They are written into my “crisis plan” as ways to keep me safe when I can’t keep myself safe, but when it comes to it they are withdrawn or refused. This is something I’ll be talking more to my 1:1 therapist and/or Care Coordinator about.

I guess I have to learn to discover earlier when the extreme feelings are coming – at the moment they spring up at me from nowhere and that’s terrible. It feels very out of control. There’s no doubt that as I’m experiencing more emotions, I’m becoming less stable.

I’ll post an update on how things are going with trying these techniques.

Ginny xxx

Walking this Borderland #9: My rescue box

Eee, it’s been a long time since I’ve added to this Series.

My CPN and I talked about the following idea today. I’ve been meaning to put this together for a while.

All the other ideas / coping techniques I’ve written about so far in this Borderland series are things I’ve tried or do use currently myself. This post is a bit different because this idea is new to me and I’m going to be trying it out for the first time, so I can’t yet say how helpful I’ve found it. (Updates will follow and I’d love to hear from you if you use something like this!)

I’m going to make a “rescue box”. I’m not quite sure if that’s what I want to call it but for now, it’s what I’ve named it. Apparently some people call it a suicide box because it’s a box full of things to turn to when you’re feeling absolutely at your worst. I didn’t want to call it that because it emphasises the terrible feelings more than the good I’m trying to climb towards.

The basic idea is to make up a box filled with things that help you to cope in times of extreme distress. This works well, I’m told, if like me, you find sensory or tactile things helpful and grounding. As I think I’ve mentioned earlier in this series, in personality disorder when emotions are overwhelming, introducing other, soothing sensations can help bring the emotions down. You can also put things in the box that remind you of good times or reasons that you do keep going every day, or anything that triggers positive memories and thoughts in the hope that in the long run making more and more positive memories makes these stronger than bad memories or obsessional thoughts.

I’m new to this. I’ve been trying to think of things I could put in my box. Here are a few things I came up with:

  • A special smooth pebble that I collected on the beach one good day, which I find very soothing and grounding to touch. It also reminds me of the sea. Walking along the coastline and watching the sea always assures me of the presence of creation and love far greater than ourselves.
  • A small stuffed animal – yes I may be an adult (perhaps 😉 ) but I still find soft toys comforting.
  • A particular book that never fails to encourage me (more on that in another post).
  • Photos of my godchildren whom I love very much; seeing them always brings me joy.
  • A list of people I care about whom I can pray for or do something nice for – maybe write a letter or a card. This reminds me I’m not alone and helps me focus outwards on other people rather than my own problems.

That’s what I’ve come up with so far. I’ll post some pictures as I make up the box.

I have the feeling that the hard thing is going to be remembering it is there and being able to use it when I really need to. I can have coping strategies but being able to turn to them rather than a destructive “coping mechanism” is the hardest thing.

Do you use a box like this or anything similar? How do you remember to use it in the hardest times? Does it help when you’re distressed as well as when you’re feeling okay?

Ginny xxx

What do you do to stay safe?

Today I’m going to the hospital again for another meeting with the CPN. I’m very scared of going after I lost it there on Tuesday. I think I’m scared what will happen, scared of losing it again, ashamed about what happened and still feeling very out of it, although not in the way I usually am when I dissociate. That gives some kind of protection. This is raw at the same time as shaken and disconnected.

Also I’ve got an inescapable question that has been in my mind for several weeks. I’m not at all stable or safe at the moment. I want to continue with therapy. I committed to the group that I’d do it and not give up. I promised to God and Mother Mary in prayer. I’ve made quite a few sacrifices for it – I don’t think I’d have had to leave my last job if it weren’t, at least in part, for my therapy appointments (though my last employer were definitely at fault too, in my opinion). I’ve seen the therapy as the only hope of learning how to get better and manage my condition. I’m privileged to live somewhere MBT is actually available (there aren’t specific PD services in all areas of the UK). I really don’t want to have to stop therapy.

However, at the moment I’m actually more unstable, at least in part because of the therapy and the emotions, memories and questions that it raises. This isn’t necessarily a bad thing. Other people tell me they can see positive changes in me, for example communicating more clearly about emotions and things that happened to me in my childhood, none of which I can yet see for myself. However I trust the people who tell me this and think it has to be a good thing. It’s another thing I don’t want to waste.

So the big question is, what to do.  I can’t keep myself safe at the moment. For example I’m “coping” by cutting, taking overdoses or higher than prescribed doses of medication, drinking* (and this really isn’t me, I do not enjoy drinking in this way), escaping from daily life by ignoring letters, calls, etc and not able to keep on top of the basics of looking after my home and myself (cleaning, cooking etc). I’m more unstable in my moods, especially anger, and I’m struggling more to hide everything to try to participate in daily life by eg going to work. Things like hallucinations or paranoid thoughts or feeling dissociated are pushing their way more into the working day.

I don’t know what to do to change this.

I’ve some hope that medication changes could help and I’m seeing the psychiatrist on Friday. But I doubt that’s going to be the only answer. I’ve tried to exhaustion (both daily and when in crisis moments like the extreme distress or wanting to end everything) the techniques I know like distraction and grounding and self care / self soothing (this latter is very hard for me to do when I feel as I do about myself). It isn’t working. And I feel that the things other people could do to keep me safe, many of which are on my crisis plan, are not happening or not working either. I’m experiencing more and more let downs where xyz help is promised then doesn’t materialise (appointments canceled, calls not returned, planned sources of support withdrawn, mistake after mistake, discharge plan not followed). Or I’m told that the help I want to keep safe doesn’t exist or I don’t qualify. What is offered – and don’t get me wrong I’m grateful that it is offered and I know it’s more than many other services provide – is not enough to keep me safe. For example when I’m suicidal a 5 minute telephone call may calm me a bit for a few minutes but an hour later in usually feeling worse than before and – this is key I think – still on my own trying to cope.

What do I do in this position? Are there other techniques I can learn to cope better? Are there other or higher doses of medications? When I so so much feel I am not safe on my own and really need someone with me (especially when I’m really distressed but also day to day because the slightest thing, as little as a letter that makes me panic or a canceled appointment,  can thrown me into extreme distress, self harm etc) what can I do? The PD service are adamant I mustn’t be admitted and don’t qualify for any carer help and ongoing support in person isn’t possible. I haven’t any other way of getting that kind of support. I live alone, my dad and step mum live hours away and I don’t have friends very locally or whom I see regularly.

So how do I do my therapy and stay safe as well? How do I either answer this need not to be on my own when I’m so much at risk and unstable, or what solution do I have to learn instead?

What do you do to stay safe between therapy appointments or between times you can access support?

I know this probably sounds silly and I do get a lot more support than most people and all I’m talking about coping with is simple daily life. Right now this is where I am.

Ginny xxx

*just to be clear, I’m not diagnosed with any alcohol problem and I’m not comparing my struggle with that of someone who is struggling with alcohol or other substance use. That is a much more painful place. I sometimes use what is probably an objectively average amount of alcohol taken with my tablets to make myself fall asleep when I can’t cope. Not a great thing to do but I’m not trying to compare the two.

Silly post, but just to hold myself to it!

This is a pretty silly post but I’m writing it here in order to hold myself to it, because if I write it here I’ve made the commitment to all of you (lovely readers) as well as myself.

I went to group this morning. I’m so boiling with feelings and hurt and loss and anger (not with group or anyone in it but with the whole PD Service). I desperately need to shut off and the best ways I know without help are things that hurt me. And it’s very possible I could just go home and do that and dissociate or literally knock myself out. I am going to try to make myself take another action instead.

I commit that this afternoon I will write a card to send something to my step-sister that she needs. Then I will clean in every room in my flat. It is in a complete state as i have not cleaned or cared for it in the state I’ve been in in the last two weeks. I may not finish all of it but I will vacuum everywhere and I will clean at least three things in every room (it’s a small flat!).

And to keep going in the promises I made in my commitment to getting better, 5 things I’m thankful for today are:

  • I have a flat of my own to live in (well I say my own; it’s rented but it’s home and I’m blessed to have my place and my safe space).
  • I went to therapy today and talked about horrible feelings and the other members of the group listened and didn’t treat me like a freak. They actually seemed to understand.
  • I saw an old friend yesterday who I have not met in years. She seemed happy and well and she’s having a baby very soon.
  • My step-sister and I are getting in contact with each other more.
  • Um… I didn’t have to wait ages for the bus back to town after therapy, does that count 🙂 ?!

I’m wishing for something good to happen to you today.

Ginny xxx

Walking this Borderland #8: when it costs to smile

I don’t think that the saying “it doesn’t cost anything to smile” is true. It can cost a very great deal to get up, step outside, meet anyone’s gaze, smile, speak, even keep breathing, when you are crippled with anxiety, voices in your head, emotional pain, traumatic flashbacks and hurt or sadness that hits you any time, anywhere.

I believe in still trying. Through this cost, keep on trying to smile. Through the awful feelings, trying to do one little kind thing for another person and one little kind thing for ourselves. We may not succeed but the will is there. Only we ourselves and God may know the huge cost. Yet good will surely still come of the action, however small. We have taken an action opposite to our illness, opposite to the inclination of our anxiety and hurt, choosing goodness and strength.

This is a small victory and a small step forward in hope.

I emphasise that I do not mean we should try to push away what we are feeling, deny it or tell ourselves we mustn’t feel it or aren’t allowed to. Far from it. We should do quite the opposite. But every little action done in love – for others and ourselves – is a choice for good. When we are suffering very much and when it costs very much to smile, then every smile and every action is worth all the more because it is necessarily done with greater effort and greater love.

What makes you feel loved?  How do you love?

Ginny xx

What do you hold onto in the darkest times?

I’ve posted before about how, like many people with Borderline Personality Disorder, one of the things I find hardest when I feel really bad is to hold on to any knowledge that it will not always be this way. The overwhelming emotions – especially fear, sadness, loneliness, anger, pain, frustration, self hatred, self disgust, hurt, distress, longing or needing, or the feelings I can’t yet name that come with flashbacks – they eclipse everything else and become all that exists.

I wonder if their power is greater if I fear the emotion I sense. But the totality of the experience, their consuming nature, makes them the more frightening.

Descriptions of this emotional experience in BPD often term the feelings intolerable or unbearable. It is that but it isn’t quite either; it’s not all of it. Intolerable, more than I can stand, yes… but it’s not something I can’t stand because it’s me. In that state there is nothing but the emotion and there is nothing of me but the emotion. I cannot stand it but neither do I exist apart from it.

I hate it so I hate myself. I must get rid of it, purge it, so I must get rid of myself and cut away the bad – so I cut.

I can name some of the emotions afterwards. Maybe the therapy is helping me to do that. But in the experience, I cannot. I cannot recognise anything but hurt and pain and hate and evil (me); I cannot hold in mind anything but the impulses to cut, run, scream, end it, reach back for numb. .. and I am gone. ..and I spin between cut off and unable to feel and any attempt to engage being painful, and the state of total emotion, of only existing as that pain.

I cannot control it. I cannot bridge that gap. Therapy is helping me identify what feelings are. But it doesn’t separate them from me, from time, from permanent reality, from right and wrong. It doesn’t tell me how to feel, rather than be, the emotion. It doesn’t tell me how to bridge the gap between the different people I become – the cut off numb one;, the one that hides everything to cope day to day and do what I’m meant to and fulfil my responsibilities and pretend and hope I could ever be good but knowing all the time that everyone really knows how fake it is and how evil I am deceiving everyone; the frightened needing child; the angry, vengeful and impulsive one. More and more they seem to be separate personalities. I am fragmenting. I am more unstable. I lose more periods of the day – when I’m in one state I cannot “access” the other and I can’t remember things that happened (though I may remember the state). I flick so quickly between states without being able to engage my rational mind and try to employ any grounding techniques or DBT techniques to control my behaviour or my experience.

I guess it’s good that I can start to be curious about the process, from the temporary relative stability of my “coping” state. It must show I do have some ability to learn to mentalisa about what’s going on in my mind. Usually my “coping” state would be trying to suppress what I’m exploring right now. Perhaps eventually I’ll be able to build a more curious and stable personality at least alongside these others.

What do you hold on to when your whole reality, your whole existence, is unbearable sensation and emotion? It sounds utterly stupid. It sounds utterly out of proportion. It sounds self centred and I am forced to admit that though it’s the very last thing I want and one of the things I most hate in myself, in a way it is, though at the same time self has got totally lost in the feeling and emotion coming from everywhere.

What do you hold on to when you can’t access your coping strategies or even your most rooted beliefs and deepest cares? I love my God and know God is mercy and compassion, but in the bad states I can only conceive of a vengeful God or a God casting me out. I love my godchildren, I care about keeping my commitments at work,  but in those states I can conceive only that I do everyone harm and everyone knows I’m bad really and would rather I weren’t around. The centre of my beliefs and values warp according to the state I’m in.

What to I hold on to?

Ginny xxx

Turning on the light

Turning on the light

“Happiness can be found in the darkest of times, if only one remembers to turn on the light.” – Albus Dumbledore, “Harry Potter and the Prisoner of Azkaban”

J K Rowling / screenplay by Steven Kloves

I think I’m still stumbling around in the dark banging into things whilst I’m looking for the switch, but I’m trying…. 🙂

xx